Just diagnosed. Mom is in stage four!!!

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  • didda566
    didda566 Member Posts: 102
    edited June 2006
    All right, I am over my poor me.
    Mom goes for her "simple mastectomy". I was there to hear the information. Now that I have the hospital info, what do I need to know to keep Mom comfortable, and feeling good?
    Any tips?
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2006
  • csp
    csp Member Posts: 2,765
    edited June 2006
    I went out and got my sis some button up the front roomy comfy nighties and a small pillow for under her arm.
    things to have on hand senecot s ( ask her surgeon first!)
    and easy things to cook microwaveable stuff fruit
    her favorite snacks. House cleaning, errands ,have all her rx's filled and on hand (keep ahead of the pain easier to control) rent some funny movies or easy light reading.

    I bought my sis a bird feeder and put it up outside her bed room window and filled it when it needed.

    Hope this helps ~
    Carrie
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    They say she will be in for three to five days. How long before she is out of bed? Her doc wanted to start her on tamoxifen. Will this be delayed?
    I am so anxious to know whether the chemo helped. Scan on Wednesday, mast on Thursday.
    Thanks for the ideas!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
    Didda...I'm sorry you are going through so much at once! It doesn't matter how old someone is...it is still a hard loss and it still leaves a void!

    I'm glad you feel like you can come here to vent...sometimes that's exactly what we need!

    Hugs to you,
    Peggy

    image
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006
    566,
    It will get better, right now she feels awful and looks it as well. After a few days she will feel a bit better, especially when the drains come out. Those things pinch like the dickens.
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    I take Mom in at 6:45 am tomorrow morning for her surgery.
    We went to Summerside today for a Cat scan. I am nervously awaiting those results.
    I don't know why we ended up in Summerside instead of our hospital, but what a lovely hospital it is in our second largest "city". The machines are new too. Mom had a first scan in Charlottetown and so thought she knew what to expect.
    I was sitting in the waiting room and heard Mom shout and then start laughing. The Machine "talked" to her. It told her to breathe and then hold her breath. The technicians got a good chuckle out of it too. In Charlottetown, the technicians do all of the talking, giving the directions!
    Send her some prayers that the surgery goes well tomorrow!
  • csp
    csp Member Posts: 2,765
    edited July 2006
    Lots of prayer going up for mom tonight sweetie
    and for in the morning. give her a hug from me and a big hug for you too!!

    Carrie
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006

    Praying for you both, and your dad too!

  • didda566
    didda566 Member Posts: 102
    edited July 2006
    Sher came through surgery well. She is still smiling. It went smoothly. So smoothly that she was in and out and in her room by ten in the morning.
    She has her drain in. I didn't realize it filled with blood. So much we just don't understand until we see.
    I did see some pictures of scars. So seeing the diagonal cut across her right side wasn't a shock.
    She is hoping to be home by Sunday.
    Her roommate is a 92 year old with bladder problems. Yikes!
  • csp
    csp Member Posts: 2,765
    edited July 2006
    Thank you for updating us on Mom .
    I am so glad the surgery went off with out a hitch, and Mom is smiling. There are pics here on this site from show me..
    have you seen them yet? Honestly when I saw my step moms and mother in laws mast scars it was'nt bad , but keep in mind there will be some bruising and swelling at first.


    Her roommate is a 92 year old with bladder problems. Yikes!


    Hugs,
    Carrie
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006

    It is just drainage 566, not painful really except the drains pinch. I hope she can rest well at the hospital.

  • didda566
    didda566 Member Posts: 102
    edited July 2006
    She got home today. We picked her up this morning. She was supposed to go home YESTERDAY - the day after the surgery- but she has an appointment to see her onc.
    And good news! The lesions on her lungs are getting smaller. Mom said he came into the room smiling!
    She is so happy.
    More good news. Mom can feel her hair growing. And it must be 1/4 of an inch now.
    We are in our happy places now.
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006

    Congrats 566! To come home and know chemo is working is huge!

  • csp
    csp Member Posts: 2,765
    edited July 2006
    Happy dance~ Happy dance for you and Mom !!!!
    SO glad she is responding to the chemo

    give you and Moma a big happy hug from me!!!!


    Carrie
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    Mom's having a difficult time with regards to fluid and swelling. She went to get some of the staples out today. If she is up and about, her mast feels better, but her leg swells from all of the action. If she is laying down, her leg is better, but her chest swells.
    She is as we speak, in her laz-e-boy, but cannot sleep there all night.
    (BTW Her surgeon came into the room talking about the chemo. He was going on about how well is had worked. So everyone seems to be happy.)
    Now if we can get this broken left leg and right side to stop swelling and collecting fluid. (Saying that, I should also mention that she is using a walker to walk, since she in only allowed to put 50% of her weight on her leg, so her arm is getting a workout consistently.)
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006
    hmmm I would call the doctor, and see if he has any ideas on how to keep the swelling down. Many sleep on a recliner while recovering. I am not much of a recliner person so I did not.

    Tell her happy healing 566!
  • csp
    csp Member Posts: 2,765
    edited July 2006
    Boy I don't like her having to use her arm like that.
    don't mean to be a party pooper, but that worries me.
    I was going to say the same thing about the recliner.
    Did they check the drains?
    I would call the surgeon too. Can she use a wheel chair
    because of risk of LE? There might be some kind of PT
    she can do in a sitting position for her leg to and arm
    with out putting weight on them to keep the swelling down?

    hugs,
    Carrie
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    1: What the heck is LE?
    2: I will ask the doc on Tuesday.

    Mom has inclined her bed, so she is getting both taken care of.
    And I agree on the arm, Carrie.
  • csp
    csp Member Posts: 2,765
    edited July 2006
    lymphedema
    (LIMF-eh-DEE-ma)
    A condition in which too much lymph fluid collects in tissue. This causes swelling. It can happen in the arm after lymph nodes in the underarm are removed. It can also happen if there is radiation to the lymph nodes or chemotherapy. It can get worse if the arm is hurt in any way.

    Heres links:Just click on the links

    http://www.breastcancer.org/search/?sp-a=000712f7-sp00000000&sp-p=all&sp-q=lymphedema


    http://www.breastcancer.org/lymphedema_avoid.html
  • didda566
    didda566 Member Posts: 102
    edited July 2006

    Thanks. Mom didn't have anylymph nodes removed. Is there still a chance she will get it?

  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006
    She has breast lymphodes removed, it is normal to have them out. They check to see how far they BC goes. As they scoop tissue breast lymphnodes come out.

    I hope she is better soon, still praying.
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    Mom came in and spent the night at our home in Charlottetown Monday. She got a call on Friday saying taht her clot factor is too high and that she needed to go back in on Monday. So Monday we were at the hospital and Tuesday all morning we were running around.
    She had to see her "bone" doctor. She doesn'tlike his nurse and so goes directly to the doctor, even when told to wait! He is a great guy too. Well, Sandra, I do believe we will order the x-rays. Next time, just tell the receptionist to fill out the request and you won't have to wait!!!"
    Her leg is healing, filling in nicely, much quicker now that the chemo is over.
    Her mast incision is healing nicely. All staples are now out.
    We rented her a wheel chair, to help manoeuver her whenever we go somewhere that requires a bit too much walking. Her left leg and right mast don't make for easy mobility!
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006

    566 she might qualify for a wheelchair through Medicare. Is she on medicare? I can't remember her age! Anyway you can get on for free if she is.

  • didda566
    didda566 Member Posts: 102
    edited July 2006
    Mom's clot factor (INR) isn't settling. SHe is out of range again.
    She also got an infection in her mast. site. She has been on antibiotics for a week now. We go and recheck tomorrow.
    Today we went for bone stregthener.
    Her wheelchair isn't through medicare. I don't think she is eligible as she has no private healthcare. It was only $50, so she doesn't mind. It is just a push one, to help us get her around when she is too sore to use her walker.
    Overall, she is doing well.
    Here is a funny question. Whenever someone asks me how she is doing, I always say great, because she is. They then assume that she has been cured. Here, I have two choices. I can do the full story, which most don't want to hear, as it isn't short and sweet, or I can slip around the subject. It is a little awkward. I am sure they are only asking to be polite. How much should I divulge?
  • cowgirl
    cowgirl Member Posts: 777
    edited July 2006
    You say what you feel is okay for that person at that moment. Some people would ask about my mom and my pan answer is Fine. Now someone that knows her struggle is concerned for her and me I say Fine but she is going down a bit each day. No details, just what is requested.

    Many people ask to be nice, others ask because they care. Say what you feel is okay, don't worry about it. People need to understand Cancer is a long treatment, not a quick fix.
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    Just to complain for a minute here. I told Mom that whenever she needed me she could call. So now that I am home on summer vacation from my job teaching, I am driving out to get her every day that is needed and taking her home. On days when Dad is off, she calls. I have to balance her, the kids and my home life.
    I told her that next week, I am on a one week course and told her that Craig (my dh) would drive her in for her INR check. She also has an extra one, a visit to the surgeon and a onc. doctor check up, on three different days. When I told her to get Dad to drive her in on Tuesday, she said that Craig could do it too.
    On top of that, my sister is angry that Mom won't let her drive her in. Mom refuses to have my sister. (Not that I blame her, as my sister is eternally unhappy, constantly seeking attention and extremely negative - all traits that aren't good when you are dealing with cancer). Her nose is going to be even more twisted when she realizes that a non blood member of the family is going to be driving her to town.
    Mom needs rides in to her appointments two to three times a week. I love my Mom, so I won't complain to her. I am happy that she trusts me, but it's hard to get the kids to their sports days every morning, hard to plan summer around my Mom. I feel like such a b***h complaining, as what is a little inconvenience when it comes to Mom's life and health, but still...
    Mom's incision got infected, btw. It broke open and she had STUFF running out of it on Tuesday. IT was SOOOOOOOOOOOOOOO gross. I took her in to the doc and all he did was tell her to put compresses on it until all the infection is drawn out. She said it is slowing down now and not sore, so I guess it is coming out. But man! How much more does she have to go through?
  • jessmom97
    jessmom97 Member Posts: 2
    edited July 2006
    my mom was diagnosed with stage 4 BC in Sept. she had a double mastectomy and had 27 out of 31 lymphnodes positive. It is now in her spine as well. She has completed chemo and 3 wks. of radiation on her lower spine. She started radiation on her chest wall and arm pit this week. She is still so VERY tired and has not gotten any energy back since diagnosed a year ago. I guess my biggest question to all is... is that normal to have that low of energy for so long? She is still working but no really doing much else. Any info. would be helpful.
  • didda566
    didda566 Member Posts: 102
    edited July 2006
    I would like to help you, but don't know the answer. Mom was diagnosed in March, but hasn't had any radiation. She also doesn't work, and has a broken leg. She got lots of rest during her chemo and still now. She cannot drive and cannot remain standing or walk for long periods of time.
    You should post as a separate entry so someone can answer you.
  • csp
    csp Member Posts: 2,765
    edited July 2006
    Jess,
    Radiation is famous for causing fatigue. Chemo also wipes
    Our loved ones energy some more so that others . It takes a long time to recover from all their bodies have been through. Chemo, Rads , Surgery, pain and if she has mets that
    zaps the energy also. Please make sure to mention any troubling symptoms to her medical team. WOW ! she is working too, No wonder the poor sweetie is tired !


    566didda,
    Why don't they have mom on an antibiotic ? that was my first thought. Hey you know better than to apoligize for
    complaining it is okay this is alot ,and is emotional draining as well!

    ((((hugs))))

    Carrie

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