CMF Question

Dianarose, sending you good vibes for your surgery.  Let us know how you are doing once you are up and about.

Hugs, Mandy

All the best Dianarose x

Starting tomorrow....Just want to know what to expect....a bit nervous but mostly looking forward to the knowing part. Is it true that whatever reaction you get the first time is pretty much how you will react, that it is not cummulative?

Today my DD (7 years old) said to me, "Mommy even if you go bald it'll be okay."

Dianarose, hugs~~~ yes, it will all passed! We are just taking a break now cuz we were running too fast! Thx for the asking, I'm doing fine with the 2nd treatment and it seems slowing down on the hair falling too! We all love you and pray for you. <3<3.....</p>

Jojo- sorry you have to join but it's nice to have someone else currently doing cmf as I am done with 3 treatments. I found that the first tx was easiest and the second and third were pretty much the same although I felt a bit more se interms of nausea ans fatigue than the first but they were pretty much the same. The day or two after aren't so bad for me- its day 3-4 that I feel achy and fluish and just yucky. The nausea is still the same with all tx and by day 5-6 I'm pretty much ok.



Are you doing every 2 or 3 weeks? I am every 2.



Also it seems for me that days 3/4 I see more hair in the shower but then it stops. Hopefully that will continue to be the same.



I think the hardest part is knowing you have to do it all over again. Next week is my 4 tx and then half way done!



I find the other chemo boards helpful but overwhelming bc people have such different protocols and the se seem much greater.



Good luck and we can get thru it together!



Jsrose

Jojogal123

You have the first treatment over. I think this is a big hurdle as now you know what to expect as far as the procedure itself and you will be more comfortable going back for the next one. I see you are BRCA+ and triple negative so chemotherapy is your chance of nipping this in the bud, since you won't have the option of tamoxifen or AIs. I'm curious whether the doctors suggested only CMF as a therapy.

Good choice to have your treatment on a Thursday so you will have weekend to take it easy. It must be difficult going through this with a seven-year old. Typically I felt OK on day of treatment and following day, then bad the next few days partly as the anti-nausea meds wore off.

I found the SEs cumulative, particularly the tiredness and of course that got worse during and after radiation. But with zero positive nodes not sure radiation will be recommended for you.

MaryNY- I am thinking twice now if it was a good idea or not. I am still in a fair amount of pain.The Anesthesiologist was not gentle at all. It feels like she broke my jaw. She also put a tube down into my stomach to deflate it. I have been coughing up blood, not hungry at all, and I have to hold on to my stomach to cough. The cut she made on the left side is black and blue. My ribs hurt where the ps cut to remove the TE's. My back hurts too. Just a hot mess today. I hope it gets better soon. I have an appointment on Monday with the PS. I am hoping to be able to ditch the compression bra. It is so tight. I feel like I am being squeezed. Just need to feel better so I can go back to work. I was hoping to go back tomorrow, but I know that's not going to happen.

Hope things are going well for everyone, Diana

Dianarose, so glad to hear from you! N knowing you are doing ok! God bless you

Hope you can get more rest before to work or anything. Since it got all fixed,we need to love ourselves and take very good care of ourselves from now on! Hugs!,

So sorry to hear about your path report Dianarose.

I am lost for words but know you sound like a strong woman and will put on those girly pants to get that bitch in there!


Sending big cyber (((hugs))) xxx

Awww Dianarose  we are here for you  ((hugs))

Robin

DianaRose,

So sorry to hear this news. Time to put on our capes and become Superwomen... Fight time ladies!!!! 

MO made the idiot pathologist do the fish test for the HEr2 and it was negative not positive as he had put on the report. He never did the fish test so how the hell did he come up with positive to begin with. My ovaries and fallopian tubes were sent to a lab in Boston. We are not trusting this guy. I was doing a lot of crying when I first found out, but this is going to sound weird, but it is a relief to not always be waiting for that other shoe to drop. It has dropped and now I have to deal with what I have. I always knew that I was going to be stage IV at some point, I just didn't think so soon after chemo and rads. F'n bc doesn't let up and let us have a break.

Today is my 3 rd chemo, for some reasons, I feel so tired... It might be on my period but felt so fatigue since last night. Slighty headache but I can take it. Saw a lady at infusion center said that today is her last treatment. It took almost an year to complete the cycle cuz there are couples of times thr blood tests are not qualified. Feels great for her to finish this stage. It's always nice to talk to the people!

OMG!!!! 1 more to go. This is like a marathon and finally seeing this finishline!! Tired as hell. My 7th treatment was blah. I was sick & couldn't finish work on Thursday. Fri was better & yesterday I went to my son's football camp at CCSU campus. Why??!! We walked all over the place... uurrgghh!!I'm laid up in bed exhausted today



But yesterday was great the school really wants my son there, and I just keep thinking 1 more treatment. This has been a long ride starting on Valentine Day. Some love affair. Lol

Softness: Congrats on your son's football camp getting the school interested in him. That is great news. And great that you have 7 out of 8 down.  I also got more tired as my tx went on -- after tx 8 I was pretty tired and had to begin back slowly. But within a month I was raring to go and walking miles  every day. 

Hugs to all.

Mandy