What did your lump feel like??

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kennessee
kennessee Member Posts: 42
edited June 2014 in Young With Breast Cancer

Hello!  I am not diagnosed but have definitely been getting the run around from doctors.  I'm 27 and have about 6 lumps in my breasts right now.  I had 3 fibroadenomas removed last year.  My breast surgeon does not want to biopsy any of the remaining lumps I have- just wants me to keep coming back every 6 months which I have been doing and every time I ask for a biopsy I get "You are young.  Probably more fibroadenomas."  Ok, with that background....

What did your lumps feel like?  Between all the lumps I have, most are smooth and round and I'm not really concerned about those ones.  I have 2 that I am concerned about, however.  One feels like it's 2 lumps that merged together in a figure 8 shape.  The top part is small about the size of a pea and the bottom is about the size of a small marble.  It's located near my areola about the 1oclock position.   The other lump that worries me feels very lumpy/gritty.  It's in the top middle of my breast in the 12 o clock position.  

My anxiety is really bad right now.  I've asked for a second opinion and my insurance will only cover the new breast surgeon to look at films and not examine me.  I just feel like no matter what I do or how concerned I am, the doctors make me feel like I am a hypochondriac and that cancer doesn't happen to young people.  Did anyone else have this problem as well?  Or tons of fibroadenomas that turned out to be nothing?  

Comments

  • wornoutmom
    wornoutmom Member Posts: 90
    edited April 2011

    Hi,

    I have never hae fiberoadenomas and honestly don't know what they are.  I can't say that I had a mass knot as I called it, very bumpy mass.  It was tender to touch which I was told cancer is not painful.  I was diagnosed several times by a more than one person as having clogged duct.  It didn't seem to sit 100% with me so each time I went in I would ask again and was told it was clogged ducts.  Then I found a second lump.  This was classical BC.  Small pea sized lump that felt flat to me (the sites say sharp edges) and no pain and in the chest wall.  They took this seriously.  In my core biopsy I learned the first lump had been in-situ BC the whole time allowing 3 years to pass. The second lump grew and this one was invasive.  I too am young and they said I am sure it is nothing 9-10 times it is benign.

     Point being both lumps were very different in shape and I learned a big lesson.  Demand the extra tests.  I would rather have an unnecessary negative than to end up like me finding out they are wrong.  If they are giving you issues I would say you would like it in writing that they are unwilling to give you the test.   I have heard several times on here there are false negatives on tests and I would bring that up especially since younger woman's breast are harder to read.  They told me due to being dense and I said whose breasts are you talking about I have 3 kids..lol  If you have the tests it will also help relieve you.  I don't want to scare you about the tests but rather it may help you get the tests you are wanting.  

    I am hoping you are among the lucky and this is a false alarm Smile  If you have several bumps my doctor told me draw a diagram and name them.  He said it sounds crazy but is the only way you will remember to monitor their size.. 

  • mebmarj
    mebmarj Member Posts: 380
    edited April 2011

    Wondering what films you have had? Just mammo, US, maybe MRI?

    Is there a history in your family? That can go both ways. Some women do have a hereditary link, but most do NOT.

    I like the above suggestion to find them and name them. Maybe what size they feel. I had seen a suggestion a while back to get a really thin bra and diagram with a ballpoint pen the location of anything you feel. That way you see if it changes with cycles.

    I could have described mine a a rough jelly bean and a small grape.

    Take care of yourself.

  • kennessee
    kennessee Member Posts: 42
    edited April 2011

    Warnoutmom- thank you so much for your reply.  I am seeking a second opinion on this.  I had to get my films ( which the surgeon's office gave me most of the ones from a year ago and 1 that was taken recently... I should have more films than that ).  However, this new surgeon isn't even supposed to examine me.  Just review the films.  *sigh*

    Mebmarj-  I was refused a mammo by the Breast Health Center here and my surgeon b/c of my age and "Dense" breasts.  I have two kids and my breasts sure don't feel dense.  I have had ultrasounds by the surgeon the past year.  They are always rushed, he never explains anything or tells me if anything has changed.  I feel like the lumps have changed and I'm really worried about the one that is gritty.  It almost reminds me of a fossil-  gritty, like it's full of holes or something.  I thought at first maybe it was my tissue but it is clearly a shaped lump and the areas around it don't feel this way.  My other breast doesn't feel that way either.  My grandmother had stage 3 breast cancer at 69 yrs ( not sure which type ).  My mom says my great grandmother had BC too.  None of the women in my family have had a diagnosis of BC but they are all so young still.  Most of my aunts are in their 40s and my mom is only 45.  

    I do not know the history on my father's side.  My parents divorced when I was 4 and that side of my family tend to exaggerate to the extreme so I would not know what to believe anyway.   

  • dogsandjogs
    dogsandjogs Member Posts: 1,907
    edited April 2011

    My first cancer lump felt like a piece of gristle imbedded in meat or like a split pea?  Very hard, rough edges and could not be moved around at all.

    The second one was also very hard, but felt flat and the edges were smooth and I could move it around a bit. My ob/gyn did not think it was anything, but sent me to the breast center the same day (thank goodness) 

    Both were IDCs and both measured 9 millimeters.  Odd how they were both the same type and size even though 28 years apart!

    Best of luck to you. Hoping for good results!

  • kennessee
    kennessee Member Posts: 42
    edited May 2011

    Just a little update....

    I had a bilateral ultrasound done today.  I have 3 lumps in each breast.  I was told that they all "look benign" and said to follow up in a couple days with my surgeon and decide what we want to do.  Hopefully I can get a core biopsy done.  I just met a girl here who is my age and she told me she had breast cancer when she was 22.  She had two lumps and both looked like fibroadenomas.  One was benign and the other was cancer.  The tech mentioned my "young age" at least three times during my ultrasound.  Yes, I'm young but I still want the same courtesy, respect and healthcare the older women in the waiting room will receive.  *sigh*  I follow up with the surgeon on Thursday and will update again.   

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited May 2011

    mine felt like a grape. and it was smooth. until i had my ultrasound, it seemed like a fibroadenoma. it was smooth where the docs could feel it. but once i had the ultrasound, it showed it was smooth on the underneath, and quite bumpy and irregular on top. but of course, it wasn't diagnosed until i had a biopsy

  • mommyrnx2
    mommyrnx2 Member Posts: 140
    edited May 2011

    My lump was more like a thickening, it extended from my inner aerola of my rt breast to the side.  You could take your finger and slide it over my breast and feel it, it was very superficial.  It felt to me like a small green bean (I know weird, but it was slender and about 1inch long ( I don't know the exact measurement) and it did not show up on mammogram, ultrasound, even though everyone could feel it.  Again they used the "dense breast" theory.  I insisted it be removed and even during the procedure the doc said it didn't look like cancer...thought maybe a clogged duct.  It came out, looking like a firm yellow/tan green bean.   It was DCIS.  My point, be your own patient advocate.  I am 39, thin, excercise, healthy, and never been sick before.  I didn't care if I had to pay for it myself or not, I wanted it out. And it was cancer.  Don't let them tell you to wait.  Yours is probably benign, most are, but it's better to be safe and know than to wonder and find out later that you could have caught it before it progressed.  Good luck and keep us posted.

  • hdangelbaby
    hdangelbaby Member Posts: 731
    edited June 2011

    mine felt like a small grape. nice and smooth and it actually moved around a bit. characteristics of a cyst.

    well, when the ultrasound was done, the botton was smooth and the top was rough and edgy. my tumor was located at the 5 0'clock position. so really the top couldn't be "felt"

    so it was a super bad surprise when i found out it was cancer. and it spread to the lymph nodes

  • mikeswavie
    mikeswavie Member Posts: 1
    edited June 2013

    Hi, I have had a lump in my right breast for a little over a month now.  At first I thought that it was either a hidden hair or a pimple but couldn't find anything looking like that.  It didn't get any better with warm compresses or time.  After about 3 weeks, I went to a PA in my gyno office.  She gave me antibiotics to take hoping it was an abcess and said she hoped that it would just go away.  Took all the meds, didn't go away.  Had a return visit and she was dissappointed (as was I) that it didn't just go away.  She examined it again and said that she really thought that it was a sebaccous cyst.  She talked to doc and said that I should have an US done (I had a normal mamo in April).  She said not to loose any sleep over it that she was not worried.  Went for US, I have NO insurance and left without US but info on places that may be able to help me.  Checked on one place and they can't help me.  What are any thoughts out there from those of you that have had lumps?  I am postmenopausal.

  • mebmarj
    mebmarj Member Posts: 380
    edited June 2013

    Some local health departments may have resources, referrals for low or no cost imaging. Ask your gyno office for assistance also. Usually they have experience helping people who have the same situation. Best of luck to you.

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