DIEP 2013

Options
1969799101102421

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    And yes you will feel different when you wake up! When I woke up from mx I was sad that my breast was gone and scared that they would still find cancer somewhere even after months of chemo. My first question was how much the breast that was gone weighed. And was crying.



    When I woke up from DIEP my first request was to see it and 1st question was if they were able to do DIEP and the answer was yes and I was so happy. My mom walked in and I said, "Do you want to see it?" and ripped my gown open. It's a happy thing.....or it was for me anyway.

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    Sweetpickle, in the last 17 months I had a hysterectomy, gall bladdder removed, a UMX, and DIEP. I had the least pain(almost none) and quickest recovery with DIEP, and the MX was defo the most painful, and the hardest to recover from. After MX I was out on Dilaudid for the first 24 hours, and on Tramadol, a heavy painkiller, after that. With DIEP just took Tylenol extra strength for about 6 days afterwards, and nothing after that. With DIEP I refused the morphine pain pump, had no nausea issues, and did not need the heavy pain medication. It was only a little uncomfortable when I had to get out of bed. We're all different. You will probably be able to judge from previous experience what you will need. In a few days it will all be over, and you will be so pleased, I'm sure!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited June 2013

    can somebody help me get to, or find the photo gallery on this site? I would love to see some real life before and afters.

  • ssla01
    ssla01 Member Posts: 480
    edited June 2013

    Goldie - you will need to send a private message to Timtam. She is in Japan and hosts the site separately. It may take her a few days to get back to you.



    Sharon

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited June 2013

    Thanks, ssla.  i will give it a try.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    Sweetpickle, yes, my umx was easier compared to my DIEP.  But we're comparing apples and oranges.

    For the umx, I was in day surgery for four hours and on my way home with an icepack and a vicodin.  For the DIEP, I was the OR for 12 hours, ICU for 24, the med-surg bed for three more days.  It was more painful, and moving around was challenging.  BUT IT WAS SO WORTH IT.  The discomfort was do-able, there are nurses to help, drugs to help, adjustable beds and recliners to help.  You will be great.

    SheChirple--Downton Abbey was my traditional "Chemo Friday" entertainment!  I looked forward to it all week.  It was so easy to get absorbed in the drama and costumes and relationships and just let Chemo Friday slip by.  Of course, when my husby came home from work I was speaking in a British accent.  

    I saw the PS this morning and he thought August would be a reasonable date for Stage II.  Then I saw the PT this afternoon to get my shoulder torqued on.  It hurt, but I think we'll make good progress toward mobility.  In between, I ran the world.  LOL...

    MartyJ, I have a quinoa black bean salad recipe that I really like.  Fresh lime juice, garbanzo beans, cilantro, olive oil...friends, we should start a healthy recipe exchange.  Katy

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited June 2013

    I'm totally in on a recipe swap! I have alot of weight to lose during chemo and rads so my flap surgery isn't too problematic. Love the quinoa recipe ideas. Brussels Not so much! Lol.

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited June 2013

    SBelizabeth....I love the idea of a recipe exchange.  It's hard to come up with healthy recipes.  And, maybe, just maybe, we can get Kuka to try a veggie!  hehehehehe

  • LyndaMarie
    LyndaMarie Member Posts: 92
    edited June 2013

    I had BMX, skin sparing, in October with immediate TE placement. It was very hard. I was 6 weeks post chemo and I did not do well with TEs. I had them removed ten days later and had complicat Ions with that procedure. I lived on pain meds for a few weeks. Rads followed Nov- Jan.



    I returned to work in late January and got stronger as the semester went on (I teach). I had SIEA two weeks ago and it has been so much easier. I expected it to be harder but it isn't for me. Between the TEs and the chemo and the emotionally draining experience of mx in the first place, I found that surgery much harder. DIEP is rebuilding, not taking away.



    Everybody is different but you should not worry. Good luck!

  • Lovemycat
    Lovemycat Member Posts: 3
    edited June 2013

    Help! I am new to this and this is my first posting. I need a couple of recommendations for a ps that does the diep flap procedure. Pros and cons. Anyone to stay away from? Questions to ask? Dallas area please.



    Thanks for any and all suggestions in advance

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Thank you everyone! Im just getting nervous as I get closer.

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    Holy dinah doodle......what an active thread!!!!! 

    Lovemycat....welcome...hope someone here has some info for you. I know we have some Texans among us.

    sweetpickle...you are "normal nervous"....hang on to us, we'll get you there!!!!!! I was exactly the same. 

    Love the recipe idea...anybody got an idea of how to get it going? For awhile, I was thinking we should ask the mods to change the thread name to "Flaps and Veggies"!

    Glad to hear your physio was doable, sbelizabeth. My physio has actually had me back off a bit shoulder wise, as he thinks I was re-aggravating the radial nerve, and his theory seems to be working, as my ROM has increased, and the pain decreased. Now he has added some trunk rotation stuff and acupuncture, all seems to be heading in the right direction. I headed out for a gentle yoga class after supper....heavenly! 

    Got my surgery date for the "cheek" thing.....next Wednesday! I seem to have de-compressed hugely about the whole thing....thanks to everyone for letting me freak out on the thread. It sure helped me vent and put things in perspective. 

    Everyone of you is somebody incredibly special!!!!!! Hope everyone gets some sleep tonight...including you, Kuka!!!!

  • RobinY
    RobinY Member Posts: 36
    edited June 2013

    My surgery is less than a month away now.  I too am getting nervous.  I'm working hard to eat healthy (high protein, no sugar and low carbs) so I'm losing weight -which is fine with my ps.  I'm also walking two to three miles a day each day on the treadmill in our complex workout room. (to build cardio)  Add to that this is the busy season at work (I am the make-it-happen fairy at a landscape company) and you would think that I'm too exhausted to be getting nervous, but I am. 

    I'm getting an RX for embrey (proactive since they don't want me barfy) and I'm going to ask for ativan at my preop- otherwise I'll be a wreck by the time I get to the hospital.

    I'm mostly concerned about the recovery and pain issues.  I hate pain meds. (although I'm fine with Ativan) After my first BC partial mastectomy my sister (who is a nurse) insisted that I take at least one vicodin.  That was enough for me, I dealt with the upper arm pain and the drain pain rather than take another vicodin.  I'm told I'll wake on a morphine drip and don't know what kind of 'high' to expect from that.  (if someone could clue me in I'd appreciate it)  I'm pretty sure I'll be asking to be off the meds asap, but my ps really wants me on the morphine pump in the begining, and I will do what he wants. :)

    Thank you again for all the info on this thread.  I don't talk a lot, but I'm here reading and soaking in all the well thought out advice!

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited June 2013

    I loved taking Oxy, right until the constipation kicked in! Forget that, I'll deal with ibuprofen than that drama any day. As fr Morphine, I'm guessing everyone reacts differently. For me, it does nothing for the pain and I end up begging for a Percocet or anything else lol. Some people can't take it cuz it's too much. Something to discuss prior to surgery for sure.

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited June 2013

    Flappers.....been reading, but not posting too much. Such an active bunch! Thanks for the kind words about my Onsen experience....was totally prepared to go in there and rock their boats, and instead, they rocked mine.......such a positive experience.



    Still recovering from jet lag....for some strange reason it has been a delayed reaction from this trip-I am more tired now, than the day after I returned.



    Since we are on the subject of recipes, I will say that last week was the healthiest I have ever eaten......I managed to loose 3 pounds (as of today) ....no idea whether it is due to eating the Japanese diet, or the fact that I used chopsticks for 9 days! Kidding aside, vegetables are the FIRST thing I eat at every meal ( including breakfast-where I have been eating a Persian cucumber salad with my egg. Yum!) I have been cooking all Japanese meals this week ( I know.....I'm obsessed!). Monday it was sushi & salad, Tuesday was Yakiniku ( grilled meat-beef-and lots of veggies) , and tonight was ShabuShabu........hot pot veggies and thin slices of beef that are swished in the pot ( with chopsticks) about long enough to say: "ShabuShabu", and then pull the strip out with your chopsticks......love that dish! Takes so much effort, that I have to think seriously whether I really want to eat something!



    For those of you facing difficulties.....you are in my prayers.....for those recovering, you are as well. And those coming up, I am in your back pocket! You can do this!



    Love to all.......



    Namaste and God bless- Jackie

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Well, seems like tonight is going to be another sleepless one. Went running for 2 miles and did really good until I got home. My legs are killing me. They hurt so bad!! I can't believe in that much out of shape? This is the main reason I'm up. The pain woke me up😞

    Had a tough afternoon. It was my kid's last day of school and my daughter cried all afternoon because she misses her teacher and friends already. It was so sad. I remember when I was her age I couldn't wait for summer vacation and could care less about not seeing my teacher during summer. I guess she gets that from her father.

    Lovemycat in sending you a private message.

    Nihahi, are you joining me in here tonight? Since its still early I might just take another ambien. So if you don't hear from me the rest if the night is because I was able to go to sleep:)

  • ssla01
    ssla01 Member Posts: 480
    edited June 2013

    Hi Ruth. Looks like I'm the other no sleeping night owl tonight. Ugh!

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Hello ssla. Hopefully I won't be up for long. Just took my second ambien of the night and it started to thunder here, so I'm hoping that combo will make it perfect for me to be able to go back to sleep.

    How about you? Just a night owl or sleep problems?

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Robin, why don't you want to take pain meds? Do they make you sick? I had the pump when I woke up from my surgery, but only used it a couple of times. The recovery was really painless for me and fast! I was on only Tylenol on the third day post op. to me it wasn't painful, just discomfort.

    So..., your job is landscapes? I would live for somebody to tell me what to do with my from yard where we keep missing grass because it doesn't get enough sun lightf

  • ssla01
    ssla01 Member Posts: 480
    edited June 2013

    Usually not a night owl, but wide awake tonight. Hope the rain lulls you to sleep.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Here is a nice product developed by a survivor....www.thecushy.com



    It covers the seatbelt and provides a nice cushion for incision areas. I bought one but really wish I had two! One for belly and one for new breast.



    Love the recipe exchange idea!



    B

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Ok at what point were y'all allowed to start running again? What about bike riding? My body and brain are starting to get a bit stir crazy. I know we are all different but give me some idea. I want to move it, move it! I know I am bound down for at least two more weeks.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Bailey, I started running at 4 weeks. My ps told me to listen to my body. Whenever I feel I can't keep going I just take a break and walk. So really, I run on intervals.

    Ssla I hope you were able to go to sleep. I did 30 minutes after I took my ambien.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Thanks, Kuka, good to know! I am imagining my belly might prefer a nice flat paved bike trail over my local mountain bike trail for a while. And brisk walking over running....but that's ok....I just want to be OUTSIDE and MOVING! More sewing today...making some throw pillows for the family room (which is currently my beautiful newly decorated "recovery room").



    Enjoy your day, friends!

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited June 2013

    Robingy - I had all if the above, morphine, percoset and Vicodin - NONE made me feel 'high' at any point. Demerol however did and I asked the PS to not have me take it again. I was in pain, no medals given for martyrs (smile) - so took it when it mattered most and decreased when not as needed until off with Tylenol as needed. I kept thinking I would get high - "wasn't this stuff the things people get high with?" - but not then for me. However- after being off heavy meds for a while I took a Percoset one time (can't remember what pain made that seem like an ok thing to do) and FELT LOOPY - so knew at that point it was too strong for that pain and that it helped get through the immediate post surgery pain because it was strong enough, but no thank you for times other than when it was truly needed!



    Robin, It's okay to feel nervous! At some point i would guess ALL of us have been - I surely was before surgeries. Heck I finally broke down and called a gastro doc yesterday and have a 2:00 appointment today - IBS for 30 years a family thing- AND I am nervous about it! He isn't going to remove, move, or fill ANYTHING in my body - not at all thinking cancer, but still nervous! So don't

    Feel bad about feeling nervous - I think it's normal - however these ladies can surely answer most of your concerns from experience. Hoping you will soon be peaceful with your path you choose!



    Kuka and Nahihi - I slept great last night, even though the AC is out until at least Friday - and hot in Atlanta, the good Lord provided rain, lightening and a cooler night, the DH provided a oscillating tower fan from our sun porch and the bedroom provided a ceiling fan - so humming of the tower, movement from the fan and Grace from God I slept!!!! Hope you both do tonight!

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    aarghhhh....just typed a long post....zap...lost it in cyberspace!

    We should start a new thread and call it "Flapper Food"!

    Kuka...seems like you maybe got 3 hours sleep???? Apologies to you and ssla, guess I dozed off last night and missed the chats. Are you stretching after your runs???? Try soaking in a warm bath with a couple good handfuls of epsom salt in it. Helps to disperse the lactic acid....helps me big time after overdoing things.

    Robin....you need to find some "OM" time too. Try to make some of your walks focussed on going slower, and just enjoying being outside without the pressure of work! 

    Bailey....you and I are similar creatures....I cannot stand to be inactive and indoors. You'll get there, but I totally understand your mindset too. What you are doing for your friend is wonderful. Hopefully she's been sorted out by OT or homecare....two broken arms can really make daily things pretty challenging!!!!! Absolutely make sure your PS gives you the ok, but he should give you the go ahead to gradually increase your walking distance and speed. sbelizabeth was on her bike predischarge I think, but then she's crazy!!!! I have been riding mine on paved trails since about 5 weeks postsurgery. The first day was "weird" as I was uber aware of the jostling of the new sisters, and endurance sucked, but everything is improving quickly. I'm not into mountain type trails anyway, so the paved ones work well for me. Does the phrase "patience, grasshopper" sound familiar Laughing!

    Movie...sounds like your jetlag is pretty typical...exactly what I went through too! Keep up with the new menu....sounds lovely....but time consuming to prepare!!!! I haven't seen your daughter's commercial again...maybe it was a one off?

    Gonna end here before I lose this post too.

    Have a great day, flappers!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    Bailey, I got all four of my drains out on post-op day 9, and I was on my mountain bike on post-op day 11.  The leaning-over posture was much more comfortable that struggling to stand upright, and I just tootled along enjoying the fresh air, sunshine, and the chance to move my body.  I was on my bike almost every day after that, gradually increasing the time and challenge of the ride.  I love to ride trails--I don't worry about getting hit by a truck--but I avoided the intense, technical ones for a time so as to not jostle the girls too much.

    Here's my favorite chili recipe.  if you make it with ground turkey or no meat at all it's still great.  To print it off this post, highlight the recipe, right click, and click "copy."  Then paste it onto a Word file, and there you have it. 

    Wendy’s Chili 

    2 pounds ground beef

    29 oz can tomato sauce

    29 oz can kidney beans, with liquid

    29 oz can pinto beans, with liquid

    1 medium onion, chopped

    2 chilis, chopped (I use Anaheim chilis)

    ¼ cup celery, chopped (2 stalks)

    3 medium tomatoes, chopped (I use a 15 oz can diced tomatoes)

    2 tsp cumin powder

    2 tsp salt

    2 cups water 

    Brown the ground beef in a skillet over medium heat; drain off the fat 

    Using a fork, crumble the cooked beef into pea-size pieces.

    In a large pot, combine the beef and all the remaining ingredients, and bring to a simmer over low heat.  Cook, stirring every 15 minutes, for about 2-3 hours. 

    In a crockpot, you can cook it all day.

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    sbelizabeth.....you do realize I mean you're crazy as a compliment!!!! Laughing. I don't want to get caught up in the "foot in mouth" disease again!!!!!!

    Love the recipe, thanks!

    ok, NOW I'm outta here.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    Oh, Nihahi...of course I knew that!  If you ever REALLY want to offend me, you'll have to preface your remark with the phrase "this is mean to offend you."  You couldn't ever say anything inadvertently that I would take the wrong way; I know you love me.  And it's the truth, I'm a little crazy.  Just ask my kids.

    Yeah, I'm outa here too.  Gotta go to work.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    I ended up taking another ambien last night and falling back asleep. This morning when my alarm went off I pretended I didn't hear it for a little bit, but then I knew there was nothing I could do about it. Even my dog, who sleeps with me, didn't want to get up. She's a 2.5 pound yorkie and spoiled, lol

    So I have 6 kids in the house today and is cloudy and 50% chance of raining. It's going to be a long day!

Categories