May 2013 surgeries

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    i called because I'm a wuss.  They said it's okay to wait it out til my appointment tomorrow afternoon.  I don't really have much on my schedule today anyway.  Going to run to CVS to pick up another prescription, and put together a chemo bag for a friend for tomorrow (I'm going to visit her at chemo).  I have pickles from trader joes, crystal lite lemonade mix, burts bees lip balm, and i want to add some udderlysmooth lotion.  Oh, and a couple of buttons, including one with her face superimposed on wonder woman.  Laughing

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    ckmoss, has your oncologist seen this video?

    http://www.youtube.com/watch?v=KUmZp8pR1uc

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    GoWith-thats the video I was being sarcastic saying that I think he has watched..lol..we had big radiation debate..ending with ..well thats on down the road we will talk about it then...I know Ill end up having it..sigh

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    I know, me too.  But it feels good to debate it with them, doesn't it?  Working on a playlist for radiation and this last step for me.  If you want, I can share my chemo play list with you.  Helped me to sing along with my ipod with songs I selected (I want a new drug by huey lewis which was my ringtone on my phone for 4 months).  Since chemo ended, it was "the final countdown".  Time for a new one, just haven't decided which yet.  Might be radioactive by the firm.

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    LOL..I think I did just snort!...You have the best ever attitude~

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    GoWith-I'm going to need you to come sit with me during my chemo! (5 hour drive..not that far really Wink. I think I could get through it way better! I am happy to think that when you start working with patients you are going to really lift their spirits!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    I hope I can make a difference.  If I had the energy, I'd drive down and do it.  Just so damn tired, I'm lucky to make it to my own hospital (40 minutes away).   I feel like a damn ape this morning because I can't put my arms down all the way because of the swelling.  Maybe I need the magilla gorilla theme song for my ringtone for now.

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    So I asked my oncologist about the putting finger/toes on ice during so not to lose..he said he's not had a patient lose nails..maybe a bit loose is all...he said that that could do more damage to nerves...but could try if I wanted. Debating..I will probaly try to read more on this. 

    Also, I will try and make this as G rated as possible, as you all know..my big source of stress..and more than a few tears..has been trying to stuff this one side of my bra to match my 1966 model breast that is left.  Can do the D cup but is too perky. My friends co worker use to work in an adult bookstore..she said that they sell a mix to where if you want a ..uh..reproduction of your hubby for when he's not around or in the mood (not sure mine is ever NOT in mood)..that you mix this stuff up and put on him..and peels off to make a ..uh..replica..so she thought I could do mix..plaster to remaining breast and then use in bra for MX side.  Thoughts?  Emotional outburst?

    I mentioned this on the phone to my husband at which point, he quit breathing..lots of stammering..lol..conversation ended at this point.

  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2013

    Catye stripping the line is what Ambh referred to as milking the line. I get a toothbrush or something and squeeze the line all the way to the bulb to push the material into the bulb. The material cn clot up and stop the line up so I do it fairly often to keep the line open. As far as swelling goes yes I felt like I was 9 months pregnant after my mstectomy. I dont know why some retain fluid and others dont.

    Ambnh there is a whole thread of Ilcers you should check out call team warrior ilcers.

    Ckmoss they put my port in when I had my mastectomy and my oncologist wouldnt let me start chemo until all my incisions were healed. So i guess it varies per doctor. Good luck to everyone and healing hug

  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2013

    Ckmoss, I also asked my onc about the ice and he didnt think it would help but I did it anyway and during my adriamycin and taxotere infusions I either kept ice or popsicles in my mouth because I got terrible mouth sores and thrush. I stayed on. the current chemo thread to pick up these tips so anybody that is doing chemo should checkout the chemo thread thats going on now. I trust my onc completely but he hasnt ever received chemo he has only read or heard about it. So I prefer to listen to my sisters who have gone thru it

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    ckmoss, (((HUGS))).  I say you do whatever you need to so you can feel better.  I'm not stammering, I'm not embarrassed about it.  I never thought about how to handle one breast gone.  Since I'm flat right now, I just go with it, but it's not as easy if only one is flat.  It can't hurt to try, can it?  I say go for it.  

  • AMBNH
    AMBNH Member Posts: 119
    edited June 2013
  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Melmcbee-How are you feeling from your inplant surgery?  Did it go well?

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    I asked my oncologist today if I had a hysterectomy could I bypass the estrogen blocker, as it has nasty side effects..main one that concerns me is blood clots/poss pul emb...He said no because that apparently we have estrogen coming from adrenal (sp?) glands as well.  I'm still getting a hysterectomy next year..don't want this there..

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    sweeetpickles!!!!  How did it go today????

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Yes, I've been checking in to see, Sweet pickle..are you drainless? 

    The lady that runs the Look Good Feel Good class had emergency so had to cancel classes...I was a little disappointed by that..but she said that I could do the class at another hospital Monday or do one on one with the lady at her salon.  Not sure best course or if it matters.  She said that if I have special concerns one on one would be helpful..like painting on eybrows,etc..

    Well Im beat..going to bed...Good night all!  Fingers crossed for Sweet Pickle.

  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2013

    Oh Ck Im sorry. Is there another hospital close by if not Im sure they woll have another one at that hospital next month. I think they do one ebery month at our hospital. Im trying to remember when I started losing my hair. Maybe around day 14 to 17 of after first chemo but it took forever to fall out. I always had straight thin hair but I couldnt believe how much I really had. I even cut it short before chemo and shaved it after a month or two cause i was just tired of hair everywhere. You will be glad to know that my hair has come back in thicker and wavy. Yeah. That is Gods little treat for all we have to put up with. lol. If I can find a picture I will post it to give you a laugh.

    Sweetpickle hope you are drainless

    Ladies hope you are having a blessed night.





  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Good morning all!

    I had very restless night...still very sore at MX site, and have been off the meds for two days..had to pop a ibuprofin in the middle of the night. I have to see this new strange surgeon at 830am..then coming back to take a nap!

  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2013

    Good luck Ck and hope you feel better

  • ckmoss
    ckmoss Member Posts: 613
    edited June 2013

    Thank you, Melmcbee! I hope you are feeling well from your reconstruction.

    Cateyz22-I hope you are well.

    Ann-Did you get your drains out or is that today.  I lose track of my days being out and every day being about the same.

    Sweetpickle must have got her drains out and she went dancing last night!

    GoWith-Let us know what Dr says today

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Ckmoss, that's why I'm too chicken to switch over to ibuprofen, although I spread the meds out over the day.  I'm going to tough it out this morning, and see how the day goes.  

    I think Ann gets them out today, but I could be wrong.

    Sweetpickle, still looking for your update.

    Melmcbee, how are you feeling today?

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Hi Everyone!  I wasn't able to get on the forums last night for some reason, bummed me out.

    Soooooo, the good doctor told me that pathology says no evidence of any cancer cells left in either the breast tissue or the lymph nodes which means no radiation needed and I am a go for reconstruction this Friday.  WooHoo I beat cancer!!!!!

    I am very happy and it is the best news we could have gotten.  My Oncologist had told me that it was a rare thing to have that happen and he was standing in the hall when I came out of surgeons office.  I was like see, star patient here!  LOL

    I haven't had a chance to catch up on posts yet, wanted to post my good news right away.  Hope everyone else is doing well!

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Oh, and yes I got my drains out.  Hurt like hell for about five seconds and then it was wonderful to have them out.  Woke up this morning with my MSX incision itching and now my shirt brushes up against it from time to time which makes it sting for a second.  They didn't take out any staples, probably because I go right back into surgery this Friday where I'll get four more damn drains.  Ugh!  Hopefully I will get those out sooner if they do the same thing and dont put out to much fluid.

  • cateyz2
    cateyz2 Member Posts: 419
    edited June 2013

    ckmoss and gowiththeflo

     I have yet to stop my norco's too chicken to find out if I REALLY need them, but Im feeling good, so wish I could take a shower!!!! My daughter will be coming over today to wash my hair and to drive me to first post MX appt with PS.

    Chest feels very tight with TE's and skin really not pliable, have no clue how many ccs were placed at time of surgery if any. Also if I remember correctly PS didnt have to cut muscle tooo place TEs???? Was quite enjoying my magic carpet ride while in the hospital. They really do look kinda nasty.

    Curious when will I get the first office fill, do I massage them, any specific wound care??? want to compare with what mine says at appt

    Oh and one other thing I HATE these drains!!!!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Sweetpickle, CONGRATS!!!!!  HOW awesome was it to hear that?  I bawled my eyes out when my pathology came in.  I didn't realize how worried I was about it til I got the great news.  I've been wearing tanktops.  Jockey has a really soft thin one that's very comfortable yet not too clingy.  Enjoy your days with no drains!

    Catey, you aren't the only one.  I try to cut down on them (prescription says 1-2 every 4 hours and I take 3 or 4 a day).  I'll be holding off taking one this morning because I'm going to drive to the hospital to sit with a friend who is having chemo.  I'll take one while there because surgeon is draining my fluid later this afternoon after my chemo visit.  Hopefully I'll get some relief and not have to take another until after my son's swim practice because I'll drive home, pick him up, then head back into town for that.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    You guys are all so inspirational! Thank you!

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    Good to see you Steph.  How are you doing?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Gowiththe flow: Funny you should ask. I tried to explain to my hubby yesterday how I feel about all of this... and realized that I am in denial. "I feel guilty about everything everyone else has to do for me. I feel like I'm having elective surgery, and I'm making everyone work hard for something I don't need." He replies: "Don't be ridiculous. This is not elective surgery. You have cancer." I say something like "No I don't. Wait. I guess I do. Now I know why I feel guilty!"

    Amazing what denial can do!  NOW I'm starting to get nervous. lol.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited June 2013

    I like to tell the doctors that I might have cancer, but I feel healthy.  The side effects have been more nuisances than illnesses.  Don't think about the big picture Steph.  Just take one day at a time.  That's been my motto because I don't think I could have made it this far if I tried to absorb everything at once.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Steph- I felt that way too and my dh had to lecture me about doing to much to soon but then I look around the house at stuff that needs to be done and Im like arrrrhhhhhhhhhhh! LOL



    I am slowly giving in and letting other people help me even if they do things differntly than the way I would like them done. I too feel guilty from time to time about now much extra work falls to dh and the kids while Im down from surgery. HUGS! You ar not alone!

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