Birthmother had stage 2 ILC-should I be concerned

stewie1206
stewie1206 Member Posts: 2
edited June 2014 in ILC (Invasive Lobular Carcinoma)
I am 43, I was adopted but I know my birth family. My birth mother had stage 2 ILC and a double mastectomy in her early 60's. My birth grandmother passed away from pancreatic cancer. I don't want to panic, but I am concerned and looking for suggestions from those with experience on what steps I should take if any. I have a 13 year of daughter, concerned for her also. Thank you for any advice or help you can give :-)
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  • gonegirl
    gonegirl Member Posts: 1,871
    edited June 2013

    Tell doctor and insist on annual mammograms

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  • stewie1206
    stewie1206 Member Posts: 2
    edited June 2013

    Thank you for replying! Should I ask for anything else since ILC is more difficult to detect?

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  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited June 2013

    Hi Stewie, I agree with the above post.  Insist on annual mammograms.  ILC can be sneaky.  Mine only showed suspicious calcifications on Mammogram.  Also, the suspicious calcifications only showed up within a year of last mammogram. The tumor itself did not show up until they did an MRI.  I do not have ANY family history of breast cancer and have longevity in my family, do not smoke, etc.  If you have a direct family link, especially a mother, please be vigilent.  Don't be consumed by it, live your life...but just be vigilent.  

    Hugs and best wishes!

    Butterflylady(Sharon) 

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  • Momine
    Momine Member Posts: 7,859
    edited June 2013

    Discuss with your doc to get a breast MRI with contrast once in a while. I don't think it it has to be every year, but see what the doc says.

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  • Lily55
    Lily55 Member Posts: 3,534
    edited June 2013

    Examine yourself thoroughly, take photos every year to check for symmetry, tiny changes are worth investigating, and do ask about mri with contrast instead of mammograms, less radiation and. Ore detail

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  • Butterflylady2012
    Butterflylady2012 Member Posts: 187
    edited June 2013

    I agree completely with the above statements and I did not mean to focus on Mammograms.  Yes, ILC hides in Mammograms and would only show minimally if anything.  My tumor only showed up on MRI, which is usually the case.  If you can get an MRI with contrast, that would be ideal. 

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