DIEP 2013

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  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Liefie, my steri strips were on for a little over 3 weeks! My DH said he has never seen them last that long!

    Ok, so this morning I got on the scale and I weight 4 more pounds than I did yesterday. And no, my scale is not broken. DH already confirmed so. Back to jogging tonight and more elliptical, even though I'm just so tired!

    And today for the first time since surgery, which was April 23rd I'm not wearing a bra!! This is huge!! Because if my blisters I had to wear a bra 24/7 to hold the gauge in place. Well, I bought some band aids today that go right over it to hold them in place and I feel free!! I told my DH about it and he looked at me like I was from another planet. Then I realized he's a man and doesn't understand.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Shechirple, the electric cart is the best!! I miss that thing:(

    My ps didn't have any restrictions other than the no lifting. He said showering with the drains was fine. I could not rub them with soap, but running water and soap on them was fine. What gauze did you have on your breasts after DIEP? I didn't have any, until we saw the blister and then of course we had to start using them.

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    I was not allowed to take a shower while I had drains. So first wash at home DH put a big bowl of warm water on the bench in the shower, I held a small towel over the drains and bandages, and he helped me get clean. He also helped me to wash my (very short) hair in the sink - it all felt just heavenly after 3 days of 'spot cleaning' in hospital. Next few days I managed by myself somehow; he just put the heavy bowl of water in the shower for me. Took my first shower 8 days after surgery when drains were finally out - sheer bliss! I used alcohol swabs to clean navel area as well as sites where drains were removed, and put polysporin 2 x per day into navel using an earbud as nurses showed me to do. Still using polysporin once a day for navel after shower, because it is not 100% healed yet.

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    Kuka, in 4 days time I will hit the three week mark with the steri strips on my breast. Hope they fall off soon!

  • goldie4040
    goldie4040 Member Posts: 2,280
    edited June 2013

    Hey, on the subject of to shower, or not to shower with drains.  My GS said no showers, my PS said, "Of course, shower!"  I really think it's how old school they are.  The kit I got to hold my drains even came with a special drain holder for when you take a shower. 

    Now, when my incision opened, and I had to wait to go back into surgery to reclose it, then there was no shower's allowed, which made sense.  That was the worst time.  Dirty hair it the worst, and my bff took me to a salon and they washed my hair for nothing.  I guess salons are use to women having surgeries and needing their hair washed. Personally, I think all salons who want to show their support for Breast Cancer need to put a Pink Ribbon in their window with the offer of a hair wash after surgery. 

  • sweetpickle
    sweetpickle Member Posts: 749
    edited June 2013

    Goldie- love that idea, that kind of salon would have my biz for sure!

  • Marcie47
    Marcie47 Member Posts: 248
    edited June 2013

    Good luck to all the girls going in this week, you will all do great... look forward to hearing from you on the other side 😊

  • Judy_63
    Judy_63 Member Posts: 247
    edited June 2013

    I had showers with my drains in both, my mx three years ago and also with diep surgery I had in March. No problems either time.



    Steri-strips I didn't have, I'm allergic to them. They have caused blisters on me that look worse than the incision they were covering.

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    Janet...too funny...COFFEE??? Odd how you would pick up on that Laughing

    It is just mind blowing how there is so much variety in every little detail of these surgery protocols, yet, like Liefie said, we all seem to be doing basically the same re: final results!!! Just goes to show, there's always room for another point of view!

    Liefie...those are some stubborn steristrips....cause you're showering now, aren't you???? Some of mine were starting to lift off before I left the hospital, and when I saw my PS to get my last drain pulled (at 10 days post op) he took them all off! He said they had done their job, and there were no benefits to keeping them on longer!!! I never had any bandages, anywhere, except for gauze sutured around around the drain sites. I could shower at home with the drain still in, but had to cover the "exit" site with saran wrap taped over it. 

    Sorry to hear you're back is bothering you, but I think the energy thing is pretty much the norm. I didn't build up my energy levels until I started to increase my activity, but still really needed naps at your stage to balance things out. With your wildlife issues, I think mall walking or gym walking would be a great idea! You need to slowly build up your distances to build your endurance back up to normal. Focus on that posture girl and get that back sorted out!!!!

    Please send the float plane to pick up us soggy Albertans if the rain doesn't stop soon!!!!!!!!!!

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    goldie....LOVE the hair salon (pink ribbon in the window) idea!!!!!

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited June 2013

    Hey Flappers........I AM alive, and left Japan Sunday (after my arrest for causing a disturbance at Jozankai Onsen last Thursday......bail was tricky). ;P





    Actually, have not had access to a computer, and arrived home this morning after leaving Sapporo the same morning 24 hours earlier.....jet lag is a b**ch!



    Visit to Onsen was AMAZING.......was very worried about reactions, but the women could NOT have been more gracious and accommodating.....custom demands that you leave your clothing in baskets and traverse to the hot spring pools sans clothing (you can take a small hand towel with you). As I made my way to the shower room (have to clean yourself before immersing in the water) one woman jumped out of the inside pool and ran ahead of us to get me a higher stool to sit on, in case I could not manage the tiny stool usually used. She replaced the usual one, and motioned me to sit. By hand and body motions she acknowledged what I had been through. My DD thanked her in Japanese, and then she spoke to DD telling her her sister had died of BC. Once in the inside pool, other women gravitated over, and did the Japanese head bob thingy, and told DD they admired and respected me!!!!! Blown away by it all! Honestly was not prepared for that response......



    Have spent the better part of 2 1/2 hours catching up on posts.....wow! It's been crazy busy on here! Didn't want to take away from the purpose of this thread, but I will say I had a wonderful time in Japan, and the food was incredible........I will never be able to eat sushi and sashimi over here, again.......



    Going to TRY to get back on schedule, so will post tomorrow, maybe.......glad to know things are sailing along (mostly ).





    ((((Hugs)))) to all .......



    Namaste and God bless - Jackie

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    MOVIE!!!!!!!!! I'm getting teary reading of the response you received. Totally wonderful and shows this "journey" has no boundaries. Glad you're back safe and sound.....you were missed greatly. shhhhh.......go to sleep!  ((((((X)))))))

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    Movie, what a beautiful, uplifting experience for you! What those Japanese women did is amazing - it also moved me to tears. Bc is indeed a universal 'language', and what a wonderful memory for you! Have a good sleep, dear Movie!

  • SheChirple
    SheChirple Member Posts: 954
    edited June 2013

    Hubby has been giving me sponge baths actually quite nice.  He has also washed my hair any time I request.

    Because of the belly involvement, I'm a little worried about stretching the belly to lean back into the wash tub at the salon.  I'm good at home.

  • jakig
    jakig Member Posts: 55
    edited June 2013

    Thanks for the scar info. I already have a large scar on my R side from a spinal surgery (accident) in '85, so when I thought about the long scar the DIEP will leave in the abdominal area, I will almost have one continuous scar from my upper back, around my side, and across the abdomen. I realize the chest area will have its smaller scars too. I've never worn a 2-pc. so I'll just get used to reality. Maybe I can come up with some Samauri sword jokes too. Scars will be a small price for being alive and well.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited June 2013

    Movie - What a beautiful inspiratonal story. Not only acceptance, but honour and respect. And good for you for taking part in the adventure -  in spite of your worries. What a tremendous reward.

    I love that last nights' common theme has to do with immersing yourself in water. From hair washing, to showers, to a soggy Albertan - and the lovely Japanese hot springs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    I was able to shower on days 4 and 5 while still in the hospital and every day at home since! I had little tegaderm (think clear, sticky on one side, thin Saran wrap) squares over my drain exit wounds. The tegaderm rolls up and comes off sometimes after a few days but I had more at home (leftover from the many long-term drains in the past) so I just changed it myself after alcohol swabbing around the wound. Had steri strips on DIEP flap but they fell off before I got home and PS said no worries. Steri and tegaderm has stayed on right lift wounds for most part. When it lifts or rolls I just take sterile scissors and cut off the bit that is lifting. Steris on abdominoplasty are staying put solid so far.



    Nobody ever said a word about caffeine either way.



    A good salon and stylist should be able to get you comfortably and safely in the chair. As for leaning back I think I would keep my knees bent and up on the edge of the chair so I could stay in the U-shape most of us use the first few weeks for lying down.



    I tried to set things like this up beforehand. I talked to masseuse and made sure they had a massage chair instead of table and they did. Talked to chiropractor about doing adjustments sitting up and he made a plan. Most people can and will adapt if you ask!



    I hope everybody has a great week! For those who are on onhe go-list this week don't forget to schedule in time for some relaxation, or meditation, or prayer, or a mani-pedi.....whatever brings some peace to your heart and mind.

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited June 2013

    Janet - great observation about water, and Movie fantastic recap of Japan's bathing experience!



    I thought/think there should be a hair salon on the floor where they do breast recon in hospitals! 🙆

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited June 2013

    RE: Showers and Drains .....



    I have dealt with 7 surgeries and 15 drains over past 21 month period.



    Have had three different surgeons for all these fun surgeries, and thank God that I could take a shower within a day or two of all surgeries.



    My first surgery I even had six drains at once and could shower witin a few days.



    For my Stage 1 bilateral SGAP surgery, I had 2 of the 4 drains for SIX weeks!



    No way would I go SIX weeks without a shower! (unless I had certain complications with wound vacs, etc).



    I would definitely question surgeon regarding their no shower protocol. As if we aren't already hurting enough from diagnosis, treatments, surgeries!



    A shower is very physically and emotionally cleansing! IMO

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2013

    Just curious.....maybe it has NOTHING to do with it....but the surgeons that are saying don't shower....male or female??? My surgeons are both female....maybe they "get it" more than a guy would? IDK....just a thought.



    And another....if you have a no shower rule...if you have a shower head that is removable (you know with the long hose) and a shower chair, beach towels and a helper....I bet you could sit, cover up really well with towels, lean forward and have helper wash your hair.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited June 2013

    Movie, welcome home!  We missed you very much.  Your description of the Onsen experience brought me to tears as well.  What kindness, and expressed in such a beautiful, non-verbal way.  Katy

  • heavenschild
    heavenschild Member Posts: 212
    edited June 2013

    For the newbies with upcoming SX - there is a wonderful site where people can sign up to bring you meals, it is called "Take Them a Meal"   http://www.takethemameal.com/

    It works wondefully!  Just trying to keep the stuff that actually worked for me *up front* so others can use it.

    Blessings to all - four days and counting to Stage 2.

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited June 2013

    Wow movie! Way to make me start tearing up first time in the morning. Your story about how women treated you in Japan was so moving.

  • Cherrie
    Cherrie Member Posts: 1,423
    edited June 2013

    Oh my goodness Movie!! That was awesome. 😭 Women warriors around the world. Welcome home.



    I was able to shower, at the hospital, on day 3. I do have a woman PS. Every doctor is different. I am one of those in compression 24/7 and it has been 14 weeks. Some girls don't have to do this. I had no restrictions on coffee at all. I even had wine the night before with my doctor's blessing. Not afterwards, because of pain killers. Who knows what is right.......I just follow my doctor's orders as we all should.



    Started rubbing (massaging) cocoa butter on my incisions today.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited June 2013

    Wow Jackie, brought me to tears too. Very touching.



    I keep reading about no showers.

    In my head I am picturing a large plastic garbage bag with a head hole cut out, dropped down over my body and taped or packed with towels, just to be able to wash hair. Well, obviously someone else would be washing as your hands would be inside the garbage bag.

    Sounds like something has to give!



    You are all a wealth of info. Taking it all in , my surgery isn't until fall.

    Pat

  • nihahi
    nihahi Member Posts: 3,841
    edited June 2013

    Morning ladies,

    Movie, I hope you're catching up on your sleep....I bet you view North America and western society in general, in a whole new way after this trip. I sure did!

    My PS is male, oddly, it was the nurses that kept telling me I couldn't shower, he told me, he wanted his patients to know he was fine with it. I agree....that first shower, even with a drain, steristrips, and exhaustion, was absolute heaven.

    I worried ALOT about leaning back in the wash chair in a salon, but reached the point about 3 weeks out, that I was ready to try it, as I was laying in bed without a pillow behind me knees by then. I was ready to bend my knees at the first sign of tension on the tummy.......never happened.

    Off to my first gentle yoga class since surgery....meant to go last week, but "chickened" out, to be honest. I reserved my spot yesterday on line, as I'm too "Scottish" to pay for a class and then not show up. I know I'll be fine, it's just another step forward........?right?

    Thinking of this week's class of "Friday surgery"......do some nice things for yourself this week.....by this time next week....you'll be hanging out with us on "the other side".

  • Margaret77
    Margaret77 Member Posts: 8
    edited June 2013

    I am scheduled for Diep on 6th june inthe uk at a centre of excellence and with a top plastic cons i am pretty scared now as they just released news of research inFrance re anaesthetics and the elderly(im 64) apparently they found 35% increase of dementia within next 8 years. Have been to.d my surgerycould be 8-10 hours as old scarring to mastectomy site(performed in 2001) 8-10 hours sounds muchmore scary than 6!

    Any help ladies?

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited June 2013

    Movie, welcome back! You were missed and hihahi was ready to send a rescue team of Flappers down to Japan with bail/ransom money. I think she had trouble raise enough Japanese Yuan. Great experience there.

    Shower: my ps wanted me to shower as soon as I was up for it in the hospital. The nurses helped me to shower twices and my sister helped me once during my 5 days hospital stay. Even after my incision opened up 10 days post-op, ps still wanted me to shower everyday, which I did. I did not have any wound infection.

  • liefie
    liefie Member Posts: 2,440
    edited June 2013

    Nihahi, I'm now helping those stubborn steri strips along by lifting the edges in the shower, and letting the water do the rest. It's been long enough, I'm sure. Want them gone.

    Bailey, my PS is female, and only okayed showering after the drains were out. But I do think female PS's 'get' us better than male surgeons. They also have breasts, eh? . . . Lol.

    Pinkheart, I'm soooo with you re showers, and their therapeutic qualities after surgery. May be a good subject for a study?

  • Catie2013
    Catie2013 Member Posts: 1,023
    edited June 2013

    My PS is male, but it wasn't the PS issue, I had a wound healing problem and had to have a wound vac - and that can't get wet! The special (saran wrap stuff) the Dr seals it with and the black foam thing cannot be wet!!! So, the shower I took in the hospital (not knowing it was going to be my last for a good bit) had to suffice - without washing hair! Thought I'd be able to shower sooner and missed my opportunity - hair brush, blow dryer etc and tackle with arm ROM??? So I waited - dumb- and then had the wound vac and lost my window!



    I was at Hope Lodge, my DIL came to stay with me and I devised a plan. I put the shower curtain on my neck, shoulders, etc and hid behind it with only my head bent as far as I could bend it in the shower, she took a bucket and rinsed, then washed and rinsed again - very hard to do with my surgery and wearing the wound vac! BUT for the next 3+ weeks I remained out of town at Hope Lodge with some dehiscing here and there and finally DH did the wash clothes and the salon appointment! I probably complained more about my hair being yukky than the wound vac!



    But, it's a war story now. Usually DOESNT happen to anyone I've read about or talked to, and I get bragging rights to a dumb story!!! Hardly even remember much of it, as it was a year ago.



    Will someone remind me to tell my DH about the dementia in 8 years??? I have had 6 surgeries in one year! I think I might forget!

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