Faslodex Girls

Tina,

For me, it is asking too much of the doctor. They have NO idea how long your body will be strong and healthy, and asking them to project feels a tad unfair. Of course, they have experience and have seen far more patients than we could ever survey, but there just isn't a straight line that each of us follows. Please understand that I too would love to know if I will be able to travel in non-ADA countries in two years [or insert number of years here.] Am I stupid to wait? Should I pull some of my retirement money now so I can do these trips that I have dreamed of? But I fear that this is a question that can't be answered with any accuracy.

So ask! Tell your doctor that you want to know if you can be planning more adventures. I can't wait to hear the answer.

Did I equivocate enough?  :-)

*susan*

Susan, in a word, yes. But thanks.

Tina, I suppose you could preface the question with, I suppose you don't have a definitive answer but........and then ask.. You have nothing to lose.

Good luck.

Teresa

Tina, your onc might. So it won't hurt to ask. I personally no longer care to know. As I said, I'm just going to keep on going. It's a dice shot. All of life is, really. Or it is in my opinion. Life is for the living and we are alive.

Tree, I deleted the above post because I wanted to revise how I expressed something. Anyway, I agree that life is for the the living. Like you, I'm going to put one foot in front of the other and keep going until I can't.

As for tomorrow, we'll see how I feel. To question or not to question, that is the question!

Tina

Hi Ladies

I'm new to this site and am elated to find they have a forum specifically for faslodex. For those of u ladies that are new to the faslodex world, there is HOPE. I have been on the RX for almost 6 years and I just read about a lady that had been on a low dose 125 mg and is on her 9th year!!



Sending healing hugs for every1!

LittleGrass,

First, welcome to the Faslodex thread, a special-interest group that has been variously dubbed the Bottoms-Up Bunch, Bottoms-Up Team, and--my new suggestion for today: The Fanny Pack.

Next, I echo my namesake's (Tina72) appreciative "Wow" re: your six years on Faslodex. Please tell us everything!

Tina

Jennifer, you're on the same schedule as Susan and I!!! 

Tina

Today is my one year anniversary of living in the stage lV land. Cancer Land is kind of how Disney land is layed out, Fantasy Land, Tomorrow Land, Frontier Land ...and Adventure Land. This sure has been an adventure, an "E" ticket to be sure! My husband is Peter Pan (Fantasyland) and thought we would be forever young and healthy. I would kick the BC that was diagnosed in 08 and live happy ever after...with Frontierland's help, that would be the two clinical trials I participated in.. Time was on our side, we could wait, after all we were going to live forever! Then this...so it is not how long, but what will you do while you can. So no more waiting. we went to Italy for 2 great weeks with  3 days in Paris on the way home. I am very grateful we were able to do this together and hopefully there will be more trips and adventures for us to share together.

Susan, Tree and Tina I wish there was a "like" button like FaceBook!  After all there are many questions, but sometimes there are no solid answers. We should be comfortable enough with our DRs to ask the tough questions

I do hope for a Tomorrow Land were there is no stage lV

Ladies,  I'm glad that your Oncologist have said that it's okay to travel.  I asked to do such and was given an absolute no, along with no riding a bike, no working out anymore on exercise ball, no horseback riding and no air travel in the next year.  My BC has mets in lungs, spine, hip and femur along with ribs.  I was told that a fracture could happen with air turbulence or possible lung collapse with flying.  I'm wondering if anyone else has been told that they couldn't travel or given instructions on what they can or cannot do because of BC and where it has metastasized to?  I'd love to go to Paris this fall or visit family in Europe.  But I don't want to complicate life by not listening to my doctors.

Tish, I think drs have to say that to cover themselves if nothing else. In the beginning my onc said no travel because faslodex may cause blood clots. No bending because of cancer in my spine. I travel, I bend. That's what I do and I feel comfortable doing it. My question is how long is my quality of life and right now it's terrific So ill take it for as long as I can.

But.....I'm 73..... And hope to make it to 90 in great spirits. Haha.

Tree3

73 is great! I hope I have a 73erd birthday...and then a 90th! I am 55 and have no real symptoms. For that I am truly thankful and grateful. So I will work, travel and be active as long as my body will allow me and I will push the limits as "no" is just another way to say "try harder". Just as there are stages of cancer, there are stages within cancer stages... especially in our world. Attitude does make a difference and I love yours.

I will dance at your 90th Birthday party!

This is a question for all my faslodex friends. Has anyone postponed their shots by one week? Would there be a problem with that? I'm at my summer home, loving it and hate to return to the city so soon. The question is, would one week make a difference?

Susan, I'm in P'town and on the water and I feel it's what the Dr. Ordered. It took me forever to pack and get here and I just dont want to turn around and go back. I'll look into it Monday. Perhaps I could get the shots here. Let me see, test my blood, check. Next. Xgeva shot, check faslodex shot. Check. Why not here somewhere. I will let you know what I find out Monday.

Susan I think I can do that. Gin and tonic, check. Look at water, check. Think of all of you and send best wishes. Check.........leave here? Wah,wah. I don't want to. But a gal has to do what a gal has to do.