Chemo IV and lymphedema risk

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Pattysmiles
Pattysmiles Member Posts: 954
edited June 2014 in Lymphedema

Greetings,



Sorry if this is repeated, I scolled through a number of pages and didn't see the topic.



Today I went for my second chemo treatment.

They know they can't use my right arm , side of SNB, 4 nodes removed.

Unfortunately, there was a problem assessing my"good vein" in my left arm...and I don't show a lot of vein in that arm....so they went to my left hand. Fine,I can understand that.



I have 2 more IV rounds...what are the odds this happens again?

I asked if they do the leg and they don't.



I asked the doctor about a port, and she said its only two more roads.

Still. What happens if they can't use my veins? I can be worrying about nothing, but I figured maybe I could get some alternative ideas to present. I have 3 weeks until next round of chemo.



Do I consider letting the use my SNB arm?



Anyone else have these problems?



Thank you for any advice.

Pat

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2013

    Hi Pattysmiles

    I had 4 rounds of FEC. The last round they just COULDNT find a vein. I cant remember if it was  2 or 3 "opinions" sought but in the end they "agreed" and went in on my BC side. At the time my understanding was that this was OK as long as they took every precaution against infection etc...whatever that entailed I don't know. If I had my time again I would see about other options like my foot. I'd be interested what others would do when "push came to shove"....

    Im sorry you are having this trouble...

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013
  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2013

    Patty, this is a really tough question. Of course it's best not to use the at-risk arm, especially for something as taxing on the system as chemo. We argue like crazy to avoid our at-risk arms for surgeries, scans, tests of all kinds, and certainly for blood pressure under any circumstances.

    But chemo is so critical to our survival that it's tough to argue with them about it. You might remind them that you COULD already have pre-clinical (Stage 0) lymphedema (which can't be detected by eye-balling the arm, but is still a very real compromise of the lymph system), and in that case they couldn't even be certain about the timely delivery of any drugs injected into the arm. But in the end, you need to do what's best to fight the rotten bc, even if it means risking lymphedema. Truth is, you're already at risk, and there's no way to know if your lymph system is right at the edge of it's capacity or so robust that no insult to the system could ever cause you lymphedema grief.

    Whatever you do, it's helpful to remember that less than half of women treated for bc ever develop lymphedema. So if you end up having to use the affected arm, know and use all the other risk reduction tactics, then relax and think grateful thoughts about what a strong fight you're putting up against the bc beast.
    http://www.stepup-speakout.org/riskreduction_for_lymphedema.htm

    Remember to go in there REALLY well hydrated, relax your whole body as they're doing the IV, and take some deep abdominal breaths from time to time (helps stimulate the largest lymph vessel in our bodies). Ask them beforehand if they have any other ideas for facilitating the insertion of the IV (warming the area? whatever...)

    Wishing you smooth sailing!Cool
    Binney

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013

    Binney,,

    Thank you for your well thought out explanation.

    I go for my Neulasta shot tomorrow and have expressed my concern tonthe nurse,again, to be passed along to the doctor.

    I would prefer a solution prior to my next treatment...meaning NO surprises. I slept like crap last night worrying about this. I'm more concerned about blowing my veins than I am about the chemo! something needs to give!

    Thank you again.

    Pat

  • kareenie
    kareenie Member Posts: 339
    edited May 2013

    I would have them call the "best" expert to access the unaffected arm/hand after coming in well hydrated, run the hand under warm water or hot towel on the arm, and whatever other tips they can give you to pop out those veins. I actually did all my chemo in the hand but tend to have good veins.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013

    Thank you kareenie,

    I was very well hydrated....I will write myself a reminder for them to use warmth to bring out the veins.

    I was at the center for my Neulasta shot today and I was told the onc nurse thinks I will be fine next visit in three weeks and that my veins will bounce back.

    Glad she is hopeful! Lol. I will be doing lots of praying and Internet research, I saw a link on live strong for "healthy veins"... Will be going back to take notes. Can't hurt.

    Thank you again.

    Pat

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2013

    So this is when I ask the lab girls what they do with an armless patient for needles. They just gawk at me in awe and can't answer then say sorry we can't stick legs. ( they just don't get it) grrrrr Opps wrong thread!

    I get my doc to write up a script for leg punctures and get the hospital staff to deliver them. No more street clinics for me, they run when I come.

    I have the tiniest veins that run away but they can find a vein still. I ask for the best leg nurse on staff and hot towel my leg and rub my veins using the tiny needle.



    When you think about it, Dementia patients can be gnarly and upset when they see nurses. This is why they snuck up on my dementia relative and did foot draws quickly ,preferably when sleepy or distracted . A dementia patient Is very hard to get them to cooperate with an arm. So yes, hospital staff are trained to do foot draws. Can't wait until I run out of feet and ask for a neck draw. Hum should be interesting.Sorry to digress.



    Me dumb, can't they give chemo in a leg.



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