Grade 9 and very disturbed

a-childs-prayer
a-childs-prayer Member Posts: 16
edited June 2014 in High Risk of Recurrence or Second Breast Cancer

I have not seen anyone with a grade 9.  I am very distrubed about that.  I start researching my cancer and start feeling like I might hyperventalate!  I get to the point that I can handle only a little bit of information at a time.  Is that the case for others?  I could sure use some encouragement.

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  • jenjenl
    jenjenl Member Posts: 948
    edited May 2013

    Typically all of the values of the different grade tests are added together then there is a range to determine the overall grade:

    Total score 3 - 5 = Grade 1
    Total score 6 or 7 = Grade 2
    Total score 8 or 9 = Grade 3
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  • LindaKR
    LindaKR Member Posts: 1,577
    edited May 2013

    I'm not sure what you mean by grade 9 - I thought they were either grade 1, 2 or 3.  I did find this article whether the pathologys is scored and then added up, and a 8-9 means it's grade 3, is that what you're talking about?  http://pathology.jhu.edu/breast/grade.php  Mine was considered Grade2 and it was stage 3A. 

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  • jenjenl
    jenjenl Member Posts: 948
    edited May 2013

    Typically all of the values of the different grade tests are added together then there is a range to determine the overall grade:

    Total score 3 - 5 = Grade 1

    Total score 6 or 7 = Grade 2

    Total score 8 or 9 = = Grade 3

    G1: Well differentiated (low grade)

    G2: Moderately differentiated (intermediate grade)

    G3: Poorly differentiated (high grade)

     I suspect you are greade 3.

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  • a-childs-prayer
    a-childs-prayer Member Posts: 16
    edited May 2013

    I think you both are right.  The Nottingham Histologic Score is what I have been talking about.  Seems I have an Overall Grade 3, with scores of 3 for each of the three criteria.  I was told it was a fast growing tumor.  Do you know how this might affect treatment?  The other disturbing thing is the Onco (spelling) score which puts me into the intermediate zone (the gray area).  I am fairly blessed with other factors.  What does this mean "IDC T2 NO cancer".  I will try a little research but I have to do it in small bites.  Pathology Reports so difficult to read and there are too many abbreaviations and so on.  I just have to force myself to keep plugging along.  Thank you for your responses.  Oh, have you heard of a "Mammomark" system which is supposed to be a more thorough test than the Onco?  I hope of have the right words.  I am stage 1a although now I am hearing the tumor might be slightly bigger than they first thought.  Thank you for your responses.  Just trying to understand in small steps.

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  • planetbananas
    planetbananas Member Posts: 206
    edited May 2013

    I was also grade 9. My report said the following:

    Modified Bloom Richardson 9 of 9.

    Tubule formation: 3

    Nuclear pleomorphism: 3

    Mitosis: 3



    It was also grade 3. My oncologist said it meant a highly aggressive, nasty (his words) cancer. In my case my tumor went to three labs, it was a very rare carcinoma.



    Hope that helps.....

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  • a-childs-prayer
    a-childs-prayer Member Posts: 16
    edited May 2013

    Yes, the mammaprint test has been ordered and not come back yet.  It was ordered  by my second opinion oncologist and the oncotype by the first opinion oncologist.  We willl be trying to decide on Chemo or not.  Definitly a good candidate for Femera?  How do these things happen sooooo fast?  Thanks for your kind responses.

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  • flannelette
    flannelette Member Posts: 984
    edited May 2013

    Please don't be too disturbed. I was IDCT3 no nodes & was ecstatic when I heard the no node bit as my tumor was a whopper ( close to 10 cm) and I was expecting it to have metastasized. I too had 9 out of 9 on that scale which I call the hooliganism scale.

    so go figure - I ask my breast surgeon every time - how is that possible - no nodes yet extremely bad behavior and he just said - some just aren't the travelling kind.

    So I had the works, or rather, being in Canada, they offered me the works: chemo, rads, hormonal therapy - and here I am, 5 years since DX.

    There are  (were) posters here who were dx the same time as me, with small tumors, which had already metastaized by their dx, and they are here no longer (I am thinking of dear apple). Please give yourself a happiness break and rejoice over the no nodes. It worked, at least, for me. the chemo & rads (for insurance, after surgery) will get rid of any remaining suckers! please do both, though, if you can manage to, for peace of mind, because of that 9.

    And, if possible, please make sure you get a clinical examination every 6 months for signs of recurrence.

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2013

    a-childs-prayer, the Your Diagnosis section of the main Breastcancer.org site can walk you through the sections of the pathology report, explaining the different terms and abbreviations, and what they mean.

    There is also a free Breast Cancer Diagnosis Guide iPhone application for the iPhone, iPod Touch and iPad, where you can enter all your information in one place.

    • The Mods

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  • ruthbru
    ruthbru Member Posts: 57,235
    edited May 2013

    I 'scored' a 9 too....and also did 'the works' (chemo/rads/anti-hormonal). Very alive, and very well 6 1/2 years out!

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  • suemed8749
    suemed8749 Member Posts: 1,151
    edited May 2013

    I also scored 9 on the "hooligan" scale (great term, flannelette!) and am doing well 5 1/2 years from dx. 

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  • a-childs-prayer
    a-childs-prayer Member Posts: 16
    edited May 2013

    Thank you for taking time to encourage me everyone.

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited May 2013

    I was a 7, so that made it grade 2, I was triple positive, Stage 3A, had MX, chemo, radiation, herceptin, and aromatase inhibitors, 3 years out and cancer free (NED).

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  • a-childs-prayer
    a-childs-prayer Member Posts: 16
    edited May 2013

    Three years out!  You are doing well!

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  • Gina8658
    Gina8658 Member Posts: 1
    edited January 2014

    I hope you are doing well.  It's January 2014, but saw this and wanted to offer encouragement.  Had clear-cell invasive breast cancer diagnosed in May 2002 (I was 43 years old).  Clear cell in a breast is very rare and aggressive as well.  I spent abut 6 wks after my second surgery going through tests to be sure it wasn't a metastatic cancer which had developed elsewhere (unknown primary). I was also triple-negative (associated with a poor prognosis).  2.5 cm tumor, but no node involvement... I had that going for me.  Also grade 3 (like you, I was a 9). Based on histology and other factors, things didn't look good long term, but we treated aggressively with chemo and radiation.   

    Well, I will be disease-free 11years on March 17th (the anniversary of my completing treatment).  I go in for testing in March, but don't expect any changes.  Hold onto that negative node status ...  It's a good sign.   And a little note.  Due to my illness, my son decided to enter the cancer treatment field.  He is a medical physicist (part of the team including the radiation oncologist).  I'm happy to say that though unable to do much for me at the time, he now has an opportunity to help thousands before he retires one day ).   Will be seeing my 18 mo old grandchild when he travels here for 4 days this week.  I lived to see grandchildren.  Never thought at the time of diagnosis that I would ... But here I am.  So, take heart!  God Bless!   Gina

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