Need help in figuring out this ilc report... worried.

andrew_ray
andrew_ray Member Posts: 3
edited June 2014 in ILC (Invasive Lobular Carcinoma)

Hi there,

My aunt had a breast removal surgery lately and now she is recovering. However, she isn't willing to tell me how bad is her situation. She claims that the doctors found her breast cancer in its very early stage. I tend not to belive her, since she never let me get worried about her health when I really should. That's the way she is.

So since I felt it's more than what she is willing to tell me, I started looking for the surgical pathology report. Unfortunatly, I found it and it's far from being optimistic. I have found that she was diagnosed with ILC. Other than that, I don't really understand anything that is being said on the report and I feel some information is missing.

I searched google and found this BC comm. which seems to be very active and very helpful.

Please help me understand what's going on on this report:

http://imageshack.us/photo/my-images/21/99423999.jpg/?sa=0

Any help would be much appreciated. I'm worried about her situation and want to get things clear.

Thanks in advance guys.

· Share on FacebookShare on Twitter

Comments

  • andrew_ray
    andrew_ray Member Posts: 3
    edited May 2013

    BTW guys,

    Is it possible that this report sums it all up? I think there is at least one more page I need to find that has to do with this one.

    Thanks.

    · Share on FacebookShare on Twitter
  • lemon68
    lemon68 Member Posts: 684
    edited May 2013

    Hi Andrew ray

    I dont want to guess or make assumptions on reading her path report. It does look like a complete path report to me. If you go to the top of the page and go to breastcancer.org there are instructions on how to read a path report. I also have ILC, its  invasive lobular cancer. I see she is estrogen and progesterone Positive that is good. Her score of 7/9 is high as was the size of 3 cm, although that is only my opinion as my size was 2 mm. so I am only comparing. Why dont you tell her you read the report and see if she wants to open up about it? Maybe share this site with her where she can get some support from others in her shoes. I am sure she doesnt want you to worry but knowing how much you care may just warm her heart, just what she may need.

    I wish you both well.

    Lemon

    · Share on FacebookShare on Twitter
  • lemon68
    lemon68 Member Posts: 684
    edited May 2013

    go to Breastcancer.org then hit Your Diagnosis you will see all you need to understand the path report.

    · Share on FacebookShare on Twitter
  • mary625
    mary625 Member Posts: 1,056
    edited May 2013

    Is your aunt using this to avoid treatment that she needs? That if you don't know the situation then you would not be able to bug her to have treatment? She may need more treatment other than surgery based on this path report, and you are right to pursue that.



    Other than that--as a guideline for treatment--you will find here in the forum that the general consensus is that the path report and the stage it corresponds to are not always reliable indications of prognosis. If you want to know for that purpose, it would be better to have a crystal ball!



    I wish you and your aunt all the best.

    · Share on FacebookShare on Twitter
  • susan_02143
    susan_02143 Member Posts: 7,209
    edited May 2013

    Path reports don't have either optimism or pessimism. They just are a recount of findings.

    I would smack you upside the head if you were my nephew. How dare you invade her privacy this way? Is she mentally incompetent? Are you her guardian? If not, butt out. This is none of your business. Apologize to her, give her flowers and beg for her forgiveness. You have really betrayed her trust.

    *susan*

    · Share on FacebookShare on Twitter
  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited May 2013

    Mary, I'm sorry but I disagree with you. Unless he is her guardian and she is incompetent, what treatment she chooses to have or not have is her own business and it is not HIS business to pursue it. Susan is right. That was a HUGE privacy violation.

    · Share on FacebookShare on Twitter
  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    I agree that you have invaded her privacy and what you are doing, apparently with the best of intentions is disempowering her further (and women who have had a mastectomy often feel disempowered especially innitially so this is very sensitive territory you are in!).  It is HER body, HER breast (that was), HER decision and HER choice and she is not lying as someone with her kind of report would be regarded as having early stage breast cancer......however I also have a little warning beeper that says there is something a little bit over the top and intense in your response and I think you would benefit from some therapy to deal with YOUR feelings about this so that you can then be a source of HEALTHY instead of obsessive support for your Aunt

    My advice is to tell her how worried you are, and tell her you are here to listen and I think now you have to own up and face the consequences! 

    · Share on FacebookShare on Twitter
  • andrew_ray
    andrew_ray Member Posts: 3
    edited May 2013

    Thanks for the honest response guys.

    Please understand that my aunt is the only family I have. I'm like her husband when it comes to situations like this.

    I really appreciate all the comments and I do agree with all of you who got a little angry, but I don't have any choice.

    Thanks guys.

    · Share on FacebookShare on Twitter
  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    Good luck - if she is all your family then please get yourself some outside support as you will then be able to support her better. And you need some help too.....as at the end of the day you are not actually her husband so there is a boundary to respect too, its not an easy path to negotiate.......for either of you

    · Share on FacebookShare on Twitter
  • Racy
    Racy Member Posts: 2,651
    edited May 2013

    I understand your concern for your aunt but I agree with the other ladies that what you have done is very wrong. I don't mean to scold you but if someone did that to me I would be devastated.  

    I am worried how it might affect your aunt if you confess to her what you have done. She will be distressed enough already with her diagnosis and having had a mastectomy and facing the prospect of more treatment.

    If you believe in God, I would pray for forgiveness and inspiration as to the right path to redress your breach of trust.  

    Being supportive to your aunt will be letting her know you are available to help her in any way she asks.  A cancer diagnosis affects each patient uniquely and there is no best way of helping, other than to remember it's all about her.

    · Share on FacebookShare on Twitter
  • melmcbee
    melmcbee Member Posts: 1,119
    edited June 2013

    I work in a hospital and what you did is called a hippa violation and is punishable by termination on the spot. Please tell your aunt about this community and we will support her in any decision that she makes and will answer any question that she has. God bless both of you.

    · Share on FacebookShare on Twitter

Categories