Long-term success of altern treatments for estro-dependant BC?

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  • lookingglass
    lookingglass Member Posts: 12
    edited April 2013

    Peacock - Thanks.  I will repeat mine in July.

    Mini1 - Have planted wheat in cointainers in the backyard.  Let's see what happens.

  • purple32
    purple32 Member Posts: 3,188
    edited April 2013

    JOE
    I do not take tamox,  but you might be interested in a study which came out yesterday and reported that coffee boost the effectiveness of tamox significantly. I posted the ink on the tammi thread. You may have to google for it. It did look encouraging for anyone on tammi or else on the fence.

  • Momine
    Momine Member Posts: 7,859
    edited April 2013

    Madpeacock, that is the dilemma. In my case, I think the combo of stage 3 cancer and no family history of heart disease won the argument.

  • GingerAmy
    GingerAmy Member Posts: 20
    edited May 2013

    13 months ago I began my journey with 1st diagnosis of DCIS, then stage 1 with no metastasis. All docs wanted me to do chemo rads and Tamoxifen. NOPE! NOT ME :)

    I researched and found an alternative care MD who recommended dietary changes, Essiac Tea, several vitamin and mineral supplements, and what I believe has made a huge difference::Low Dose Naltrexone.

    I take 3mg every night. My mammo this past friday was all clear. "Normal". Hurray!!! My blood test for tumor markers...below the normal range! Whereas even after my surgeries was high before starting my regime from my Alternative MD.

    I am now 41 and not afraid anymore. I don't have the cure, but my path is well lit to success away from cancer.

    I urge anyone to research Low Dose Naltrexone.

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    Well done! I am about to start LDN as well!!!

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    Well done! I am about to start LDN as well! There is also an excellent Yahoo LDN group.

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2013

    How do you get your doc to prescribe LDN for bc?

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    I used LDN for several months and it disrupted my sleep so badly I have had to stop it, my CTC´s were higher than I expected on it so i am hoping my new regime will do more for me.....

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    You don't need a RX for LDN...join the LDN Yahoo group for expertise info...Lily, how do you kmow for sure it was the LDN that raised your CTC? I hear nothing but great things from people who use LDN and have cancer....what was your dosage?...Did you take in morning or night?

  • HLB
    HLB Member Posts: 1,760
    edited May 2013

    Ldn sounds very promising! I did read that it will stop narc pain meds from working though :-( just something to keep in mind.

    I went to see my friend this weekend who is a survivor of 11n probably 12 years now of terminal uterine with mets to bladder cancer. Still doing well and she sais she took a lot of polyMVA in the beginning. I may break down and get some but its very expensive. She liked my rife machine and said it waas a good one. Dad was worried he got the wwrong thing. She also told me how in the beginning she was so sick she couldn't walk and her husband said "get out and walk around he house 3 times. Get out in the air!" So she held onto her daughter and did it. Also, the guy that her husband also helped that I talked with on the phone; I got more detail on that because he was sort of vague. What he had was rectal cancer. He took chemp pills of some kind and they wanted to do surgery but he kept saying he needed more time. He was doing enemas made of the herbal teas among all the other things. Every exam the tumor got smaller (digital exam) and then they did a scope and the cells were abnormal but not cancer. Then the next scope the cells were normal and he has had normal scopes for 5 years. The surgeon wrote to his dr and said he cannot work with him and he's uncooperative and he will die etc. She said "he didn't die, he's healthy! Not everyone gets those results but he did." She is reading the book "cancer is not a Disease" by Andreas moritz. I'm going to get it. I read an exerpt from it and I think it will help take away some of the fear if nothing else.

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    HLB....does she still take the Poly? I wish it were cheaper.

  • HLB
    HLB Member Posts: 1,760
    edited May 2013

    I'm not sure but I don't think so because she said she thought the price was lower than what I said. She said in the beginning she was taking an amount that was costing $1300 per month but she lowered the amount after awhile. I think 8 oz is $180. Not sure how long that lasts or what the dose is.

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    Wow, cannot afford anything near a thousand a month...I am seeing Dr.Wong this Friday...he is $350 per visit and his herbs will cost me $200/month...He has such a great success rate...crossing my fingers and toes!!!Embarassed

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    I dont know if it increased the ctcs, i stopped it due to sleep disruption over many months........sorry if i mis led you

  • Mini1
    Mini1 Member Posts: 1,836
    edited May 2013

    There is a generic now. They said you need to find a reputable compounding pharmacy because a normal dose is 50mg and the off-label use for cancer/immune disorders is 3-4.5mg, which in generic the form is appx. $38 a month. They also warned about being careful about what they use for fillers. Because such a small amount is used, they have to use a lot of fillers, so to make sure what it is they are using as a filler.

  • jojo68
    jojo68 Member Posts: 881
    edited May 2013

    People on the LDN forum are dissolving 50 mg and measuring out 3mg.



    Not good for cancer patients to take more than 3mg

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