May 2013 surgeries

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  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Even if it's just a few ritz crackers or saltines, don't take pain meds on empty stomach.  I grabbed a jello pudding cup earlier to get my pain meds in waiting for my husband to heat me some soup.  Glad everyone is doing fairly well.

    Chinney and Cheri, thanks for the warning about the burning feeling.  Will at least know I'm not crazy if it happens.

    Denverbarb, glad node was clear!  Hope your energy builds up soon, but take it easy meanwhile.

    Ckmoss, I haven't even thought about deodorant.  I usually use the gel.  How do you like what you got?  I guess I'm going to have to think about that soon.  Thankfully no one has complained that I smell yet.

    Sweetpickle, welcome to the other side of surgery.  Glad you are doing well and could post!

  • dwill
    dwill Member Posts: 312
    edited May 2013

    Blogger, that was a great post.  I had my surgery 3/26/13 and my TI's at the same time.  I had two fills of 100cc's ( which are every two weeks) so far and the only thing I can disagree with is that the needle fills have been extremely painful.  My PS said that some people like me have more nerve endings instead of numbness at the injection point.  Everything that you said was exactly as it has been except for my needle fills which are extremely hard for me.  You validated for me the fact that I cry now at a moment's notice and find the emotional rollercoaster as much a part of this journey.  I do take Wellbutrin and Paxil and Zanax but since hormone treament I find myself depressed and crying often. Thank you for sharing your journey.  My PE said that breast reconstruction is not an exact science but it seems I am understanding the process more through your post than before so I just want to say, "Thank You!" 

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    I also want to thank Chinny and Cheri for explaining what the burning sensation is. I hadn't experienced it the first time around. These posts are so helpful and each one of of you ladies are amazing. We really DO have each other's backs.

  • Run4Us
    Run4Us Member Posts: 78
    edited May 2013

    Hi ladies.... It's been a few days since I have been on and I'm so glad to see that those that have had their surgeries are doing well.  After reading the posts I wanted to throw my 2 cents in on some topics.  I had 4 drains after my BMX... 2 drains came out 5 days after surgery.  The other 2 came out just shy of my 3 week mark from my surgery.  My right drain was very low and I knew would come out (15cc) the left was averaging 35-40cc a day.  My RS took both out because he said they were in for almost 3 weeks and didn't want an infection.  Every Dr. is different...so don't stress if your drains are in for a shorter or longer period of time.  While they were in I had such burning if I stretched in a certain way...since getting them out on Monday I feel like a new woman.  I can't believe what a difference it makes having them out.  I also wasn't able to shower while the drains were in...so I feel for all the other women that can't.  I  feel itchy on my chest...I do have TE's.  Has anyone experienced this?  I'm not on any pain meds anymore so it can't be that.  

    I also have numbness under my arms and the back of my arms...along with tingling behind my arms.  I told my husband I feel like a football player...that my arms don't feel like they are flat against my body....I'm swollen.  I know everyone is different but any idea how long it usually lasts?  

    I went this week and had my hair cut shorter to get ready for chemo... I have 2 boys (10 and 12) and I wanted them to get used to seeing me with shorter hair.  It was a very emotional day for me, I really didn't think it would be.  I have been in a funk about it. I still don't know when I will begin Chemo...that is a story I will tell all of you about next time.  I'm not happy with my oncologist and thought I would give the chemo nurses a shot...if I liked them I would stay.  I had my chemo teaching yesterday and the nurses weren't friendly at all. :(

    Thanks for listening ladies...

    Lisa

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Damn, non-fun chemo nurses?  What the hey?  For all the time you have to spend there, they should be doing everything they can to entertain you.  We have therapy dogs that come in, hand or seated massages twice a week, snacks and drinks offered, warm blankets brought, and everyone stops by and says hi (cuz when the machine is beeping, everyone helps everyone else out).  I hope it gets better run4us.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Okay, I'm itchy between my non-breasts and where the clear tape is.  I'm sure it's because it's healing (positive thinking) but is there anything I can do for it?  

  • sciencegal
    sciencegal Member Posts: 1,120
    edited May 2013

    Hi gowiththeflow- you might be allergic to the adhesive on the surgical tape, can you take it off yet? maybe replace with a different type?

    over the counter hydrocortisone cream has been a lifesaver for me- I have allergies to the tape and also the detergents in which they wash the hospital sheets and gowns. I had surgery two days ago and am fighting some lovely rashes, myself.

    I also heard that vicodin can cause rashes but I think that is all over, not just near the surgical sites.

    hang in there!

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Sweet pickle:Well that proves it!  My surgeon sucks!..9 days with no shower..I think the man must not take baths himself..lol.

    Im so glad you made it through ok. That IV needle is horrible going in, isnt it? I had forgot about that little bit of fun. Did you have to  have any of the dreaded drains?

  • penguin1
    penguin1 Member Posts: 91
    edited May 2013

    Hi AnnBR-

    I had BMX last week with 2 sentinals taken... I'm trying to figure out what the SN  injection was?  Was it the dye they inject to do the mapping?  It sounds horrible and I don't know if I had it done or not!  I hope you are doing well.  I'm feeling pretty good- but I think this stupid weather we're having in NY is not helping with the soreness- good thing for pain meds!!  Feel good!

    Penguin1

  • penguin1
    penguin1 Member Posts: 91
    edited May 2013

    Hey There Run4us-

    I'm so sorry the nurses suck... that shouldn't be and you should complain... geez.  I am numb all the way around, it's like I feel I'm wearing a vest or something.  I had BMX last week with TEs... very strange feeling to touch something and not feel like your touching it.  Shaving under the arms is difficult- hoping that will feel better eventually.  I'm trying to figure out what bra is the right one to wear- I just have a simple sports bra that closes in the front at the moment.  My drains are out- yippee!  Best of luck with everything!

    Penguin1

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Gowiththeflow--Deoderant is called Crystalux and like I said got it at the cancer center in their "gift shop". She said I would need it for radiation  ??  but I cant use reg now, so have been using it..it has no extra frag or anything in it..seems to work pretty well. They had all forms . Was a bit pricey at 9.00 but whats not in all this crazyness. Is worth it..as alchohol swabs wasnt working for long.

    Run4us- I def would complain about nurses or find somewhere else before you start. To me nurses down to scheduling people should be extra empathetic with their patients.  The main receptionist at my oncologist is great !  She looks, sounds, and acts just like Charline from Designing Women. She can make someone on their last day of work smile..thats what you need! Or at least something close to that..its all so scary anyway.

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    Penguin1, glad your drains are out! And you are correct, it is a road mapping to locate the first nodes the cancer cells drain into. The dye didn't do it's job this last time but they found a node anyway (which was clear, thank God). I am still waiting on the final pathology report, but no one expects any surprises.



    BTW, my itching has gone away. Still dealing with some slight burning sensations and nausea off and on. I took a nice shower today which felt so good! Wishing everyone a wonderful Memorial weekend!



    Ann

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    I'm curious. If one has a hysterectomy would you still have to do Tamoxifen?  I've been thinking about doing that next year. My sister use to work for reproductive oncologist and was telling me how you have to get radiation for reproductive cancers.  Besides the fact, that its so hard to tell unless its almost too late..I dread taking the hormone drugs after chemo/radiation. I've heard they can cause blood clots, etc. Anyway, was just wondering.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Holding steady at 40ml/day output in drains.  Hoping it slows down soon.  Surgeon said they can come out once they are below 30ml/day.  Maybe by midweek?  Maybe I'm being too optimistic cuz I want them out.  I realized about midnight last night that i could take a benedryl so I did for itching.  Seemed to help some.  Hope everyone is doing welll.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Good morning everyone! I hope everyone had a tolerable night and was able to sleep!

    Gowith-You should be greatly optimistic! One of mine started at 130. So thats great! I know drains are the devils spawn. Mine did over 30 until the Drs office closed on Friday for holiday weekend. Come on Tuesday! I'm glad you stopped itching.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Hi guys!



    I made it home last night, the two hours drive wasnt that bad and having lots of pilows with me helped a lot.



    CKMOSS- You would have laugec your butt off watching me try and shower with the drains in. I have to be careful not to get the soaking wet but yet its still hard to manuever with the pain meds. I have two drains and anonsite medicine tube which will come out today. My drains are putting out 5 and 45 respectively so they should come out at my next Dr. Appt. On June 3rd. We should also get tne path report back that day.



    Hope everyone is healing well, the drains are the only annoying part for me right now.

  • Chinneymae
    Chinneymae Member Posts: 339
    edited May 2013

    I'm glad all went well for you, sweetpickle. Just rest and let everyone take care of you. :)

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    I have three drains, with outputs of 110, 90 and 60, so I have a ways to go. My doctor also wants to see 30 ccs or less each day. I am doing as little as possible too. I will be so happy when they come out. Sweetpickle, glad you are home!



    Ann

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Glad you made it home sweetpickle!  I pinned my drains to a shoelace around my neck.  Kept my back to the water.  Wasn't too bad but my husband was outside the shower waiting to assist if I needed it.  It helps that I only have stubble on my head so not so hard to wash my hair (and no brushing or blow drying).

    Ckmoss, that's the pits.  I talked to my surgeon twice Friday and he let me know he's around this weekend if I needed anything.  Honestly, I grew up in Boston and live in Virginia now, and I've never seen the customer service from doctors and dentists that I've seen here.  

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Sweetpickle-lol..i am so glad you are home and all went well! As far as drains being the only annoying thing...looking back at the past week..every bit of misery actually came from the drains..trying to sleep where drains wouldn't pull..getting no sleep from that..pain..pulling..the whole gross factor (Thank Heavens for my husband)..really, other than some wierd shooting pains for no apparent reason in place that has no feelings whatsoever...???...and some tightness under arm./actually, Im wrong..drains and TAPE. or the sticky left from it. I've had some knife stabbing pain..only to look through 4 inches of gauze to see TAPE. So, I sincerely believe I will feel like 100 percent better Tuesday.

    GoWithTheFlow-I think some of that may be town to town.  I live in upper part of SC and my sister lives in Charleston.  She says constantly (when we complain about Drs..of any kind..) that we need to come down there to some real doctors!..Of course, the medical university is there and a lot of the "creme" of the south as well.  I am heading down there for that DIEP when time comes. I do have a good surgeon, though he is extremely anal about things. He was so against me doing same day reconstruction..but boy was he right..the PS I was going to use..have heard horror stories in past couple of days about.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Ann- How are you feeling today?

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    Ckmoss, I am feeling better today, thanks. My itching is under control and I finally got a decent night's sleep. I know what you mean by the drains pulling and tugging, I have to be careful when I lie in bed. A couple of times I yelped out loud, couldn't help it! I am still quite tired, but I know that's expected.



    Ann

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2013

    Denise, I checked out your blog, thanks for the great tips and info!

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2013

    I got a cute haircut before surgery so I could just worry about shampooing my hair and let it air dry, when showering I hung the drains on those lingerie drying clips you used to be able to get everywhere before all the great five and dime stores went away.

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2013

    Drains are the devils spawn!! I love that! Sending you healing thoughts....

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Thats good to hear...nice to hear you "yelped"..I'm not sure if that is what my husband would have called it as some unmagical words came out...lol.

    Funny story...we have a 11 year old cocker spaniel who hates baths with a passion.  My husband normally does her cocker cut and baths..where she trembles horribly and manages to look as pitiful as she can. As ya'll all know I am banned from water and am unable to reach up to wash my hair in the sink, so he has been washing it every other day. The first day (she wasn't in there) I was kidding him that he was a tad rough and no wonder Katie hated baths..well the past couple of times he has done it she has sat at his feet growling at him the whole time kinda under her breath..we get so tickled we can hardly finish. 

    Penguin1-How have you been? It looks like you and I both had surgery on the same day. I was in such a good mood yesterday from having my first night sleep, that I got my husband to take me to dinner at seafood restaurant..had to wear huge button down shirt to cover bulk from drains /gauze..but was nice..Also, let a couple of coworkers come to see me..however, feeling really tired today..so maybe too much. 

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2013

    I am four months out from my surgery and the numbness keeps going away. I will get in the shower and start to wash a numb area and what the heck, it's not numb anymore! I had had a partial mastectomy back in '05 and the numbness was pretty much all gone by the time the BC returned 5 years later. And I had had radiation on that side. What are TEs?

  • wirdgirl118
    wirdgirl118 Member Posts: 231
    edited May 2013

    My abs hurt so bad the first few days, from not using my arms to get up out of bed or recliner. Then my heels hurt from always being on my back to sleep, or sitting or semi reclining. Pillows, pillows, pillows! They are a big help. Propping my left arm which is the limb alert arm makes a big difference, so I use pillows for the arm too! I am four months out from the BMX and all of the pain and discomfort from January and February and March seem like a dream now...

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    Wirdgirl118, TE stands for tissue expanders. You'll see a lot of abbreviations on these sites. My abs were sore the first few days after surgery and I thought, how sad is that? Goes to show you that I definitely need to exercise that area. My neck was also sore but it's better now.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Wirdgirl118..Thanks for letting us know about the numbness going away (I didn't know that)..that has been a wierd feeling and one I haven't liked.

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