Absolutley Terrified

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Als920
Als920 Member Posts: 89
edited June 2014 in High Risk for Breast Cancer

Hello Everyone,

My wife and I were both diagnosed with cancer a little over 2 years ago within 3 months of each other. Mine was testicular and hers was HER2+ stage 2 breast cancer. We have both been inremision since our treatments. She had a lumpectomy, chemo and radiation.

Yesterday she told me that for the past 10 days she has had warmth and tenderness in the same breast that was treated with slight redness. She was due for an MRI and lab work in 2 weeks and just got an appointment to see her radiation oncologist in one hour.

She was diagnosed at 39yo while 36 weeks pregnant.

We were told the odds of her getting this while pregnant were extremely high as well as me getting TC at the age of 41 because it is very rare. I am hoping to god we aren't getting a 3rd odds topper since IBC is also extremely rare.

I just needed a place to share.

Thank you.

Alan

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Comments

  • lostinmo
    lostinmo Member Posts: 922
    edited May 2013

    Hoping that it turns out to be something easily treated. You've been through a lot, best wishes to you both.

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2013

    That's what we are here for. We are sorry for all you are going through, and hoping that it is nothing! 

    Please though, let us know how it turns out, and vent all you need. 

    Warmly, 

    The Mods

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  • ED2012
    ED2012 Member Posts: 97
    edited May 2013

    Alan - the "not knowing" is excrutiating.  Thankful to know that she was able to get an appointment quickly and will be praying that there is some benign explanation for the discomfort.  You all have had more than your share of challenges.  Wishing you peace and health...

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  • Als920
    Als920 Member Posts: 89
    edited May 2013

    Hi everyone.

    Her RO, who we trust very much, told her that she did not think this was IBC but an infection. She reitterated that she has seen IBC and this does not appear to be the case and she would see my wife in two weeks for her scheduled follow up.

    This Dr. was our first choice as she has seen Tania since the beginning and is highly regarded in the field. Now we put our faith in her (and the antibiotics).

    Thank you all and God bless,

    Alan

    P.S. I truly pray that I do not find myself back here in 2 weeks time.

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  • Als920
    Als920 Member Posts: 89
    edited May 2013

    Well the heat has gone away but she still has pains as well as itching and flaking now on her nipple.

    We are calling her oncologist this morning to try and get her follow up moved up as this is driving us crazy.

    Hopefully we can get the MRI moved to this week sometime. In the meantime the itching and a bit of flaking has us worried. We're just trying to stay positive and hope that the odds stay on our side (which they haven't in the past).

    Alan

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  • dlm425
    dlm425 Member Posts: 209
    edited May 2013

    I just read your posting and it touch.my.heart and hit a soft spot. See 11 actually 12 years ago my husband.was dx with a m l leukemia and I cared for.him and a 3 and 7 year old children it was a whirl wind I lived at.the hospital.when the.girls were.asleep and in school and droves.back.and.forth 40 miles each way twice.a day He was the.picture.of.health. and ultimately. It took his life and his struggles were so hard. So I was left to raise our.to daughters and here I am 11 years later And now I'm dx with stage 2 Bc es+ pro+ and I am terrified beyond belief and cant believe I have cancer. Sometimes lightning does strike twice. Sorry for.you very sad scarey and sucky

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  • Southernangel
    Southernangel Member Posts: 133
    edited May 2013

    So sorry to hear this Alan. Hope all is well with your wife. Please keep us posted how she is. 

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