May 2013 surgeries

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  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Feeling really panicky, kinda like I want to run away but know that I cant. Im grateful for this board because it has helped me to know what to expect. I guess I am having a hard time saying goodbye to my boobs.

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    cmoss, good to hear that the pain isn't too bad.  I bought one of those camisoles with the pockets for the drains. Hopefully that works.  The surgeon's office also gave me an elastic strap to wear with two pockets for drains.  If all else fails, they can be pinned.  I had a drain in my neck after each of my two thyroid surgeries.  It was much less painful once the drain came out, but it wasn't the worst pain in the world.  

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    I had my SN injection today (4 of them) and holey moley did that hurt. I don't remember it stinging so bad the first time. I asked the nurse to hold my hand and I hummed a little tune as the Dr. shot me up. So glad that's behind me.



    My husband is taking me out for a nice supper tonight and then it's early to bed.

  • iatigger
    iatigger Member Posts: 447
    edited May 2013

    Good luck tomorrow Ann. Enjoy dinner with your hubby.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    I think I'm def going to check on the camisole! I am so bulky hard going out in public..not that I've felt much like it.

    Sweetpickle- I know what you mean about wanting to run.  Once the decision was made for mine, my brain kept trying to think of a "loophole" or a way out of the whole thing.  I just kept trying not to think about it and I also called my regular doctor who prescribed me .5 ativan. I told her that I kept getting scared but a hundred things to do in a little bit of time and didnt want anything clouding my mind. So, thats what she ordered.  Worked ok. Also, kept really busy.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Thanks ck, yeah I think Ill be taking some tonight. It usually makes me sleepy so I have to wait until I put the kiddos to bed. We have a 6th grade band concert tonight so that should help distract me some. Ack, I hate tnis whole process that we all go through!

  • Run4Us
    Run4Us Member Posts: 78
    edited May 2013

    Ann... I saw your post and just had to comment.... I swear that when I had my Lumpectomy 7 years ago I don't remember the pain from having the Sn injection....I think it was like child birth - I blocked it out.  Well when I went for my BMX this month I had the same thing done....very early on the day of the surgery. As I was walking down the hall with the nurse.... she said I'm sure you remember the stinging from the shots.... I said HUH??? She looked at me like I was nuts...couldn't believe I didn't remember..she even double checked my chart to make sure I had it done 7 years ago...and I did.  Well yes it was a surprise but the nurse was sweet and held my hand... but thankfully the stinging was for only 20 seconds.  Enjoy your dinner tonight and know my thoughts will be with you tomorrow....you will do GREAT!!!!

    Lisa

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    Thanks Run4Us!



    Sweet pickle, I am feeling a bit down knowing I am going to lose my remaining breast tomorrow. I know I am doing the right thing, but it still makes me sad.

  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    Prayers to all headed to sx in the next week.  I had my one week follow up yesterday, had my drain removed <yeowch!> and got my pathology report.  I feel great!  I went back to work today and stayed just half a day.  I'm a veterinary technician and have a physically demanding job so was somewhat limited in what I was able to do.  It went well, I am super tired.  I wish everyone could feel as well as I do.  I do notice that, now that the drain is out, I am having a lot more discomfort and pressure.  I have not had to take much in the way of pain meds since I have been home.  I take one tablet at bedtime so I can sleep. The first three nights home, I slept propped up on pillows but I have been lying flat (on my side) since. I'll meet my oncologist next week and get my Chemo plan worked out.  That's the frightening part for me.  I'm nervous about getting a port.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Ann- Ill be thinking of you tomorrow!



    Maine- Wow, you are back to work after a week? Sending speedy recovery vibes your way :-)



    I just counted out twenty seconds and if you are in pain, thats a long freakin time! How painful is it? Cant they numb the ara topicly?

  • MaineRottweilers
    MaineRottweilers Member Posts: 156
    edited May 2013

    Work, work work! I love what I do and I was going NUTS at home.  Driving was the worst part of my day.  I drive with my left hand.

    The radioisotope injections:

    They offered me a cream to use a day or two before hand.  I didn't use it and I don't think it would have helped.  My first injection was mildly uncomfortable.  The second was was VERY uncomfortable  but was not painful.  I bit my lip and I really don't think it lasted 20 seconds. 

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Maine, glad to hear your report that you are doing well.  Fingers crossed that I do so well.  

    Sweetpickle, I was told that the needle to numb is the same size at the needle to inject, so they no longer do it.  The burning goes deep into your breast, similar to the burning when they do the biopsy (actually, I'm not sure which one was the bad one, the core biopsy, the other kind of biopsy, or putting the clip in - those were all done at the same time).

    Prayers to everyone having surgery in the next few days.  Got my house in order today, set up the recliner in the guest room for myself and a table to put a drink on.  Clothes are folded on the sofa in that room so I don't have to rummage through the dresser or closet, bag is packed.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Prayers and thoughts with SweetPickle and RunWith today!

    Oh Happy Day!  First time since surgery (7th day out), I slept through night without waking up!..7 hours of wonderful sleep! Seeing how I feel this morning, I realize that a lot of my misery..and def my lack of good disposition was no sleep.

  • Chinneymae
    Chinneymae Member Posts: 339
    edited May 2013

    Well, I am two weeks out now and still have three drains. I will be going back to Charleston tomorrow and I hope and pray they will come out!! My TEs felt pretty firm and tight, but the last couple of days I have noticed that they have softened up a little. Is this normal?



    I hope everyone that has upcoming surgerys will do well and recover quickly.

  • katiekabooom
    katiekabooom Member Posts: 48
    edited May 2013

    ladies, how seriously should i take the "pretend you have no arms".  like will i be able to order a pizza and carry it into the kitchen?  just wondering how i should manage food as I will be alone in the weeks after surgery.

    i can stock the house with light items i.e. cut cheese/coldcuts, crudite, fruit, toast, cereal etc. or i can order takeout.  I figured reheating things on the stove (i don't have a microwave) will be a bit challenging with the pots etc.  Or i can stock up with 'liquid meal replacements' as an option too.

    was surprised to learn that i will be admitted for a night after the surgery (bmx, no recon). i was expecting to come home the same day.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Not looking forward to that injection!



    Ck- Glad to hear that you got some rest, lack of sleep ix the worst!



    Chin- Hope you are able to get them out soon!

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Katiekaboo- I didn't want to spend the night in hospital (have never been admitted in my life)...very glad I did.  Lots of reasons, main one being that is where the morphine was!

    I only had my left side done, so not sure how its going to be for you on restrictions, I can't lift more than a lb..although I have to say I did fold clothes today and have done picked up things I probaly shouldnt.  Very hard for me to sit around after a day or two.  Hardest thing for me is bending down, standing up or sitting down...something with the gravity..although nothing there to pull   ???

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    Coming to you from my hospital bed. Surgery went well. I think if I remember correctly he removed 6 nodes.  Funny, not a fan of morphine, nor of dilaudid.  Made me too out of it.  Taking vicodin every 4 hours.   Have dosed on and off all evening.  I only got about an hour or two sleep last night due to anxiety.  I hope everyone is doing well this evening.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    GoWithTheFlow=I am sooo happy your surgery went well!  Prayers, Hugs and good wishes for your continued recovery!

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Sweetpickle...when is your surgery?  I don't know why but I had in my head (which is a waste land past week..lol) that yours and Runwith's was both yesterday?  Well you got prayers for the day anyway..lol.

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Go withtheflow- sendingspeedy recovery vibes your way!



    Ckmoss- My first surgery is tomorrow......ack! Then depending on pathology they will do the right side and diep on June 7th. Today is my last normal moving day for a while.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    SPickle- Well enjoy today! I took hour long bubble bath the night before...missing bath...shower...water..now..sniff. lol.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    Has anyone had 2 or more drains taken out already?  I'm not sure what to do.  I have a tentative appt with surgeon today to take out drain or drains (I have 2) if needed. But, main fup appt from surgery is Tuesday.  One drain is doing 50-70 a day so I know it has to stay.  The other one has never done much but generally has eeked out 35.  The day before yesterday until yesterday afternoon..barely anything, my husband thought might be stopped out so squeezed lines, etc...so then I did do 20 more.  Right now, after emptying both they are about the same.  I think I probaly could still get this one maybe out today..but, not sure if I should.  I don't want to take out too soon..as I'm still impressed by previous post I saw where it came out her belly button! from being done too soon.// if it was earlier in the week I would just keep in,,but Tuesday is a long way off...and then I'm not sure will it even matter having just the one out..still discomfort?  Anyway, any advice would be helpful!

  • sweetpickle
    sweetpickle Member Posts: 749
    edited May 2013

    Ckmoss- Thats a great idea! How long before you can shower? Hope you have a great day, are you able to be up and around?

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    You can't shower until the drains are out...so a week until ?  Before you leave the hospital, ask your nurse if she has anything like extra gauze, bath cloths, shampoo caps that she can give you..my breast adv told me to be sure and ask..my nurse (angel) gave me a huge bag full of tape, all the above, scissors..a lot.  The best thing is the bath cloths..they are in a pack you heat up for like 8 secs in microwave and you wipe down with them,,they have soap or some kind of cleanor..but you don't have to rinse off and you feel clean..not sticky..afterwards.I have my husband do my back and it feels wonderful. As I am all about my baths/showers, this is high recomendation..lol..the shampoo cap..you heat/put on head..have someone massage cap..when you take off your head ringing wet hair..mmm...didn't do so hot for me..top of my hair felt greasy ,,but could just have been me..Ive been having him wash my hair in sink..every 2/3 days..as he is a bit rough..but heart is there.

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    In reference to my post about the drains, I posted same on March surgery to see if anyone there had any advice..One lady said that she had one drain and possibly got out too soon..has gotten cellulitus,,had to go through a whole lot more madness with surgery etc..also spoke with my BA..she said if you are on the line 30..best to wait to make sure you are under, because if that fluid backs up in your chest..you will have to go through a whole bunch more "madness" as the aforementioned lady put it. So looks like they are in to Tuesday...compared to all I've heard..I can deal!

    Oh, sweetpickle..I am able to get up and get around..yesterday, after my day of sleep..I folded 2 loads of clothes , straightened up some..mostly using my non surgical side..but folding used both..I have to say..I would fold for about 15 min then go elevate my arm some...I kind of spread it out through the day..but felt good to be productive!  I miss my life.

  • mshelton
    mshelton Member Posts: 66
    edited May 2013

    Katiekabooo-- I had to think hard about the "act as if you do not have arms"  as I will also be alone (after the first week).  There is no way unless I learn to use my feet as arms real quick lols.  I believe that this was the suggestion of a PS to a specific patient that may have been overdoing it.  Wait until you get specific instructions for your particular case from your surgeon.  That's what I'm telling myself.  After all, folks are talking about having exercises to do for their arms after they get home. And I hear about the 5 lb weight restriction so obviously, use of arms is okay.  Just don't go overboard or lift anything over 5 lbs or whatever Your surgeon says.  I will buy small containers of milk, etc to be lighter  and some easy to eat stuff and have delivery; and will ask for help from friends if absolutely needed.  

  • GoWithTheFlow
    GoWithTheFlow Member Posts: 727
    edited May 2013

    I thought you SHOULD be using your arms in limited capacity to keep the muscles up.  Just not a lot of weight or stretching too far.  I made it home this morning and crashed in the lazy boy for 2 hours.  Really just slept a couple of hours last night at the hospital.  Couldn't get comfortable.  It's so good to be home.  Right now, I don't feel like it's as bad as I had expected as far as pain.  I've gotten a few shooting pains that were bad, but unless I stretch out my arm too far, I'm okay.  Feels okay getting up and down from a chair, or the toilet too.  I might try to sleep in a bed this weekend.  I'll stay in the lazy boy for a couple of nights, but might move on after that.  i think once I'm in the bed, I might sleep better.  We'll see how tonight goes.  

    I have clear covering over my whole inscision site (pretty much from arm pit to arm pit).  Two drains.  I was told I can shower, just don't let the water hit my chest directly.  A friend who had the same surgeon said to pin the drains to a string around my neck during shower.  Might try that tomorrow.

    Spickle, I hope your surgery goes as well as mine did.  You will be in my prayers!

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    How come I can't shower???? (read this part with pout)....It seems that every surgeon tells everyone something different, doesn't it?  It seems I got the Nazi surgeon!

    Welcome home GoWith..!

  • AnnBR
    AnnBR Member Posts: 853
    edited May 2013

    I got home today with three drains, two on one side and one on the other. As long as I sit still I feel great, but if I move too much or stretch, it feels like I've been burned around the edges. They removed one node which was clean, so I am thankful for that. Final pathology report will come later.



    Hope everyone is doing well!

    Ann

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