Depression after Mastectomy
I am 17 days post op single right breast removal. Depression hit me hard after about 10th day. I was on Zoloft for months before. I doubleled my doses and have been doing things like getting out exercises small things to try and get better. I am better already but not totally. Today was first day I had be home alone and I HATED it.
I know I am NOT alone. I found this site hoping for some advice chats anything from someone that has been here. I am honestly OK with the way I look and know I will have new breast soon. But this depression hurts. Not eating all that and the honest hurt like a broken heart if that makes sense!
I am striving each day to get better. I already have but how long will this last?????
Comments
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cwillie, I wish I had words of wisdom to share. All I can say is for me, I am able to avoid the dispair and depression as long as I can manage to keep my pain under control. I feel worse emotionally when I'm in a lot of pain so I have to keep close watch my pain cycle and anticipate when the meds wear off. Being home alone also make my life worse. I love it when my husband gets home at the end of the day. I feel less lonely and less alone fighting this battle. I hope you can continue to stay busy and engaged in life. But also know that you're entitled to feel depressed. You've just been through a traumatic surgery. My wishes for better days.
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AmyQ
Thank you. I have a 4 yr daughter who goes to daycare since all this and yes when her and hubby get home each day I love it. But right now even when he gets home I can't get rid of this real depression. I have been able keep her past couple days home and it has helped. But today after several days not alone I faced the home alone demon again and it hurts! -
I am sorry you are having a hard time. I really do feel like I was/am coping with a form of post traumatic stress disorder after the mastectomy. It wasn't "just" the mastectomy, it is facing fears, tests and more tests, hearing I had cancer...it is just so much to cope with.
Certainly keep talking to a doctor about this and it seems you are because you upped your meds...and post here, talk about it as much as you need to.
I would be lost without this board...
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I want to add that when my doc asked if I was anxious or depressed I hesitated to answer as it felt like a weakness, however my husband jumped in and said yes! My doc then ordered an anti-anxiety med which was so helpful. Although I don't take it any longer it was a benefit for several weeks. Perhaps this can help you too.
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Crystalphm
How long did it take you to to feel better kinda like your old self again? Removing the breast messes with SOOOO many hormones also! I am doing meds, more exercise, more things that won't allow me to sit and sulk in depression but I can seem to shake it!!!! -
AmyQ
I was taking them before and since my Dr incresed the dose. Sure takes some time for it to kick it. When you see the commercial and it says depression hurts, it REALLY does -
yes it does.
I was in this dark place a few weeks ago. increased my exercize, that has helped. try to get out every day. take walks. listen to some upbeat music. -
cwillie,
I noticed you were taking Zoloft before your surgery. Even with a dosage increase SSRI's can become ineffective after taking them for a little while. If you don't start to feel better soon ask you Dr to change your meds. There are quite a few meds in the SSRI family that could work better for you. In addition you could take some short term anti anxiety meds along with the SSRI to help get you through the rough patch. Both your body and your mind have suffered a trauma, it just needs a little help getting through it. Call your Dr about it, don't feel bad or embarrassed to discuss this with them. It's perfectly normal and part of the process for many of us. As time passes you will feel normal again, just do what you need to until then. Call your Dr and be openly honest. They can help. Hugs -
Cwillie - I wish I could give you a REAL {{{{{hug}}}}}, but for here, I'm afraid this virtual one will have to suffice. I -- and sooooo many of our fellow BC sisters -- know SO well similar sentiments, as I have myself. I, for one, am in a bind where my BS and MO he referred me to differ with one another (after I had a BMX) as to whether I need rads - or not. I no longer see that MO (going to see a MUCH better one next week), who told me (look at my DX!) that 10 yrs out, he can only give me a 85% survival rate (and that, incl 5 yrs on Arminidex & Tamoxifen!). When I saw the RO he referred me to (who of course thinks I need rads!), I sat in his office, had my 1st meltdown, and cried like a baby! I'm refusing rads for many reasons (margins were clear, 0 BC in the nodes, etc.) Like chemo, rads (IMO & research tells me) these are BOTH an "overkill."
Since I'm on STD for another week before going back to work, I went to my library and got several good (funny) titles (they're free!) and worked on creating a great "Music To Beat BC By" playlist on my PC's iTUNES app for my iPOD!
Some great books I've read ("Unbroken" by Laura Hillenbrand & "Man's Search For Meaning" by Viktor Frankl) were both great reads, read at a time in my life when my psyche MOST needed a "shot in the arm."
Ladies on these boards have been just great: full of encouragement, information, courage and inspiration (as well as a handy ear to cry on!) Hardest part for me? I was a die-hard walker/jogger/swimmer/health club groupie until night before my BMX. And NOT being able to do the level I was at before, especially with those 4 dam* JP drains in the way like 4 remoras on a shark!, really took a toll. But, I'll get there again - slowly. And you will, too!
Before I left my job for STD, 1 of the gals in the med center I work at (herself a UMX and recon BC sister) gave me a journal that almost all the folks in the center signed, 1 on a page, with lots of encouragement & words of comfort, given to me "to read and re-read when my days are heavy and the nights are long." I treasure that with my life (as I'm sure you do, too, with all the cards and well-wishes I'm sure you've received).
I will keep you in my thoughts & prayers, wishing you ever the best... we WILL survive this, together!
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Love reading all these post to help. It has been 5 days since increase in my Zoloft and I do see change for better. I am forcing myself to get out do more and excercise. I saw my Dr, social worker at cancer center and have asked local group to match me with someone to meet up with like at park and talk it out maybe once a week or so. I felt much better after talking it out with my dr and social worker.
I just hate the hurt and the way feels like a broken heart! Like a true heart broken in half. I have so much faith in god that I know he will get me tbrought this dark place. He has to bc he has seen Me through so much already. My motto "keep the faith!"
I find writing or typing it out here helps me also!! I am so happy to have found this board and thank you all for the support!!! -
I am so very sorry you are dealing with depression. Surgery of any kind can certainly envoke/provoke this even more so. I hope you can find someone to meet with and talk to and help you through the dark times.
For me, I had really large breasts and honestly, having them gone did not impact me immediately. Dh told me I looked younger
and less matronly with a flatter chest and I knew that I had done a lot towards reducing the risk of the cancer coming back (knock on wood).
Do I get wistful for my breasts now and then--OF COURSE! They were a very sexual part of me. I miss them.We all deal with stress, anxiety, worry in different ways...I don't focus much on this part of the experience. If I live to be an old, old lady and die from something else, this will have been well worth it. I have to remind myself that is why I did it.Not sure if it is "easier" for me because I had both removed and don't have the reminder of my pretty, healthy breast. The diagnosis itself can put you in a tailspin, so give yourself time, tenderness, professional guidance and you will come out of the angst.
Best to you!
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Cwillie, you aren't even a month out from surgery yet. You aren't all better and you shouldn't expect yourself to be, either physically or emotionally! I want to encourage you to be gentle with yourself & allow yourself to grieve and feel sad and anxious and whatever else you might be feeling.
I've suffered from depression and anxiety for most of my life and after my BC diagnosis I went to my therapist complaining about how down & anxious I was feeling. She said to me, Of course! You've just been given a life-threatening diagnosis!! It's normal and natural to feel depressed and anxious and angry and anything else you might feel right now! At the time I was mildly annoyed... yeah, sure, it may be normal, but it hurts and it's hard to live like this! But now I realize that she was right, that I needed to recognize & accept & allow myself to sit with the difficult feelings. My tendency is always to make it stop, make the pain stop, make the sadness stop, stuff it all down & get back to "normal." But sometimes we need to let the pain & sadness take over. Sometimes we need to cry and scream and truly mourn the tremendous losses we face with BC, MX, etc.
Keep writing, keep talking. Put on some sad or angry music and move to the beat. Get out some paint or markers or your daughter's crayons and draw your sadness. Sit with your pain and let it take over... not for hours or days or weeks on end, but for maybe an hour or so a day, just give yourself permission to be depressed. Then do something to care for yourself: a long warm bath, a movie, a walk, an ice cream sundae, a new pair of shoes, a bouquet of flowers, whatever will give you comfort & console you.
I hope the increase in meds continues to help (sometimes adding another med in a different class can amplify the effects of an anti-depressant -- when I was on Zoloft I needed 2 other meds along with it). Being home alone is tough, if you're feeling up to it could you keep your daughter home with you? I have a 4-year-old son and having him here with me every day is the one thing that keeps me going. It has it's own challenges of course with recovering, chemo, etc., but I am ultimately glad he is home with me. And when you are alone, get out of the house and around other people at least once a day. Go to the library or the mall or a coffee shop or wherever, or call up an old friend.
HUGS.
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I hear you. I had been quite depressed as a child and teenager. However, I felt better after having my children. Lately since BC though I can't sleep. Go thru binge eating and gain too much weight. Then get very depressed and dont eat for 3 or 4 days. I had been given meds at one time but they made me too dizzy to function. I talked to so many psychologists and none of them seem to be able to help me figure out what to do to feel better. I have been more depressed than usual with mother's day and my mom passed away a couple of yrs back from ovarian cancer. My fiance has been in Napa Valley visiting relatives for a mth. I got upcoming surgery in July so I hear you. You gotta figure out what makes you feel better. Its different for everyone of us. The worst part for me is the insomnia and the lack of motivation. Its 1 in the afternoon before I can get myself motivated to get things done.
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Love some of the suggestions!! Just knowing sometimes your not the only one helps so much. And your right I really don't allow myself to feel the pain. Each time I feel an episode of serious tears or pain I re-direct it with bible verses, get up and move my mind to try and NOT let it happen.
YES, my 4yr old daughter being home gives me more strength then imaginable! She has become a nice little comfort right now and being I missed doing so much with her while so sick with chemo I feel I am getting some of that time back now!
I don't know why but MORNINGS are my hardest!!!! By lunch or so I feel like I am ok and will be fine and beat it forever but mornings is my worst feeling time!!!! I am very happy of progress I have made just since last Sunday. The way i FORCE myself out the bed and force the morning walk or doing things to get out is what you have to do in order to get better.
I do take Welbutrin with my Zoloft. However I take generic and my dr wrote a new script that I can NOT have generic bc sometimes you don't get quite the full effect. So praying that Lil addition also helps some.
Just waiting for some energy to come back bc I tell ya my energy level is horrible!!!!! But keep the faith, keep pushing forward and keep talking to all of you guys and I will overcome this!!
Thank you all more than you know! ❤ -
Some of it is very physical. I know the lack of energy in the past for you has stemmed from depression but right now, it's probably your body telling you to give it rest & let yourself recover from this very invasive surgery. You're only 3 weeks out. I think at 3 weeks I was just starting to function a bit day to day, as in shower and microwave food and tentatively drive very short distances. After a month or so I was able to do a bit more but it wasn't until 6-8 weeks post surgery that I felt like I was returning back to normal, able to do most things, and had some of my energy back. And if you had chemo first you need to recover from that too & it may take even longer for your strength & energy to fully return. It sounds like you expect yourself to have totally bounced back by now, but I don't think that's possible with MX!
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I'm sorry you are facing this but it sounds like you are on the right track. As the other ladies have said it is a process AND perfectly normal. In addition to the meds I also met w a Stephen Minister from our church. Lots of churches of all denominations have Stephen Minister programs. My SM also happened to be a cancer social worker. She is a true angel. She always said "you know how long it will take for you to feel better?" "As long as it takes." I so understand about the heartache. In retrospect it was a very good thing that I had the breakdown. I needed to work through some long buried BC stuff. If you are interested in a Stephen Minister and can't find a program you can call their main office in St Louis I think, and they can tell you churches in your area that may have a program. Big hugs to you. It will get better, I promise.
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I have been doing good. Today seems to be a rough day and I'm
not sure why. I love reading all the support here. Knowing I may be trying to much to soon and it's ok to feel so energy LOW makes me feel better. Just told my husband I can't figure out why I have been doing so good and today mentally I am having such a ROUGH day!!!! I can't tell you all how much it means to keep reading all the support!!!! -
I am one year on and get really rough days for no reason then ok or good days gain for no reason.....!!
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C. willie, apparently we are normal cause like I said,its lunch before I feel motivated. Depression is better but comes & goes,they have not offered me anything but talking to some psychologist.
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thank you for this suggestion I had a double mastectomy in May, 2103. Did okay while I had all the "work" to do to get back to work and all, butnow am experiencing a lot of "is that all there is?" exercise may help...
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thank you for this suggestion re: exercise. I had a double mastectomy in May, 2103. Did okay while I had all the "work" to do to get back to work and all, butnow am experiencing a lot of "is that all there is?" exercise may help...
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Hi, your post was in May. I don't know if you will read this. I am two months out from a mastectomy. Just the left side. I have a wonderful support team but I still get depressed a few times a week. They say this is normal as we are adjusting to the "new me" or us. It's so overwhelming. The past few months have been difficult, from the time you hear the diagnosis, then the surgery and treatments. I hope you feel better.
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Hello Ladies! I am 3weeks & 3days since surgery. Everyday it seems there is some of the same pain or something new that hurts. Most recent is a spot that feels like my ribs under the breast area maybe where the drainage tubes were? My PS had 4 tubes, 2 on each side, 2 came out after first week but they took out one that was draining the most on the left side by accident it continued to fill up and they would remove fluid with a needle. Dr. said that the other tube would pick up where that left off but it didn't..... and they removed more with a needle 2 more times. The next week when they removed the final 2 tubes and I thought that I was going to feel so much better... (that didn't help like I had hoped) they removed more fluid with a needle because of the extra swelling. This past Wednesday first day they fill he had to still remove more fluid they are not sending it of to make sure it isn't infected. I asked why one side was doing this and the answer was it was the cancer side and had the biopsy done so it had been through much worse. How do we keep them even, he will just add more CC's to the other one. As for depression, I am a VERY happy person by nature and I didn't want to fall into this category. But I have found some days where I say I am tired of putting on the happy face for everybody. I have a Motto "you can't worry about things you can't control" but this just gets to you. I have amazing friends and have been selective about who I share it with..... not quite sure why, because it could help someone else. I did share this link onFB but didn't say why..... just to READ IT! http://www.npr.org/blogs/health/2013/09/09/220652531/why-younger-women-could-benefit-from-mammograms-after-all Do you find it easy to tell friends? I am very outgoing an active and get cabim fever even on rainy days so this is really tough. I may do more than I should but I don't have a off button. Does the feeling of an underwire bra cutting into describe what you feel? I also had 3 lymph nodes removed on left and 2 on right side but the left side has a ligament or something cord like in the center of armpit when I lift it. Can only go half way before that stops me with the pain and at times I have stabbing pains there too. Dr told me to exercise it, that it should loosen up. Has anyone experienced this? If so has it gotten better? I am sorry any one of us are going through this and for others who have or may in the future. BTW I wonder if there are any males that read this to shed some light from their viewpoint. Maybe to see what we are going through but I know my Great Boyfriend (he is been amazing) in sickness and in health?? well we are doing the sickness.... Anyway I know this effects him too. I know he has the job to get him away from this..... and tonight he went off with a buddy for a few hours & yes he would do this once every couple of months before this happen but now I know he needs it more, not his words but mine. I want to know how he is feeling about all of this. When I first heard the results he was with me and we have talked about how we both feel..... but does he feel safe really sharing with me what he is thinking? My first thoughts were about him and my Mom whom I take care of.... she is 81 and still lives alone but no longer drives, that was my biggest struggle not about me but about them and the impact it would have on them. OK I have gone on long enough. Be Strong! or Cry if you need to!!
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3 Weeks is still very new to this, and certainly you will have all sorts of pains, both real and phantom from nerves cut and tissue healing. I still had drains in at 3 weeks, so this truly is a healing time for you. And yes to that feeling of wearing a wire bra, it felt like duct tape wrapped around my chest, for most of us that goes away, for some of us, it remains at times.
The best thing that happened to me around 4 weeks is I had 6 sessions with a physical therapist who was also trained in Lymphedema. This therapist could answer many of your questions...but everything you seem to be feeling seems pretty normal to me.
One day at a time....
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Crystalphm
Thanks so much.... when you know that others experience these uncomfortable and painful feelings it makes it easier to understand that this is somehow normal....
When you said.... around 4 weeks is I had 6 sessions with a physical therapist who was also trained in Lymphedema..... does that help with this bra duct tape feeling? Or the airmpit? The bra stabbing me is the worst. It is mainly just the left side that has the most discomfort. There are times I just want to rip this stuff out it is digging in. So true one day at a time.... tomorrow is the 4 week mark.
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Of course you are going to get depressed! Its normal. You just got the trauma to your body from surgery and you are grieving body parts. I had my bmx in Dec 2012 I think it was..and I had so many surgeries..I am just now feeling better emotionally. I am close to getting the nipple surgery and getting on with my life. I still get sad sometimes and miss my son who is off & grown now. I see little children and remember how he used to be little. I miss that time so much. Cant wait til my fiance's son's girlfriend has her baby in Oct. I would say yes,get exercise,surround yourself with supportive up beat people. Count your blessings,get some sunshine and eventually depression decides to move on and bother someone else.
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I too suffered with depression before and after. I had been on Zoloft for years. My Dr gave me an antianxiety Rx before the surgery because I told her I knew I would be anxious during the 4 week wait. Keep your communication line open with your care team and remember that it takes a brave woman to face this and part of that bravery is asking for help when you need it. My cancer center refers their patients to an oncology behavioral program that is just for cancer patients. I am one year out and I see her about every two months. Having cancer puts us on an emotional rollercoaster that doesn't end. Anniversaries, Dr visits, new symptoms, tests, all of these can trigger anxiety even if you've been sailing smooth for months. The great thing is that your care team, your family, and supportive friends are great helps during those times of stress and thank God there are meds that help us through it too!!!
Give yourself permission to feel sad, it is definitely an appropriate feeling at this time. I feel sad every time I look at my scarred body, but as time goes by, the sadness doesn't linger as long. It is a mourning process, much like losing a loved one. That process can last up to 6 months. Looking in the mirror is like visiting a grave, it brings some of the feelings back to mind. But it also can trigger memories of the good times, such as nursing and nurturing my babies, one of the most fulfilling parts of my life. Grieve the loss and reach for the good that was and is to come. -
hi...I am 9days past my mastectomy, and depression has just hit me hard. Immediately following surgery I was good...thankful for a good diagnosis. (Four sentinel node biopsies came back negative.). Now I'm still in pain, feel guilty about taking the narcotics, and just plain tired of people telling me how lucky I am. ...although compared to other Dxs I am. Am I selfish?
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Please don't feel guity about taking pain meds, a dear friend warned me of this. THey prescribe it for a reason. You can't heal if you are in too much pain to rest. I had my masectomy on June 28th, and my expander exchange on Oct 31st. I feel like I have climbed Mt Everest. Getting rid of the expander has helped, but I feel like I should be on top of the world, pain is gone, and I am moving forward. Unfortunetly I am so anxious and depressed. I am gong to see if there is something my Doc can prescribe. I tried effexor, I could not tolerate it, it made me so sick. I used to be on Zoloft, but was abbruptly taken off, I was told it does not mix with Tamoxafin.
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