An Alternative approach to Stage IV Health and choices

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  • new_direction
    new_direction Member Posts: 449
    edited May 2013

    3little girls. I havent moved a bit regarding RIFE since last time I was here. I really think there is some truth about it. I saw a documentary about it on youtube. It sounded so promising. But I just get lost in all of the information. I do supply my food intake with sodium bicarbonate each day plus try to cut down on carbs. Thats all at the moment.
    Sounded like good news on your scan results although they didn't get it right the first time. I have my fingers crossed for continued improvement.

    I havent heard about Salicinium before...

  • HLB
    HLB Member Posts: 1,760
    edited May 2013

    New direction, I didn't know which one to get so my dad called the lady I met who healed herself to ask which one she got. She wasn't there but the girl who was working knew what kind because she had one too and it helped her arthritis. It is overwhelming with all the different frequencies and then the auto codes but I did a bunch of research and cross referencing and I figured out which ones to use so I am going to do it every other day. Kind of ecited to see what it does. I'm making a trip to that town on memorial day weekend so I'm going to stop in at her store and ask for some guidance in using it. There was also a 30 day schedule that they gave in the list of codes that told you which ones to do each day for a detox program. I will probably do that but I'm impatient to get right to the cancer codes!

  • lightandwind
    lightandwind Member Posts: 754
    edited May 2013

    Hi, I couldn't find the article when I clicked on the link. just testimonials and a book for sale. How do I find the article? I would like to know more. Thanks for posting.

  • new_direction
    new_direction Member Posts: 449
    edited May 2013

    It does sound interesting HLB, I really wish you good luck with that. I want one too :-)
    I guess it is very important to know how to use it. If this can "make cells healthy" maybe it can make them sick as well if used the wrong way?

  • HLB
    HLB Member Posts: 1,760
    edited May 2013

    They claim that it has no effect on healthy cells. I think its supposed to kill bad cells, like make them explode or something lol. You have to drink lots of water before and after so that your body can flush out all of the dead stuff that it killed. I just drank the normal amount but will try to do better.

  • LiwoG
    LiwoG Member Posts: 12
    edited June 2013

    Michelle, hope this finds you continuing doing well and I thought I would give a quick comment on the article you were inquiring about. 

    I can testify to the Poly MVA is something I always take and have been for a year now.  I first was given this in an iv form at Dr. Forsythe's office and since then, I now purchase the bottle and take daily as part of my nutritional support.  In fact, I will not be without this!

    Regarding the Salicinium, that product was not offered to me and I was not aware of it.  Perhaps someone else will offer some greater insight. 

  • 3littlegirls
    3littlegirls Member Posts: 853
    edited June 2013

    LiwoG That is good to know. I am going to ask into the Poly MVA.  I want the full battle going on.  :) 

  • dangelillo
    dangelillo Member Posts: 2
    edited July 2013

    My best friend was diagnosed with Stage IV breast cancer.  The second tumor is on her lung and is the size of a golf ball.  She is opposed to any conventional treatment.  If her Cancer was a different stage I might argue with her but, at Stage IV I don't blame her!

    So, I'm trying to find holistic treatments that either prolong her life and/or make her more comfortable.

    The problem I find with these types of books, articles, videos/documentaries is that they never support their findings with any factual statistics or case studies.  

    Even if something is not approved by a medical association, I would still think that these holistic doctors and centers keep records and can provide some sort of factual data and charts to support their theories!  I've yet to find that but, I would love to.

  • digger
    digger Member Posts: 590
    edited July 2013

    Unfortunately, it's not to many of these practitioners' benefit to keep records and statistics if they don't have to.  If they can just rely on anecdotal testimonials or Internet stories to keep the money coming in for dubious, unproven treatments, then that's what they do.  

    You'll find plenty of women here who will offer their own statistics on holistic treatment, although where those numbers come from are dubious at best.  You'll also find some women railing against Big Pharma and claiming that the Medical Industrial Complex is just after their money.  Interestingly, Big Holistic is responsible for just as many price gouging "treatments," and again, because these practitioners are not required by the FDA to keep any records, they can use this lack of hard core, proven statistics to bring in even more dollars from desperate patients.  

    I'm not saying that all holistic treatments are dubious, just be careful.

    My best wishes to you and your friend, and I wish you both peace.

  • Momine
    Momine Member Posts: 7,859
    edited July 2013

    Dangelillo, I am sorry about your friend, and I can't really blame her either, although some of the conventionals could probably help her and still allow her a good quality of life. Perhaps you could have her talk to a different onc, before making up her mind. Can they not operate the golf ball?

    As for alternative treatments, Digger said it well. I read something (evidence-based something) the other day, but unfortunately didn't bookmark it, about how stage IV women tend to live longer if they eat some dairy and poultry. I would urge you to head over to the stage IV forum. There you will find a thread for asking questions. You will also find discussions of the various alternative approaches people have used or are using and their takes on what works.

    The one thing that I am sure "works" is exercise. Many studies now show that exercise is correlated to longer life spans, even at stage IV. Unlike most other "treatment," exercise also leads to better, not worse, QOL.

    Stay away from anything that involves stays in unlicensed and expensive clinics. Also stay away from any kind of extreme diet or other extreme approaches, like liquid veggie diets and/or coffee enemas. As you say the evidence for these things is nil, nada, zip.

  • MothersDaughterTNBC
    MothersDaughterTNBC Member Posts: 61
    edited August 2013

    Sorry if this has already been asked but does anyone do the rick simpson oil? There is a documentary on it that I have heard about but haven't had a chance to watch. There are people who claim it helped "cure" them but I always have a hard time differentiating between scams and the real deal.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited August 2013

    Scams and the real deal are very hard to differentiate between. It becomes even harder when we feel that a loved one or ourselves is in a vulnerable position and having stage IV bc is as vulnerable as it gets. Sadly, there are those who would be more than happy to prey on this vulnerability. We have both a complementary and alternative forum on these boards that may be helpful. My only words of advice are that very old axiom, if it sounds too good to be true, it probably is.

    Caryn

  • plumblossom
    plumblossom Member Posts: 68
    edited August 2013

    Yes, I agree. Having been living stage IV for three years, I know the chemotherapy won't save my life, but I am so hesitated to choose the alternative. I was working hard for doing Qigoing in the past 3 years, I believe Qigoing is working in someway, but my cancer is so advanced, I need treatment to help. At the moment, I am in a position either spend the rest of my life in the chemotherapy or try something else, otherwise, waiting to die. I booked a ticket to Germany tomorrow. Somebody may call it alternative, somebody may call it complementary, I prefer to call it integrated therapy. I don't expect it cure my cancer, I only expect it give the cancer a control that I could live for a while without chemotherapy, and also it give me time to pratice my Qigoing. I would let you know what it will happen in my 3 weeks treatment.

  • new_direction
    new_direction Member Posts: 449
    edited August 2013

    I hope the best for you and have my fingers crossed for best possible outcome... I love the saying "if it can happen to one it can by definition happen to everyone".
    May I ask where you are getting your treatments in Germany?

  • plumblossom
    plumblossom Member Posts: 68
    edited August 2013

    Dr. Herzog's Special Hospital

  • Heidihill
    Heidihill Member Posts: 5,476
    edited August 2013

    All the best in Germany. You are right to use a multipronged integrative approach. PM me if you need things translated.

  • plumblossom
    plumblossom Member Posts: 68
    edited August 2013

    Great. Many thanks Heidihill. Today is the first day, busy for evrything. It looks good.:)

  • new_direction
    new_direction Member Posts: 449
    edited August 2013

    thanks for that info, plumblossom.

  • plumblossom
    plumblossom Member Posts: 68
    edited August 2013

    I met people here from all of the world, most of them are repeat patient. Although the treatment couldn't cure the cancer, they got a lot improvement, good quality of life. We had a summer party last evening which is great. I am not very enjoy the food here, but it's healthy. The evironment is good here, but don't have much time to go out, they keep us busy. Let's see what I will be after the treatment.

  • Heidihill
    Heidihill Member Posts: 5,476
    edited August 2013

    I can imagine about the food. Are you able to do Qigong or something similar while you are there?

  • plumblossom
    plumblossom Member Posts: 68
    edited August 2013

    Yes, beauful parks around. I did manage to do Qigoing when I got sometime. The treatment programs keep me busy.

  • plumblossom
    plumblossom Member Posts: 68
    edited September 2013

    I had the extreme whole body hyperthermia combine low dose chemotherapy. The body body temperature achieve up to 41.8 degrees Celsius. Before I came here, I didn't want this treatment that I thought it is too dangerous. But after talked with the patients who did it several times, I decided go ahead. Good, I came out alive. During last week, I also had local Hyperthemia 3 times along with other complementary therapys. Only one week time, the liver side pain has gone. I guess the tumor won't shrink such quick, most likely this improved the blood circulation. Anyway, so far so good. Before I came here, I read the patient's review that the food is excellent here, but I am disappointed. I only appreciate the fruit they provided.

     

  • Heidihill
    Heidihill Member Posts: 5,476
    edited September 2013

    Liver pain gone is a great achievement! Already worth the disappointing food, if you ask me. Hoping for more good news.

  • new_direction
    new_direction Member Posts: 449
    edited September 2013

    So good to read there is improvement from the treatment plumblossom.

    I just came across a german doctor Lothar Hirneise, and wanted to share that information and hear if anybody has any experience or information.

    His homepage is http://www.hirneise.com/index.html

    and the video which caught my attention was this one http://www.youtube.com/watch?v=HBxGhB9qzyE

  • leggo
    leggo Member Posts: 3,293
    edited September 2013

    It might just be my tablet that I'm ready to pitch out the frickin window, but I can't get those links to come up. It just takes me to a bc.org "page not found" window. Just me?



  • new_direction
    new_direction Member Posts: 449
    edited September 2013

    http://www.youtube.com/watch?v=HBxGhB9qzyE

    yes i see the problem. Will just try again. The subject for the video is "Lothars interview" if it still doesnt work go to youtube and type that. Its a 25 min long video.

    watch?v = HBxGhB9qzyE

  • leggo
    leggo Member Posts: 3,293
    edited September 2013

    Plumblossom, I just wanted to tell you that I sometimes speak with a woman at my treatment center that has been going to Germany for treatments. Yesterday I had the opportunity to find out where. Turns out it's Dr. Herzog's clinic. I wanted you to know that she is considered a miracle around here. The hypothermia treatments all but wiped out her liver mets. Hoping to hear the same good news from you. I'd say the reduction in pain is a pretty good sign that you're well on your way!

  • 3littlegirls
    3littlegirls Member Posts: 853
    edited September 2013

    Dr Herzogis who my NO trained with in Germany.  He is suppose to be one of the best.  So you are in good hands.  I've done the full body.  It's not very fun!  Understatement.  Atleast for me.  Not a fan of cooking.  Glad to hear you are getting some results.  That is excellent!!!  

  • plumblossom
    plumblossom Member Posts: 68
    edited September 2013

    Many thanks all your encouraging and sharing information. I finished the first cycle of treatment and being back to the UK. I haven't done any test. I decided to do the test after two or three treatment. Next Tuesday will be a routine blood test. I didn't hope the tumor dropping this time, just hope it is not jumping. Next treatment will be the beginning of October for a week.

  • 3littlegirls
    3littlegirls Member Posts: 853
    edited October 2013

    Goodluck plumblossom. Let us now how it goes. 

    I hope you get tumours markers dropping off the chart low.

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