Triple Negative and Birth Control

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Deniset717
Deniset717 Member Posts: 13

I was just reading up on triple negative and saw a link about birth control causing triple negative which I have suspected may have been the cause of mine.   I was on the pill for many years (to ease cramps, no other reason but this site showed risk factors such as :

over the past 10 years, I have had the start of cervical cells (LEEP procedure), an ectopic pregnancy and then was diagnosed with TNBC this past August just after turning 40.  I have also read other studies that say there is a definite link to the birth control and TNBC, especially if taken for a long period of time and at a young age.  I know this is a rather personal question if this could be the culprit for triple negative, they need to stop giving it to girls!  So I was wondering if most of the women on here have similar stories in taking the pill 20-30 years ago.  I was on it from about age 15 to 23.  If there is already a link for this topic, please advise and my apologies but I did a quick check and didn't see one.

Cheers and God Bless everyone!

Denise

Comments

  • lmcclure4477
    lmcclure4477 Member Posts: 180
    edited May 2013

    I went on the pill at age 14 for cramps and remained on it until I was 27. I was diagnosed with triple negative this January at age 35. I always wondered if my cancer was caused by the pill.

  • Luah
    Luah Member Posts: 1,541
    edited May 2013

    Denise: Can you please post that link, I'm interested to see what it says. I was on birth control pills for 15 years (stopped 17 years before my BC diagnosis), but I suspect many if not most women in my age bracket took birth control pills so the fact that some of us get TN is not surprising, and doesn't necessarily indicate causation. I'd love to know if a study was done to prove otherwise. 

    This is what the American cancer Society currently says about birth control pills: "Recent use of birth control pills: Studies have found that women who are using birth control pills have a slightly greater risk of breast cancer than women who have never used them. This risk seems to go back to normal over time once the pills are stopped. Women who stopped using the pill more than 10 years ago do not seem to have any increased risk. It's a good idea to talk to your doctor about the risks and benefits of birth control pills."

  • Deniset717
    Deniset717 Member Posts: 13
    edited May 2013

    That is what I had read also when I was diagnosed, that the pill was only with "recent use" so I stopped thinking about it, but here are the sites I saw earlier today:

    http://www.womens-health.co.uk/pill-causes-breast-cancer.html

    http://www.womens-health.co.uk/risks.html  - This is the site that lists the risk (of which I have had the 3 issues - the beginning of cervical cancer, an ectopic pregancy and now, "other cancer".  I had NONE of the risk factors (never smoked, not promiscuous, no STD's, etc) which left me wondering at the time what was going on, why I got either of these without any of the risk factors.  Then I got TN to top it all off!

    So today, I also came across a more recent site:

    http://communities.washingtontimes.com/neighborhood/common-sense/2013/may/15/brca1-not-only-shadow-cancer-hanging-over-american/   

    this site refers to the morning after pill initially but reading paragraphs 4 and 5 are quite alarming.  Especially since TNBC is also very dominant in African-American women as you have probably read.  The point about "recent use of birth control pills" is definitely contradicted here and makes you wonder if the powers that be are just saying this to keep us quiet or off track?  I certainly don't want to misinform anyone here but there just may be something to this.  If most people post on here that they did not take the pill years ago, then that would of course ease our minds that it was not that, but so far the 2 people who replied both did take it long ago for more than a few years, just like me.  (I took the pill for 8 or 9 years and had stopped for 17 years also before diagnosis, just like Luah, that is freaking me out a bit!)


  • bak94
    bak94 Member Posts: 1,846
    edited May 2013

    Hi Denise- I am not sure if my story will help, as I am brca 1 positive, so that is the main reason I got triple neg cancer, but here it goes anyways. I was put on the pill at 17 because I almost bled to death from horrible periods. Wound up in the hospital because I had lost so much blood and they said if I had not gone in that night I may have died, that is how much blood I lost. I stayed on the pill until I was in my 30's. I had tried to stop a few times but my periods were too bad. I was diagnosed at age 36 for the first time. Chemo stopped my periods for a year or so, but they came back with a venegance. I should have had my hysterectomy then but I did not know I was brca 1 positive and I just was not ready, so my doc put me on the Mirena IUD. I had never felt better! No periods and I felt great. Well, then I was diagnosed again with bc to the other breast and my new MO freaked out that I was on the Mirena and said have it taken out immediately! I was again thrown into chemopause and then I finally had a full hysterectomy. In my case birth control and cancer probably are not related because of the brca mutation, but in my opinion, it does seem to be related. Research mirena and it is scary, it seems many have gotten cancer after having it. It has been a long time since I researched, and I am not sure if there were any studies or just word of mouth that I had found, but it did alarm me.

    Also, I wonder, for those of us that were put on birth control for menstrual issues is that maybe our issues contributed to the cancer and not the pills. Maybe our hormones have been out of whack since a young age and that contributed to cancer. I was very healthy and thin and very active when I was younger, my only issue being my bad periods. Have you been tested for brca?

    Thank you for bringing this topic up. I find it interesting and alarming like you.

  • Deniset717
    Deniset717 Member Posts: 13
    edited May 2013

    For some reason, the last link doesn't work anymore so here it is typed out since I cannot just cut & paste (hope I typed it correctly), if you still can't access it, let me know:

    http://communities.washingtontimes.com/neighborhood/common-sense/2013/may/15/brca1-not-only-shadow-cancer-hanging-over-american/

  • DeliriumPie
    DeliriumPie Member Posts: 1,370
    edited May 2013

    I have been on birth control continuously for the last 17 years. Started at age 15 and am still taking them per my MO because she doesn't want risk of pregnancy while on chemo. But if I'm not having periods, is there a point? After reading this thread I want to throw them out right now. My genetic tests were all negative. The pills were the first thing I thought of when diagnosed but in my mind being triple negative meant it wouldn't be because of the pills hormones, etc. thoughts?

  • lmcclure4477
    lmcclure4477 Member Posts: 180
    edited May 2013

    I also thought of birth control pulls right away but then wouldn't that mean my cancer would be caused by hormones? I don't see the connection between and pill and triple negative.

  • Deniset717
    Deniset717 Member Posts: 13
    edited May 2013

    I have thought the same that since we are negative for hormones, how could it be related but I wonder if birth control pills have damaged our dna. Like all of us, wish we knew for sure and other carginogens most likely contributed to us getting it also but it just seems much too freaky how we are all getting this by 40. I am taking lots of vit D now in the hopes to repair cells and/or keep them healthy - wish I had known the benefits of this vitamin before as my levels were tested after diagnosis and i was quite low. I am also going to start taking milkthistle to protect my liver. It sounds like I am an advocate for vitamins but I just want to pass on what research I have found to seem worthy for our future good health. At least in taking the pill, our chances of ovarian issues are supposed to be very decreased.

    God bless!

  • DeliriumPie
    DeliriumPie Member Posts: 1,370
    edited May 2013

    Very interesting Denise. My D was low also and I was prescribed some that I have been taking twice a week. I wonder if low D is caused by having cancer in general or a risk factor. Hmm

  • Reyna007
    Reyna007 Member Posts: 2
    edited June 2018

    Hello, I was recently diagnosed BRAC neg, shocked since I have cancer in my family. So now I'm thinking it was the pill. I was on it straight for almost 22 years, due to endometriosis. It was to keep it from coming back after they cleaned me out.

    Now I have tnbc ar 52.

  • VL22
    VL22 Member Posts: 851
    edited June 2018

    You can drive yourself crazy trying to figure out the why of it. I was on birth control pills for 9 years. Had my two boys, then went on a new kind for 2 years - all kinds of bleeding issues, yeast infections, bloating etc so stopped in less than two years. Sometimes I think it was then that the beast started.

    But a year ago we found out our public well water tested high for cancer causing chemicals. Great! So maybe that’s it??? Obviously not all of us got cancer, but I really think some people are more susceptible.

    I don’t dwell on it anymore because what’s the point? It doesn’t change anything

  • NinjaMeow
    NinjaMeow Member Posts: 41
    edited June 2018

    I did not start birth control until late 20's....did not have kids until 35 and diagnosed at 40. I was on Mirena at the time. In my case I don't believe bc caused my tnbc. I tested neg for genetic factors as well. I am not downplaying but like the other responses you can make yourself crazy looking for an answer. Sure studies may show propensities toward developing cancer like the ones that occur due to later child birth but unfortunately none are a silver bullet answer.

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