Chemo May 2013

Options
16791112103

Comments

  • Teresa_G
    Teresa_G Member Posts: 259
    edited May 2013

    I start chemo May 24th and get my port on May 16th.  AmyJax those drains are such a pain.  I had mine in for a week, you must have had yours in longer because of the reconstruction?  My surgeon doesn't like to do reconstruction at the same time.  My tissue expander was scheduled to be placed this week, but my oncologist wants me to move forward with chemo first.  So I wait.  Are any of you also facing radiation?  My oncologist said he would send me to a radiologist later but he is guessing I will also need that too.  Sounds like a fun summer.....not.  Good luck to everyone, nice to read how others have handled things so I can be more prepared.

  • JennaJMU
    JennaJMU Member Posts: 97
    edited May 2013

    How is everyone feeling who started 5/2? I'm feeling pretty normal and haven't lost any hair yet. My biggest complaint is the terrible acne I've gotten on my chin.



    And the couple pounds I've gained but that's all my fault...glutinous Mother's Day weekend!



    Good luck to everyone starting this week!

  • MichelleRN78
    MichelleRN78 Member Posts: 64
    edited May 2013

    @Jenna

    You have the acne on your chin too?  I thought I was the only one.  My MO gave me clindamycin gel and I started using it yesterday.  I started feeling normal last Thursday.  Still have all my hair.  

    My next chemo is scheduled for the 23rd.  I am pretty excited that I only have to have chemo once in June (silly, I know).  I had my port accessed last week for a blood draw and all I can say is that I was right to be apprehensive about it.  The good news is that the neulasta is working awesome!  My WBC counts were through the roof!

  • debbiema
    debbiema Member Posts: 34
    edited May 2013

    Hi Amy! I start chemo on 5/15 too.  Nice to go through this with everyone!  I am anxious to get this started and remain ever so hopeful I won't be too badly plagued by the SEs!!!  Good luck to all who started today and those who have begun the chemo juice in May!  Stay strong everyone!!

  • debbiema
    debbiema Member Posts: 34
    edited May 2013

    Hi Teresa - I will need radiation too, but will need to get passed the chemo first.  My MO said there will be a month off in between.  I guess that gives your body time to readjust.  I'll plan to meet with the RO sometime while the chemo cycles are going on!  This way I can get that part started as soon as practically possible!!

  • argynis
    argynis Member Posts: 123
    edited May 2013

    @Jenna and @Michelle - I also developed acne on my chin and cheeks :(

  • Worrywart9390
    Worrywart9390 Member Posts: 101
    edited May 2013

    Good luck to everyone starting chemo this week.  Today is day 7 for me, and I'm keeping my fingers crossed that the side effects continue to be mild.  A little nervous still abouts days 9 and 10 with the white blood count and then of course day 14 (or around) that I'll be losing my hair.  This forum really does make this easier to go through.  Thank you everyone for the posts that help to keep us informed and updated!! xoxo

  • Gully
    Gully Member Posts: 268
    edited May 2013

    Hey May 2nd first rounders, Anyones scalp starting to tingle besides mine?  UGH..........Now I just want to get it over withSurprised

  • Debwarrior
    Debwarrior Member Posts: 72
    edited May 2013

    I don't mean to be a Debbie downer but I"m 4 days out and kind of feel like crap. Sour stomach, no energy, borderline nausea, and slightly depressed. I know I'll make it through the 12 weeks but wish I felt better. I guess this stuff still falls into the slight side effects category but not fun.

  • MichelleRN78
    MichelleRN78 Member Posts: 64
    edited May 2013

    Sorry Deb that you are feeling crappy.  I would say that that days 4-6 were the worst for me.  Everything that you said, I asked my husband how on earth I was going to do it 5 more times.  Day 7 I started to feel human again.  It doesn't help now but you will feel better.

  • Ukkate
    Ukkate Member Posts: 292
    edited May 2013

    Deb - sorry you're feeling so crappy :(  

    I had my first treatment today and the treatment was a lot easier than I thought it was going to be.  Accessing the port didn't hurt at all and I had no reaction to the Taxotere.  

    Now I feel like I"m just sitting here waiting for the side effects to kick in :(  I haven't been feeling great at all for the last week so I can't imagine another layer of crappiness on top of all that.  So would you all say day 4 then?  That would be Thursday right?  I have my last DJ gig on Saturday which is day 5 or 6 (do you count the day of chemo as Day 1??)

  • JennaJMU
    JennaJMU Member Posts: 97
    edited May 2013

    Yep the acne was the most annoying part of round one! It was terrible, cystic, and painful! I will ask for that same ointment!

  • Gully
    Gully Member Posts: 268
    edited May 2013

    Yep I agree. Days 3 through 5 were the worst for me. Day 6 on: I feel pretty normal. Hang in there....goes away as quickly as it came on. You can do it girls hang in there! Just picture those little nasty cancer cells being obliterated!Laughing

  • lpc
    lpc Member Posts: 303
    edited May 2013



    Hi all. Days 3 and 4 worst for me. Finally back to work today. Great day until my supervisor came in and told me I looked like I gained weight. Have only gained a pound. I told her thanks I needed to hear that she says she didn't mean to offend me! Had to walk away and try to hold back the tears. What will she say when I wear wig? Good day went bad.



    Anyway my next dose is Thursday and I hope it goes as well as this one.



    Kate glad all went well today. May your se's be few.

    Debwarrior I hope you feel better soon.

    Gully no tingling scalp. Wish hair would start coming out already so I would feel better about cutting it Thursday.





  • jsrose14
    jsrose14 Member Posts: 117
    edited May 2013

    Gully- I had tingling scalp both during chemo infusion and after. The nurse said it was normal and was from the cytoxane. I am doing CMF and felt crappy for day 2-4 and then have felt good other than the tingling scalp. My second infusion is this Wednesday! Hope it goes as smoothly as the first one!



    Jsrose

  • Debwarrior
    Debwarrior Member Posts: 72
    edited May 2013

    Thanks for the moral support. It really helps. Glad your first infusion went well Kate. lpc I'll be in the infusion room every Thursday too. Hope I get a day or two a week,where I feel good. Maybe it will be the two days before each chemo.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013

    Debwarrior, did the doctor prescribe nausea meds? If they did you should probably try them.

    Also, did you try Prilosec or Tums?...is that for "sour stomach"...is that same as heartburn? ,I know I had heartburn and used Prilosec and I have taken one every day since day 2 (day 1 is chemo day). I just might add that to my day 1 treatment as the Pepcid they gave me in the IV did nothing for me....or I should say didn't do enough for me?



    The lack of energy is something I suffered from as well. I had read someone said to push through it. It DID help to get up and go out and walk. It also felt great to take a three hour nap, something I could do because my kids were in school! I missed celebrating my sons birthday because I was too tired, and napped for an hour during dinner. (The same day I took a three hour nap!). Thursday was a loooong day!



    I can't speak to the depression. All i know is the lack of support in my house is driving me nuts. Surgery, now chemo and I still do it all. sigh.

  • MomofSam
    MomofSam Member Posts: 74
    edited May 2013

    I start Chemo on May 15th.  Not gonna lie...I'm a bit nervous.  I am really trying to stay positive as I have a little 5 year old girl so I don't want her to see me upset.  Plus, I'm usually a pretty laid back kind of person anyway.  I had my port inserted on May 10th and I am actually really sore.  Is this normal?  I have steri-strips over the incision site and am wondering what they will do with that when I start Chemo since the steri-strips will still be there.  I have been reading everyone's posts and it's good to know there is someplace to seek support with others who are going through the same thing.  I'm only Stage I so it's been a bit difficult for my family to understand why I have to go through so much treatment (8 rounds of dose dense Chemo, 4 AC and 4 Taxol - 16 weeks to complete), Herceptin, and 6 1/2 weeks of radiation treatment).  I am HER2+, just turned 40, 1 cm tumor and it was Grade 3.  My husband has been extremely supportive (has gone to every appointment with me) so that really helps.

  • MomofSam
    MomofSam Member Posts: 74
    edited May 2013

    I start Chemo on May 15th.  Not gonna lie...I'm a bit nervous.  I am really trying to stay positive as I have a little 5 year old girl so I don't want her to see me upset.  Plus, I'm usually a pretty laid back kind of person anyway.  I had my port inserted on May 10th and I am actually really sore.  Is this normal?  I have steri-strips over the incision site and am wondering what they will do with that when I start Chemo since the steri-strips will still be there.  I have been reading everyone's posts and it's good to know there is someplace to seek support with others who are going through the same thing.  I'm only Stage I so it's been a bit difficult for my family to understand why I have to go through so much treatment (8 rounds of dose dense Chemo, 4 AC and 4 Taxol - 16 weeks to complete), Herceptin, and 6 1/2 weeks of radiation treatment).  I am HER2+, just turned 40, 1 cm tumor and it was Grade 3.  My husband has been extremely supportive (has gone to every appointment with me) so that really helps.

  • AmyJax
    AmyJax Member Posts: 43
    edited May 2013

    I had my port put in today and it is so sore......I mean not like Tylenol sore, like percoset sore. How long is it going to feel this way...anyone. I was down to a half a percoset to sleep to tap down that dull tissue expander pain to sleep at night.....and hoping to move away from it all together next week. (I'd love to drive again sometime soon!)



    Thoughts? Anyone have any other pain tips?

  • sebaroni
    sebaroni Member Posts: 59
    edited May 2013

    MomofSam - I am nervous about chemo, too. I have a wonderful husband and two adult daughters, I wouldn't have made it without their love, support and help. Although, no one else seems to be able to clean the cat throw-up.

    I asked my PS surgeon today about what she hears from patients about the port and she said it seems to be worse than the breast surgery. I think because it is just under the skin. YAY, can't wait for that now. I did ask her about the showering and she said it is the same as post-op last time, just 48 hours. I can deal with that. I completely trust my surgeon, so I will ask him about all the stuff I hear you all going through.

    Amy - June 6th is the day I can drive again, it is circled in red on my calendar. I can't wait.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013

    Momofsam,

    I have learned so much from these boards. You will find many words of wisdom here and others with young children going through the same thing.



    Here is a link that appears to explain about grade 3...that would seem to be ONE of the factors that you are receiving the treatment you are.

    http://www.cancer.gov/cancertopics/factsheet/detection/tumor-grade



    I hope you have read a lot of the boards, especially the chemo ones, so you can mostly figure out what to expect. Go back to the April chemo board and you can read personal stories. I found them to be very helpful. I had a notebook next to my computer and too LOTS of notes.



    Please drink A LOT of water. I found with the steroids I was extra thirsty anyway.

    The water will hydrate you and flush those toxins away. You WILL be able to do this. There are so many meds to help you feel ok. If you don't find the list of what to have on hand let me know and I will retype it for you.



    I think your daughter will be fine. On the day you are tired just tell her you are tired. Kids are SOOOOO resilient. Even consider buying a special DVD, or renting one from the library so she can enjoy it while you rest.



    Keep educating yourself. I'm sure we were all shocked to find ourselves here. But thankfully there IS a place do all of us to come to learn and share.



    Pat

  • lpc
    lpc Member Posts: 303
    edited May 2013

    Amyjax ice pack on port worked wonders for me along with painkillers.



    Momofsam I am doing the same chemo as you. Day 3 was the worst. Mostly tired....very bone weary tired. If you are getting neulasta shot please do yourself a tabor and start claritin before chemo. It will really help with bone pain. Start a laxative. I use senakotS. Chemo is outrageously constipating!

  • MomofSam
    MomofSam Member Posts: 74
    edited May 2013

    Pattysmiles & sebaroni,

    That really helps a lot!  I have been reading the boards for a couple of months since my diagnosis, but just found the courage to actually sign up and post something tonight.  I'm glad I did!  Thanks for your posts :) 

    And yes, I agree, the port has been more painful than the actual breast surgery.  Don't get me wrong, I wouldn't say the breast surgery was any fun, but I feel more sore overall after the port for a longer period of time.

  • AmyJax
    AmyJax Member Posts: 43
    edited May 2013

    MomofSam - we are starting same chemo on same day! I'm nervous too, but relieved to get it going. We'll get through it - with the help of all our sisters!



    lpc - thanks, ice pack is applied!

  • elkatho
    elkatho Member Posts: 159
    edited May 2013

    Hi All. I am also joining the May 15th crew. I get my port tomorrow and chemo the following day. A little nervous about that but I did, not want to wait any longer to get this next step going. Keep positive and we will get through it.

  • shimmy
    shimmy Member Posts: 15
    edited May 2013

    Hi everyone, had my first chemo (T/C) on 5/9, figured it was about time to check in here. I've been very lucky so far, Day 2 was rough-- super tired and achey. That was the day I started Neupogen too, so that may be the cause of the worst of it. I'm taking Claritin, but I still get very achey from head to toe soon after the shot and have to start on the Tylenol too.

    Lots of little annoyances from constipation to that darn chin acne everyone is getting. First time is a learning experience, now I know what to expect next time and how better to prepare. More sleep, more water, Miralax from the get go and more ice chips during. I kept forgetting to use them and now my mouth is starting to get get sores.

  • LJaeger
    LJaeger Member Posts: 58
    edited May 2013

    Wow, it looks like there are a lot of us starting on May 15th. We're mainly starting in waves - tons May 2nd, and now May 15th. I feel lucky that a bunch of amazing women started this journey 2 weeks before I will. What great advice! Dreading that chin acne, which I am sure I am going to get. High school provided enough of that!

    Seems like most of us are getting a port for the treatment. For now I guess I'm glad that they are going to give it a go without the port - I am sorry it has been so painful for everyone. But perhaps I'll be wishing I had it when I go in tomorrow! I am HORRIBLE at drinking lots of liquids - my DH always tells me I need to drink more water, but I'm never thirsty. I better get this going, or my veins will be dried up skinny pathways. Argh.

    I am loving the thread on this website that is titled "You know you're a cancer patient when"...someone linked to it a few pages back, and it's wonderful to read during the day when I need a break and a laugh. My only complaint about this website is that when I'm trying to write a post, I can't flip back and forth between pages. I'm pre-chemo, and I still can't remember who said what and when. I think it would be wonderful if this comment box appeared on the left side of the feed, and would scroll up and down through all the comments. (Maybe a moderator will read this?). Really dreading "chemo brain" and having even less abilty to recall things. Do you think anyone escapes it?

    Hugs to everyone today on another day of this journey.

  • elkatho
    elkatho Member Posts: 159
    edited May 2013

    I am planning on working during chemo on a poor part-time bases. My bosses and a few peers know that I have BC and Im sure a few minds told a few others but not all 80 employees are aware. Now that I am having chemo there is no hiding it.We are all women and know woman so I was wondering how have you have handled it. I work with almost all woman and see them all thru out the week. I am at a management level so want to handle it professionally. My bosses, men, tell me to handle as I like. I get it but a little advisement would be helpful. I am typically a very private person regarding my personal life at work. I can send a company email, I can ask HR to let everyone know, I can walk in with a bald head one day (a little too shocking for me). I do not want to have to repeat in a dozen times each day. I want work to be somewhat of normalcy away from "IT". Thanks All!! You gals are great on this site.



    I took a peak at "you know you have cancer link....funny...reading it on chemo day.

  • Ukkate
    Ukkate Member Posts: 292
    edited May 2013

    Hi to our new people!  The port was REALLY painful and I feel like the doctors don't tell you how painful it's going to be. But 1 week and 1 day past port, I don't feel any pain from it anymore.  The day I had it put in, I ended up taking an oxycodeine just to get to sleep.  The 2nd day was a teeny bit better and every day got a bit better after that.

    Gosh - I hope I can avoid the chin acne.  Someone on another chemo list said that their doc prescribed anti biotics and that wiped out the acne.  So have him call some in.

    I am not going to work today and I feel kinda guilty because I don't feel too terrible, but I'm scared to be there and to need the toilet and not be able to use it (we only have one toilet between 10-12 employees).  I am supposed to get answers about my disability today.

    So I'm feeling a little nausious, and taking the fenagrin on top of the zofran.  I slept okay though.  My skin on my face is REALLY dry - it almost feels like sandpaper.  No bone pain yet though - I need to take another Claritan.  Oh - I got my neulasta shot in my stomach which I had read hurts less than in your arm - so you might ask for that.

Categories