DIEP 2013

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  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Just a quick check in tonight:

    peacelovedogs.. I've asked the mods to change the dates for you on our list. Sorry if I missed an earlier message from you. Nerves are to be expected I feel, for such a significant surgery, and we each have our unique worries and issues. Sounds like you have done all you can to organize stuff at home, now you need to do the best you can for YOURSELF, and I agree that means asking for some anxiety meds. They sure helped me.

    Cherrie...Sounds like you're feeling a little better?? Hope you just keep improving. You're not alone in the hotel room are you?????

    Lmo and Kuka...sounds like you're doing great too. Energy gets zapped by alot of different "triggers", small kids at home being a huge trigger, I should think. Rest when you can, be proud of what you can do each day, look back, and see how far you've come since the day after surgery.....small steps add up to progress too, doesn't have to be giant leaps forward every day!

    sbelizabeth...I've sent you an email.

    Liefie....please keep the cougars over there....I'd rather meet a bear (in fact I have, several times) than a cougar on the trail. I know they're around here......just don't want to deal with one.

    fredntan....LOVE the mindset of "the doors are locked"....too clever!!!

    Gini....Hope the walk went well, and the rain held off for you and your fellow walkers.

    Have good nights everyone.

  • Gini23
    Gini23 Member Posts: 183
    edited May 2013

    The walk was lovely today! Great crowd and only a teeny tiny sprinkle. Lots of happiness, some sadness - but overall a great morning. :) If you have never attended an event for breast cancer awareness, I highly recommend it. It reminds us of how lucky we are for being among the survivors, ad renews my passion for helping others.



    POURED later in the day, and my DD had to play soccer in it! Luckily I got a parking spot that overlooked the field so I stayed in the car. Dozed off towards the end... apparently I missed a few goals because I thought they won 4-0 but apparently it was 9-0! lol



    Cherrie - glad to hear you are starting to feel a bit better. Keep on that path!



    peacelovedogs - excited for you! Sounds like you have fabulous supports in place. Don't be afraid to reach out to people and take them up on the offers.



    Betsy - my understanding of the TEs is just a placeholder and to stretch the skin, not the muscle, though obviously it would be doing both. My muscle was tucked back into original position during the DIEP. If I'm not mistaken, by doing that you are left with a smaller scar than for someone who does a delayed DIEP with no expander. And many PS are concerned with rads exposure to a new DIEP breast.



    Interesting bike ride stories, ladies... cougars and bears and unmentionables.... oh my!



    If you are a mom... Happy Mother's Day! I spent today with my mom... she walked with me this morning, and later came over to keep my younger DD company while I was at the soccer game. We ordered dinner delivered for when we got back. Love that lady. :)



    Hugs,

    =) Jeannie

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2013

    Thanks Jeannie for the explanation... I wonder then why they don't just use an implant to hold the place. That would avoid fills and messing with the muscle, and yet keep the skin intact.... right? Or would the implant just slip out of place? I didn't have delayed DIEP or radiation so I am just curious.

  • faith729
    faith729 Member Posts: 244
    edited May 2013

    Gone for a few days and I'm reading 3 pages of posts ! Wow



    Ann I think it would be amazing to meet everyone ! Let's get this party started ;)



    Cherrie glad to hear your doing better so sorry to hear that your pain was so bad.



    Gini glad your walk went well ! Next year if you do the Komen walk I would love to join in ! Your not too far from me and I have yet to walk but have wanted to for years !



    Go back to work Monday bleh ! Hopefully I last the whole day. I asked about side sleeping and will be 6 weeks out in a dayor so. They ssaid it was OK and I wanted to so badly but it just wasn't comfortable so I will try again soon.



    Happy Mother's Day to all you moms here :) I spent today with my mom and will enjoy tomorrow hopefully without rain at the baseball fields with my boys :)

  • heavenschild
    heavenschild Member Posts: 212
    edited May 2013

    Kuka21 - The soreness on the sides of the breasts does get better. I still have some tender areas, but at almost 4 months they are starting not to be noticeable unless I press on them. I guess these were the areas where the put the instrumentation in when they were putting the new foobs on because that is the tender area. You are doing great if you are doing what you are doing post-op. It is a slow recovery, please give yourself lots of time to heal and enlist the kids to help.



    Peace - what part of Fla do you live in? I used to live in Orlando (kids still there) and West Palm Beach. I was told that it was okay to take sleeping pill the night before, and even for STage 2, I am going to do it. Plus a glass of wine (bad, yes, I know). You have a lot of on your plate, I am glad you have a good support system!

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Happy Mother's Day to all.....what an amazing group of women you are...full of humour, compassion, courage and fight!!!!!!

    Cherrie....hope today finds you feeling a bit better still???

    HHcats....you've been a bit quiet....hope it means your just busy getting on with things. 

    peacelovedogs....hope you got some rest last night, and find some relaxation/distraction for the next few days. I'm sure your doc will have no issues with helping you out in the med. department!

    Gotta go, enjoy the day everyone.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2013

    Happy Mother's Day, especially to those of you who battled BC and endured all that goes with it, while managing a home with small children.  My twins were 30 years old when I was diagnosed, and it was hard enough for them, but moms who needed to find ways to explain and manage the disease, fatigue, baldness, surgeries, etc. to little ones deserve a special medal.  

    Peacelovedogs, my PS offered me presecriptions for ativan and a sleeping med at my pre-op visit.  I don't believe ANY PS would say no to your question.  And it's a very good idea to be rested and relaxed going into this adventure.  

    Cherrie, good thoughts coming your way.  Time heals.  

    One more week of goldbricking, I think, and then it's back to the office for me.  In the meantime...sleeping in, biking, shopping, making dinner for DH, having a great time! 

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited May 2013

    Happy Mother's Day to all of you wonderful ladies! Enjoy your day with your kids and celebrate our extended life with them!

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited May 2013

    Happy Mother's Day to all mothers!

  • damiana9
    damiana9 Member Posts: 389
    edited May 2013

    I am having my DIEP done 3 months after the end of RADS- anyone else do it that soon after?  I am thrilled that he is willing to do it that early, and he seems very confident that everything will be fine but I am starting to freak out that maybe it will be too soon.

  • lilyun
    lilyun Member Posts: 54
    edited May 2013

    Happy Mother's Day to all my fellow DIEPERS!

  • PinkHeart
    PinkHeart Member Posts: 1,193
    edited May 2013

    Damiana,



    Most say wait at least six months after rads. The earliest I have come across is at Harvard. Their site said 4-6 months.



    Wishing you great results!

  • Cherrie
    Cherrie Member Posts: 1,423
    edited May 2013

    Checking in. No pain or nausea right now. However, I can't keep my eyes open. All I do is sleep.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    So nice to hear you're feeling better. Have some respect for what your body is telling you.....rest, sleep, whatever, bet you will feel much better afterwards!

  • fredntan
    fredntan Member Posts: 1,821
    edited May 2013

    I did mine in oct. finished rad may4th. PRMA will do at 3 or 4 months. My skin was ready. I didnt know any docs would do so soon. so I didn't start scheduling until sept. I needed to get it behind me. I couldn't wait the 6months to year local docs were saying. I thnk NOLA does 3 months. I'm not sure. Betsy will know

  • bdavis
    bdavis Member Posts: 6,201
    edited May 2013

    I don't know.. I didn't have rads.

  • liefie
    liefie Member Posts: 2,440
    edited May 2013

    Happy Mother's day to all you lovely ladies! Mine was a bit lonely without any children living close by, but they have all phoned me - they know what is good for them!

    Cherrie, sleep is good. Glad to hear you are doing much better now.

    My PS wanted to wait for DIEP longer after rads. It's going to be about eleven months since rads ended for me. Seems different PS's have different ideas . . . oh well, it is what it is. Have to trust them.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2013

    Cherrie, kudos to you for having your eyes open and remembering how to type this soon after surgery!  I took lots of stuff "to DO" at the hospital--sudoku puzzle book, professional journals to read, phone calls to return...and did NONE of it.  The day after the surgery, in the ICU, I looked at the write-on board across the room where they kept track of my doctor, nurse, etc. and thought, gosh I wish I could read that.  I was so gorked from anesthesia it just felt good to lie there and veg. 

    Damiana, everyone on my team wanted me to wait at least six months after rads.  As it was, I waited eight months and all went well.  My PS said he spent a lot of time during the surgery removing the radiation damaged tissues, finding the artery and vein in there, and preparing the area for the flap transplant.  One of the reasons I'm thrilled with my DIEP is that I can tell it will relieve my pain that was associated with radiation adhesions there.  Good luck and blessings!

  • Gini23
    Gini23 Member Posts: 183
    edited May 2013

    Cherrie - get your rest while you can....! My afternoon naps are long gone.... :( Rest well!



    Damiana - my PS also said it would be a 6 mos wait if I did rads. If you are confident with your surgeon, perhaps it's worth a question if HE is confident that 3 mos is enough time, based on the number of DIEPs he's done?



    Betsy - My PS once explained the history of implants to me, that they originally were not put beneath the muscle and all kind of problems ensued. So I think that would be the same here. Need the muscle to hold them in place. Also, even with a skin-sparing MX, I think they remove a fair amount of the skin, and since it's not being immediately replaced by belly skin they need to close and then expand the skin slowly. Too much at once can lead to issues like necrosis, I think.



    Faith - would love to have you join us at Komen! Why not this year....? It is June 1 - I can't run this year, only walk... would you be up to it?? I did it last year mid-chemo, in the pouring rain!



    I hope all the moms had a lovely Mother's Day! Mine was spent on the soccer sidelines. First we drove up to the northern border of CT, and then ended up on the southern coast! Thankfully no rain and a lovely day spent with my DDs. One win, one tough loss, but great games!



    Hugs,

    =) Jeannie

  • ckmoss
    ckmoss Member Posts: 613
    edited May 2013

    I am thinking of this option for reconstruction at soon as I can after single mastectomy (Weds).  However, I see that if you have smoked you may not be a candidate.  I stopped smoking this past January (the only resolutioin I have ever kept).  Is this enough time? I'm not sure how long you have to be a non'smoker to have the flap.

  • nihahi
    nihahi Member Posts: 3,841
    edited May 2013

    Surgeries this week are: peacelove dogs and Weerah.....best wishes to you both for successful surgeries and easy healing.

    Damiana9....besides the differences in PS protocols, there are differences among us all of type and duration of tx's, rads included....then throw into the equation, the fact that physically, we respond/heal differently too. Why not ask your PS his reasons for telling you why he feels that timing would work for you? If you are uncomfortable with his explanation, ask for more info, or get another opinion.

    ckmoss....congrats on the smoking cessation! That is a huge accomplishment!!!! Again, every surgeon has his protocols.....talk to your surgeon about his.

    Cherrie....hope you woke up feeling so much better, and ready to go home!

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2013

    CKMoss, congratulations on losing your smoking habit!!!  I've never been through this, but with the proven addiction that nicotine leads to, my hat is off to anyone who can break it.  From what I've read from my PS, you can be a candidate for DIEP as long as you're not currently smoking.

    Would it be possible for you to have an immediate DIEP with your mastectomy, or are they pretty sure you'll be needing rads after your surgery?  My DIEP was a year after my mx, and all has turned out beautifully.  

  • liefie
    liefie Member Posts: 2,440
    edited May 2013

    CKMoss, I don't think all is lost for you as far as DIEP is concerned. You accomplished a wonderful thing when you stopped smoking. I have never smoked, but have seen the struggle of people trying to break the habit. Congratulations! You may have to wait longer before DIEP to give yourself the best chance of success, and to give your body enough time to recover from smoking. The ability of the human body to heal itself from all the abuse we throw at it is simply amazing, and it will be worth your while to exercise patience here. Maybe start eating as healthy as you possibly can, and start exercising if you are not already doing so. Talk to your surgeon as Nihahi suggested. Good luck!

  • Dyvgrl
    Dyvgrl Member Posts: 471
    edited May 2013

    bdavis -

    The way my PS explained it to me, was that because he didn't know if I'd need rads or chemo, not only did he want to keep the skin stretched to preserve as much as possible for reconstruction, but also to protect the blood vessels and veins he will need. I guess these can be damaged during rads, and having the TE in prevents that? I don't know - I was thrown off by the whole thing as well. At first we were planning on recon two weeks out, but because we're not certain about radiation, he won't move forward until that is complete. I've been pretty clear up front that I want to go back to normal as quickly as possible, and walking around without a breast for 6 months kinda freaked me out. I'm sure I'd adjust easily, but for the sake of my children, I want to keep as even a keel as I can for them. With an 11 year old, she's pretty sensitive about the whole thing. Doesn't want me to have surgery, doesn't want me to lose my hair, etc so my concern to look as normal as possible may have had something to do with his decision for a TE - will at least give me a mound while I'm going through treatment. Either way, I just want to get it done already!

  • MartyJ
    MartyJ Member Posts: 1,859
    edited May 2013

    CKMoss - Congrats on quitting smoking.  I smoked for 25 years and quit 20 years ago.  Talk with your surgeon about DIEP and how long you need to wait.  Most of our surgeons even recommend that we not be around second-hand smoke. Besides creating challenges in re-connecting the tiny blood vessels, smoking/smoke influence healing/scarring.  But, quitting improves all your life!

  • kuka21174923
    kuka21174923 Member Posts: 427
    edited May 2013

    My PS said at least six months without smoking to do DIEP. I had been a smoker in the past, but quit when I got pregnant with my son 9 years ago. I think if you quit smoking in January you should be able to have it done this summer. But I guess it depends on the PS like everyone else has said. Good luck!

  • faith729
    faith729 Member Posts: 244
    edited May 2013

    Hi ladies just checking in to se how things are going with everyone ! Today was my first day back to work in 6 weeks and it went better than I had expected. I am a nanny for a 3 year old little girl and she is sweet but doesn't handle change well. To my surprise when I got here this morning she was really excited and had decorated the house with pictures for my welcome back morning :) cute !



    gini23 im not sure if I would be ready to walk that far yet ? If you have an extra minute would you be willing to pm me the details of the walk?

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2013

    Dyvgrl, I am not a mom to a girl, and my boys are both grown and launched, so if I'm completely off track, please forgive me.  From my perspective, this is YOUR disease, YOUR battle, and YOUR chance to show your daughter how a brave, courageous woman takes on a life-changing challenge with dignity, grace, and matter-of-factness.  

    None of us wanted to lose our hair, our breasts, or our "normal."  You have or will lose your hair.  Wigs and hats can cover it, and everyone in my life got used to seeing me, unashamed and smiling, very bald.  Beautiful eye make-up, dramatic earrings, pretty clothes, and one of my friends said "you look like a French model."  Surgery is necessary to save your life, with or without a tissue expander.  My radiation onc REALLY didn't want me to use a tissue expander; he was concerned about the exactness of the radiation targeting.  I used mastectomy bras and forms for a year and looked very normal. I was sure glad when it was time for reconstruction, but even through that long surgery and post-op recovery, we can show strength, determination, and courage.  These are things you can model for your daughter, who will, most likely, love you for it and remember it the rest of her life.  

    Again, I don't know your daughter or your family dynamics; you know best about how to handle this whole BC fandango.  Blessings and good luck as you figure it out!  Katy

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited May 2013

    Faith, I'm heading back after this week, and that will be five weeks off.  But I'm not chasing children, just sitting at a computer!  Take it easy with the kiddo kapers and take a nap when you get home.

    Two legless reptiles with buzziness on the trail this morning!  DH 5, Katy 8!  I also encountered a small gaggle of women that always walk on Monday mornings, with whom I'd become friends years ago when I used to have every Monday off work.  We had a long chin wag about breast cancer and I showed them the new flat tummy and the frankenboobies.  They were absolutely amazed.  None of them had any idea that breast reconstruction could be done other than using an implant.  

    My last week at home.  Actually, I need to get out of here so I will stop internet shopping.  It's just too much fun.

  • Cherrie
    Cherrie Member Posts: 1,423
    edited May 2013

    Nihahi, I came home yesterday and feel much better. I could sleep all the time though. I have never had that with other surgeries.

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