DIEP 2013
Comments
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sbelizabeth....side sleeping would be a question for your surgeon....I think everyone gets different guidelines on that. You're 3 days after me, surgery wise. I can lie on my side now, somewhat comfortably, but really find it "sharply" uncomfortable to roll back onto my back. Really pulls on my hip incision area, so if I'm not wide awake and paying attention to how I move, it isn't fun. But I have only rolled onto my mastopexy side, not the diep side yet. Since you're a double diep, might need to hold off a bit longer.
Hope you find a support/compression garment that works for you. It sure has helped me! I bet you have tight hip flexors, from all your biking, so that may work against you in trying to relax the lower back, extend your knees and stretch out in bed. Can you gradually use a flatter pillow??? You'll get there, and when you do, it'll actually be easier on the pesky back.
Off to bed now, peaceful sleep everyone.
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Blessings tomorrow, Cherrie on your stage 2.... Will be thinking of you all day.....and anxious to hear how you are doing afterwards.......(((Hugs)))
Namaste and God bless - Jackie -
I was side-sleeping a little by 4 weeks, but always curled around a pillow.
So Faith & I have the SAME PS and still have some differences, so I guess it's all case by case.... He told me my belly button was "all mine" and that I could start wearing a bra at 4 weeks....
Thinking of you, Cherrie!
Happy Friday to all...!
Hugs,Jeannie
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Thank you all for the comments on the softness if the new girls. I have a hard spot on my left side and I'm hoping it will get softer.
My PS told me I could start sleeping on my side a week after surgery. It does happen much because it kind of hurts, so I stay on my back and tilt a little towards the side. After I came home I never had to use anything under my legs. My stomach incision doesn't really bother me laying down.
I've been applying Aquaphore to the tummy incision since the nurse told me it would help with the itchiness and softening the scar and I have to say she was so right! So just throwing it out there! -
I got me a tiny massager(vibrator) the other day to help with massage on one area of my good boob that has some scar tissue. Its kind of a loud one. have it hidden in my bed sheets.
I did pitalyo (pilates,taie chi, yoga combined class) yest. I couldn't do all of it. I do a lot of modifications. stomach very tight. have to move head down slowly or the knife pressure is too much
I'm going out with a professional mushroom hunter next week to learn how to hunt them myself. have images of elmer fudd in my mind. he said I don't need gun or camo. pooh.
good luck today cherrie. its off to work for me. free lunch today for nurses week. I was very bad girl had had lots of cake yest at work. and then 2 beers with friend
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Good morning -
MartyJ - I think I read on one of your older posts, that you don't miss your old boobs once they're gone. Is that true? I'm five weeks away from DIEP and woke up this morning with serious anxiety. I have one lovely breast, and one picasso breast, but I was looking at them this morning and I just started sobbing. I don't want them to change, and I don't want to be niple-less. I'm a total baby today. Feeling terrified. But I couldn't find your old post - and today I'm just looking for reassurance.
HHCats - I hope you're feeling better. I don't think you're a 'fraud' at all. It seems like treamtent/surgery/meltdowns are all inevitable, it just the order that changes. I had my emotional rollercoaster last summer, following radiation. Took me a while to put the new me into my life and I had to completely fally apart before I could piece myself back together.
I'm in awe of you - as well as the other women with young kids. Think of the road you've already traveled. The fact that you've come this far, so quickly, is fantastic. Sometimes you just need to arm yourself with different tools to travel the next leg of the road.
Here's a general quesitons about compression garments. In what section of a department store would I find them? Nihahi - I laughed out loud when you said that our $24 stuff would be $5 in the US. So true. Maybe I need a little cross border shopping.
I hope that everyone is resting, and healing. Thinking if Cherrie today.
Janet
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Janet - I do not miss my old boobs... I said goodbye to them back in July… To be honest with you, I can hardly picture them now. I know that it feels like one of the hardest things in the world right now. But like everything else you have endured, this too shall pass.
What I did do - and should have suggested much sooner to all of you ladies - was to do a boudoir photo shoot. Another friend of mine who had a mastectomy suggested it. I was lucky in that my sister has a close friend who is a photographer and does these, so it was very easy for me to jump in and have it done and feel comfortable.
My intention is to make a book for my DH. He has no idea I did this. I actually did it last April, not knowing first of all what order my treatment was going to be, and wanted to do it before my hair fell out from chemo in any case. I have not even contacted the photographer, though she has sent me the link to the pictures a few times.
Now I am thinking that I will wait till my surgeries are over and I'm looking pretty hot and I will put the after pictures in as well!!!jp
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In most stores I would think you would find compression garments in the lingerie department.
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I kept my belly button too but it looks smaller. I'm not sure if it's swollen or what. I'm not as concerned about it as the revisions for stage 2.
I also started back on my interval jogging on Wednesday. It's been 7 weeks since my surgery and I figured I would try it and see how I felt. I did 1 minute jogging and then 1 minute walking. I did 5 rounds of each. I felt pretty good and not too sore afterward. I just didn't want to overdo it and set myself back at all. I'm planning on adding more rounds with each outing. I've been walking a lot but I'm so happy to be getting back to my jogging. Those endorphins really help my mood!
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Morning everyone..
Kuka...defo the incisions, once healed, need moisturizing of some kind. Helps with itching, good time to do massaging, and helps keep scars soft, so they can stretch out and flatten. I use Glaxal base, easily found, reasonably priced, keeps skin moisturized for hours. Used it with my burn patients for years. When I got the OK from my surgeon to start "lubing the body", I thought I'd splurge and try some Bio-Oil....ended up reacting to it. NOT fun to add an itchy rash to a tender tummy!
Fredntan.....you get the first chuckle of the day nod from me!!!! "Loud vibrator hidden in your bedsheets"....so funny. Boy, for someone who has suffered so much with sinus pain...you are a trooper! I've never heard of pitalyo....sounds like an interesting concept! Hope you realize that honouring your individual body "needs" is actually a very wise and recommended way of approaching any exercise. I've done yoga for years....the teachers I most respect are the ones who remind you to "accept and respect" what you can do. Doesn't mean you don't strive to improve, means each day, we're at a "different place".
Man....I'd be terrified to eat wild mushrooms! We find them all the time while hiking in the fall, even photograph some of them, they are so fascinating when you really look at them, but eat them....nooooooo thanks! So smart to go with a pro....around here though, we won't see them for a few months!!!!
JanetM....hugs going out to you. You are allowed your meltdowns and feelings of loss. You are not a baby, you are a woman in a tough fight!!!!! After my mx and chemo (with young kids) all those years ago....I competely fell apart and into a significant depression. I think I spent so much energy getting through everything and "not letting it affect the kids/hubby" too much, that I had nothing left to help myself get "sorted out". I can so identify with the "had to hit bottom before I could start to find new normal". At about your Diep timeline, I had my pre-surgery meltdown. Started with anxiety issues, seemingly "out of nowhere". Just woke up completely terrified one day. My family doc wrote me a rx for Ativan.....did the trick for me. Didn't need to take it often, major help when I needed it. Get some med help if you don't have it already. My heart goes out to you. Stick with us, you're gonna get through this, and then get on with a great life. ooooh, shapers, compression garments, etc.....look in the lingerie section of any store. They're part of the bra, panty, etc. family.
Lunch today with my condo golf ladies....I'm not there, but hoping to golf again in a few weeks. I see my surgeon next week, and am hoping he says....go do what you want to do. At least this year, I'll have a good excuse for watching those little white balls sail into the trees/water/sand/farmer's field....you get the picture. I'm not good, but I sure have fun....another way to play outdoors for me! Any other golfers amongst the veterans....advice?????
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Forgot to add one thing....some "oil-based" creams, will actually destroy the elasticity in compression garments. My burn patients wore custom measured/made serious compression garments to minimize scarring, and oil-based moisturizers would literally "eat" the elasticity.
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Janet - after 28 years, I have no memory of my original girls except that they were big for a little girl (32DD on a 5'3" woman) and not easily hidden. They did draw a lot of attention. It has been 14 years since I had the first implants changed out. I have only vague memories of what they were like, but I do remember they were better than the 2nd set. Because my PS was out of town, I had to take photos for her pre-DIEP and then weekly after for 6 weeks. I took another set pre-Stage 2 and have sent photos weekly. When I looked at the pre-DIEP photos of the implants with capsular constricture, I was shocked at how misshappen they were. And how odd looking. So, as humans, we have a remarkable ability to block/forget what we need to forget. You won't miss your boobs. In another year when you are done with all this "work" you will really not remember the old girls as anything but something that tried to kill you.
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MartyJ.....as usual, you are SPOT ON with your message. I am in the exact same "headspace" that you were/are.
Get those runners on girl, it's now time for "walkies"!
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Thanks for your replies. I really need to hear that stuff today. I woke up this moring seized with panic. I'm trying so hard to embrace the idea, and even though I chose this route, and it's inevitable, today I feel like a lamb being led to slaughter. Hopefully it's just a bad headspace day, and these feelings will pass. Damn.
MartyJ - On a lighter note, I'm suprised to hear that you're 5'3". You have a big presence so I just assumed that you would tower over me (I'm 5'6"). I'll have to readjust my visual.
Janet
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re: MartyJ......just goes to show that gentle strength and wisdom has a much stronger, lasting impact! Marty...you're a giant to us all (and I mean that as a compliment!)
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Hello All
I'm still hanging in there. Just trying to take it one day at a time. Focusing on all the positives in my situation as much as I can. I heard back from the Peer Support people at the Canadian Cancer society - so that is a step in the right direction. I have my surgical follow-up next Tuesday and I'm hoping it all goes OK.
More soon.
Robin
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Janet M, I had a UMX 15 months ago. For the first few months I was sad every time I looked at myself in the mirror. Sad and angry that my life had changed, my left breast was gone, my reality was suddenly so different from the 57 years that went before, so sad that I would never again be the person that I was.
As time went by, these feelings gradually disappeared as I got used to my new body and my new reality day by day. It was not a conscious decision that I made to accept it, but more something that happened by itself. Today I don't even notice the poor left side, and if I do, it does not evoke those feelings I had in the beginning. This is who I am now, and I am as happy as I was before all this.
Getting DIEP surgery Tuesday in a week will change my reality once again, but this time in a way that I am looking forward to. Want this hard TE gone, and want this whole ca drama to be over. My life is back to normal, the rough patch is behind me, and I will just make the best of every single day that I have left, no matter what. You will get there too one day at a time. Best wishes!
HHCats, big hugs to you too!!!
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JanetM-- I pretty much am going through some of the sense of loss and alternate between mixed feelings about the boobs, but I think I'm in a good happy mental place now. Before BC, I had no issues with my boobs, I thought that they were perfect for me (and I really liked my cleavage). When I first was diagnosed, I was like "get rid of them, I won't miss them because they are trying to kill me quietly!". I knew I would have anxiety attacks in the future about what-ifs if I kept either one of them. I just knew that the BMX and DIEP were the choices for me. Has it been easy to adjust? Honestly, it's taken a while. I have the odd pieces of skin put there (mini-paddles) for the dopplar readings that were needed after the surgery. I think I'll feel much better after Stage 2 when the PS gets rid of them (so I no longer have "windows" --as my hubby calls them). I wear my old bras (yup, I fit into them!) and things still look the same when I wear clothes. In a long winded-way, I think over time we will soon forget about the original boobs and slowly adjust to it like everything else that has come into life after BC. Though I have to admit, I'm wavering between trying to see if I can get some of that awesome clevage back with the PS.
Cherrie-- thinking of you today and check in with us when you feel up for it!
As for belly buttons -- I honestly don't know if mine's is the original one or a new one, never thought to ask the PS. I woke up with sutures/stitches all around it, and it's definitely a different shape than before. However, I think it's probably the "cosmetically enhanced" version of my original one.
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Janet-M, just a week ago I asked my ps to email me my pre-op pictures he took. I had forgotten what my originals looked.
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I have to say I love all you ladies. I am visiting my daughter in Knoxville, TN this week and I've read her some of your posts. I told her this is the strongest, most caring and considerate group of ladies I know. I would love to meet each one of you in person sometime. Wouldn't that be a fun thing to do? It would be like one giant slumber party. What a crazy time we'd have!
Thanks for the laughs, each of you are an inspiration to me.
Ann -
Janet-with your pre-op meltdown you have officially crossed over to DIEP-land.....believe me, we have ALL been there, done that! It's part of the grieving process we have to go through. Listen to Marty-she's a better writer than I, and after you are healed-order the "Hell yes, they're fake-The real ones tried to kill me!" tee shirt. You need to follow Sbelizabeth's advice, and create your own "delete" button when these emotions start to overwhelm you......as far as my new "girls".....LOVE them, and haven't missed the oldies at all. You will get there, I promise! (((Hugs)))
Tammy-think I will ask my PS to email me my pics as well.....so I can see how much I've "improved"!
Robin, you are a strong woman......but we have to go through a grieving process....either we do it before, or we do it after surgery....you will get through this. Lean on us anytime-we are here to prop you up! (((Hugs)))
Cherrie-thinking of you.....hoping all goes well and you are happy with results...
Fred-you always make me laugh...thanks for telling it like it is! (((Hugs)))
Liefie-love you, girl! Diep is going to give you back your life.....I can't wait for you to be done, so you can add your wisdom to this group-you have such good insight!
Marty-you are the voice of reason and experience-we would be lost without your input, and it is so needed! (((Hugs))) going out to you....are you healed enough to wear those pretty pink shoes?
Nihahi-you are an amazing woman-love you! So energetic and upbeat! You keep everyone here on an even keel.....you are so appreciated by so many! I want to bottle your enthusiasm and sell it! (((Hugs)))
Cuetang, Gini, Kuka,Sbelizabeth,Goodie.......amazing, strong, courageous woman all! Love you ladies and the wisdom and energy you bring here to share with us all! XO
Well, didn't mean to get so sappy, and I have surely forgotten plenty of you amazing wonderful women.....but you all have impacted my life in such a positive way, that the BC bitch doesn't have much hold on me anymore.......I'm with ANN.....we need a party!
Love and hugs to all!
Namaste and God bless - Jackie
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Jackie - those hot pink shoes are going out to dinner tonight!!! With a narrow black sheath dress (of course I will have a wonderful support garment underneath). Such fun!!! Nihahi - got my 5K in today. Nice walk, but with the compression acting like a sauna suit - lots of sweat!
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Robin, I'm one of those that miss my all breasts. But I really prepared myself before surgery. Even though I miss them, I'm ok with them not being here. Don't get me wrong, I would have rather kept them, but I really didn't have a choice. That's how I was able to get through it everytime I thought about if I should do the surgery. I wrote pros and cons down and it helped me see why I was doing this and why I was going to be ok with it. My old ones were better looking, but I know after stage 2 I will look amazing, even better than before!
I took pictures of myself the morning of surgery. I find myself looking at them every once in a while. I think I'm ok with waiting to get nipples, it's the feeling normal part that I can't wait for. I've never had implants, and I've heard that doing the DIEP feels like natural breasts. It hasn't for me, but I know with time I will get used to it.
Hhcats, keeping you in my prayers so that you can start feeling better.
Cherrie, thinking about you too! -
I forgot to say that I'm in for the party!! Just tell me when and where😄
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Nihahi, did you work with Abby in burns? You must have .... She's been at the Foot since forever! Did you know Jo (OT)? Maybe Jo took over from you, but she's been there for donkeys years too!I just saw Abby this morning. She is my very favourite person in the team!
You know, all you lovely ladies are being so good for me. My head was all over the place regarding whether or not to ask for reconstruction, but hearing from you guys about how things are going, and what you all are feeling is really helping.
I have yet to have this discussion. I'be still got 6 weeks of Taxol, then rads, but I see my BS in June, and wished to be clear in my head about what I wanted to do.
My biggest decision will be whether to go for a reduction on my "good" side, or whether to request a prophylactic mastectomy and immediate diep.
I do worry about a new primary, and once you have had one diep done, I believe they cannot go back to the tummy for a second one, although they can do two at one time.
Hmmm... -
they have the las vegas thing in sept. I'm thinking of going to it. there is thread here somewhere about it. I want to party and dance and not care about anything.
HHcats-I tried spanx and it put horrible rash on my back. just isn't meant for constant wear.
My PS gave me the one I am in. other wise I would get mirena. I get to take it off for good may 3. appts all next week about my damn sinus pain
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Well I made it! My surgery was only 2.5 hours along. However, my pain was worse, out of surgery, than either of my times before. Still is. On two Dilaudids every 4 hours. Quite nauseous. Nibbling on crackers and chicken noodle soup.this too shall pass!!
My scar was revised and lowered, hooha pulled up, and a necrosis area in my right breast jet washed.
Can't think. "Talk" to you later. -
YAY Cherrie... and now the healing begins!!
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Welcome back, Cherrie......hope the pain starts abating real soon........
So sorry!
Namaste and God bless - Jackie
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sbelizabeth I was slide sleeping by six weeks, and I had a slow recovery. If the flaps have taken there is no harm in sleeping on your side. I wear a bra 24/7 and it helps for support, even sleeping.
I went to see PS for pre-op today and I really like this guy. He said that my rib pain was unusual, it has only happened a couple of other times in his experience. He said that the bone might take a couple of more months to heal and to do some upper body exercises as scar tissue may have attached where it shouldn't and I should try to get it to a *happier place." by exercise, Wasn't there some sort of mantra about going to your happy place? LOL. He listens to me and has answers, thank God. I told him to lipo me from my toes on up and he thought that was funny. I will only get lipo on stomach and flanks, though.
The count down begins again!
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