Cutting a swell spot down to size

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coraleliz
coraleliz Member Posts: 1,523
edited June 2014 in Lymphedema
Cutting a swell spot down to size

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  • coraleliz
    coraleliz Member Posts: 1,523
    edited May 2013

    Has anyone tried this. The swell spot I have is too big. It's this 1/2 bra style http://www.absolutemedical.net/products/default.aspx?itemId=141

    I'd wear it more often if it was less clunky & didn't stick out so much. I'm a thin, small framed, bilaterally flat & don't wear prostheses(sp). I found that wearing a snugger sports bra helps quite a bit. Just making that change helped take the soreness out of my truncal edema area. The swelling hasn't resolved completely but I haven't really given the swell spot a chance. The fitter showed me 2 different swell spots & this one seemed the better.

    On the stepup-speakout website it showed supplies that could be used to make your own. I have a sewing machine that I haven't used in years. but could manage.

    Maybe it's sewing advice I need here. I'm afraid that the edges may become scratchy if I finish the seams incorrectly. If there is a thread already about making your own swell spots, feel free to direct me there. i couldn't find it. Thanks

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2013

    Hi, Coraleliz!

    I've cut back an armhole of a custom Solaris vest, which is made and stuffed just like a Swell Spot. I marked the line I wanted on the vest, then used my fingers to push the foam pieces for the most part out of the way of the line. Then I sewed along the line with a serger, with the cutting edge engaged, so it stitched and cut at the same time. Worked great. The seam doesn't bug me at all. Of course, there's no chance I can return it for alterations after I've hacked it up, but I was pretty sure I could manage it myself so I went ahead with it.

    A thought: you might want to email Solaris and tell them how/why you're altering the Swell Spot and suggest they consider designing one to better fit your need, as you're surely not the only person dealing with this. They've been known to pay attention to this kind of suggestion, so it might be a help. Worth a try!

    If you're making your own from scratch, decide on the shape you want, with some give to it because stuffing it will reduce the outside dimensions. Stitch it right-sides together leaving a space to turn it right-side-in, then stuff it. If you want to stitch directional lines on it work the foam over with your fingers and stitch through both layers. Fabril choice would be important too. Check out your design with your therapist, including the directional lines, to be sure you're trying to move fluid in the right direction.

    We have some expert seamstresses here, and I hope they'll chime in soon.

    Let us know how it goes! Hugs,
    Binney

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2013

    I would love to make a swell spot that would fit from half of my back under the armpit and down to  waist. Is there padding this size available? I would sleep in it.

  • purple32
    purple32 Member Posts: 3,188
    edited May 2013

    Hey hugz

    In a word ( sort of )  " Idunno"  ,  but your question interested me enough that I decided to pop onto the link above/now also below :

    http://www.absolutemedical.net/products/default.aspx?categoryid=59

    Yes yes, I know you were talking about making your own, but  soooo much easier if ready made :>)

    Anyhoo, I checked out the swell spots and they seemed pretty small.

     I looked for the lymph pads , but I saw none so I called the phone number.  1 888 214 4100

    I ened up speaking to a very informative gentleman by the name  John Holland. He  directed me to www.jovipak.com site.  (I'm guessing he thought i was lying when I said I was calling for  a cyberfriend Surprised   In any case, he  said he much prefers  the jovipak for these type items.   Once at www.jovipak.com,  I looked under PRODUCTS,  then breast and chest wall pads/.

    He directed me to the first item.  Didnt look QUITE as large as what you might want, but seemed  a decent size and of course, he did say , with measurements, they could custom.

    Quite fascinating!

    I may have too much time on my hands this evening Sealed

  • Binney4
    Binney4 Member Posts: 8,609
    edited May 2013

    It is fascinating, Purple--and the bigger Jovi pads are also incredibly expensive. I'd guess if they make custom ones they'd be even more pricey.

    Hugz, I'm not sure what you mean by "padding" available. You can buy the medical-grade chipped foam and purchase fabric to make your own "chip bag," but you can't buy a sheet of ready-made foam-stuffed fabric to cut down to your own specifications. Jovi does have a lymph pad that fits from axilla almost to waist and wraps from front to back (can be really tricky to keep it in place all day, and when I called them for suggestions about how to do that they were unhelpful and seemed to think it was my problem, not theirs). They cost around $80-$100 + shipping. Insanity!Yell
    Binney

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2013

    Thanks Purple and Binney. You two are part of the triplets to Sherlock Holmes aren't you?

    I have an axilla swell spot pad that covers my breast and around the back. It slips. Then I have the jovi with the pitpad and it slips. The best one is the  swell spot half moon shape that fits under the axilla. For some reason it stays pretty good with a tightshaper.

    I would just love to make a half vest myself even though I hate sewing. I bet I could hire my bridal dress making friend to make me one if I had the right supplies. She handsews bridals gowns without a sewing machine and she has the tiniest stitches. Her dresses are meticulously pretty. Her eyes are going on her though as she is old. She made patterns and handsewed all my wee girls friends barbie outfits. I almost forgot about her. That would be an option if she sews still.

  • Hildy910
    Hildy910 Member Posts: 319
    edited May 2013

    This is a timely thread, as I have been considering making my own swell spots to fit over the back of my hand. The one I purchased is too wide, and tends to not lie flat in the middle, which makes it less effective than it could be.

    I will probably try several methods, one of which involves using two layers of kenesio tape with foam chips sandwiched in between. If that fails, I fear the sewing machine looms....

  • coraleliz
    coraleliz Member Posts: 1,523
    edited May 2013

    Hildy-post again with the results of your efforts. I haven't cut my swell spot yet. Perhaps I can find a different sports bra That it will work in. Since my family is all male but me, I also don't want to take questions. "what are you making". I guess I better get to it before school gets out(then I really won't have time).

  • carol57
    carol57 Member Posts: 3,567
    edited May 2013

    Coraleliz, the simple answer is 'potholder'!

  • coraleliz
    coraleliz Member Posts: 1,523
    edited May 2013

    Hmmmmm...... some potholders might work

  • carol57
    carol57 Member Posts: 3,567
    edited May 2013

    Well, I was thinking that 'potholders' is the answer to the question 'what are you making,' but come to think of it...bumpy, quilted, thick.  As Binney said, if you try using a potholder or anything of your own fabrication, it really is best to check with a therapist to make sure you're nudging the lymph in the desired direction.  Let us know what you come up with!

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