Chemo May 2013

Good evening ladies

raindeer- I had my port put in a couple of weeks ago it did hurt for a couple of days but nothing you can handle after having your mast.

My arm pit is killing me the last couple of days has anyone else have this? Thinking it is my nerves coming back to life.

I am not sure when I will be able to go back to work. I am a bartender at a local bar and my onco is not thrilled by the idea because of the physical demands and dealing with the public while my imunne system is so wack. I don't sit still well so I am going stir crazy.

Pat- is claritin something to purchase this is the first I've heard of it. What does it help with?

My pet scan came back today clear yippie

I love that I found this site so very helpfull thanks to you all.

Echocardiogram done - I will start with AC chemo tomorrow afternoon!

Good luck to all of you!!!

It's been a tough weekend.  Just when I thought things were getting better today happened.  Tired and achy.  I over estimated my ability to take care of my kids , luckily I had my FIL come over around 10.  The heartburn is a killer but so far the nausea has been manageable.  That neulasta injection really kicked me while I was down I am so happy that the clairitin seems to help.  Don't want to come here and be a downer but I didn't want to disappear.  

I too am joining this May group!! Start my chemo tomorrow..I'm a little nervous to say the least, but it is comforting to see so many of you before me being so strong and getting thru this relatively well.  I have to drive an hour for treatment.  My husband is coming with me tomorrow, not sure if he can do this everyy treatment and hoping to feel well enough to drive myself home.

Good luck to everyone and I'll be following up to see how everyone is doing.

patty thank you for the link

Welcome to Debwarrior and Worrywart93! We will all get through this....and its good to have folks walking the path with you. Our group keeps growing!

To Gully and everyone else that stated last week, sorry about the SE's but it sounds like things are getting better. Hang in there. I start Thursday with TCH and just want to get this dang rollercoaster going!

MariaNL - I think the armpit pain, and many other pains after mastectomy and reconstruction are indeed the nerves doing something. Sometimes I get painful stingers inside of my fake boobs too, and I wonder what that could be since I thought it was just expanders in there. I think the rule is if it persists then you should call the doctor. Sometimes I massage the pain, and or do some stretching (e.g. Walking the wall) and that helps.



Good luck at work today UKate (try not to over do it!). Welcome new sisters and I wish our early may starters a low side effect day. Keep drinking fluids! Hopefully you'll feel much better this week!



Amy

Hope all goes well for the ladies that start today. Don't forget claritin if getting neulasta tomorrow. It does help

Gully I live in sykesville Md which in Carroll County. Rainy day here so not even walk around the neighborhood today! Grocery store might be excitement for the day.

Gully,



Here are some things I picked up from the boards regarding mouth care and mouth issues.

Pardon if my notes seem poor, I sometimes speed write and think I will remember later. Anyhow, most is understandable.



Biotene mouthwash/rinse. (Can find in CVS, Walmart...). Rinse after EVERY meal. Used to prevent and treat sore mouth. I accidentally purchased two bottles. I think I am going to put one on the kitchen counter and one in the bathroom.



Biotene toothpaste. It is for dry mouth



Sugar free gum (biotene makes one)



Mouth rinse: 1/4 tsp salt. And 1/4 tsp baking soda and - c. Warm water. Rinse. Make fresh each time.



Mouth rinse: 1 tsp Benadryl, 1 tsp maalox. Mix together rinse and spit





Rinse: Caphosol. 2 ampules mix, swish, spit. (I have no idea what this Product is)



****if you cannot get any of the above to work, or don't want to be bothered call your oncologist staff and they can write a prescription. No one should suffer!******



Change toothbrushes frequently (I don't think for mouth sores, I think for infection?)



Change from metal utensils to plastic utensils to get rid of metallic taste.



Pat

Yes to the muscle and skin pain. My head is red and sensitive and now I have a lovely acne type rash. Food is disgusting nothing tastes right. I may have dh grab me some taco bell bean burritos tonight.

My first treatment tomorrow morning.  Taxol, Cytoxan and adriamycin.  Very nervous.  I am active and hope that I can still get up and do things.

Hi Rain;

I just wanted to let you know that my port has become my new best friend; I cannot even image going through chemo without Eleanor!  She was uncomfortable the first few days but ice packs really helped.  I honestly can't image doing chemo without a port (it probably doesn't help my veins are crap)!  In the middle of a decadron sleepless night I realized she deserved a name so chose Eleanor for a quote I read by Eleanor Roosevelt that you should do something everyday that scares you! I haven't been able to do that up until February 20, 2013; that was the day they did the second mamo and ultra sound and knew something was probably wrong!!!! Since my lesion (love the term) was only 1/4" diameter it seemed like this should have been a piece of cake to treat but ended up grade 3 and triple negative so here I am.  Anyway enough of my rambling my prognosis is still very positive and I feel everything is going to be great; this is just a blip on my radar!!!

Good luck with your treatment and enjoy your port!

Rose

Hang in with us Rain.....you're close enough to May. We always think the worst but most of the time it turns out alright. Flip those odds around to 80%-90% the nodules will be nothing. My scan showed a 5mm lung nodule and no one was concerned about it. Just a note from the radiologist to keep an eye on it in the future.

Sending postive energy your way!

Ukkate,



Thanks for letting me know the port operation isn't too bad. I'm really nervous about that. I get the port put in tomorrow and start chemo same day and I'm using cold caps so will be a long day. My daughter had her bat mitzvah a year ago and it was such a beautiful day. It will be something to help carry you through this rough time. We need those good times and things to celebrate mixed in here. mazeltov! And best of luck to all the May chemo ladies, it's so nice to have this group to go through it with. This journey makes me realize how many amazing women are all around me in my real world and in the cyberworld willing to help.