The Hermit Club

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Jazzy I'm sorry u'r not feeling as good as u sound. And leace it up to u to look it up about today. LOL

  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Thank you Jazzy and ladies. I understand now. I knew I could count on you. Love and hugs.



    XOXOXOXXO

    Laurie

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Cami- I am doing okay, most of my issue is just tiredness. We have been in endless deadlines on my project for awhile (and more to come) and I just need a good week off from this whole thing. I am pretty sorry I took this project on, way harder than expected. People are nasty to each other too. I am just self managing the whole thing and taking care of jazzy today!

    We had some hope of rain but the sun is out and it is no longer looking promising.

  • SoLinda
    SoLinda Member Posts: 120
    edited May 2013

    Thanks for the warm welcome to "Hermit Haven" ...  It is definitely good to be here!  And, by the way - I agree completely with cvmarilyn - we must learn to be true to ourselves!  A true friend will understand even if it takes a little while!  LaurieParr - at least your friend offered to help and you managed to keep her at bay!  Whilst I've been on this whole BC journey, I have most definitely found out who is important in my life, who cares about me and who I care about ...

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    SoLinda did I say Hi, I don't remember--u'r from and live now in Brazil--SOUTH AMERICA Wow--if so that looks like one of the most exciting places to live. I've known one person in my life from Brazil and her name wes Linda and I had a Spanish class with her and she sat next to me-(my 2nd yr os Span.) I got all A's thanks to her and pushed to go into my 3rd year without her tho-Well that's the year u never speak English--that didn't last long all I could ever say was the Bull is dead and I don't speak Spanish, well I failed without her by my side but I do hve such nice memories of her.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Hi SoLinda. You are such a good reminder to us that breast cancer crosses the generations as well as the continents.

    I think bc has finally taught me who cares about me and the relationships I need to nurture. I am at much more peace in my life with my family and friends, having let go of some people who really don't care about me and never will. All I have gone through took those blinders off once and for all.

    We are glad you are here with us!

  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Markat... Peaceful prayers for you and your mom. 

    Laurie... We'll cradle you in warm thoughts as you move forward.  (I'm HER negative, too, so can't add any wisdom.)

    Jazzy... You rise to each challenge.  Be kind to yourself so you can gain some energy.

    Camille... hugs to Joey as his ankle heals.  I thought of him today while watching my sixth graders at track and field events.  Running, leaping, throwing...  Most love it.

    Blondie... hugs to you.  Hoping you find a Propel flavor you can count on to like.

    SoLinda... I had a Brazilian grandfather.  Never met him.  He was a band director, divorced my grandmother in the early '30's?

    bgirl, teka, Fl, and all... hoping you are ok and the spring months are bringing you good days.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Skittle u r always so positive and cheery with all of us--sweet skittle.

    Jazzy I'm glad u have weeded out the people in u'r life. If we have loving families and some wonderful friends that's all we need. We value the very good ones. I have een so blessed going thru all this crap everyone stuck right with me and are still there. But I weeded mine along time ago LOL

    Joey's staying home a few days with his broken ankle but I'm selfish enough to like it. Not that he's got a broken anything just that he's home and I get to help a little cuz he's always helping me.

    Markat (((HUGS))) for u and u'r mom.

  • markat
    markat Member Posts: 909
    edited May 2013

    Oh no about Joey! Poor kid :(



    My mind is a little fuzzy and confused and exhausted! So I'm sorry that I can't keep up with everyone :(



    Mom is basically being kicked out of impatient hospice :( I'm not sure what our next step is. They have stabilized her, made her spirit happy and pain free...and now she either has to go home or to another facility (nursing home). This makes me so sad. She is still eating and very alert, so she must transition somewhere else. Ugh the stress. She needs aides, doesn't qualify for medicare and the medicade options don't seem quite right either! She's fighting! And I don't blame her. Many phone calls to make tomorrow to doctors and the facility. Maybe back to the hospital :(



    Hugs and love to all!

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Oh Markat I hate when decisions have to be made, I like when the Drs. make and enforce them. It's such a difficult time. But now u say u'r mom is better? Tht's a good thing tho. Can she actually go home and a nurse comes in or is that not practical to do? How old is u'r mom???

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013
  • Jinkala
    Jinkala Member Posts: 193
    edited May 2013

    I didn't find out my ER/PR Her2 status until after my surgery.  They determined it from testing and looking at the slides of the stuff they removed from me.

    Gonna take tomorrow off from work and go out to a Japanese buffet with my boyfriend for my birthday. :) 

  • Teka
    Teka Member Posts: 10,052
    edited October 2013
  • curveball
    curveball Member Posts: 3,040
    edited May 2013

    @camillegal, LOL!!! I am 57 and still not married. Are all those cats going to show up at my house next?? Oh well, better a cat than a terrorist!

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Love the wedding cake!Tongue Out

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2013

    Thanks you guys, am drinking propel...

    jazzy never done....on chemo forever or unless it gets me stable then will go off and take hormonal....

    taking vicadon, he gave me percocet...not a fan of it but will try it.....

    chemo tomorrow again, my week off was ok.....

    BBL and thanks for caring.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Curve my brother said that to me that I was going to turn into a cat lady--he's an ass. LOLBlondie I'm glad u can take those meds they stronger tha whe I can take--those meds make me so nerveous, my sister and DD too--it's like a family thing. I'm sorry this is so hard on u--no one likes to tell someone new that it sucks really awful, cuz as u notice everyone says everyone is different and they are, but it still sucks. Sorry for u.

    Happy Birthday Jinkala--Celebrate every minute of it and good it with u'r BF. YYYAAAYYY

    Long day today, I spent alot with my Joey --he's mich to cheerful to spend alot of time with. LOL

    Markat thinking of u and u'r mom

  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Markat... Prayers for best decisions for you and your mom.  Such a difficult time.  Perhaps a hospice advocate or family directed person can guide you to alternatives.  Sometimes all it takes is asking the right questions.  Like--what have I forgotten?  or What alternatives are there that I might not have thought of?  With all the mess we went through with my fil (blind, Parkinsons, dementia), it was a matter of speaking to the right person who was willing to offer resources.  Love to you.  Strength, if possible.

    Camille... Joey is wonderfully lucky to have you.  His mind can be on someone he loves rather than the ouch in his ankle.  He'll heal fast, and enjoy looking back on the time spent together.

    Jinkala... happy birthday!  Good for you, taking a day off!  Enjoy.

    Blondie... Hoping chemo is not too rough.  Will be thinking of you tomorrow. 

    Jazzy... hugs.  Concerned for you.  Wishing I could doooo something!

    Teka...  Cool  will be at the beach in less than a month!

    Laurie... Hoping you can have some me time.  Be kind to yourself so you can charge those batteries.  Your clients can take a back seat for a while.  Let your family surround you with care (and Puffs, and tea, and whatever your heart is comforted by.)

    bgirl, FL, solinda, lori, all... Hope your midweek brings at least a moment of laughter.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    ood Morning all---U guys are busy, but I know u don't always feel well and I'm sorry for that, Ive never called it a jouney I've called it a bumpy dirty crappy road till u finally find pavement. So It's not easy of course as they say it doable, but no one want to do it--there are not alot of xhoices and we live with what we choose

    So all of u drik alot of fluids and eat properly and try to walk some that's about all u can do for u'r self. But u'll feel better, u'll see. And we're here for u.

    Markat (((HUGS))).

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Hi hermits- just checking in to let you know I am doing okay! I stayed home monday, took it easy, took some naps, went to bed early and doing better. Yesterday, I left work for about 90 minutes to go have some lunch at one of my favorite places outside to enjoy a good meal and catch some southwestern rays. I had something happen at work last week that made me realize to just do better at self care and self management. So thank you for your concerns but I have made some adjustments and sticking to them! 

    Markat- this is hard with the decision you need to make for your mom. Maybe check in to home health options with whatever insurance she has. They can provide care to a degree but if she needs pain management support through time, that is where hospice at home comes in. I hope that the right solution comes to you so you don't have to struggle with this.

    Will check in again soon. Love and hugs to all the other hermits here.

  • Jinkala
    Jinkala Member Posts: 193
    edited May 2013

    I'm lucky that my sister had the room to take my Mom in when it became apparant that she just couldn't live alone anymore.  She still asks to go 'home' but her memory is so shot that she doesn't remember to eat and doesn't take her meds right if left alone.  She was in pretty bad shape when we finally made her move and they even had her on hospice care for a while until she got her weight back up in a safe range.  The dr that my sister took her to right after the move gave her about a week to live but that was about 2 and a half years ago and while I can't say she's going strong, she's still going.   I miss my Mom (still go see her every week or two) though mostly I miss the way she used to be. 

    Thanks for the birthday wishes. :)

    I'm doing well.  I have a Herceptin treatment on Friday and an MO visit on the 22nd.  I'm thinking I might need to start writing down all the things I want to talk to my MO about so I don't forget. LoL  These longer intervals between visits make me a little forgetful.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    OK!Wink  A bumpy dirty crappy road till u finally find pavement.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013
  • lizlori
    lizlori Member Posts: 148
    edited May 2013

    Thank-You for the kind words Skittle...I continue to be so touched at how sweet people are on this site. I need to make it a habit to go on here while I have the time (before going back to work).   I feel a connection with the beautiful women that post honest thoughts and feelings, all on different but yet similar paths..Isn't it amazing how strong we are?  One of my biggest fears was being diagnosed with cancer, and thought I would lose my mind if I was faced with this dreadful disease.  Well its now almost twelve weeks since being diagnosed and I haven't lost my mind.  its all hard, but I am doing ok.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Good evening hermits. Hope everyone is doing okay midweek. 

    Lori, I am glad you found us. Wonderful people here. And I am glad to hear you feel okay mentally with all you are going through so far. You are strong, everyone here has found the strength they need to get through what they need to do, often one day at a time.

    Jinkala- happy birthday and glad you are doing well. I write down questions every time I go see the doctor (any doctor really). You have so little time with them, it is good to have things in front of you so you don't forget. I wish you luck with your upcoming visits.

    Cami, this one is for you: http://www.youtube.com/watch?v=SUNmLuNdiL8

    Peace and love hermits!

  • markat
    markat Member Posts: 909
    edited May 2013

    Jinkala hope you had a fabulous bday!!!



    Thank you all for the kind words and thoughts. Mom is still in the facility but tomorrow night we meet to discuss her transition out. She is stable and had blood tests today to check her bilirubin. She just turned 61 last month, a few days before this whirlwind began. She's stubborn, and I don't blame her. She fell tonight there, which was scary. She absolutely does not want to go to a nursing home. Her siblings are swooping in and trying to help but they are busy. I'm thinking that I may have her convinced to come to my home, but that could change. I just want her safe, happy and pain free.



    I hope all getting treatments are feeling good or dealing with it as they can. Hugs and love to you all.

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    Gosh that is hard, your Mum is still so young.......only five years older than me! Wish i could help with something.....

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Markat OMG I forget u'r so young so of course u'r mom would be young. Al this happening and so young to have all this sickness. I'm so sorry. Everyone has given u such good advice and doesn't hospice cometo u'r home and help thruout the week. I remember nurses coming for my mom during the day and helping out. OH Markat my prayers are going u'r way, this is difficult.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Jazzy I loved that video but how can u et a cat spin on a fan and just take pictures. ohhh My cat doesn't do much funy stuff she's a litte older and watches causiosly where she waks to make sure she has enough room and won't make a jump uness she reay studies it. hahaha but she cuddles nicely so that's what I like.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Markat- keeping you in my thoughts and prayers for your mom, you and your family. If coming to your house is what you think is best, then do it. I understand her not wanting to go to a nursing home either. Keep searching out the best options.

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