Calling all TNs

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  • Reality
    Reality Member Posts: 782
    edited May 2013

    Sorry for the mix-up, Luah. I actually meant to tell Leanna that I sent her a p.m. 

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited May 2013

    LUV!!!! You go Girl!  Your good news made my day.  Keep on keepin on,

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  • gillyone
    gillyone Member Posts: 1,727
    edited May 2013

    Luv - so pleased you have good news to share!

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  • gillyone
    gillyone Member Posts: 1,727
    edited May 2013

    Inmate - good to see you here.

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  • LuvRVing
    LuvRVing Member Posts: 4,516
    edited May 2013

    Sherry - I tried carbo for two full cycles and my tumor markers went from 1000 to 1850!  So I am really glad the Gemzar is working!!!  Did they try cutting the doze of Gemzar?  That was the magic for me.

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  • jenjenl
    jenjenl Member Posts: 948
    edited May 2013

    I went to a wedding tonight and got totally shit faced...awesome!

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited May 2013

    Happy birthday Karen......happy happy joy joy!

    Luv....I cannot say how happy I am for you.  Gemzar was an easy (side effects) drug for me too but not as effective.  So so very happy....just can't stop smiling for you.

    Mity.......so sweet of you.  I missed all of you wonderful ladies on the board and now feel so silly to have been away for so long.  That won't happen again.

    Lovely......This is a tremendous board for support.  Losing a supportive friend and fellow fighter is always a heartbreaking reality check.  Just remember we are here for you.  Give us your best shot, good and bad.  we can take it.  Feel free to pm me ANY time.  

    Titan.....thanks mama bear.

    Love to you all.......d

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited May 2013

    Ladies,

    I had a friend (whom had "fallen" off the face of the earth for a time) call me the other day so apologetic about her absence.  She admitted that she just didn't know what to say.  I reminded her that there are a lot of other subjects we can talk about.  I am still living and doing other things that have nothing to do with cancer.  She can ask me about my garden, my jewelry, my family, so many other fun things to discuss.  That broke the ice and we had a wonderful conversation.

    I don't know why I had to share that but it seems so easy for me to lose sight of my life through all of this, but today was a good day and I know tomorrow will be too.  Monday I have a brain scan.  But I will make it a good day.  That's what we ladies do so well.  WE LIVE!

    Love to you all again and always...........d

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited May 2013

    Hi Gilly..........:)

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  • inmate4232010
    inmate4232010 Member Posts: 310
    edited May 2013

    Lovely,  I can the shakes from time to time and I find that small amounts of protein help.  I also keep Luna bars (lemon zest) handy for a sweet energy boost.  Give that a try and let me know if it works for you.  Mostly all my food tastes buttery these days, even water.  Very disappointing side effect of chemo.

    Love you tons!

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  • jenjenl
    jenjenl Member Posts: 948
    edited May 2013

    Last night I let loose!  I went to a wedding (wore my stupid wig), drank too much and had a blast.  Seriously the most fun I have had since I started this journey.  The only bad part was that my thighs gave out in the middle of dancing and I fell...thanks chemo.  My friend helped me up and i said please tell me no one saw my underware.  I really needed a night of a lot of laughs :) 

    Now I have to get ready to take the kids to church....back to reality!

    Let's make it a good day.

    xoxo

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  • Reality
    Reality Member Posts: 782
    edited May 2013

    Luv- so glad the Gem is working for you - so very glad. Hopefully the X will work for me! 

    Jen - sounds like you had a great time - It made me happy just reading your posts! 

    Inmate - thanks for sharing and for your support. I will be thinking of you tomorrow. Here's a big hug scoming your way - not that it helps much, but it is on the way!

    Yesterday was a good day with X se's. My grandc. kept me busy. 

    My best to all.

    Sherry

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  • Luah
    Luah Member Posts: 1,541
    edited May 2013

    Inmate: You rock, girl. Nice that your friend was honest about her discomfort and you guys had a good conversation. Fingers crossed for a good scan tomorrow.

    Jen: I bet it felt fabulous to break loose of all the BC crap for an evening. Well done!

    Luv: Best news about the gemzar! Very happy for you.   

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  • Lovelyface
    Lovelyface Member Posts: 674
    edited May 2013

    Inmate (Dawn):  Thanks for the tip on protein, I am going to try making some great shakes with fruits and protein powder.  I will say tons of mantras (prayers) tomorrow for a very positive outcome for your brain scan.  My hats off to you for your strength and courage at this time.  I know hearing the results takes a whole lot of courage, my friend.  My very best wishes tomorrow.  Love, love, love.

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  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2013

    Inmate...best of luck with the scan...we are here for you.

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  • mags20487
    mags20487 Member Posts: 1,591
    edited May 2013

    Inmate..it is wonderful to see you back



    Luv-- your post brought tears to my eyes...I am happy dancing for you!



    Maggie

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  • Titan
    Titan Member Posts: 2,956
    edited May 2013

    Inmate..so glad you are back...I am a mama bear..worry when my cubs don't check in..just ask my kids...who are 22 and 24..lol.

    jenjen...good for you at the wedding...we NEED that fun...like Inmate said..we have to live! I love weddings..have 2 good ones coming up in June...will need a taxi home from one..the other one we will be transported back to our hotel..so all is well...

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  • Cocker_Spaniel
    Cocker_Spaniel Member Posts: 1,204
    edited May 2013

    Good luck tomorrow with the scan Inmate.  Will be thinking of you.  Yep we have to LIVE. 

    LUV so glad the Gemzar is working.  Keep going girl you will get there. 

    Jenjen thank goodness for those fun times.   I'm glad you had a ball.  

    Lovelyface I hope those fruit shakes work wonders for you and you start to feel better.  

    Huge hugs ladies.    

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  • Hopex3
    Hopex3 Member Posts: 397
    edited May 2013

    Luv....Very happy for you!! Great news!



    Inmate..so glad to hear from you. Sending prayers your way for clean scan today! Love your attitude!



    Jenjen....must be in the water or wine. Lol. I did the same thing nite.



    Have a great day Ladies. The Pacific Northwest is having the most awesome weather now. Makes the mood brighten up a bit

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  • OBXK
    OBXK Member Posts: 791
    edited May 2013

    Thanks for my birthday wishes. I had a lovely weekend. Friends drove in, wore silly, flowery frocks and the flower crowns I made and attended a Wildflower Festival with me. We were all former child May pole dancers, so we hijacked the pole and laughed and laughed.

    I rented a campsite, where I put up a kitchen tent and set a lavish picnic out, including Chpagne. A lovely memory.

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  • gillyone
    gillyone Member Posts: 1,727
    edited May 2013

    OBX - Smile

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  • Marianne52
    Marianne52 Member Posts: 78
    edited May 2013

    Jen,

    Good for you. I am jealous.

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  • Grammy98
    Grammy98 Member Posts: 16
    edited May 2013

    I just realized that I have passed my final "one year ago today" milestone!  One year ago I quit wearing my wig to work.  My hair had only been growing in for about 6 weeks or so and was maybe 1/2" long and actually a beautiful white/silver (I had always dyed it a light brown/blondish color).  I was scared as I work in a professional setting (not sure that makes a difference), but got lots of what seemed to be genuine compliments (the color is so pretty; it opens up your face, and my personal favorite "you look like a young Judi Dench," etc.)

    So if any of you are at this stage and were like me, where you wanted to be conservative and look as "normal" as possible with a wig that closely matched your natural hair - be brave and go for it!  It is very freeing.

    One year out my hair is about the same thickness (thick, yay!) and soft natural wave as before BC, though still shorter than my preferred style.

    Jen - how fun for you

    OBXK - what a wonderful birthday

    Inmate - anxious to hear about your scan results

    I pray for you all daily, if not all by "name" as "the TN ladies".

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  • luvBngGma
    luvBngGma Member Posts: 73
    edited May 2013

    An anxious day. Just had my first mammogram since diagnosis. It was clear. :-)

    My surgeon actually said I should try and put 'it' behind me, and get on with my life.

    That is so much easier said than done, isn't it? Especially, since I still see the MO for follow up and blood work every 3 mos, for tumor markers, that may--or may not--be accurate.  She asked about lingering SE from chemo, and didn't seem surprised when I mentioned brain fog (she actually nodded, and said, yes, chemo brain). Said it will get better, but I am still concerned, when I can't seem to find the right words.  Makes me go to a dark place.

    But, I had a brain MRI for headaches a few months ago, and was good.  So hard to know when to be concerned, and when to assume my symptoms might just be normal aging. I am 64 years old. 

    Hugs to all who are still in treatment.  It really does get better. 

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  • Grammy98
    Grammy98 Member Posts: 16
    edited May 2013

    Joyce/luv - I go through the same thing; I am 60 now, 58++ at dx and wonder if various symptoms are residual chemo effects, mets, or normal aging aches and pains!

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  • Reality
    Reality Member Posts: 782
    edited May 2013

    Karen - so glad you had a nice b-day. Best wishes.

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  • natL12
    natL12 Member Posts: 135
    edited May 2013

    To my good supportive online friends:  My sister (with lung cancer) had a biopsy Friday. We were to meet with her MO next Tuesday to hear the plan of attack.  However, she started coughing and coughing blood, so she is back in the hospital.  They don't think the blood is from the biopsy, but don't know from where it comes. They've taken her off the Coumadin she was taking (because she has had a heart valve replaced) and I'm waiting to hear what they are finding.  Please keep her in your thoughts. I have a DH and 2 adult children, but she's all that's left of my birth family.

    Inmate - hoping your brain scan was clear. You are in MY thoughts.  Nat

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  • NavyMom
    NavyMom Member Posts: 1,099
    edited May 2013

    Thinking of you and your sister today, NatL.

    Pretty sure that the waiting room is getting pretty full as we wait to hear how things went, Inmate.  Sending good vibes your way, too.

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  • schatzi14
    schatzi14 Member Posts: 1,647
    edited May 2013

    natL...keeping good thoughts for your sister..

    Grammy...our DXs are almost identical (forget the ER+ because it is only 2%) but I am 69 and wonder the same things. Are the aches and pains just normal old age but the memory lapses (can't remember familiar words) are scary. Was it the chemo?

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  • Reality
    Reality Member Posts: 782
    edited May 2013

    natL - you are in my thoughts! 

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