Husband hate me, everyone hates me, I hate me

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From now on I am going to post only in depression area.  Three years out and I cry everyday, just dont know why, BC is gone.  My friends are gone, my fault, just couldnt deal with anyone.  I see lots of head doctors and they are very good.  Told my dr I want someone to follow me around and tell me every minute, you will be ok.  Still after all this time every little pain freaks me, every little spot is scarey.  We have changed meds many times trying to get a handle on this and one is no better than the other.  Husband says why are you still thinking about this, get over it.  His sister had bc 45 years ago and he says it never bothered her (that not exactly what she says) she told me about 5 years and you get better and dont think about it every day.  During treatment I did great, my life was at stake.  After treatment went down the tubes.  And am totally sick of the tv ads about cancer, make them go away.  in fact totally sick of myself.  I dont do makeup nor my hair and most of the time dont bother to dress unless I have dr appt.  My children and grandchildren are sick of it, every one except the ggrandbaby, he is 2 and still loves me.  thanks for letting me vent

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  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    jennifer - i do know what you mean about the TV ads!



    I see you are hormone positive, are you taking any hormone suppressing drug? If so maybe you can take a holiday from that for a month ( oncologists often suggest this for those struggling) as that may be affecting your mood?



    Are you sleeping?



    I think you have post traumatic stress and need a specialist in that as you are stuck in the shock phase and none of us know how long we have its just that bc makes us hyper aware of it, but this should reduce over time. Have you thought f trying EMDR? It has great results with post trauma stress.......



    Good luck, and i dont hate you i just want to wrap you in a duvet size hug....

  • jennifer1
    jennifer1 Member Posts: 185
    edited May 2013

    I was dx with PTSD along time before I got bc however it was somewhat controlled.  I take arimidex , got off of tamoxifen about two month ago.  It was really horrible.  I do believe we need hormones however in my case they kill.   Sleep OK This has also been the time of year for all my tests and that dont help.  Bloodwork was good but I havent had mammogram yet since LE in breasts with be a scan.  I dont have scan on a yearly basis however did have one about 10 months ago for a broken rib and it was fine.   I just have no drive, no desires, nothing, dead inside.  Nothing excites me.  Maybe looking for the magic that no longer exists.  By the way hug back at you and thanks for not hating me.

  • learningtoletgo
    learningtoletgo Member Posts: 57
    edited May 2013

    Jennifer, I don't hate you, just want to help. It sounds like to me your hormones are out of balance and this is causing you to feel the way you do. My daughter was really depressed and had no energy, crying all the time until she went to her gynocologist who suspected that her adrenals were shot (they were) and her hormones were unbalanced (they were) and so started treating her with supplements and it worked. She lost weight and no longer feels like she is on a rollercoaster! I wish you the best, just the same.

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited May 2013

    Jen, Lily55 mentioned EMDR and I second that suggestion.  I entered psychotherapy 3 weeks after mx/diep surgery last June.  I honestly don't know how women process this life changing experience without it.  Since January, we have shifted from cognitive therapy to EMDR and what remarkable results.  Many people find EMDR techniques helpful, but the technique is not well understood.

    I needed from the begining to be a advocate for my care, pushed my insurance comapny to the mat (and then some - a vocal/letter writing squeaky wheel from the get go) and have put in place a four point team who have worked to make me whole again; Onc, PS, Physio and Psychologist. All women except my PS.  I am now authentically me - mentally, physically, emotionally and spiritually.  Nearly a year later, I am not the same woman on all fronts and have the knowledge that I have done the work necessary for me to get through this shitty life experience and beyond.  You can find your way back with help.

    LB, x

  • jennifer1
    jennifer1 Member Posts: 185
    edited May 2013

    I will check emdr out , thanks.   Hormones are another issue, even late in life we produce them and when you have hormone related cancer, they nix them. 

  • fredntan
    fredntan Member Posts: 1,821
    edited May 2013

    I undestand how you feel. I am trying to get my life back together. trying to learn to live again. trying to find the joy.



    my dd recently talked me into finally letting us get chickens. I love them. I have 14 baby chicks! they are so cute. I enjoy my time with them.



    are you exercising? I am trying to fight depression right now. fighting mainly with exercise & baby chicks:-)

    are there any walking trails nearby? if so I want you to get out there at least 3 times for half hour. I will do the same. that little voice in your head, have her say stuff like I am strong or even fubc i hate you.



    i willput this in my favs.



    how about voluntering somewhere? there is all kinds of stuff out there.

    big hug

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited May 2013

    Good Jen... I hope you do give EMDR a go. 

    Fran has a great suggestion that I left out - exercising.  You can find me almost everyday posting on the Let's Post Our Daily Exercise forum/thread, chiming in on what I did that day for exercise.  That forum has inspired me to up my fitness level and start running.  It's a very supportive group of women at all levels of treatment (or years out of tx) and fitness level.  If you would like inspiration to move your bod and terrific support - that is the place to go.Wink

     

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    And a punch bag to get all your rage and fury out at having cancer - I realise i am currently more angry at how the hormones leave me feeling aND DONT UNDERSTAND WHY THEY DO NOT TAILOR DOSAGE AND STRENGTH TO INDIVIDUALS AS WE ALL HAVE DIFFERENT BASELINES SO WHY NUKE AND MAKE LIFE A MISERY WHEN ADJUSTMENTS MIGHT HELP, SORRY FOR CAPS BUT LEFT THEM AS THEY SAY HOW I FEEL......IT MAKES ME MAD.....

  • ali68
    ali68 Member Posts: 1,383
    edited May 2013

    So good to read some of us don't feel like jumping for joy because we don't have cancer anymore. ( my back as just gone again )

    I hate tamoxifen and really want to stop it because of - thick lining of womb, pain joint, hot flushes, weight gain, pain in tummy and terrible bloating, bloated all over, terrible mood swings. Have I missed something!!



    Waiting to see a gynaecologist this Wednesday and boy do I have questions for this poor doctor.



    I love walking my dog but can only do a hour at a time otherwise I won't make it home because the joint pain starts. So pissed off with the weight gain and I know it's mostly fluid but it still upsets me. If I read another person has lost weight on Tamoxifen I will cry.



    The good thing is I have hair which is growing at different speeds as I had cold cap. I still look as though I have a chemo face ( you will know what I mean)



    Also got family problems- middle daughter got eating disorder( my fault having cancer )



    But apart from all this I can still go to work for a few hours a day and thank god I'm still with my 3 kids and DH (not all the time )

  • LilacBlue
    LilacBlue Member Posts: 1,636
    edited May 2013

    Lily55, upper case shout all you want or need. I'm listening and you are damn right. Why can't we have tailored mgs' dosages ?  Someone one smarter than me may come by and say so.  Kinda how it happens sometimes here. 

    Ali68, my experience and understanding has been that cancer want's to disrupt our lives and those we love to the core. It's part of it's raison d'etre ever since bodies roamed earth.  Try not to be hard on yourself and gentle hugs to you in completing cold cap with chemo.  That is not easy by any stretch. 

  • mrenee68
    mrenee68 Member Posts: 383
    edited May 2013

    Jennifer I so get what you mean. I have no friends, I hate thinking about BC all the time, there are few things in life that seem fun anymore. I kind of feel numb, like I just go through the motions and get through the day. I don't think people hate you they just don't know what to do for you. I don't think anyone can know unless they have been in your shoes.

    Do try and exercise as much as a pain in the butt that it may be it does help.

    Hang in there you will get through this. ((Hugs))

  • ali68
    ali68 Member Posts: 1,383
    edited May 2013

    Can't move with my back so i'm going to have a months break from Tamoxifen. Will be interesting to see if i lose weight and no bone pain.

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    I am surprised at how different I feel after a month off Letrozole.......I did not expect such a dramatic difference.....I still have blips but my general mood is better and I don´t hurt all the time from joint and muscle pains....

  • gailsun1965
    gailsun1965 Member Posts: 12
    edited May 2013

    I am feeling similar effects of the tamoxifen.....weight gain, joint pain, mood swings, insomnia and hot flashes. I was at wit's end on what to do. I tried sleep aids (prescription) and it didn't help. Also tried Effexor for the hot flashes and it made me so dizzy I couldn't get out of bed for about 2 days. I usually am not one of those people who does fad diets but I decided to try the "Clean Diet" by Dr. Junger because I didn't want to take any more pills and thought I had nothing to lose. I am on day 4 of it and I have to say that my mood has improved greatly along with a boost in my energy. I have lost 4 lbs. No change on the insomnia or hot flashes. It do think my aches and pains have decreased. I am going to continue as it has only been 4 days and I am feeling much better! Will give an update in a week.

  • Waitingforthenextstep
    Waitingforthenextstep Member Posts: 251
    edited May 2013

    Has anyone ever been on an anti-depressant that works?   I would appreciate any shares about this.  I see myself in the posts.  I am numb and worried all the time.  I get bursts where I'll try to get myself into an upbeat state of mind.  It's just not working, so I am considering an Rx intervention.  But I am not going to take some Dr's advice.  I'd rather hear from my peer group.  I knew some people who used Wellbutrin when they were trying to quit smoking, good reports for that express use.  Any info appreciated.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited May 2013

    I tried Welbutrin last May. It was ok, but it took away my appetite, which could be a good thing, but I didn't like it. I switched to 20 mg Prozac, then upped to 40mg. The 40 was good, but perhaps a little too much. I am now on 37.5 mg Effexor (which btw is cheap and generic), and I feel great. I hope to stay on it thru Tamoxifen and hopefully menopause!

  • fredntan
    fredntan Member Posts: 1,821
    edited May 2013

    I think I was on wellbutrin before I was on Effexor. I could be wrong, but I don't think wellbutrin and tamox go together. your pharmacist should know.

    I'm not on effexor anymore. weaned myself. but felt great on it

  • edwards750
    edwards750 Member Posts: 3,761
    edited May 2013

    Boy can I relate to this thread...I am on tamoxifen too and experiencing the same SEs...weight gain, nervousness, insomnia, hot flashes...not fun at all. Waiting...I thought about wellbutron but I read where they said dont take it if you are on tamoxifen..just saying. Jennifer...you do need some help dealing with all of this. We all understand how you feel physically and emotionally. I dont do makeup unless I have an appt or going out either. I really dont see the point since right now I am on medical leave from my job. My last appt with my BS is this Friday and then its back to the Women's Health Center for routine mammograms. My job is very intense, detailed oriented and you have to really concentrate. Pays well but a lot of pressure and frankly I cant handle it right now. I have family issues too esp with my youngest son so my anxiety reaches epidemic proportions sometimes. You cant will your way out of this so hopefully your dr will prescribe something to help you cope better. I am 2 1/2 years from my DX so I am barely halfway through the 5 year mark. Oh and exercise does help..Diane

  • momoschki
    momoschki Member Posts: 682
    edited May 2013

    Waiting,

    As both a Wellbutin user and a clinical psychologist, I can tell you that my experience may have no bearing on yours whatsoever. Everyone's individual chemistry is different.



    When I got an ADH dx and was officially designated "high risk", I went into a panic mode where BC was all I could think about. Lost interest in almost everything, felt preoccupied, not present, and like I had a black cloud hovering over my head constantly. I feel the Wellbutrin has been helpful in unsticking me from these obsessive loops of doomed thinking and almost constant tearfulness.



    That being said, I would urge you to consult a psychiatrist, who will be the best equipped to advise you on the right choice for you. There is often a lot if inevitable hit or miss with drug choices and dosages, which requires patience and perseverance on the part of both patient and doctor.



    Good luck to you! There's really no reason to continue to feel as miserable as you do when there is help out there. Can't speak to wellbutrin's compatibility w tamoxifen, as I don't take the latter.

  • ali68
    ali68 Member Posts: 1,383
    edited May 2013

    Day two of not taking Tamoxifen and feel happy i'm doing it.

  • Waitingforthenextstep
    Waitingforthenextstep Member Posts: 251
    edited May 2013

    momoschki,  I sent you a PM.

  • kyliet
    kyliet Member Posts: 687
    edited May 2013

    My brain was getting stuck in bad thoughts. My psych also told me it was PTSD.

    I do have bipolar 11 but it was under control before BC. Crashed big time with diagnosis and was worse when treatment "stopped".

    I take Lamictal 200mg. This is actually an epilepsy drug so it reduces neuropathy pain, but is also used for migraines, bi-polar,  and PTSD symptoms. It has helped lots.

  • melmcbee
    melmcbee Member Posts: 1,119
    edited May 2013

    Hi I totally relate. I have been on zoloft with good results until my bc. I am finished with chemo and radiation and only have an exchange surgery left. It has been 10 months since my bmx and I aam more depressed now then I was during treatment. However I noticed it and I am aware that I am so I make sure I dont miss my depression pills. I dont know if this relates to anybody but besides being in menopause now I also think it has to do with coming off of all of the medications during treatment. I mean there are pills for anxiety, pain pills, neuropathy pills, nausea pills, steroids and the list probably goes on but my chemo brain wont let me remember. lol.  I also think that it is common to go into this depression after active treatment because when we are diagnosed we go into a fight or flight mode. Mostly we fight for months to get through surgeries and treatment. Then when its over our body crashes from the chemicals in our brain that are related to fight mode. And yes I also think we all have a little ptsd because damn I dont know about you but I have been thru hell. lol. Sorry I am trying to lighten the mood. ANyway I think its the combination of coming off of medicine almost like dt's and our hormones are screwed up and coming out of the fight mode.  Healing hugs to all

  • lisagwa
    lisagwa Member Posts: 232
    edited May 2013

    Before BC dx I took low dose of Effexor. It helped take the edge off and it helped with hot flashes. However, after taking it for years, I had other side effects. I weaned myself off and was medication free for a while but my body couldn't handle it. The hot flashes returned and it was horrible. I also became teary with no real reason. Now I take 10 mg of generic Lexapro. It definitely helps.

  • Wren44
    Wren44 Member Posts: 8,585
    edited May 2013

    I have taken Wellbutrin for years with good results. I've taken lots of antidepressants and usually they work for a while and dump me. It has the least side effects of any I've tried. Wellbutrin lessens the effect of Tamoxifen, so they can't be taken together. 

  • Waitingforthenextstep
    Waitingforthenextstep Member Posts: 251
    edited May 2013

    Thanks for the input, I do appreciate it.  What I am hoping to find is something to elevate my mood, like you said..take the edge off.  I am not taking tamoxofin, I am still getting herceptin tx for the next few months, whatever med will have to be compatible with that.  

  • lisagwa
    lisagwa Member Posts: 232
    edited May 2013

    jennifer1 - I know it's difficult when you aren't feeling well but please be kind to yourself during this time. If you can, do just one nice thing for yourself. Best wishes.

  • gailsun1965
    gailsun1965 Member Posts: 12
    edited May 2013

    My hot flashes tapered off to only one a night on the diet! Sadly, I had some guests stay with me for a couple of days and I fell off the diet. I went right back into constant hot flashes at night. I am a believer in this diet. I have to get back on it so I can sleep!

  • shinning_like_me
    shinning_like_me Member Posts: 25
    edited May 2013

    jennifer

    i would suggest if all are gone by their own good for you they were never yours.

    But if you think you drove everyone crazy and made them leave, than i would say that was wrong definitely did unintentionally by you. As a patient of Bc you must be not ready to accept the sympathy from all and got mad at every small thing that s quiet normal. But you can also call them ask how they are and how much you love them , Dress yourself look good if you think you are going to live wwithout smiling and noone around that wont happen and l8r you will realise and repent on the time you wasted Grinning. i thnk u should start right now LIVIN YOUR LIFE AGAIN. Live as you like , think alternative, Think positive think lively feel good and high hopes will take you far ahead in life and you wont believe what just happened.

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    Which diet please?

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