The Hermit Club

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Yay Jinkala!

    Wonderful news!

    XOXOXO

    Laurie

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Markat of course I'm sorry about u'r mom, but relieved she's in a good, caring place and I agree with Jazzy she may want to continue for her own reasons and of course enjoy every minute for her reasons. U'r mom couldn't be in better hands and that includes u'r loving hands. And I'm glad u'r looking at life differently and thinking about how to live it with u'r family. This is such a sad time, but the transition is the best one and the hospice workers are unbelievaby wonderful. U have to be so special to be able to do that, so u can rest easy when u'r not there. I'm sending prayers for u and u'r mom for this diificult time---Please keep us posted. We care so much about u.

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  • markat
    markat Member Posts: 909
    edited May 2013

    Thank you all! Jazzy thank you for your wonderful perspective! And laurie for the prayers!



    Camille thank you so much. I wish I could give you a real life hug!



    Lily I totally understand being fed up with the crap. I'm still so exhausted and don't think it is from stress. I was exhausted before this stuff with mom began. I wish you peace and a good night's sleep!



    I was a blubbering mess this morning at work. The department of ED came in to check my work and evaluate me. Apparently I wasn't marking something correctly on production sheets about crackers, of all things! The lady got snippy with me and I snipped back that I wasn't an idiot, then started crying and apologized. Ugh. I told my bosses they should fire me, and they just hugged me and told me it was fine. My head is definitely not in the game!!! Then I spilled my coffee all over my work binder lol. What a day!



    Newbies I dont want to scare you off. My mom has lung cancer, not breast cancer. Just wanted to clarify!



    Hugs and love to all!

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Marka big time (((HUGS))) I can not even picture u getting snippy, I'm sure u didn't it might have been snippy for u, but for me never. I define that word with my mouth and went on to define biggerwords. Another words Markat don' think about it. Apparently they didn't think much of it, and u don't need firing u are so going thru so much-u'r acting normal, and remember that. U'r not scaring anyone off cuz when it comes to our Moms everyone understands so just let it all out here with no apologizing to us. We all say what we want, with no I'm sorries--u know that.

    Please Markat take care of YOURSELF, too.

    xxxoooxxx

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  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Sweet Lori1020... It's hard because it's beyond your nature.  It took me a long, long time to take the plunge and start communicating.  I "lurked" and pondered and overthought everything.  I'm just bowled over to realize the number of hermits who are wandering among us, going about their lives unaware of all the sister hermits.  (Not expressed well... but I hope you know what I mean.)  I have always felt dysfunctional and awkward, yet here's all this love and concern and support!  I mean look at markat.  All she's going through, yet I get sweetness aimed my way because I whined about poison ivy!  (I'm not as itchy, yet still pink/patchy/ick spots.  They have to be gone by the 21st, since I see my mo then, and he's not one to put up with much.  sigh)

    Markat... love to you and your mom.  When my mom entered hospice, it was a mixed blessing.   I was not aware that there's a time factor in Power of Atty.  My husband's father did his from a hospital bed.  (Hospital provided the notary.  Nurses witnessed.)  Prayers and hugs (itchless) headed your way. 

    lpc... sweet son story.  He clearly loves his mom.  Take a picture, frame it, and grow your hair together.

    twinkle, Laurie, teka... hoping you are all able to recharge this weekend.  Take care...

    Camille... Is Joey excited about moving on to a new grade?  He could have a summer project.  He could video his gm, telling stories of her Italian family and their laughter and meals together.  The stories are priceless, and he'd have them always.

    spookie... how may furkids?  (two cats, one dog here)  :-)  and the dh, if you count by fur.  He was shaving in 6th grade... 

    Hermits, all...  Love to you during whatever struggles or joys you may share...

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2013

    Spookie is a 7# Maltese, my girl. BTW we had a good time in Orlando, but glad to be home.



    KrisKringle is a rescued min poodle, daddy's boy.



    That's enough grooming for me, she's in full coat, to the floor

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Spookie ---they sound so cute--can u get a piture on for us? Some of u are so good with that, then there's me.

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    lpc....I cried when I read that your son had shaved his head. What a wonderful young man full of compassion.

    Skittle....Love you you this weekend. Thank you for your posts. XOXOX

    Camille....You are so sweet and kind. HUGS!

    Markat....I think of you and your mom every day. XOXOXO

    Jazzy....HUGS to you too today!

    New hermits...welcome. This is a daily safe place to rest when the rest of the world becomes too overwhelming.

    I am begining to really feel the effects of being off of my HRT.  The hot flashes are coming more regularly, but I am managing.  I am starting to wish that I had not put my surgery off a month. I did it so I could accommodate all of my clients, but I am starting to realize it may have been at my own expense.  I will just plod through though. :)  

    I got my hospital packet yesterday and was shocked and disappointed to find out that I am NOT getting a PET scan as previously thought.  I am SURE that the nurse said that was one of the tests I was getting, but it is only blood work, EKG and chest X-ray. I was so excited to get the PET as I was hoping it would clue me in to the joint/muscle pain I have been having since December. :(   I am going to inquire, but I must have been mistaken.   Also, the intense rash that I was experiencing is back in full force.  It went away for about a month and now it is back. It is in my private area and on the inside of my arms where my elbows bend.  SO weird.

    My son was able to take the mound the other day for the first time since his foot injury.  He struck out all three batters! Quite the victory after not playing for eight weeks.  I was so proud.  The season is over now. He gets weeks off and then he plays for the entire summer. It is an intense schedule.  We have a lot of traveling to do for tournaments. That is part of the reason why I also delayed my surgery. I wanted to back it up against those trips.

    ON THE BRIGHT SIDE...I have a blessing to share.  You guys are not going to believe this.  I am an independent hairstylist that has her own room.  I notified the owner of the building to let him know that I would be gone for about seven weeks due to the BC. I assured them that I was not giving up my room and would continue to pay my weekly rent while I was out. I just wanted them to know out of courtesy why I would be absent.   I recieved an email back saying that they loved me and that they wanted to give me a gift. They said that they wanted to cover my ENTIRE rent while I was healing FOR AS LONG as it took me to heal!  Hermits....that totals over a couple of thousand dollars!!!!!  I was stunned.  Stunned.   I could not believe it.  I NEVER expected that.  My husband found my crying and asked what was wrong. Bless his heart, he must have thought it was more bad news.   I told him that I didn't know how to graciously accept this generous and overwhelming gift.  He said, "You just do.  You are a wonderful person, you are kind to them, you have paid your rent faithfully for years, you never cause drama, and they WANT to do it. Accept it and say thank you."   I did.  It is such a relief to know that I won't have that burden ON TOP of my lost income for those weeks.

    I just wanted to share the wonderment of the kindness of people.  I so humbled. :)

    Well hermits, have a blessed and wonderful day. I am off to do more hair. We have a baseball party to go to tonight and so I am actually looking forward to that. They are all good people who love me and accept me for who I am. :)

    Love you all. Looking forward to reading your posts on my breaks......

    XOXOXOX

    Laurie

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Laurie- aren't people wonderful sometimes? I am so glad to hear your rent is being covered. It is the gift that comes with letting folks know and allowing them to help. I am self employed too and know the burdens that come with loss of income while continuing to maintain the expenses that go with working for yourself. I am so glad that you have been given this gracious gift!

    And about postponing your surgery, your doctors will always let you know what you need to do. There are certain situations that require getting in to surgery right away and others that can be scheduled out a month or so. I had that too last year, mostly because of another medical issue that came up at the same time and needed to be addressed first. In the end, everything worked out just fine as it will for you.

    I have to go into work (ugh) and wish everyone a good day!

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Laurie Jazzy's so right about u'r surgery, if the Drs. thought it was a problem ud know so please don't think about it. And possibly they thought he pet scan wasn't necessary.

    And YYYAAAYYY no rent, what a lovely thing for them to do for u. See u r certainly loved and these are wonderfu; people--U are blessed to have them in u'r life and u'r DH is right aand he does sound like a DH.

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Hi ladies,



    I wanted to clarify that I'm not worried about waiting to have to surgery due to the DCIS....it's that the waiting has brought such an overwhelming drain to me emotionally and physically due to all of the work and clients I decided to juggle first. I am realizing that I should have maybe just worried about me first. Hard to admit, but true.



    Thank you all for listening and supporting.

    Love you,

    Laurie

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  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Laurie--such happy, happy news!  How wonderful to be valued and loved and validated in your profession.  Not only as a person, but as an asset to the business.  Too often people are taken for granted, and I love that they are stepping up to acknowledge you as a blessing to them.  Your devotion to your clients is clear, and I love that "what goes around, comes around" for you!  And--your son's success!  It is such a heartfelt joy when our children are happy, too.  He must be on cloud 9...    Hoping rashes and worries lessen soon.  Hugs...

    Happy weekend.  Am off to a wedding this pm.  (It's an outdoor wedding.  Normal temp this time of year is about 75.  Today--45! )

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Thank you Skittle! You are such a bright light.



    I dream of meeting all of you one day.



    Love to all of you!

    XOXOXOXOX



    Laurie

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  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Lori1020,

    Welcome!   We're here 24/7.Kiss

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Laurie- Cami is also right. No need for the PET scan. I know they often do those for more advanced stages of cancer when they are concerned about whether it has spread. Different tests get done for different stages.  Because you are stage 0/DCIS, you will have less tests. Sounds like most of your tests are more pre-op related. You are doing to do just fine!

    I did not have to go into work in the end, but monitoring some things from home on our conversion so I am kind of working but enjoying being home and doing other things too! 

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2013

    Laurie that is so awesome, you deserve it I am sure they wouldn't have done it.

    Mark....sorry about your mother....

    Missed you guys went away on my week off to stare at the ocean so went to the Jersey shore....thanks, my kids know what the deal is, they text me ask how I am, I say horrible and that is it....I ask the twins they say no, most of the time....I don't want to leave my house and do have a frig in my room.....they apparently are having a hard time, whatever....

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  • cvmarilyn
    cvmarilyn Member Posts: 179
    edited May 2013

    Welcome lpc - I hope you are doing well today - I'm sure everyone's heard the thing for today - "May the Fourth be with you" seems appropriate for all of us.  Today marks a year since I had my mamogram that started this whole thing.  Such mixed feelings today - grateful mostly.  

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    CVmarilyn- I heard the same thing this am on NPR "May the 4th be with you." Funny!

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    CV I never heard that in my life--Funny.....

    The neighbor came over today she's so nice she's a retired nurse and both sides (neightbors) have taken such a liking to Joey she heard he hurt his ankle and wrapped it for him. They just gave him a badminton set too.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Cami- I hope Joey's ankle is better soon. The retired nurse sounds like a sweetheart!

    I have been low energy today. Been taking it easy at home. Watching Bridesmaids on HBO, which is a super funny movie (seen it before) if you have not seen it. Fun chic flick!

    Hoping the hermits who are resting, been traveling and are back home, etc. are doing okay this weekend.

    Special thoughts for Markat and Blondie today. 

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Good Morning Hermits--or who want to be out of hermitude (don't blame you) Most of u are young and u should feel free to really do so many things. But I know sometimes life feels heavy--it's easy to not bother with people we don't know very well.

    My mind too goes to Markat and u'r mom--this is such a difficult time for u'r family.

    And Blondie u'r not feeling well so u just rest as much as u can.And don't forget u'r water, it makes a difference.

    And the weather is goofy so sitting outside is sometimes not good. Well not yet it's chilly right now. But I do hope u'r Sunday is filled with good feelings.

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited May 2013

    checking in hermits......relishing the last couple of days before chemo starts, planning, etc...the pain pills he gave me aren't working and I am taking 2....wth...

    wish I could drink water but makes me nauseous, drinking green tea and also propel is my newest thing...weather is 60's almost 70's almost time for a nap.....worked 4 hours at macy's last night!!!

    bbl.....

    how is everybody?

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  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Blondie... Macy's--wow.  That's "big city" to most Arkansans...  There are no Macy's down here close... unless you shop online.  (Fond memories of Macy's...  Bought my wedding dress at a Macy's in St. Louis with my college roomie--a St. L native.)  I hope your pain can be dealt with soon and that the chemo takes care of "the enemy."  Hugs and hope constantly with you.

    Hoping Monday brings each a good week.  Love to you all.  Wish I could wrap each of you in a protective blanket of hope and healing...

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Bondie how can u work--ick Macy's is such a walky talky job too.---I still drink propel I love it. As u all know the first 4 months of chemo I worked, I don't know how I did it--I do remember locking the office door and laying flat on the desk with the wastebasket near me once in a while but it was very difficult working with so many people and in the morning counting 100,000.00 dollars and when I was of a dollar or two put it in myself and over took it back--No the way to do thigs. But who had the patience to do it not me. Oh I didn't break any laws I just was chemod out.

    Happy Cinco de Mayo--I forgot this morning---everyone have a drink or drugs or both

    Blondie what drug are u taking?, mine aren't very strong but they help some so I take them alot.

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Oh I have to tell u Joey beoke his ankle, so he's all wrapped and on crutches---finall a boy thing. but I feel bad for him cuz as he puts it he likes to be mobile. So I'm letting hime use my computer more--brat that's probaly why he broke it.

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Hi hermits- the weekend is at an end once again. They sure do go fast. I got out and about today and got a whole bunch of cool plants and shrubs for my yard and garden. Once I get everything where I want it to be, I am going to post some pictures, so stay tuned!

    Cami- so sorry to hear Joey has a broken ankle. I hope he can stay off it and get better soon!

    Blonde- I hope this next round goes better. Is this the last one? I know this has been so hard on you.

    Oh and I thought about finding my way to a margarita for cinqo de mayo today but it never happened.

    Skittle, Markat, CV, Curveball, Teka, Laurie, Lily, and all the rest, wishing you a good week with whatever you are heading into.

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  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Hermits,

    Hope you all are doing the best possible.  Jazzy, Camille, Skittle, Markat, Teka, Lily, Blondie, Marilyn and all of the rest...peace and love to you.

    For now I am just in a holding pattern. Just lots of clients to get through before my surgery. I do have a question about the HER testing though.  I checked my biology pathology and I don't see anything about that on there. Is that a separate test I have to ask for? I am the first in the history of my family to have BC. Is there a special criteria that would eliminate me from getting this test? Sorry girls...I'm confused on this one.

    Thanks to my lifeline of hermits...

    Love you all.

    XOXOXO

    Laurie

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Laurie- when you have your surgery, they will biopsy the area and determine if there is estrogen, progesterone, or a protein called HER 2 associated with it as part of the pathology. The presence of the hormones usually will indicate if you would benefit from any sort of anti-hormone therapy. HER 2 is a type of protein that makes the cancer grow more aggressively.

    They checked my area of DCIS as well as the invasive area for all this. I was both ER and PR positive, and HER 2 negative. My sister, who also has breast cancer right too is HER 2 positive and she has received a special infusion every 3 weeks of Herceptin for a year as part of her treatment. There are some other women here on this thread who may be able to provide even more info on HER 2 than I know from my sisters care.

    You sound like you are getting things taken care of with your business so you will feel better going into your surgery. That is a good thing.

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Laurie someone will come on that really knows, I don't Jazzy has a handle on it- I do know I was positie across the board and had hereptin for a year wekkly=combined with chemo and then a few months just herceptin. But they told me all that after surgery and all that stuff--that's all I know. U are organized tho and that's a good thing--but don't overthink this--well I never did--it was and has been much easier on me.

    Jazzy u are so organized and energetic, I'm so happy that u are.

    OK it's seis de Mayo today--mean anyting? No? Just asking.

    Markat (((HUGS)))

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Cami- I am not as organized as you think! I used to be so much more organized before all the health issues, but then again, I accepted things would be messy for awhile too. 

    My energy is not good today and my client site has been wearing me down, so I opted out of going on site to do work today. Going to work remote and from the comfort of my bed and will get a lot more done. Self management and all that jazz.....

    And I googled what holiday may be today and turns out May 6th is "May Day" in the UK! So it does mean something (at least to the Brits and the rest over across the pond).

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