April will be my turn, can we share hugs?

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Annie, I am thinking so much about you during your rads.  I am sitting right next to you and wiping away your tears.  Take deep breaths -- you are extremely brave and strong.  We are all right there with you!  xxx Bobogirl

  • ldesim
    ldesim Member Posts: 1,333
    edited May 2013

    And I'm on the other side of you Annie, i'm so sorry you have to go through this! I have a lot of swelling still under my arm and under the incision site and there has been no concern from any of my team even though I keep pointing it out, they tell me its fine and I'm healing nicely.

    Hopefully it will be more tolerable for you when it's 15 mins and hopefully every other aspect of this stage of treatment will be easygoing.

    We're all here for you!

  • Annie2012
    Annie2012 Member Posts: 32
    edited May 2013

    You ladies are so awesome....thank you all for all your kind words. You are all going through so much too! I had treatment today and it didn't hurt quite as bad as yesterday.  Tomorrow will only be 10 to 15 minutes and from now on it will only be that as well.  I am going to see a PT to help with the tightness in my left arm....my RO wil get me set up.  I had her look at the right armpit swelling. I also have an enlarged lymph node in that swelling. She wasn't to concerned about the node and the swelling since there was no cancer in my right breast. She mentioned a seroma. Do any of you know much about a seroma? I did have alot of bruising and alot of drainage in my JP's on the right side also after surgery. I am keeping an eye on it and will have my MO look at it soon if it doesn't get better.  Hope you are all having a good evening and trying to put all this out of your mind as much as you can.  My daughter told me, distractions, distractions, distractions! I think she is right! May God be with you all every step of the way!

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    Annie ~ So glad today was better. Glad you are going to PT also, it's work, but I feel much better every day. May every day get easier for you. Continued hugs!

  • ldesim
    ldesim Member Posts: 1,333
    edited May 2013

    I'm so happy to hear that Annie and Keepswimming, also happy to hear you are doing  better as well!

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    Just thought I'd share the day I had yesterday. We had a huge fire, my DH left for work and as I watched the news I knew we were in trouble. I called him in tears because I didn't have the strength to pack up and get the dogs, even if I did I can't drive. He heard the news and was already on his way back home. We watched all day until Dr appts. While we were gone our hill burned, house and yard safe, firefighters are amazing!

    Next, I found out I have a vertigo problem and to cure it i have to do horrible exercises, I cry halfway through.

    Last but not least I got my first fill, but because I have to be done before RADS she is filling me more than the standard fill (175 each) Now I'm back on pain pills, can't look to the right cause of the vertigo and my view from home looks like black moonscape.



    Thankfully PT is going well. The sun is out and my hubby is still by my side every step.

    Whew! Today has got to be better.

    Thanks for letting me get that out, you guys are the best, hope each day is better than the last for all of you.

  • PeggySull
    PeggySull Member Posts: 686
    edited May 2013

    Keep swimming,



    Can't believe you can write such a positive post when you almost lost your house,have vertigo with a difficult treatment, etc. Your DH sounds wonderful and you are Wonderwoman!



    Peggy

  • danawp
    danawp Member Posts: 99
    edited May 2013

    Oh Keepswimming...So Sorry!! Hang in there!!!!

  • ldesim
    ldesim Member Posts: 1,333
    edited May 2013

    Keepswimming, I'm sorry to hear about your problems and I hope that this is just a small bump in the road for you.  I am glad to hear that your house is safe and that you seem to have a wonderful hubby :)  Big hugs to you and I hope today was a better day.

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited May 2013

    I've been watching and reading along with all these posts and have noticed something interesting. WAY BACK in 09 when I went through this (lol), almost all of us had surgery first, then chemo. To have chemo first was the rarity, usually reserved for the largest tumors.  
    Now it seems to be much more of the norm. But I can see an outcome that is different - you ladies are BEAT UP from chemo and not going into surgery in top condition. I think it really affects your recovery. I know the oncs must have good reasons for this - and it IS good to go into surgery able to find out the reaction/response you had to chemo. BUT the surgery seems to hit harder after the toll that chemo takes.

    On the other hand, WE went into CHEMO right after surgery (well about 4 weeks after). I wonder how that affected us. Not as much, I think.

    Just something I observed. They say it takes 6 mo or so post-chemo for your body to really recover. Keep that in mind as you heal, and try to be patient. This is hard stuff - i consider my cancer experience the hardest thing I have ever done. But damn, it is so wonderful to get to the other side. And YOU WILL get there.

    Sending love to all on this beautiful (on the east coast) spring afternoon. Good weekend and good recovery to all.

    Amy

  • ChickaD
    ChickaD Member Posts: 1,025
    edited May 2013

    Hi my April sisters......my 4/18 BMX with reconstruction went well, long, but well...a bit of trouble coming out of anesthesia. ? Took over 3 hours...guess I didn't want to "deal" yet.. lol. I was in and out in 23 hours.....Rough 2 weeks with getting pain meds under control...apparently I am allergic to most all of them.....so I have morphine at home now...ugh...and mostly diarrhea every day. Ugh. My stage went down to 1, but my grade went up to 3. Just saw all my doctors this week and due to increased aggressiveness they are doing more pathology tests to get the right combo of chemo organized for me...I go back on May 15 to hear my suggested treatment plan.



    Glad to see most of you are coping well♥

  • robin_in_SJ
    robin_in_SJ Member Posts: 46
    edited May 2013

    Keepswimming—so sorry to hear about the fire, I can’t image how scared and upset it must have been to know a fire is coming and to not be able to pack and get the pets.  I am glad that your house wasn’t burned.

    Annie—Sorry you had so much pain with the rads, I can’t get my arms up over my head yet and can’t image trying to hold the position for any length of time.  I am glad the sessions are shorter and you’re getting stronger.

    I had my BMX with immediate reconstruction on the 19th.  The surgery went well without complications.  Glad I went with a BMX, they found some cancer (DCIS) in the left breast as well.  My stage went up to IIIa with 5 of 27 nodes involved.  They took nodes on the right and my right arm has been my source of discomfort.  I started OT this week and I can feel it is getting better but still bothersome.  I’ll need chemo and rads and will meet with the MO on Monday.  Most days I feel a bit stronger but yesterday I was so tired so I am going to try and pace myself a little more.  I’ve been taking walks everyday and try to make each walk a bit longer as well as OT exercises 2-3x a day.  I am still  sleeping in the recliner, I tried the bed but there was to much discomfort.  I’ve cut down on the pain meds to 1-2x a day…before bed and if I need some during the day.  I hope to be off in a few more days and just on Tylenol. 

  • PeggySull
    PeggySull Member Posts: 686
    edited May 2013

    Robin,



    So glad the surgery went well, especially with a more complicated recon like the Tram flap. That's fantastic! And the OT seems like it is going to really help your arm. I had Sentinel lymph nodes out pre chemo and that area was very painful for quite awhile. And, like others on these forums you dodged a bullet by opting for the bilateral. Good for you!



    You said you're still going to have chemo and rads and I have had bilateral mast with immed recon too (but implants) and chemo and now they are talking about rads. Since this wasn't in my original treatment plan, I freaked out, thinking that the rads would ruin the recon, which one month out the left breast isn't looking so pretty anyway.



    You sound very okay with having the Tram flap before rads. How were you reassured that the recon could come before the rads and the recon would be protected. It sure would help my anxiety to know. The tumor board is meeting in a week or so to either recommend rads or not because my post surgical path report left me in a kind of gray area where it could go either way.



    Eager to hear what your MO has to say on Monday. They are supposed to have the broadest knowledge base about BC, correct? I have found it very confusing to have four docs at various times in my treatment with differing opinions at times or with not communicating with each other much at all.



    Hugs,

    Peggy

  • robin_in_SJ
    robin_in_SJ Member Posts: 46
    edited May 2013

    Hi Peggy,

    Before the surgery the BS and PS said I my chance of rads was 50% and that if I did need rads the breast might be reduced by 10%.  I am small breasted (before and after) and I was hoping to get some shape. The BS said because of the 50% chance of rads a TE wasn't a good option for me.  I also wanted to have as much recon with the BMX. I didn't want to have to do two major surgeries if I could get it done at one time.   The BS said if needed after chemo and rads he could touch things up as needed.  Maybe your BS can let you know what can be done to protect the TE if you need rads or if they have other options.  This is something they seen before and I would ask for the BS what he can do either before or after the rads.  It's so hard not knowing and often we have to ask for the plan or our options.  I hope you don't need rads but if you do I'm confident they'll be able to come up with a way to protect or fix any damage done from the rads.

    I with you about the number of specialist and I think that the MO will now take the lead on the next phase of the treatment.  Not sure about the rads but I'll ask the MO on Monday.  I'm trying to learn more about the chemo and prepare my questions for Monday.   I'll post after I talk with the MO and share his thoughts.

  • bella42771
    bella42771 Member Posts: 34
    edited May 2013

    Hello ladies,

    I'm finally getting back to the board after a few weeks. From what I have read on this thread, the April surgeries, while speckled with a few issues here and there, have been successful and the strength of the ladies here is so inspiring and uplifting. My surgery was april 11 and I have been doing very well medically. However, I got hit with an emotional right hook at 1 a.m. Friday, April 19th. I lost my mom. It was sudden and thank God peaceful for her, but I am crushed. My parents have been pilars of strength for me thoughout this journey. Taking me to and from every appointment and literally helping to keep my heart from breaking and my life from shattering into a thousand pieces. They completely understood the demands of my DH's job and stepped in anywhere and everywhere necessary so that I could get the proper care. I can still hear my mom telling me with tears streaming down her face while we sat in the lobby of Geisinger Hospital in Danville...."I'm not going to let anything happen to you, your're my little girl."  And my mom had health issues of her own, diabetes, chronic Leukemia and heart disease, but they seemed to be all "in check." 

    I received my final pathology report on Wed April 17 at 1 p.m and the results were miraculous. Every prayer had been answered and I believe my mom finally found some peace and was able to rest. And she did, just 36 hours later. As  I write this, I find myself thinking...."this can not be true....its just the worst dream I've ever had, beyond being diagnosed with BC."  But it's no dream. She is my angel now, and my dad's, my husbands, my niece, whom she adored (her only grandchild). How I wish I could each out and hold her hand, hug her, put my head on her shoulder. My Dad and I do that often. It is comforting to both of us. I will be returning to Danville tmrw for my one month plastics follow up. It will be our first visit back. I know my mom will still be there holding my hand and helping me through with all the love she can send from Heaven. 

    Wasn't sure If I could find the strength to write this post, but I realized that I could not ask for a better support system than this forum. So thank you my sisters for listening and helping me through. I will continue to keep everyone posted on my progress and offer whatever I can to anyone here who is in need.

    Hugs,

    Kimberly

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited May 2013

    Kimberly,

    I am so sorry about the loss of your Mom.

    I am glad she was there for you to guide you through your journey and to live to see at you had your miracle. That was a true blessing. And yes, she will be still holding your hand!

    This journey has taught so many of us that we cannot take things for granted, and I am sure you and your Mom did not.

    God Bless you and your family!

    Pat



  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited May 2013

    Kimberly - sending hugs and love your way.  Your mom is definitely watching over you, and you have TONS of sisters on here to walk with you as well.

    Thank you for sharing your heart with us. The load shared is easier to bear, - at least I have found it to be so.

  • Ukkate
    Ukkate Member Posts: 292
    edited May 2013

    So sorry to hear about your mom :(

  • danawp
    danawp Member Posts: 99
    edited May 2013

    Kimberly,

    I am so sad to hear that you are going through this.  Your mom sounds like she was a wonderful woman.  I am so sorry for your loss.  I am happy she was able to be there with you before your surgery & was able to hear the pathology report after your surgery.  I am sure this most have given her some peace, as you said.  

    I'm glad your pathology was clear, but still so sad about your loss.  Thinking of you and your family. Try to take care of yourself....

  • ldesim
    ldesim Member Posts: 1,333
    edited May 2013

    omg Kimberly, how terrible, sending hugs.  So sorry to hear that.  I am SO glad about your pathology report and even more so that your mom was able to get that great news too.

    Keep us posted as best you are able on how you are doing.

    Lots of love.

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    Kimberly, Such sad news, I am so sorry for your loss. I know she is by your side as you continue this journey, she will always be with you. I hope you are finding strength through the love of your family and continue to recover.



    Thank God for a great path report. Congrats!



    I will keep you and your family in my prayers. Stay strong and we are here when you need us.

  • AmyJax
    AmyJax Member Posts: 43
    edited May 2013

    Kimberly, I am truly sorry to read of the loss of your Mom. I lost my Dad in January and while there is comfort in knowing he had a life well lived and filled with love, I miss his actual presence in my life so much. I hold you in my thoughts and prayers. Amy

  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    Poor Kimberly!  Such a beautiful post.  You love your mom so much.  She sounds like she was a wonderful mama to you.  You two are so lucky to have one another.  Note I do not put this in the past tense :)

    Sending you hugs.  {{{Kimberly}}}

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    AmyJax, keeping you in my thoughts as you deal with the loss of your father. Praying you stay strong. He will always be with you.

  • bella42771
    bella42771 Member Posts: 34
    edited May 2013

    Thank you! Thank you! I'm so lucky to have so much love and support from all of you. I feel very blessed. And I believe my mom is watching over all of us. 

    Strength and Hugs to all

    Kimberly

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    Just got back from the RO. I am at a total loss on what to do. Seems I'm a "special case", he spent 2 hrs with us explaining his decision which is....."you need to make the decision whether to have Rads or not." How do I do that?! Because I started with stage 3c occult, they did chemo first then surgery. The pathology came back with the best news ever, no cancer at all. The dr said it was unheard of, they were thrilled!

    The treatment was not the norm and the end results were so good they can't say I need to have rads or not, there are no prior cases to help guide them. I will still do hormone therapy, so rads don't seem necessary. I just pray I make the right decision.



    Any input is appreciated!

  • keepswimming
    keepswimming Member Posts: 62
    edited May 2013

    Bobogirl~ was wondering how treatment is going. Did you get results from your recent tests? Hoping things are going well.

  • danawp
    danawp Member Posts: 99
    edited May 2013

    Keep swimming - I'm so glad you are getting good news & that your first treatment worked so well. How hard for you, though needing to make a decision without much guidance. I don't have any advice. Just wanted you to know I'm thinking of you & wishing you well, as you continue this journey!

  • ldesim
    ldesim Member Posts: 1,333
    edited May 2013

    Hi Keepswimming,

    That's great news on your pathology... way to go!  I have a great relationship with my MOs, so personally, I would consult with them and perhaps the BS and then just to be on the safe side... a second RO opinion.  I think before you make a final decision, to consult with another medical professional on some level, if only for absolute peace of mind.

    Here's why I say it.. and it has no bearing on your situation, but sometimes an additional set of ears/eyes can be beneficial.  As I was finishing chemo, I consulted with the BS and she was 100% behind a lumpectomy.. no question at all.. I had done great, the test showed things had progressed as they thought.. etc etc.  A few days later, met with one of my MO's and she flipped a noodle! She was 100% against the diagnosis.  She started an email campaign and I was flabergasted.  An email war broke out.. the MO & RO vs. the BS.  BS eventually modifies her diagnosis and now I am having a mastectomy.  Long story short.... my MO was correct.. when I got the pathology, there was microscopic areas beyond the tumor bed, including the nipple, that nobody knew about. My BS (not the original, I went for a 2nd opin and stayed with her) was shocked by that.  Had I gone the path originally laid out, I undoubtedly would have had recurrence from that nipple site at least.

    What I'm saying is, get the opinion of other medical professionals and if they all agree, then that's fantastic!

    Leave no stone unturned :)






  • bobogirl
    bobogirl Member Posts: 2,777
    edited May 2013

    That's such good advice idesim!  Leave no stone unturned.  KSwimming, thanks so much for your concern.  I'm so glad for your extremely excellent news!  My news is far from bad, but it's kind of a drag.  I'm going to have to find another hospital -- this junior samples hospital is not doing a good job.  I know I've told you guys all about it... I'll try not to repeat myself...

    Since the (11 cm) lump they just took out has been called benign (I say that because they once called some other lump benign when in fact it was not), the BS here would call my MX 'prophylactic.'  This is odd, since I've actually had cancer in that breast, and since they've been in the breast three times now.  But anyway.  Instead they're recommending 'close watch,' in which I am checked every six months, but all of you guys know that means you're actually checked every six to eight weeks!  For example, I have just finished that appointment, and then I have an endometrial biopsy (US showed thickening) in June, and then starting over with mammo in August, and before that another clinical breast exam... does that sound like every six months to you?

    So that's the new thing -- the gyn stuff.  I feel like I'm being picked to death.  I'm thinking of taking my whole 'business' over to MD Anderson.  It's only two hours away.  I can tell you this: if and when it comes to that, I will not be having an MX here...

    Hope everyone is well!

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