May 2013 surgeries
Comments
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Thank you ladies for the kind words... Leah you said it perfectly.... it is very comforting to know that others know just what we are going through. Family and friends try to understand but unless you are going through it you never really know. I come to this board and I feel like I can say what is truly on my mind and all of you are here to listen. Thank you all so much!!
Lisa
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Lisa, my prayers are with you. I know you want to get this behind you as I do.
All of you ladies are in my prayers.
Cheri, thank you for your encouraging words.
Cyndy -
Cheri, you made me laugh! I just love reading all these inspiring posts from so many strong women. I've learned SO much from everyone and I am grateful that I found this site. I feel so connected to everyone.
Leah, I love how you said we can link hearts, that is exactly what is happening.
Ann -
SUZANNE Hi! I live in MN also! I went through getting my impants in October. In March I had nipple reconstruction. I would share pics if you are interested. MY ps is the BEST! She is so amazing and has been voted for Patients favorite award. She does a unique nipple reconstruction.
Chrissy -
I just want to let anyone know that is newly going through this...I am here to help you. Last year on April 25th I was diagnosed with BC at age 36 with 3 kids ages 10...16...18....and the month before that in March we had a little baby girl, Karsynn Lily!
I wrote a booklet with as much info jam packed as I could with questions answered, resources, and helpful tips.
This booklet is related if you know you are going to be having a mastectomy. Its called "Life After Mastectomy".
When I came home from having this LIFE changing surgery...I felt lost. Not only is it an emotional rollercoaster....I also felt like I didnt know certain things. Like "how do I do this?" "how is this supposed to feel" "is this normal" "how do i get comfortable"
So I figured most of it out on my own, or through extensive research.
I want to help women any way that i can of the awareness before their mastectomy.
Please if you are interested you can email me your address and i will send a.s.a.p.
They are $10 /free shipping (via paypal)
XOXO
CHRISSY
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Tomorrow will be 4 years for me since BMX. Hang in there ladies. You can get through it.
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OK, I was feeling all super-humanly optimistic and brave for the past 5 weeks and now that I am one week away from my BMX I suddenly feel a real sense of sadness when I look down at my 'girls'. I find myself wanting to apologize to them, thank them for trying to deal with this cancer, and say good bye. And now part of me is worrying that mastectomy alone is going to be enough to get rid of the cancer, even though it's what's recommended. I feel fear about looking less attractive. My DH tells me I'll still be sexy to him w/o breasts. What a sweetheart.
Thanks for listening all. I'm so glad to have this circle of sisters to share our sorrows and worries, hopes and joys. I want to gain strength from our connection.
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Bamboogirl... I know exactly how you feel. My surgery is in two days and I keep looking at my breasts and wonder what I'm going to look like without them. I am sad that my other breast has to go because of my left breast having cancer... but this is a recurrence for me and I know that for my peace of mind I need to do both. It makes me very sad. Another breast cancer survivor said to me that "it's ok to be sad but not for very long because these (curse word) are trying to kill you"!! As crazy as it sounds it made me think of the surgery differently. When I wake up from my surgery Thursday I will begin living my life cancer free. I keep holding onto that thought to help me get through the surgery. When it comes down to it living is the main goal - at whatever cost. So Thursday before I go to surgery I will thank my breasts one last time for serving me so well for so many years and when I wake up I will start living life cancer free!!
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Run4us and Bamboogirl,
We all seem to be having the same feelings. I too have been so upbeat and positive the last 5 weeks and now I'm getting a little nervous. My DH said he was worried about me. Thinks I've been acting a little depressed. You'd think I was parting with a loved one or something. These girls nurtured my three babies. Now, they're trying to kill me. I'm hoping like you, Bamboogirl, that the BMX alone will be all I have to do to get rid of this beast. I'm also worried about not being attractive to my DH, but he also says that he loves me not my boobs. Hope all goes well with you both and I hope we'll be back on here soon bragging about how easy it was and that we're cancer free!! -
Lisa- I hope your flu resolves and that you can proceed as planned. I am praying that you have an easy surgery with speedy recovery.
Denise - thanks for posting your blog. I took some notes and then went shopping to buy some big comfy button down shirts. Decided to buy my own than wear my hubbys. Lots of helpful tips.
Regarding the recliner- I met a woman in my cancer support group who made an excellent point. She recommended renting an electric recliner rather than a manual one that you need arm strength to move up and down. I purchased a pillow wedge and will try that first prior to renting the furniture but know I can get one in a day or so if needed.
Suzanne - thanks for your detailed description of your journey. I appreciate your honest and knowing what may be in store. Wish I could fast forward my life to next year and bypass the roller coaster of this year's journey. But am grateful to have this site as a resource as well as many dear friends and family for support.
Am now just over a week away and really getting nervous and sad. I think about it all the time and feel so funny when people (who don't know) ask how I am. I want to scream - "I'm about to get my boobs chopped off but otherwise I'm fine". Guess that would not be appropriate to say to the checker at the grocery store or the casual neighbor.
One other serious question - for those of you who are trying to work through this process. How long are you planning to take off for your mastectomy? I plan to take off 3 weeks and people react like I am crazy going back so soon. I actually thought I was being generous with myself as some docs said I would only need 2 weeks. I have a desk job but an emotionally draining one (am a clinical SW).
Sending everyone positive thoughts and well wishes.
Barb
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Best wishes to all of you as you prepare for your surgery.
Here are some suggestions from someone who has "been there."
Make sure the caps on your medications are not the child-proof kind. If they are child-proof, loosen them before the surgery.
Also, practice getting in and out of bed without using your arms (try folding them across your chest). You can't use your arms/hands to help you reposition yourself for awhile.
Be sure to stay on top of the pain. Take those pain pills when you start hurting, not when the pain gets bad. Remember to take stool softeners- constipation can be worse than you can imagine.
My prayers will include each of you as your day approaches.
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Thanks Juliaanna, looks like you've been through it all. Glad to have you in our group!
I guess I'm not alone in my feelings. Getting chicken s*it the week before must be common. I mean, really, who would choose to do this?
Chinneymae, yes, let's hope we are all blogging at the end of next week about how it was easier than we anticipated and waiting was the worse thing! That's a great thought to keep in mind.
I'm sending everyone virtual hugs!
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Chineymae bamboogirl run4us. I am sitting here with tears running down my face as I read each of your posts. It brought me right back to the days leading up to my UMX on Dec 18, 2013. You are doing the right thing by acknowledging your fears, sadness, disappointment, etc. now rather than just post op . It is a loss that is real and has a profound effect on you. Take the time to say goodbye,whatever that looks like for you. I spent the days before surgery privately going thru thru the checklist of emotions, and was able to truly be at peace with what came next. DH and I also had a going away party, complete with lots of tears and sadness. ( righty was both of our favorite!) There will of course be many more emotions and feelings post op that you will be confronted with, but having allowed yourself to process on this side will truly help. So glad that you each have found the freedom to express these vulnerable parts of yourself. They are as much a part of you as your breasts are.
My prayers continue for each of you! You can do this !
Leah -
I said I wish I had taken the girls on a farewell tour...flashed them at all my best bars etc. and then had a t-shirt(like a rock band tour) that the tat-ta farwell tour, with location and dates.
All I can say ladies it does get better
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I had my UMX last month April 10th - I went back to work part time 10 days post surgery and then full time 19 days post surgery. Good luck to you all
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Leahv and Ukkate: thank you for your insight. Nice to hear from someone who's been there.
Run4Us: GOOD LUCK TOMORROW !!! I'll be sending positive thoughts your way! Please let us know how you are doing post-surgery.
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Hi Ladies,
I am scheduled for a BMX (Nipple sparing) with TEs on May 6th. My DX was in March but it seems like it has been for ever. The hardest part so far has been agonizing over which surgery to have. I met with my surgeon today and she went over everything that will be happening. Although I'm scared, I am trying to be positive right now and hope and pray that it is not in my lymph nodes. I have lympedema from my hysterectomy surgery for endometriosis so am even more nervous about having it somewhere else.
Thanks for all the good advise about surgery. We will be moving a lazy boy into the bedroom this weekend.
I wanted to wish good luck to all of you,
Sunnyskys (Laurie)
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Leahv and UkKate, thank you for your encouraging words. It means alot to be able to talk to someone who has BTDT and can give us some insight on what to expect.
Run4us, you will be in my prayers and I hope to hear from you in a few days as to how you are doing. Hugs and prayers, Cyndy. -
Leah, what you said was beautiful. I am facing a second mastectomey on May 22 and share the same feelings as so many others. I am typically a positive, upbeat person, but lately I've experienced moments of great sadness. I am giving myself permission to mourn the loss of my breast (I even took a picture of it - crazy as that may sound!)
Hugs & prayers to everyone,
Ann -
Hello ladies :-)
I just finished chemo and have surgery scheduled for May 24 where they will remove my affected breast. Im BRCA 1 so I will also have the other breast removed after we find out what pathology says. Im nervous about having to do this twice wit possible radiation in between. They plan to do reconstruction at my second MSX. -
Okay, here's one for all you veterans, and those of us that are waiting on upcoming surgeries. Does any of you have or had feelings that you are going to die during surgery? That is all that's been on my mind these last few days. I keep thinking that I won't be able to handle being under that long. I can't even sleep for dwelling on it. I've been scared to even mention it for fear that I might jinx myself but I'm about to bust. I have never been a worrier nor a depressive person. Anyone that knows me knows that I've always been a fun loving, playful, and upbeat type person.
AnnBR, I've already planned to take pics of mine. I thought I was the only one. -
My sadness seems to be passing over like a big puffy cloud on a sunny day. It's worth considering that emotions never stay around for long, whether they are positive or negative. If you let yourself feel them, acknowledge them, let them be, they will pass. Everything changes all the time. Especially on this roller coaster ride we're all on.
Chinneymae, your fear is worth acknowledging and I'm so glad you feel you can bring it up here. Just let it be, say hi to it, breath through it and hopefully it will move on as well.
I was going to photograph my girls too, do something artsy like get naked in the forest. Now that others are going to do it (take photos, not nec. get naked in the forest), I'm motivated... this weekend.
Sweetpickle and SunnySkys, welcome, and best of luck to you both on your surgeries!
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Chin- Yep, I have the same fear. I might have two MSX three weeks apart and I worry about that being to much surgery to close together.
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Sweetpickle, I'm glad I'm not the only one. I'm trying hard not to dwell on it. It's a little worse when I lay down at night. My mind just goes 90 miles an hour. It's just so weird how upbeat and positive I was after I was first diagnosed in March and then all of a sudden I start having these crazy thoughts.
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Chinneymae- I have that fear every time I go under general anesthesia. I did talk to my surgeon about it and she reassured me that despite all the bad things that could go wrong that is so highly unlikely that now approaching my third surgery since February (granted second was under IV sedation) I no longer have that fear. The first time I had surgery last year (hysterectomy) I wrote long letters to my husband and daughter just in case I died under anesthesia. I did not write new notes this year for my lumpectomies and do not plan to write notes priot to my BMX next Friday.
I'm sorry your mind is going 90 miles an hour. Sleep is so important in keeping yourself in balance. Have you tried relaxation breathing, soothing music, herbal teas? Be sure to stop reading cancer materials and this discussion board at least an hour before bedtime. Also, there is no shame in asking one of your docs to give you something to help you sleep. Good luck.
Barb
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Barb, I also wrote letters to my family and a few close friends when I had surgery several years ago. I found it to be very therapeutic.
Ann -
Chinneymae- I had the EXACT same fear. My BMX was yesterday. You will NOT die during surgery, I think that is a common worry. I had so many worried about the pain of TE's, the numbness etc... but my biggest concern was that I would die- now that it is overwith, I am so happy I did the surgery and you are going to be fine. Tell those thoughts to go away and immediately think of something positive in your life. You are going to be so relieved once the surgery is over. I am!
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About taking pictures of the "girls". Actually it is a good idea if you plan to have nipples and tattoos. It helps for the size and coloration.
Chantel, wishing you a boring recovery.
Blessings for anyone having surgery tomorrow.
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Hi Ladies... I thought I would check in tonight before my surgery. I have found such comfort and strength reading all of your posts. Thank you all for keeping me in your prayers tomorrow. I'm nervous but know that it is time and I am ready. I promise to come back after and let you know how I am doing.
Tonight I broke up with my bras.... they all went in the garbage.
BREAST IN PEACE!!!
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Run4Us, I will keep you in my prayers!
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