The Hermit Club

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  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Spookiesmom Hi---after lurkdom comes hermitude--so we are here. LOL

  • lpc
    lpc Member Posts: 303
    edited May 2013

    OMG found you guys by chance. I am fellow hermit. My dear husband and kids keep trying to get me out and socializing and I am not feeling social at all! Let me grieve it is still new don't feel like smiling and hearing how strong I am so will get thru it just fine.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Welcome newbies, to "The Hermit Club" thread!Kiss

  • Skittle
    Skittle Member Posts: 400
    edited May 2013

    Spookiesmom, Welcome and thank you!  Never even thought of bleach.  (Am a coward, so will try a tiny spot first.)   Thinking of school pictures--I have been going to school for three days looking like I cut myself shaving!  Have a 3/4 inch gash just below my lower lip.  Sleeping cat went bonkers, reacting to an invisible gremlin of some sort, and at 5 am made a mad dash across my face!  My kids have been kind, and haven't stared too hard.  Frown

    lpc, Good place to be.  No meanies here.

    Thank you,each, for suggestions.  Will try anything to stop the itchies from spreading.  I think the main culprit is the "carrying" properties of doggie fur.  He happily rolls in anything green.  He loves perennials best.  (I think they feel cool to him.)  Irises and daffodils and lilies... 

    Jazzy... sounds good. 

    Camille... hugs.  Hope you had a good day.

    Teka, markat, blondie, all... warm thoughts your way.

  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Ipc,



    Welcome! You have found a safe place with us here. We are all hermits and understand. Please vent however you feel.



    XOXOXO

    Laurie

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Welcome Ipc--we're here. more and more of us. We understand every bit of how u feel--I think it's hard for others cuz they think oh get out, u'll feel better. Ah no I don't think so, it doesn't work like that. There are times we just want our own times cuz we spend alot of time with Drs. and decisions and meds etc. And then top it off with no hair---it's not a fun time--but here u can rant, cry, laugh say whatever u want and know it's fine cuz we all get it.

  • twinkletwinkle
    twinkletwinkle Member Posts: 8
    edited May 2013

    Glad you found us lpc. Welcome! I'm fairly new here too and these fellow hermits are great ladies.  They have helped me so much. 

  • lpc
    lpc Member Posts: 303
    edited May 2013

    No hermitude for me today. Getting ready for first chemo treatment. Oh wouldn't it be nice if I could stay burrowed in bed and receive treatment here!

  • lpc
    lpc Member Posts: 303
    edited May 2013

    No hermitude for me today. Getting ready for first chemo treatment. Oh wouldn't it be nice if I could stay burrowed in bed and receive treatment here!

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Oh u are a newbie, well it'll go fine and let us know when u get home for the day..How often do u go? Good Luck

  • lpc
    lpc Member Posts: 303
    edited May 2013

    Yep I am a newbie...dose dense every two weeks. Glad day is finally here...sad day is finally here.

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Ipc I know so many emotions but reall once it starts u feel like u'r actually doing something for just u. And like we said any questions, concerns or just (((HUGS))) we're here. Everyone on here is so very nice that's why I stay, plus I still like to be alone. hahaha

  • lizlori
    lizlori Member Posts: 148
    edited May 2013

    Hi Skittle,

    Thanks for the reassuring words....I am halfway through the first of the two months of chemo.  The week following has taken a toll on me physically. Emotionally it is difficult dealing with the intense fatigue.  So I try get through it the best I can, although it is hard for me to reach out. I do see a therapist which helps me tons. I have a caring husband who is doing his best to help me.  I go on this site...funny how even writing this is hard. No one knows me and it is safe here...not sure why its hard....It is clear to me that there are some very kind caring people who want to help....

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Lori 1/2 way thru good for u. And yea it is so tiring--it drains u'r whole body. I'm happy u have a Husband that's so good to u--that means so much. Is anything hurting u? I'm sure u'r telling the onc how tired u are I hope--Always tell them everything even if it seems sillycuz they know what's going on. Just rest as much as u can, but if u have enough energy at any time try to take a walk and make sure u drink loads of fluids. I don't like just plain water, so I drink propel, but there are alot of water out there with some vitamins in them and a little flavor so that helps getting them down alot (to me) Please remember we're here and we get it.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Welcome LCR and Spookie! We hope you will feel comfortable here with us.

  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    My thoughts are with you lpc.....may God hold you and keep you at peace through your treatment.

    XOXOXO

    Laurie

  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Blessings to you Lori.

    XOXOXOXO

    Laurie

  • Jinkala
    Jinkala Member Posts: 193
    edited May 2013

    When I was having chemo, during my bad week my main focus was just getting through to the next dose of nausea drugs.  I barely ate and just laid in bed a lot of the time feeling too apathetic to get online or try to read or anything.  I know a lot of women have an easier time of it and I really think a lot of my fatigue/apathy issues were from the nausea drugs and not the chemo itself.  I was told later that TCH (mainly the Taxotere) is one of the rougher ones to get through.

    I made it through all 6 cycles though and the good weeks seemed to feel so much better after the bad weeks.  I was pretty consistent and by the third cycle I knew exactly which day I would once again feel almost normal and could stop taking the nausea drugs.

    I'm still getting the Herceptin but it is cake compared to the chemo.  I feel so much better these days though I still have some foot issues (either neuropathy or hand/foot syndrome).  I've got my diabetes back under good control and am starting to add a little exercise back into my week.  My hair is taking a bit longer to recover though. :P

  • lpc
    lpc Member Posts: 303
    edited May 2013

    Back home. So far so good. Tired with headache but that is probably from lack of sleep. Back to the nest in my bed and hopefully some sleep!



    My sweet 18 yr old son showed up with his head shaved bald. Brought me to tears.



    .

  • chocolatesalad
    chocolatesalad Member Posts: 118
    edited May 2013

    wishing everyone a beautiful 'carpe diem' day--hope to return here, soon. 

    <3

  • Jinkala
    Jinkala Member Posts: 193
    edited May 2013

    I just got a call from my MO's office about the MRI last week - no evidence of reoccurance. :)

    I wasn't overly worried, but it feels good to know for sure.

  • Teka
    Teka Member Posts: 10,052
    edited October 2013

    Excellent news!!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2013

    I do like being a hermit. I like being alone with my fur kids. I resent going to grocery, I have to leave the house!!!!



    When I feel the need to see humans, we go to the dog park, and that solves that



    I prefer to hang here, and on the LE threads. Everybody here gets it, no explanation needed.



    Tomorrow I am doing something way out of character. Some go on vacations or cruises after tx finished. I'm going to a Maltese show in Orlando. I can't wait!!!!

  • camillegal
    camillegal Member Posts: 16,882
    edited May 2013

    Jinkala that's alwys good news.

    IPc just rest and pay attention to how u feel day to day.

    Chocolate that sounds like a great time--Enjoy

  • markat
    markat Member Posts: 909
    edited May 2013

    Hi all love and hugs and welcome to the new faces. My mom has entered Hospice, not sure if I mentioned that before. She absolutely is so much happier. It's hard to believe that they have given her 1 week because she just seems so much happier than at the hospital. They are still taking her to get her brain rads every day, because that's what she wants. I've asked her as kindly as possible that she doesn't have to continue with them if they are making her uncomfortable or tired. Honestly, I think she enjoys the ride to the hospital :) I have tried to tell her that she can quit them, but she isn't ready. Her body will tell her I suppose. It's a beautiful facility and the nurses are wonderful. People bring their pets, children, and the views and gardens beautiful.



    This whole experience has really put life in to a whole new perspective for me. I am definitely not a hermit anymore- by force. I'm trying to be kinder to other people that have really ticked me off the last couple of years. I'm trying... :) My mom was a hermit too, but many of her old friends have shown up. My natural response is to say, where the heck have you been for the last 3 years? But I'm trying to be kind.



    My girls are my biggest worry. I'm so busy that I forget about their sweet innocence.



    Distant hugs and air kisses to itchy skittle :)

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    I am glad you and your Mum have the hospice, i do think they are about the best place to die in although that seems really strange to write, but they support all of you and make it so much more peaceful........



    Your mum could outlive the week, i hate it when doctors say things like that as it risks becoming a self fulfilling prophecy.......



    Take care and hope you take up support for you from the hospice too?

  • markat
    markat Member Posts: 909
    edited May 2013

    Thank you Lily, I agree about the hospice. If I'm ever in this position, I've told DH that I think I want the same thing. She very well could go past the week. I hate that too. She seems so much stronger, but her she is so yellow :( and her kidneys are going from what I've read about the swelling her legs and feet. But mentally, she's totally holding on. I haven't requested any support yet because I've been on over drive trying to make sense of my mom's lovely filing system. It consists of piles scattered throughout her apartment. Right now we are trying to find her car title. I've heard that it is too late for her to appoint me her Power of Attorney. So... I do need to have a heart to heart with the hospice doctor to find out her new timeline.



    Anyway, have you found out about your scan yet?

  • Lily55
    Lily55 Member Posts: 3,534
    edited May 2013

    Xray showed. Nothing they say but i can see lots of bright white spots.....doc now says i may have heart problem too going by symptoms.....i am just so fed up with one health thing after another.........and i should have been low risk for bc according to research



    Today is a year to day i came home without one breast and i am really struggling.....nothing compared to what is on your plate but i just want to feel ok and get some regular sleep.......



    Take care x

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited May 2013

    Markat- my mom passed away in March of 2012, not from cancer, but from a decline from a series of things that began the summer before. She lived a good full life and was 86 when she passed. We had Hospice come in at the end to help with her transition and they are wonderful. You are already seeing that in the facility your mom has moved into. I think Hospice makes both the patient and family feel as comfortable as possible during a  difficult time. I know they will be of great service to your mom and your family. I am really sorry about all you are going through here.

    What I can share with you from my experiences with my mother the last year of her life is that those little rituals (like going to the hospital for the rads treatment), are probably what keeps her going. My feeling here is that it is not the ride to the hospital but maybe the time with you and others that may be taking her there that she is embracing. If you are the one taking her, enjoy those rides, conversations, etc. Those times you spend together will really help you both right now, and you later on.

    And about other people- I have always wondered where people disappear to when things get hard? Whether it is death, a job loss, cancer, etc., not everyone shows up. I have had a change in thinking about this in the past year about this after going through a few things. I have just come to realize not everybody can do these things. Not an excuse, just perhaps the reality of their limitations. I find these days, I am grateful for the people that show up no matter what is going on. People who don't show up I don't even think about anymore. I hope there are kind, compassionate, and caring people that show up for your mom and for you during this time.

    My thought are with you, your mom and family today.

  • LaurieParr
    LaurieParr Member Posts: 270
    edited May 2013

    Markat,

    My heart and prayers are with you and your mom.

    ((((((HUGS)))))))

    XOXOXOXO

    Laurie

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