November 2009-Starting Chemo

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  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2013

    Trying to stay calm...deep breath in, deep breath out.  Thank you Linda.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2013

    So I'm back,  and so is the cancer.  Her plan is to put in a port this Thursday.  I will get Zometa, as well as femara once a month and some other iv drug to build up my bones.  They will take my ovaries out in a few months.  I will also be on a clinical trial, not sure what it is called.  I left all my information in my car and my son has it at work.  I am still waiting on my ct scan to make sure it has not gone anywhere else.  If it has then it will be chemo for me.  So much info, not enough brain power today.

    HOw scary is the port process?  I have to say it freaks me out.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Oh Michele - the F word just came out of my mouth. Sweetie, I'm so sorry. A port is no big deal, don't fret about it, it will make everything easier. It's quite a quick procedure and you'll be asleep.

    When you start the Zometa, make them deliver it slowly - I had a nasty reaction the first time - bad chest pain. The other treatments were much easier when they slowed it down. I had 4 of them spaced out over 2 years to protect my bones from the Arimidex at the time.

    Big big hugs

    Sue

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited April 2013

    Michele,

    I'm soooo sorry!!!! As Sue said though the port isn't to bad a process at all. I had one in and yeah I freaked a little but my freaking was for nothing. simple process and it was so much easier when it was time for infusions. We will still always be here for you and know we are all praying to the big guy. 

    Love you sister!!!! Brenda

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Brenda - good to hear from you. Wish it was in better circumstances.

    M - I've been worrying about you all day - hang in there, we're here for you.

    Sue

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited April 2013

    Just wanted to pop in Michele and see how you are doing! Have you had your port inserted and received your Zometa? I've taken that for years. The first treatment kicks your butt, but they get easier after a while.

    Did you get the results of the CT Scan?

    Not too sure about Femara. My mom takes it and she says it's a joint killer. I take Tamoxifen. I'm having a complete hysterectomy with ovaries, uterus, cervix, and tubes removed the end of May. Good luck with yours!

    Suzie...miss you! Remind me again why you are not on FB?

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Hi Linda - send me your FB ID and I'll friend you. I really hate FB but it is one way to keep up with what my kids are up to.

    Been worrying about you Michele - hope you are coping.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2013

    I am doing good.  I saw the both my onc yesterday.  In fact I say my med onc twice.  I also signed up to be on a Clinical trial.  I start next week, most likely on Friday. I had my first shot of Zoladex to shut down the ovaries.  It is one big mother shot, but I was brave.  I had a ECg and a complete blood work up.  They will book me for another baseline CT scan next week, just before my first treatment.  I will also get the same day Pamidranate to build my bones.  I feel like my head is spinning in five different directions.  The kids took it well, but I have yet to tell my mother.  I know she will take it hard.

    I am on facebook so look me up  Michele Pantin Lebouthillier.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Thaks Michele - hope the trial works!!!

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited April 2013

    Michele,

    So, your back on that roll a coaster ride, not knowing if your going up down or in circles.

    Your in my thoughts and prayers, know that we are here for you. Did they exlain what the clinical trial was like?  - Whatever the trial is I pray for success!!!!

    (((((HUGS))))) 

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited April 2013

    I am Linda Randolph-Justice. Can't wait to see you!! I swear I want to win the lottery so I can get us all together! Love to all!!

    Michele, the shots just downright suck! They are no fun! But you only get it every four months, correct? Focus on that. Plus, if they do you oopherectomy soon, you won't need another one :)

    Always look to the positive :)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Friend equest on it's way Linda, although I don't promise either of you that I go there much :)

  • doronet
    doronet Member Posts: 342
    edited April 2013

    Michele!!!!  No no no!  This, obviously, is the first time I've checked this site in a long time.  I saw that Sue had friended Linda, was very excited to see her on fb (Sue, I'm on fb a lot to read postings but seldomly post anything myself), and when I checked this site for the correct spelling of something, your posting caught my eye.  I got sick to my stomach when I read the thread and have read it and reread it in disbelief.  .  As for the port, which you should be getting today, you will see that it is much better than IV's.  Just make sure you slather numbing cream or the numbing spray on it before each use of it.  Keep us posted. Prayers sent up for you and will continue to do send.  Nette

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited April 2013

    Oh Michele, I am so upset for you. Beyond words. I have not been on here in awhile it gives me terrible anxiety. I know somehow you will be ok. You are a tough lady and will fight this. Look at Linda she inspires me everyday. I am a big believer in the power of prayer and you will be in mine daily.



    I had a hysterectomy in March and a lot of tests. So far so good. Thinking the full blown menopause is throwing my body for a loop.



    Michele we are all here for you. Please keep us posted. Xo

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Good to see you girls!!!

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited April 2013

    Ya'll are just being too quiet! Cool I hope everyone is enjoying their weather! Even Sue...LOL

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Hi Linda - the weather is finally starting to change a bit - cooler nights - looking forward to winter. We're going to see our daughter this weekend for the baby's first birthday - it's much cooler down there - can't wait.

    Hope you are well and happy.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2013

    Hey girls just popping in to say hi.  I seem to be doing well.  First treatment was Friday and it was a breeze.  I had some big time aches on Saturday and Sunday for about an hour each time...Then boom the pain was gone...Strange, but I wont complain

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    Hi Michele - glad it wasn't too bad - how were the CT results? What treatments are you having?

    Hope you get to NED quickly!!!

    Sue

  • micheleboots
    micheleboots Member Posts: 1,993
    edited April 2013

    Ct from three weeks ago was good.  I am getting Pamidronate, a bone building treatment..I have changed from Tamoxefin to Femera to shrink the tumor, I hope. 

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited April 2013

    I'm glad the CT didn't show anything else - hopefully the Femara will do the trick.

    (((((((((((((((((HUGS)))))))))))))))

  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited April 2013

    Michele,

    glad your side effects were not too bad with the first treatment !  

  • BrendaSharon
    BrendaSharon Member Posts: 506
    edited April 2013

    So happy for you too have minimul side effects!!! (((((HUGS)))))

  • doronet
    doronet Member Posts: 342
    edited May 2013

    Hi Michele!  I've been checking this site for days now, hoping to see a post from you.  Sooooooooooo glad to read that you are doing well and that the side effects haven't been horribly bad. Did you have any trouble with the port?  Doesn't it beat any IV's? (assuming the IV is what you did the last time.)

    You are in my thougths daily!  Nette  :)

  • micheleboots
    micheleboots Member Posts: 1,993
    edited May 2013

    Nette, I had a PICC last time.  I do like the port better.  Doing well, thanks for asking.

  • Melinda41
    Melinda41 Member Posts: 672
    edited May 2013

    Michele, I haven't been here in forever so I just learned your news, I am so sorry to hear that you are dealing with this crap again. I hope that the treatment for the bones has minimal suckiness.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited May 2013

    Melinda, I don't get sick..I get a bit achey a day or two after my pamidronate, but that's about it...

  • Cafelovr
    Cafelovr Member Posts: 1,534
    edited May 2013

    Just thought I'd pop in and check the threads! Thinking of you all. You are so cherished in my heart!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited May 2013

    Hi Linda - I still visit everyday - hard habit to break :)

    ((((((((((((HUGS))))))))))) to all of you.

  • micheleboots
    micheleboots Member Posts: 1,993
    edited May 2013

    I check every day as well, but don't often have the time to post...I try, though.

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