what should i expect?

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jen_randall
jen_randall Member Posts: 10

Just found out that I have breast cancer, going in to see the Dr. on Wed. for all the test results, I do not know what stage or what kind yet, it is a mass, was just wondering what should i expect them to do on this visit, just wish it was over with.

Comments

  • PeggySull
    PeggySull Member Posts: 686
    edited April 2013

    One thing I wish I had done was ask more questions. For example, if you are to get treatment, why and why not are the four major modes of treatment--chemo, surgery (including type of surgery), radiation and hormonal treatment being recommended at this point?



    Why, if you are getting more than one treatment, are the treatments sequenced in this way?.



    Are there other treatment decisions I will have to make at other points in my treatment plan?



    How and how often will you communicate with other members of my treatment team?



    Do you recommend I get a second opinion? ( I think the answer to this question should be either neutral or "yes." Any oncologist worth their salt will not consider this rude or consider themselves the last word on cancer treatment).



    How urgent is it that I get treatment underway immediately or do I have time to mull over the answers to these and other questions I may have?



    None of these questions are in any particular order.



    Be sure to take someone you find helpful in a crisis (or has some other quality that is helpful to you. It's hard to hear things correctly or even ask questions assertively when you are anxious (and how could anyone not be anxious at this first appointment)?



    It's hard.



    There are many other questions, I'm sure, but these are the ones that come to mind at this point in my treatment looking back to my first appointment.



    Peggy

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2013

    I would also encourage you to get copies of all reports and paperwork concerning your diagnosis and build a binder.  I have referred back to mine many times over the course of treatment for informational and insurance purposes.  If you don't have someone to go with you to your appointment it can be helpful to take a handheld recorder of some type to record the appointment.  It gives you something to refer back to later, you can listen again to the questions/answers - sometimes that can provide some clarity if there is something you missed or forgot.  Good luck!

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2013

    Hi, jen ~ I'm so sorry about your diagnosis.  Are you seeing your PCP today?  If so, he/she will now refer you to a breast surgeon.    

    As Peggy said above, be sure to take someone with you to all of your appts going forward.  Talking about breast cancer and realizing it's us they're talking about sends most of us into an altered state of mind where you truly won't hear or comprehend everything that's being said.  It's totally normal, and having someone with you will be a big help in later recalling what you were told.

    After you get more information, please come back and share with us whatever you don't understand or have questions about, and we can probably give you some additional input.   (((Hugs))), and I'll be thinking about you today.    Deanna

  • edwards750
    edwards750 Member Posts: 3,761
    edited April 2013

    Hi Jen...we all feel your anxiety. We have the monopoly on the fear factor. This is a great forum to bring your concerns and questions. It was and still is my lifeline. I like the questions Peggy posed and totally agree with SpecialK...take someone with you if you can. You will be inundated with information. My sister in law advised me to do that and I am so glad I did. Its hard to focus on anything but your DX so to expect to ingest more information if expecting way too much. My husband asked questions I didnt think of. All I wanted to know was whats the worst it could be and the best I can hope for. I did do my homework before I went...looking up definitions, etc. but that can be problemmatical because we all know the internet isnt, and shouldnt be, the go to place for information. Try and relax - hard to do and realize whatever happens it isnt the death sentence anymore. Keep us posted and we will keep you in our prayers. diane

  • jen_randall
    jen_randall Member Posts: 10
    edited April 2013

    Ok, so had my appt. the surgeon said it is IDC..they want to do surgery on thursday, taking the whole breast, i

    still do not know the stage, or the size of the tumor, it feels big to me. Everything is happening so fast...I dont know if i am doing the right thing, I feel confused, but I want it out, and my life back. BTW...we have 3 kids, ages 8, 7, and 3...I am 43 yrs old. I breast fed all three of my children, and there is noone in my family who has ever had breast cancer.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2013

    jen - they wont stage you, or give you a definitive pathology report, until after the surgery.  Are you considering reconstruction?  Have you had a plastic surgery consult yet? 

  • jen_randall
    jen_randall Member Posts: 10
    edited April 2013

    I havent even had time to think about it special k...havent talked to anyone about it.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2013

    Most of us who have chosen non-flap reconstruction have had tissue expanders placed during the mastectomy surgery if implant reconstruction is what was chosen.  This type of surgery is done with a breast surgeon and a plastic surgeon simultaneously.  If you are considering an autologous reconstruction (one of several types of flap type of reconstructive surgery using your own tissue) this can be done later, and sometimes an expander is placed at the time of mastectomy, but you may want to discuss this prior to your first surgery.  This question is not meant as a criticism but may I ask why you are moving to surgery so quickly without any consideration about whether or not you may want reconstruction now or later?  There are future surgical considerations that really should be discussed, and surgical decisions that may need to be made prior to this first surgery, if you do wish to have reconstruction.

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2013

    jen, do you have a copy of the pathology report from your biopsy?  That will give you some initial facts, such as the estimated size of your lesion, as well as the type of bc and some hormonal stats.  If you have a copy of that, we might be able to comment a bit more on your situation.  Have you had an MRI yet?  That would also help you understand what you are dealing with.

    It's human nature once we find out we have bc to want it out ASAP.  But sometimes decisions made too quickly can't be undone.  So taking a bit more time to understand immediate vs. delayed reconstruction, as SpecialK pointed out, is really important.  Sometimes doctors don't give you some options because they don't offer them, so it's not in their best interest to tell you about surgeries they don't do.   For that reason, sometimes a second opinion -- especially if you're at a local hospital or in a rural area -- can be worth the additional time (and you can usually get one very quickly with a dx), so that you have a better understanding of your options and a bit of time to weigh what you really want to do.  Sometimes being rushed into surgery is absolutely necessary, but many times it's faster than necessary.  

    Let us know if we can help you better understand your pathology or reconstruction options.     Deanna

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2013

    jen, there are several sets of questions at the main Breastcancer.org site that can help you know what to ask to get the information you'll need:


  • jen_randall
    jen_randall Member Posts: 10
    edited April 2013

    Thank u all so much...I have learned alot on this web site, it has been very helpful to me, i dont know why they  want to rush surgery so fast, i dont have the biopsy report, only what the dr.has told me...I think i am going to discuss all this tomorrow with my surgeon, and maybe get a second opinion, i feel like i was in a state of shock or something, i didnt ask anything, only what he suggested that i do, and kind of just went with that. Thanks again!!

  • Cuetang
    Cuetang Member Posts: 575
    edited April 2013

    Have you had any other tests besides the biopsy? Many of us had ultrasounds or pre-op MRIs that helped provide a bigger picture as to what we were dealing with. That also helped me prepare for my meetings with the surgeon and what type of questions to ask. My breast surgeon made me see a plastic surgeon so I would know all my reconstruction options (that was even before I had decided on a bilateral mastectomy). While I agree that it is great they want to take it out quickly, it might be helpful to see if you can schedule a second opinion if possible. If your doctor is able to tell you it's IDC I'd push for a copy of whatever report at least that they are getting this information from.

  • jen_randall
    jen_randall Member Posts: 10
    edited May 2013

    I have only had the biopsy and i did have an ultra sound, so far that is all other than blood work.

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