Yale/Army of Woman Hormone Study KRAS Varient

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jill47
jill47 Member Posts: 351
edited June 2014 in Clinical Trials, Research News, Podcasts, and Study Results
Yale/Army of Woman Hormone Study KRAS Varient
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  • jill47
    jill47 Member Posts: 351
    edited April 2013

    Yale/Army of Women are doing a study to help understand how hormones might impact a DNA marker KRAS variant (found in saliva).  I qualify for the study and received my questionnaire; they want a copy of my pathology report and a saliva sample (a kit will be sent to me). Has anyone participated in a study where you actually submit a body sample (blood, saliva etc.).  How safe/secure doing something like this? Thanks.

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  • curveball
    curveball Member Posts: 3,040
    edited April 2013

    @jill47, I signed up for a study of Oncotype testing in node-positive BC, and for that I believe part of my tumor was sent for the Oncotype test. As I recall, the "informed consent" document for that study had information about what steps would be taken to protect the privacy of study participants. Hope that helps.

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  • luvmygoats
    luvmygoats Member Posts: 2,942
    edited April 2013

    Jill - 20+ years ago I sent blood samples to the Nurses' Health Study from Harvard.  When I completed my recent survey with my new DX I mentioned it to the surveyor.  She said they would probably send for my records and that to her knowledge some studies of those samples are still ongoing.  Nice to think something I did so long ago and at the time actually took a bit on my part to accomplish will maybe help someone else in the longrun.  I had no problem consenting but of course that was b4 information became so widely/easily distributed.  I still don't think I would have any problem with it and wouldn't be surprised if they ask for something else from me.

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  • jill47
    jill47 Member Posts: 351
    edited April 2013

    Thanks Ladies, I'm going to go ahead and participate.  I was on birth control pills for 20 years straight, my personal belief is these synthetic hormones contributed if not gave me bc and one of the questions they ask is about birth control use. I'm happy to pass whatever I have to offer, even spit Smile if it advances bc prevention. 

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  • ballet12
    ballet12 Member Posts: 981
    edited April 2013

    I am also participating in the KRAS variant study.  I emailed the principal investigator to get more information, and also looked on the website for testing of the KRAS variant.  I don't know if they have patented their testing, but they are charging a lot to the public (not those participating in this study), to determine if they carry this variant.  It's kind of like a small-scale Myriad Labs (the group who has sole propriety to test for brca genes).

    Anyway, anyone with any stage of cancer from DCIS to Stage iV would qualify for the study.  Pretty open-ended.

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