Summer 2013 Rads
Comments
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Ladies...you all ROCK...my surgery was last week and my first appt with RO is tomorrow...I really have no clue yet on my treatment plan as MO is not until next week. My surgeon said I will have rads but thats all I know for now..they also mentioned Herceptin since I am HER2+....so happy to find all of you
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Ladies...you all ROCK...my surgery was last week and my first appt with RO is tomorrow...I really have no clue yet on my treatment plan as MO is not until next week. My surgeon said I will have rads but thats all I know for now..they also mentioned Herceptin since I am HER2+....so happy to find all of you
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met with my RO today and he was so nice.. I have 2 appointments with him to be measured and ct scanned before the actual treatment begins - that'll be in about 2-3 weeks.. they did give me a skin care brochure for when treatment starts and said can't wear deodorant when treatment starts.
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You can't wear deodorant at all? Or just when you go for treatment. I'm going to smell awful in the summer!
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I think they meant on treatment days - but weekends will be fine.. I hope I misunderstood or its going to be tough going on hot days
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Hi DanaM, how are you doing with your recovery? I had mine 4/9 and feeling great now!
IamNancy, looks like we will be starting around the same time... they have me down for 5/13 and I'll be going for 6 weeks.. ugh. I go in tomorrow for my first ever tattoo and imaging.
Robin3, I read somewhere no deoderant, but I'll ask when I go in tomorrow. There are threads on here that give options that give alternatives.
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My RO told me the same thing but said because of my treatment plan I could wear some deodorant on the high side of pit. Got an appt for my simulation and short meeting with RO on the 9th.
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Idesim- they told me to use regular cornstarch.. how is that gonna work? how can I go to work in an office without dedorant?? LOL what tatoo? they told me they'd be marking me with a magic marker pen and I have to keep from washing it off.. although they will touch it up now and again.
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Welcome DanaM, sorry you have to be here. But you will find great info and sweet ladies on these boards. Hope your surgery recovery is going well. You're going straight to rads with no chemo? Lucky you
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IamNancy.. of course I forgot to ask... sorry!!! Yes, tattoo.. they gave me 5 of them.. and they HURT! Little dots which I assume is what they use to allign you. How the heck are you supposed to not wash off the marker, especially after multple weeks? You're worried about deodorant when it sounds like you can't wash! j/k
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Hi everyone. I'll be starting rads probably the second week of June (would've started it a couple of weeks earlier, but I have to go out of town for a job the first week of June, so that's pushing it back.) I haven't even begun to explore this part of the journey yet, at least not much beyond the basics, but will be meeting my RO in about a week to get things started so I'm ready-to-go in June as soon as I get back.
One caveat: I haven't gotten my oncotype score back yet, so might end up having chemo first, which will push it back till later but thinking positively. Hopefully I'll have a low score, so I can forego chemo and get started soon.
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Hey Summer Gals!
For you, and all who join you throughout the season, here's some helpful info on the main Breastcancer.org site on Radiation Therapy, including types of radiation therapy, what to expect, and how to manage side effects. You may also find it helpful to read the Spring 2013 Radiation thread, for more tips and tricks from others who've been there!
Hope this helps!
--Your Mods
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If they tell u that you can't wear deodorant, tree are tricks to get around it.
One thing is that there are individual packs of thing like hand wipes but more like baby wipes. Works well.
My sister went through it six years go, so she gives me the tips. Pls she is a nurse.
I will share more when it is it two am.
HAng in there... Also, the marks thy ske will not come off from day I day, generally tattoos... Just dots. Some sharpie marker type stuff yet they keep marking in same place.
You can do it. Hang in there!!?,?,
Come back!
Peace,
Colleen -
Hi Nyama, I am hoping you get the news you want and can avoid chemo. I'll let you know how rads goes
Thanks you for the link Mods!
Colleen, thank you and thanks to your sister!! I was wondering if that would work... I didn't like the sound of the baking soda paste. Any hints are always welcome.
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Idesim - I had to go today for simulation.. its where they measure you and do the CTscan - and tatoo you - I didn't know about the tatoos..its just 3 black dots - I think its 3 -may be 5.. 1 really hurt but the others didn't hurt at all..I was a little panicked at the CTScan because I am a little claustropbic but the nurse was so sweet and encouraging I was able to do it.. I go back in 2 weeks and after that appointment, I will begin treatment.
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There is a deodorant that my rads nurse says I can use- the brand is Tom's of Maine. But she says to bring it in for me to check because there is a variety of Tom's that has aluminum in it. Aluminum isa metal- hence the problem. Check with your rads group to see if Tom's in OK with them. It's not a great deodorant and doesn't seem to control wetness very well, but its something!
I start 7 weeks of rads on May 13. -
Nancy the day you start rads is how many days/weeks past your last chemo? Thanks, Melody
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Iamnancy.. I was warned about the tattoos, so no surprise for me on that... but I've been surprised that most seem to get marker and no tattoo.... .. and yeah the CTscan is a bit daunting. Good on you for being claustrophobic and being able to get through it.. I would imagine that to be difficult.
TMM60, you start the day before me.. good luck... thanks for Tom's tip, I'll have to ask.. it's funny, but for me since chemo I don't seem to have odor there. I read somewhere limes work and you could use it for a week.. I'll have to research that on further.
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melody - it will actually be 4 weeks from chemo to rads however, I will have been to the RO 3 times before the actual treatments - with all the stuff they do to set up the radiation...and my first appointment with the RO was 1 week after chemo..
I wonder if I get the rads first thing in the morning can I put on deodrant after the treatment ..
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I talked to people and they said the Tom's of Maine stuff is ok'd for deodorant. But if you google it, they did a study up in canada and says that the deodorant doesn't make a difference. They originally said no because it makes your skin burn more because of the aluminum. I'm seeing my oncologist tomorrow and will start grilling him on this. Cause as of today I have 3 weeks left of chemo. Two more treatments. Next week and two weeks later! I've been waiting for May! May means the end of chemo!!! :-)
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Funny, I've been using Tom's of Maine for as long as I can remember. I had heard the aluminum in normal deoderant caused breast cancer! Irony.....
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How is Tom's of Maine? Does it control wetness and odor? I'm a fitness instructor and would rather not smell like a swamp. :-)
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It's good for odor, not wetness. It's a deoderant, not anti-perspirant. I think the aluminum is what controls wetness. I'm ok with sweating so long as I don't stink
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Hi Everyone,
I have my first meeting with my RO tomorrow. I had a lumpectomy 4/8. The found grade 2 & 3 DCIS, and unfortunately I was left with a dirty margin that we can't get clean so off to radiation I go unless the plan changes.
Right after they found the DCIS, I also found a lump in my upper thigh. My PCP thought it was an enlarged lymph node or maybe an infection. We waited a few weeks for it to go down on its own. It didn't. PCP was going to start a course of antibiotics, but I end up with a post surgical infection after the lumpectomy so my BS beat her to the antibiotics. Lump is still there. Had an uiltrasound, and it is not a lymph node but an area of fluid. Now PCP has referred me to a general surgeon and radiation can't start until we find out what is in my leg. I had asked my PCP if this was related to the BC or would impact radiation, instead of an answer I got a surgeon referral. Now my RO wants to know what it is before we proceed.
I think I got spoiled going to the breast center I go to. They answer all my questions and spend as much time as I need them to. The lack of communication from my PCPs office is aggravating. I ask a question and instead of an answer get a referral. URGH!!!!!
So for now the plan is to start radiation this summer, unless whatever is in my leg is nasty and changes the diagnosis.
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Good luck Heart. It can be very frustrating not to have a real team approach to the whole thing. I wish all of the doctors would check their egos and just work together with a common goal.....getting the patient better!
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Heart2930, I have the same problem with my PCP.. my cancer care team are fabulous, but the PCP's office.. a nightmare. I hope you get to the bottom of it and can proceed with treatment soon!
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I am assuming I will start rads sometime in late May or early June. Last chemo is May 8. Have not yet met with RO, so I am appreciating the info here to get me ready.
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I meet with the RO this Thurs. waiting to find out if rads are a definite, or if we can wait until we get the pathology back from surgery.
But, since I'm getting chemo first, not sure they'll find much. -
Hi to all of you wonderful ladies!
I am scheduled for my simulation on Monday, May 6, and they tell me that radiation will start a week or two later, so I am also a summer 2013 rads lady.
I have made it through 8 months of treatments so far and I am not looking forward to more(!!!), but I try to tell myself that each day that I move forward is one day closer to getting beyond this beast. I am done with chemo but the Herceptin makes my joints and muscles ache. Arghhh!!!
Like some of you on this thread, I also had some cording issues after my surgery. I have had 5 weeks of physical therapy. My mobility is still limited but the hope is that I can now get my arm up far enough for the simulation and radiation.
I bought some emu oil and miaderm after reading posts on an earlier radiation board. I think that there are many products that can help keep our skin in better condition--my RO nurse recommended I start using the products before beginning radiation to give my skin a healthy boost before beginning treatment, and then use products three times/day during radiation.
I am so happy to find a wonderful support group but so sad that any of us have to be here!
Hugs to all,
Linda from AZ -
Hi Idesim....2 weeks post surgery BMX..feeling not to bad...went out for first time tonight for dinner with my hubby and friends....very tired after but still awake...go figure!
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