Help! Any Nutrition Experts?

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LindaJD
LindaJD Member Posts: 169
edited June 2014 in Life After Breast Cancer

Hi.  My surgery was on April 3, 2013.  I had a Lumpectomy (left) & Sentinel Node Biopsy (left).  Path result were great; 0/3 nodes Negative & had clear margins. 

I will be starting radiation within the next few weeks & need to find a way to gain weight & want to increase my energy level.  The problem is I have several conditions that prevent me from eating normal, everyday foods.  I am Lactose Intolerant, have severe IBS, have bile gastritis, & several food allergies, which include, corn, eggs, nuts, chocolate, tomatoes, citrus, all fruits, dairy, & no sugar!  Also have to limit red meat.  I weigh only 90 lbs.

People on other forums here suggested that I start this new thread in the hopes that I will receive some suggestions as to what I could eat.  (or anyone else that finds themselves in a similar situation). 

Any advice or suggestions would be greatly appreciated!  Thanks.

Linda

Comments

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2013

    Hi, Linda ~ I'm not a nutrition expert, and it certainly sounds like you have some unique and complex diet challenges.  What I can tell you from personal experience is that eliminating wheat, which I did after a naturopathic doctor ordered something called an IgG Food Antibody Assessment test that showed I was highly sensitive to it (borderline celiac), made a huge difference in my IBS symptoms.  I've also eliminated most dairy because there's plenty of research showing that it's not good for us; but I do stick with lactose-free non-fat milk and Greek yogurt if I do have some, and that has also helped me a lot.  I would think that a highly qualified naturopathic doctor could help you with diet and menus, and perhaps even RX some natural supplements to ease some of your food sensitivities, as well as maybe a good, plant-based protein powder for to help with weight gain. 

    Have you seen a naturopathic doctor?  Mine suggested this association as one way to find other NDs who are highly qualified in oncology:  http://www.oncanp.org/

    Good luck!  

  • SpecialK
    SpecialK Member Posts: 16,486
    edited April 2013

    dlb - I can't get your link to work.

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2013

    Special K, I just re-did the link.  Otherwise, you can Google Oncology Association of Naturopathic Physicians.  It's an organization my ND belongs to, and when I once asked her if she could recommend an equally qualified ND in another area for someone here, she gave me this assn. as a resource.      Deanna

  • Megadotz
    Megadotz Member Posts: 302
    edited April 2013

    You might want to consult an oncology nutritionist.   When I was going through radiation, the nutritionist came in once a week to work patients -- it was part of the hospital's cancer program and there was no fee involved for talking to her.

    I had lost weight between chemo and radiatin and she helped me set up a program to stabilize my weight and increase energy.

    If you have access to a nurse navigatior, she might might point you in the right direction to get resources.

  • indenial
    indenial Member Posts: 504
    edited April 2013

    I don't know a lot about some of your conditions and how they might further limit your diet but can respond a bit to the allergies/specific food restrictions...

    Can you eat avocado? If so, that's a good source of healthy fats & is calorie-dense. You can put slices or guacamole on chicken, in a veggie wrap, on a sandwich, etc. There are also some recipes online for avocado pudding, which you could make with carob powder instead of cocoa powder.

    Quinoa is a good protein source and is also high in amino acids. Use in place of rice in recipes. 

    Does coconut count as a "fruit"? If you can tolerate it, it's very high in calories too, and there are tons of coconut-based dairy substitutes available now (coconut milk, yogurt, ice cream, etc.)

    I see you are ER+ so not sure you want to rely heavily on soy but it might be something to consider short-term while you get your weight up (soy milk, tofu, soy "meat" subsitutes, soy margarine).

    Chicken, turkey, pork, fish... along with starches like potatoes, wheat bread or pasta, brown rice... 

    You might want to google "paleo recipes"... the Paleo diet is based on the cavemen diet and is free of grains, legumes, dairy, sugar, etc... might give you some meal ideas that would work. Vegan recipes might be helpful too. 

    Can you eat wheat? If so, baked goods might be good snacks. You can use flax meal in place of eggs (there is also a tapioca-based egg replacer you can buy, NRG) and non-dairy milk. Savory recipes might work better if you can't have sugar, but if natural sugars are OK then try using honey, molasses, etc.

    Seeds and seed butters are another high-protein, high-calorie option -- sunflower seed butter is a favorite here. Tahini is good too if you add something to flavor it.

    Hope that gives you a few ideas, I'm happy to brainstorm more if it's helpful! 

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Deanna,  Thanks for your input!  I've had my Gastro Dr. test me for gluten & it was negative.  That being said, I've tried to limit my wheat intake & did not notice much of a difference w/ my symptoms.  I don't consume ANY dairy except I do buy Lactaid milk to use in my tea.  I've never considered going to a Naturopathic Dr; I will check out the link you provided.  As far as the plant based protein powder, I'm allergic to Aloe & Ivy so I stay away from plants! 

    Linda

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Megadotz,

    Good idea about the nurse navigator.  I have an appt next Wednesday @ a Pluta Cancer center & I will definitely ask about nutritionist.  Thanks. 

    Linda

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Indenial,  thanks for all the info.  I've never had avocado & others on here have mentioned eating it, so I will give it a try.  I do eat a lot of chicken, turkey, pork, potatoes, pasta & rice.  I use lactose free margarine & Lactaid milk.  Yes, I can eat wheat but no sugar, so baked goods are out!  I know seeds are high protein but can't digest them.  I will Google paleo & vegan recipes & see what turns up. 

    Thanks for some new options & anything else you might think of!

    Linda

  • indenial
    indenial Member Posts: 504
    edited April 2013

    If you can have wheat then I'm thinking something like calzones would be good to try... take bread dough & spread on whatever you like (mustard, or pesto, or whatever condiment) and layer deli meat, maybe some lactose-free cheese or your favorite veggie, and roll it up & bake. 

    Something else you can try is seaweed, it's packed with nutrients and you might tolerate it better than some other things? It's good in salad or you can get the flat dried pieces and roll things up in them (rice, avocados, carrots, cucumber, fish). One of my favorite dishes is seaweed with steamed veggies -- sweet potatoes, beets, potatoes, carrots, etc. and rehydrated seaweed -- top with garlic & fresh grated ginger, drizzle with seasame oil & olive oil, serve over rice.

    Ohhh speaking of olives, that's another source of healthy fats. Snack on them alone or you can also make or buy olive tapenades/spreads to put on crackers or use it in place of pasta sauce.

    Try different kinds of flours (use in pancakes or bread or whatever you would use wheat flour in) -- some are much higher in protein & nutrients. Examples: buckwheat flour, amaranth, chickpea flour, quinoa flour, teff. I know you said no sugar = no baked goods but there are sugar-free baked goods like biscuits, tortillas, rolls, herbed flatbreads, dumplings...

    Meatloaf (use ground turkey to avoid red meat)... you can also make mini meatloafs in a muffin tin so you can have it as a snack or freeze individual portions. 

    I hate to suggest deep-frying because it has such a bad rap but maybe it would help you get your weight up? You could do french fries, sweet potato fries, croquettes, clam cakes, You might also want to add oils (olive oil or some other healthy oil) and/or maragarine to everything you eat to add the extra calories. Another way to sneak in extra calories without feeling like you're eating a ton is smoothies or meal replacement shakes... might be hard to find a recipe that will work with your restrictions but also worth it to have a go-to drink. One to start with would be some kind of dairy-free milk (coconut milk, rice milk, hemp milk, lactose-free dairy milk, whatever) and blend with oats and flavor however you like (i.e. vanilla extract, carob powder, cinnamon, or coffee). You can also blend in avocados, oils, tofu, protein powder, etc.

  • dlb823
    dlb823 Member Posts: 9,430
    edited April 2013

    Linda, I just saw a post on FB that made me think of you.  I don't know if you can access it from this link, but if you can't, go to FB and search for the Block Center for Integrative Cancer Treatment.  They're probably the top integrative place in the US for cancer care (I've heard they're #2 in the world, after a place in Germany), so I would think they would be an excellent resource for nutrition information for you, whether you follow their public information (such as FB or Dr. Block's book, Life Over Cancer), or reach out to them for more personalized help.  Here's the link:  https://www.facebook.com/BlockMD?hc_location=stream          Deanna

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Thanks Deanna, I'll definitely check out that website!

    (Indenial)  I do eat a LOT of sandwiches, w/ bread or flour tacos shells, & I'm always eating potato chips!  I have never tasted seaweed; I will add it to my list of "new foods" to try.  I love olives but they don't agree w/me.  Same as w/ pancakes, waffles, & even the sugar free bakes goods; I can't digest them.  Could be the eggs or other ingredients in them. 

    Great idea about the mini meatloaf (w/ ground turkey)!  I do eat french fries & suprisingly I can tolerate them even though they are loaded w/grease.  I usually drain them on paper towels first.

    I use my lactose free margarine to cook w/ & to put on foods but I don't think it offers too many calories, 

    I don't own a blender anymore; I've checked Ensure & Boost but they either have the milk &/or sugar.  I was in Target the other day & looked for Glucerna but they don't carry it.  Not sure if it is made w/ milk. 

    I appreciate all of your "detective" work!  It's ironic but I use to work in Food Services! (15 years!). 

    Homemade chicken soup for dinner tonight!

    Linda

  • BikerLee
    BikerLee Member Posts: 355
    edited April 2013

    Hmmm - something that jumped to mind. Can you eat seeds? Sunflower seeds? If the answer is yes, then sunflower seed butter might be something yummy for you. It's a food that in anti-inflammatory... and it's yummy!  If you buy roasted sun flower seeds (without salt) and food process them for a while (and I mean a while), it'll go to the consistency of peanut butter.  Add a pinch of salt, and it's yummy!  A good friend of mine has many many allergies, and he eats and loves sun flower seed butter.  You can also buy it in a jar, but it's loads more expensive that way.

    Olive oil... yum yum...  And avocados - that's a great suggestion.

    And vegan dark chocolate (several great companies, including equal exchange).

    And coconut milk? Can you ahve that?  There's some really good coconut milk ice cream out there.  Yum yum again!

    GOOD LUCK! I hope you are able to find yummy stuff to eat!

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Biker, Unfortunately I can not eat seeds but it does sound delicious.  I do use a lot of olive oil & will try an avocado as soon as I buy one! 

    Vegan dark chocolate sounds really good; I will have to look for that in the Natural section @ the grocery store; maybe in small amounts I could tolerate it.

    As far as ice cream goes; I can't eat it not only because of the milk but also the sugar content.  I've tried frozen yogurt in the past but just end up in the potty! 

    Thanks for all of your suggestions.

    Linda



  • wenweb
    wenweb Member Posts: 1,107
    edited April 2013

    You might consider checking out the cookbook "The Cancer Fighting Kitchen" by Rebecca Katz.  It's full of yummy recipes in addition to nutritional information for those dealing with cancer treatment and recovery.

  • LindaJD
    LindaJD Member Posts: 169
    edited April 2013

    Thanks for the info about the cookbook.  I'll have to look for it.  A couple of people on here suggested I try a meatloaf w/ ground turkey & ground beef.  I went grocery shopping this morning & made the meatloaf this afternoon.  Dinner for tonight!  I will report on how it turned out. 

    Linda

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