Multiple nodules on my lungs-stage 1 no lymph node involvement
Comments
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Hi Edwards,
I have times when I slip, but most of the time I am focusing on the positive. I know it;s bad because I know that it has spread, but I just don't want to know the gory details. This wayI can focus on staying positive and kiick cancer and chemo in the butt. I have 3 tiny lung nodules 2mm, and 1 that is 17mm. My doctor is hoping that chemo will knock those out. I am familiar with Naperville and my son went to DePaul, but we are from the Northern suburbs of Chicago, Northbrook, Deerfield Highland Park etc. Thanks so much for your support.
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Hi Tammy,
Thanks so much for your support. I can't begin to tell you how good the love from the bc sisters makes me feel. I feel that I even have a bigger support team than robin in GMA, and I can't thank you all enough. Hugs, Kate
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As {{Kate}}~ Damn this disease~ I'm so sorry you are dealing with this again~ Love your positivity~ You rock lady....keep up the fight and let the docs do the wondering/studying hey? I couldn't do that, but we all deal with the stress differently for sure~
Enjoy the time with family~ and return home ready for the big fight~ remember to drink lots of water while doing chemo and eat and rest well when you can~
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Hi wishiwerehere,
My doctor didn't give me instructions for chemo yet. He did already give me two anti nausea meds. I am most concerned about nausea. If I am not nauseous I will be able to eat. As for being a rester that is not me. I am one who tries not to give into illness. When I;ve had surgery I bounce right up in recovery and want out in 10 minutes. For chemo I don't even want to recline. I want to sit straight up and pound away on my laptop to escape. I hope the room is ice cold because I got hot easily. So now blankets for me. thanks for your support.
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So who has had chemo, and can let me know what to expect. My doctor told me i am having the chemo where you don't lose your hair. I am a very unusual patient, becaue I don't like to give in to illness. When I have surgery I pop right up in recovery and beg them to let me out in 10 minutes. I know there are reclining chairs, but I hope I can sit straight up and pound away on my lap top for an escape. I also pray the room is ice cold from air conditioning. I don't want blankets and I don't want to be warm. I also don't like to be coddled by nurses. i already told my doctor I won't answer their questions, and I will tell them to contact my doctor to find out. As for resting I don't like to do that either. if I feel exhausted I'll want to push myself to stay active. The only thing difficult for me to fight will be nausea. i get nauseous at a drop of a hat. When I get nauseous I take sleeping pills, and go to bed till the nausea goes away
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Hi Kate. First, I am so sorry you are going through this, again. I don't know anything about bladder cancer chemo's but I did have 2 different chemo's for BC for 6 months. I am similar to you in spirit. I worked all through chemo, not because I am superwoman but because I preferred to stay busy rather than THINK about cancer 24/7. I had few side-effects that were not manageable. Mostly, fatigue. I guess the chemo nurses can give you an idea of the most common side-effects for each drug. You will have to wait and see. You may not have any of them or just a few. Honestly, for me the most depressing part was losing my hair. But, for example, I never lost it all and I didn't lose most of it until 2/3 of the way through chemo. You never know. So glad you wont lose your hair. Hang in there.
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Hi Patriotic,
Thank you so much for letting me know. You bring me so much hope. I am so glad to hear that you had few side effects. I hope you are doing well now hugs, Kate
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Kate: I don't know how long you smoked, but smoking can cause bladder cancer and of course, lung cancer, so it may not be metastatic breast cancer and therefore quite treatable and perhaps curable....as I have a friend and a brother with both and are basically "cured" (been over 5 years which means cured which is something you can't say about breast cancer). You have been through hell, girl. I am hoping now that instead of a headwind, you will now find life a breeze! (XOXOX and HUGS!!!)
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Bluepearl,
Yes I know that smoking causes breast and bladder cancer. I have metastic bladder cancer. I also am working on a malpractice suit. I told my pcp for 18 months almost every month that the shapes of my stools changed, and that I had a blockage, and that I had trouble releasing a bowel movement. All he said was you had a negative colonoscopy and you are fine. 4 months ago I called him from a mall telling him I had bladder retention, and he said I had a urinary tract infection and prescribed an anti biotic. He never had me take one test or recommended that I see a urologist. Sure smoking causes bladder cancer, but it would have been caught at stage 0 or stage 1 if this doctor was competent and not at stage 4. So now I am going to have to endure chemo while filing a malpractice suit. Unfortunately metastic bladder cancer is equally as bad as metastic breast cancer.
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Dear KateHudson, praying for you and that is so frustrating to hear the doctor didnt listen to your symptoms better and order more tests to ascertain the cause. I'm so sorry you have to fight incompetent doctors and care for yourself through chemo treatment.
Hugs
Bevin
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Hi Bevin,
Thanks so very much for your support. It means a lot to me. You are a doll. Hugs, kate
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Kate - Smoking is a risk factor for just about everything but it is not the cause of your cancer. Doesnt help to be sure but its not why you got bc or bladder cancer either. My sister, neighbor and several best friends all have bc some more aggressive than others and none of them smoke or have been around people who do. Just saying. The criteria for getting the unlucky draw doesnt totally fit any of them either; i.e., when you had your first child, first got your period, etc. Of course you shouldnt smoke or drink to excess or be overweight or not exercise or eat all the wrong things but I would be willing to bet all of us do at least 1 or 2 of those. Doctors can point to smoking as a contributor but have no answers why women who dont smoke get bc. My sister in law used to smoke dope a lot and she got a very aggressive bc years ago. She is fine now so does that mean smoke anything? The people who are finger pointing because you used to smoke have bc too; did they or do they smoke? Hope it works out for you both with the bladder cancer and the lawsuit. You are one strong lady. diane
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Hi Diane,
I so much appreciate your post. You know exactly how people are about smokers and ex smokers. Ironically I quit smoking 1 year before I got bc and 3 years before I got bladder cancer. I knew that breast cancer has nothing to do with smoking. I know with bladder cancer smoking is one of the causes. Also unusual in my case is no family member of mine ever had cancer. My parents did not and my grandparents either. I don't have sisters and brothers. My father smoked, and so did one grandmother and one grandfather. They all died of heart problems. I guess me having 2 kinds of cancer makes up for nobody else in my family having it. I totally thank you and appreciate your support. hugs, kate
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Kate, I came across this thread and I'm in shock!
I'm also a person with 2 cancers and was misdiagnosed and my health issues ignored by my family dr. When finally they agreed to remove a large lump from my breast (it felt like chicken egg, but would not show on any mammograms or ultrasound, so I was told to check again in 2 years!), and it turned out to be advanced stage III, my dr took my other complains more seriously and agreed to order colonoscopy. And there we go: another primary, stage II. Scans also confirmed pulmonary embolism which delayed my double surgery to remove part of the colon as well as right breast. (Lumpectomy left all margins positive, plus lots of positive lymph nodes).
So I had dd chemo for breast, rads and nothing for colon, as there was no lymph node involvement there.
Now I'm also having tiny lung nodules checked. I had a couple at dx, but dr wasn't concerned at all. But after chemo I had another scan in Dec as a follow up for colon and there was a few new ones in another part if the lung. They are to tiny to biopsy or even for pet. So they will monitor with CT scan - if there are any changes.
I still don't understand how did they miss your blader???
Didn't they do diagnostic/staging scans of pelvic and abdomen for your breast? It had to be there already, most likely in early stage!
How is it that now it is stage IV? Are they sure that it has spread?
What about those lung nodules?
As for smoking - I love one of the post (from Diane)! There is no rule who gets and what! I, like yourself have no family history of cancer , my dad passed from heart disease at age of 52. And look at me or you: we got 2 cancers!
I take that your chemo is for blader, right? It is most likely different drugs then for breast, but hang in there! It's not as bad as some people say. I drank plenty of water and camomile tea during the infusions. My husband or friends would keep my company during daily walks. I walked (some days were harder then others) even on chemo days. I think that helped to actually overcome chemo SE.
You will get through it!
Stay strong,
Maggs -
H i maggs,
I am so sorry to hear that you are going through so much.
My bladder cancer was missed because I did not have it when I got breast cancer. About 6 months later I told my pcp that the shapes of my stools changed, and I felt a blockage, and I had trouble releasing a bowel movement. Unfortunately I never told this to my mo. My pcp physician kept saying you had a colonoscopy, and you are fine, even after complaining those symptoms to him more than 6 times. 4 months ago I was at a mall, and I was unable to urinate, because of urination hesitancy. He told me I had a uti, and gave me an antibiotic and that was it. I am now looking for a malpractice attorney.
My bladder cancer has spread to my lymph nodes. I have 3 tiny lung nodules, and 1 17mm. My doctor said he is hoping that chemo will take away my lung nodules. I am having chemo for bladder cancer. Thanks for your support, and I pray that you will be doing better. Hugs, Kate
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So sad doctors dont test like they should....I was also misdx for my breast when I had symptoms including rash on breast! He told me it was dermentatis! I have no clue where they get there degrees but I dont think they care that they are messing with someones lives!
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