My mom was just diagnosed with BC that Met to her brain :(

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Mother_Theresa
Mother_Theresa Member Posts: 3
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

Hi everyone,

I'm new to this site but while googling came across these discussion boards. I am the caregiver to both of my parents (I'm 31) who have cancer. My mom was dx w/infultrating ductal carcinoma, grade 3, in March '12...had a single masectomy in April '12. She did well with chemo & radiation, finished them up right before Thanksgiving. She would have finished her Herceptin tx on May 10, 2013 when on Easter day, during supper she had a seizure & was taken to the hospital. April 1, 2013 we found out her breast cancer had went to her brain in "several tiny lesions". She is 62 yrs old, full of life. She is now on seizure meds & meds for swelling of her brain, they have worked very well. Its been 2 weeks since she has had a seizure. She is on her 8th radiation tx out of 20. Her dr says he is optimistic that she will respond well...but what exactly does that mean? He said it was NOT brain cancer but the breast cancer that has spread. I know I should've stayed away from google but I googled last night for the first time & it says life expectancy of cancer in the brain is 3-6mo. Now, I am even more scared than I was. Anyone with experience of this type of cancer in the brain & the outcomes?  

TIA! 

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Comments

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2013

    Hi,

    There is a special forum for caregivers of those who are stage IV which includes about 18 sub-topics. You're sure to find lots of support there from those who are experiencing the same situation. Wishing you and your parents the best.
    http://community.breastcancer.org/forum/144
    Caryn

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  • bevin
    bevin Member Posts: 1,902
    edited April 2013

    Ther caregiver forum is nice. There is also a brain mets forum for women/men with brain mets. Many of the lovely ladies who visit that site don't mind chatting with caregivers  (daughters) and giving their experiences on what tx they had and are currently taking . Best wishes to you and you Mom.

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited April 2013

    Mother_Theresa, welcome to the site and I am so sorry to hear about what brought you here. Not that many people know anything helpful about brain mets unless they have experienced it themselves.

    Echoing what Bevin says, there is a thread here called "brain mets sisters" and some posters are very generous and giving and would gladly help you. By simply reading you may also find some useful information. Here s the link, and I hope it helps:

    http://community.breastcancer.org/forum/8/topic/777599?page=69#idx_2042

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  • Mother_Theresa
    Mother_Theresa Member Posts: 3
    edited April 2013

    Thank you! I am very close to my mom so we are going through this together. 

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited April 2013

    There is also a different site called brainmets.org if you don't get any help here (and I hope you do).

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  • casanotaro1
    casanotaro1 Member Posts: 1
    edited July 2013

    I a newly diagnosed with the same thing and my doctor says there is no reason why I can't live 10, 20 years or more.  This is not the same diagnosis it was 10 years ago.  They have amazing treatments out there that are much less invasive and much more manageable.  Breastcancer.org is the only place I come for information because it is clean and not as frightening.  Remember, everyone is different.   She is a warrior princess and will fight.  You are a good person. I will pray for her :)

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