Sept 2012 chemo

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  • Cindi74
    Cindi74 Member Posts: 363
    edited April 2013

    Hi Bearcub,  Glad to hear from you.  I have a little hair stubble--not that you can see, but I can feel it.  Am still weak and not having energy.  But I'm here because of the terrific support from this thread.  Great group of superwomen.  More than halfway through rads, and no pain yet.  Worst problem is having to be still every 5th treatment when they do x rays and it takes more than twice as long.  Rode the stationary bike for 15 minutes before going Wed, and got bad cramps in thighs and calfs trying to be still.  Won't do that any more.

    Florida is warming up.  Looks like rain.  Will be glad when this year is over.  Hugs to all.

  • jojo2373
    jojo2373 Member Posts: 662
    edited April 2013

    Bearcub, you have chickens?

  • Neta69
    Neta69 Member Posts: 203
    edited April 2013

    Cindi, great to hear rads are going well! Bearcub, come join us on Facebook!

  • Hopex3
    Hopex3 Member Posts: 397
    edited April 2013

    Bearcub...Good to hear from you! It is amazing to think how far we've come from just the initial dx. All the emotions we had and still do. But I'm amazed at how strong each of us are. We just go in and get the job done, suffer with the pain and side effects and still go on. We are a strong bunch of warriors! You need to join our FB page. We have some much fun there! JoJo can set you up!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited April 2013

    Cindi-I agree with everything Adagio wrote.  Hang in there!  You're doing okay!!!

    Bearcub-Yes, we all have come so far!  Everyday I think of cancer as well.  It sucks!  But I agree with you too - we are strong and coming out the other side.  Yeah!!!!!  We have been bald, sick, sore, but we have been there for each other.  We are blessed.

    Hugs :)))

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited April 2013

    Hope - I agree with you too!  We are all warriors!! If this was FB, I'd "like" your comment.  : )))

  • bearcub
    bearcub Member Posts: 485
    edited April 2013

    Hi everyone,



    Cindi woohoo you are almost done girl, 1/2 thru rads. If this BC has taught us anything it is how strong each and everyone of us is. It's not like we have a choice!! Your energy will come back when the rads end. You will be feeling great by summer. I am 21 weeks out from last chemo and my hair is not so bad, the only thing I find it is curlier and certainly goes where it wants to go.....and real white in the front and salt and peppery in the back. I have a hair appt. for May 7th to get my first trim and I am going to color it.



    The disney trip we cancelled last yr. because of my DX is happening on May 12th. (Mothers day). Instead of taking the 5th wheel and driving my daughter, myself and her 2 kids are flying down for a week. I am looking forward to some sun!! We still have a few feet of snow. The cramps in your legs may be caused from a bit of dehydration, drink some water before going to rads....better go pee too!



    JoJo, those are not my chickens just liked the picture. I had chickens up until 1 month before chemo. I made the choice at that time to find a good home for my rooster and the 4 girls and 2 chicks I had. My DH works 14 hr. days when he is gone so I new I would have to look after the coop ect and it just was too much of a worry about bacteria when my blood count was low. I didn't want to risk an infection. I did find them a fantastic home. I may get some more this fall. I miss the cockle doodle do!!!! I want to be free this summer to go camping, kayaking and not worry about chickens.



    Neta I do want to join the Facebook group but how do you do it without everything coming out on my Facebook page? I kept my BC private and off Facebook.



    Hope we are Warriors.....I think I need a tattoo, hhmmmm!



    I hope you are all doing well, you all look fantastic in your pictures!!

    Take care

  • Amy4978
    Amy4978 Member Posts: 473
    edited April 2013

    Bearcub.. I set up the fb as a secret group none of your posts in the fb group will been seen by any of your fb friends... The group posts will show up in your feed but its only viewable to you... If you decide you want to pm me your email address and your fb user name... I can send you the invite via email

  • florbo
    florbo Member Posts: 178
    edited April 2013

    Cindi--the aloe vera that my RO recommended is Fruit of the Earth brand, but he pretty much said that I could use any brand of 100% pure aloe (gel needs to be clear) or to use the real aloe plant.  For the real plant, make sure you wash well the knife or scissor you use to cut the spear off the plant.  As for exercising, little by lttle.  Don't over do it.

  • Neta69
    Neta69 Member Posts: 203
    edited April 2013

    Bearcub, happy to hear that the Disney trip is happening! I bet you will have a wonderful time! I don't advertise my bc on Facebook either but like Amy said our group is secret so its only us that know we belong to it and only us that see the posts. You just go to the group page and its all separate from what your other friends see. Or set up a different fb account for the group. Either way it's nice to chat on FB and not have to go to the bc site.

  • bearcub
    bearcub Member Posts: 485
    edited April 2013

    Thanks Neta, I can hardly wait to get away for a bit. My daughter and myself get along so well, I know we will have a good time. Neither of us really like to fly so it should be funny us holding it together for the kids and putting on our pretend relaxed faces.

    I did PM Amy with my info but I haven't heard anything from her...Amy, did you receive it??

  • Amy4978
    Amy4978 Member Posts: 473
    edited April 2013

    Bearcub...Yup! sorry havent been on here in awhile but Jojo gave me aheads up... see you on FB soon!

  • bearcub
    bearcub Member Posts: 485
    edited April 2013
  • bearcub
    bearcub Member Posts: 485
    edited June 2013
  • PatinMN
    PatinMN Member Posts: 920
    edited June 2013

    Hi bear cub. it's been pretty darn quiet around here since the big move over to Facebook. I'm still a dinosaur - haven't joined Facebook. With all the news here in the U.S. About data mining I'm even less inclined to sign up for Facebook!

    But I do miss hearing the news from everyone. I hope you are doing well - have you started tamoxifen or an AI? I started tamoxifen on April 1, and so far so good.

  • jojo2373
    jojo2373 Member Posts: 662
    edited June 2013

    Hi Patin we miss you! What concerns do you have about Facebook? Our group is 100% private and by invite only.

  • Mariposa123
    Mariposa123 Member Posts: 267
    edited June 2013

    Hi PatinMN!  

      Jojo was just saying you were over here, so I wanted to say hi and be another voice encouraging you to try out facebook!  You can join with a completely anonymous name - and all of our posts are private so no one sees them (with the exception of the government I guess - but I think they would get pretty bored pretty darned quick of listening to us bitch about our unruly short hair, hot flashes, and residual chemo crap.)  Anyway... join us!  We miss you! 

    -Mariposa

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited June 2013

    PatinMS- Miss you!!!  Please come join us on Facebook.  I would love to see you there joining in with the rest of your BCO gal pals.  Glad to hear that you are doing well with the Tamox.  I've been on it since Sept. 2012 and just dealing with my "not so hot" hot flashes and haven't gained any weight from taking it.  I do come on the BCO regularly so you can always find me.  Just glad to hear things are going well for you.  Again, please join the Facebook group.  You will find that you are able to carry on multiple conversations at once with everyone.  HUGS!!!

  • Faith-Focus-Finish
    Faith-Focus-Finish Member Posts: 124
    edited June 2013

    Hi PatinMN!   Yes, please come join us!!  This Facebook page is the only one I have.  It was real easy to do and it is private.  When you sign up, you don't have to give a lot of information about yourself.  I was afraid too.  I am such a private person.  It has been wonderful to still connect with everyone.  I haven't been on this site in such a long time.  Jojo asked the doubters to assist.  I was the biggest one here I believe.  Please hop over to be with us!  : )

  • PatinMN
    PatinMN Member Posts: 920
    edited June 2013

    Thanks for the encouragement ladies. I actually started to sign up for Facebook several months ago, and had second thoughts when it asked for my birthdate. I guess I'm concerned about not checking the right boxes when signing up, and then my information is public, at least until I figure out what I did wrong... I'll reconsider the whole thing this weekend.



    Jojo and Mariposa, you look terrific!

  • Cocobean
    Cocobean Member Posts: 135
    edited June 2013

    Hey PatinMN, 

    I hope you consider joining the FB group, remember you can completely make up whatever information you want to join.....hope to see you over there :)

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited June 2013

    You don't even have to put in the year of your birth and as Cocobean said, you can make it up. I don't post much on the site but it nice to know what everyone is up to and to stay connected. Many of the group are meeting in Las Vegas in September for a weekend too.

  • florbo
    florbo Member Posts: 178
    edited June 2013

    PatinMN--How are you?  Like what MarianElizabeth said, you don't have to put in your birthdate. A lot of my friends make it up.  Then you check all the privacy settings on your account.  Please come and join us.

    I am most likely going to be starting AIs soon.  I see my MO this Wednesday before my Herceptin #5 shot.  I will probably have a big argument with him regarding how much follow-up scans I will have to be doing.  There isn't a set rule because mine is a recurrence.  He is wanting something every 4 months whih I think is way too much radiation.  My breast surgeon thinks once a year is enough.  Sigh.  Nothing is ever easy.

  • PatinMN
    PatinMN Member Posts: 920
    edited June 2013

    OK, I signed up for Facebook.  Tongue Out  What is next? 

  • jojo2373
    jojo2373 Member Posts: 662
    edited June 2013

    Pm me your email address and i will send you our secret group invite!

  • Hopex3
    Hopex3 Member Posts: 397
    edited October 2013
  • jojo2373
    jojo2373 Member Posts: 662
    edited October 2013
  • jojo2373
    jojo2373 Member Posts: 662
    edited January 2014
  • Amy4978
    Amy4978 Member Posts: 473
    edited January 2014

    I am so thankful this thread was a part of my life! 

  • marianelizabeth
    marianelizabeth Member Posts: 1,735
    edited January 2014

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