For those starting TAC in March/April 2006....

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  • peejay
    peejay Member Posts: 131
    edited June 2006
    Cold is MUCH better today. I kinda said the heck with it and took NyQuil last night. Boom, out for the count. hehehe There is no aspirin in it, and the antihistime is in the sleeping pills they tell us to take, and the cough part, I was like oh well. Then there was the alcohol <evil grin> I slept like a baby for 5 straight hours. Just a little sniffly today, but spirits are back up.

    I feel terrible that you guys have to do herceptin. It's like chemo is over, but it's not, but it is. The tough part anyway. I figure I'll already be a little out of it from chemo, so get it done the next day like the onc said. You guys will get your hair back while on herceptin right? We can have hair chat then lol. Mine keeps trying to grow back between chemo's. Gets to an annoying stubble then quits!

    It's another dreary humid day here. Perfect for taking it easy and napping! That's what they told me to do until next week.

    Mindy where in Indiana are you?

    Paula
  • jmar19
    jmar19 Member Posts: 55
    edited June 2006
    Hey all,

    I got a suggestion to come here. I just had my first treatment of TAC yesterday. Feeling a little weak, tired, acy muscles, headache, queesy stomach (but no nausea), and loss of apetite. My doctor was really generous on the nausea medicine. I've been drink a lot and been eating every time I feel quesy and it goes away. If this is all I'm going to feel, I can tolerate this. I heard that tomarrow might be worse than today and that the symptoms may get worse the more treatments I get. That makes me nervous. I'm glad I was told of this thread because I thought that most people got AC and then T, I felt like oh my god, my cancer must be really bad. I kind of frieked out. I feel a little better knowing there is more like me. Thanks.

    Jen
  • MarciaA
    MarciaA Member Posts: 178
    edited June 2006
    Hi Jen, welcome to the TAC thread. It has been so helpful for me these few months and we all can relate. You can read about all our symptoms. The thing about chemo is that you never know how you will feel from one day to the next. Just know you have lots of people here who support you and understand and that can make a world of difference.
    Keep posting and ask questions. The first one is always frightening just remember to take care of yourself first.
    Hugs
    Marcia
  • mindyk
    mindyk Member Posts: 87
    edited June 2006
    Paula, I live in Lafayette, IN.(north west of Indianapolis)

    Jen- Welcome! Like Marcia said, we are all here for you. I have had 4 treatments and 2 to go. My 5th one is next Tuesday. Some of my treatments kicked my butt and I was very nauseated and fatigued, but stay positive and you will make it through.

    Take Care,
    Mindy
  • DATO
    DATO Member Posts: 127
    edited June 2006
    Hi everyone,

    I start TAC on July 10. It has been informative (and scary) to read of the experiences of those who started this regimen earlier and are now almost finished. I'm glad to see that there are some new people here too, so that we can go through this together.

    Darlene
  • TerryJill
    TerryJill Member Posts: 19
    edited June 2006
    Hi all:

    I had TAC number two last Thursday and felt okay until Saturday and then lousy since. I cannot wait for the veil to lift. Last time by this Saturday I felt better asnd I really hope thst happens again. I hate this. It seems like I will never be normal again!!!! I fell fevery and ost time ended up in hospital...this time just er but they didn't keep me.
    I sure hope this all works.
  • TerryJill
    TerryJill Member Posts: 19
    edited June 2006

    Anyone have trouble with pain in the incision area after chemo? I had full range of motion but after chemo I have trouble lifting my arm. It feel inflammed and tight in the scar.

  • MarciaA
    MarciaA Member Posts: 178
    edited June 2006
    TerryJill, If you have read my previous posts you will find that I felt bad a lot of times. I thought I was a wimp compared to how others were doing. I figured out there is a reason there are 21 days between treatments. The last two treatments of mine caused heavy fatique, low level nausea days 4-6 and numbness. I am now having the burning in the mucosal areas of my head. Just don't expect to feel really good the more treatments you have because it does become cumulative. I know its hard some days but be patient with yourself if you can. And about the incision pain...I kept asking my onc about incision pain at my lumpectomy/re-excision site and he said it was probably from the healing an the nerve regeneration but they could not rule out it wasn't the chemo killing cells. He did say it was normal. I would just make sure it wasn't getting too inflamed or getting infected. I was told I could use hot or cold packs if it made me feel better.
    TerryJill It is good you are an active poster here so that this thread can be maintained for all the new TAC ladies.
    Hope you feel better soon!
    Marcia
  • JackieSue
    JackieSue Member Posts: 61
    edited June 2006
    Darlene and Jen,
    Welcome aboard. When you read all of our past posts, remember that no one person had all of these symptoms. Take it one day at a time. The wild part of this ride is that there is no guaranteeing how you'll feel each time. The good news is that you can find out that you're not the only one dealing with the symptoms you have and you will survive. We also allow whining. Some days we just plain feel like complaining.

    Jackie
  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited June 2006
    Darlene and Jen, Welcome to the TAC board. This is a great place for dealing with our specific regimen. I did #5 of 6 a week ago, and I've been able to travel and work for 11 out of 15 days in the three weeks.
    TerryJill - I have burning/stinging sensations in my various incisions (I had lumpectomy right and left and SNB right and left and axillary node dissection right) after each chemo, not horrible but I'm pretty sure the drugs are interacting with the 'healing' areas. Light pain meds like Excedrin or Tylenol help me when it persists.
    Leigh
  • mindyk
    mindyk Member Posts: 87
    edited June 2006
    I forgot to add to my earlier post. Quess it is the chemo brain! LOL!
    Karen in Denver---- How are you feeling? Hope that you are doing ok

    Mindy
  • kburns
    kburns Member Posts: 37
    edited June 2006
    Hi everyone and welcome Darlene and Jen.

    I had #5 on Wed and having a little nausea and lots of fatigue. We are heading to the beach today for a week and I am really looking forward to it. We are renting house with DH family and hopefully I'll be able to rest and get waited on. It is only a couple of hours from our house, so if things don't work out, we can come home.

    Marcia, thanks for you questions. So far things are better with the pain and chest pressure since my onc lowered the dosage. I am concerned about the fluid gain (8 lbs. in a week) and she had me get an ultrasound to make sure there weren't any major problems around the heart/spleen. The technician said she didn't see anything yesterday, but the radiologist needed to review the results.

    On my diagnosis--phase 2A--1 node positive--ER/PR+ HER-
    I opted for bi-lat mast because of extensive DCIS and wanted to avoid radiation in case of recurrence (ie--better reconstruction options). Also, my breasts were 34DD and always in the way. So, no radiation, reconstruction with expanders and exchange surgery on 8/30, then tamoxifen and AI for not sure how long. And possible ooph.

    I really appreciate the comments from those who are finished with this protocol. It gives me hope of feeling normal at some point! Oh--and I hate the wigs, too. I am so looking forward to hair and losing this weight!

    Have a good week everyone.
    Karen
  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited June 2006
    Hi Karen, Good to hear from you - have a GREAT time at the beach. Be SURE to get waited on - my DH says I am overdoing as soon as I feel even a little bit better.
    Doesn't it feel great to be down to ONE? Leigh
  • karen1956
    karen1956 Member Posts: 6,503
    edited June 2006
    Mindy, Paula and Marcia,
    i've been lurking behind the scenes. I survived chemo #5. I don't think I was as nauseated, but my stomach bothered me more. went back for IV hydation the 3 days following chemo. Day 8 is today and as is the pattern I don't feel so good. tired and sore tummy. Over the weekend I will start to feel better and the pattern is by day 10 or 11 I start feeling decent. I am beginnig to feel like I can see the light at the end of the chemo tunnel with #6 just 13 days away! Part one of this bc journey will be done. Next is rads. I saw the rad onc yesterday and go back on 7/18 for the planning session. Will start rads (25 treatments ) by the end of July - so by the end of August rads should be done. Recon (replacement) won't be till late December, and hysterectomy Oct or Nov. It can be any time one month post rads, but I am trying to do the surgery around my vacation schedule to take as little time off work as possible. I go on Arimidex 3 weeks post chemo, get a shot of Lupron to make short I stay in menopause and will have my port taken out. Today was my last day of work for 6 weeks - officially on summer vacation. Looking forward to next week with no appointments and hanging out with my 8 year old. No travel plans this summer - but hubby and I are taking an overnight get away the 4th and 5th when all the kids will be gone (and it is right before last chemo on the 6th). Hope everyone is feeling good. Welcome to all the new ladies on this site. Wishing you an easy journey. Have a good weekend.
  • mindyk
    mindyk Member Posts: 87
    edited June 2006
    I have noticed that our thread has been quiet the last few days! Hope everyone is doing ok!
    Paula- Hope your cold is getting better!

    Take Care,

    Mindy
  • peejay
    peejay Member Posts: 131
    edited June 2006
    Cold is almost gone. Been resting up a lot this weekend in preparation for #6 on Tuesday. Then I have minor surgery to remove port on Wednesday morning. not being put under, just numbing the area and taking it out and stitching back up. Then I plan on sleeping the rest of the week lol.

    The weather here has been a little nutty too. It's thundering, lightning and raining cats and dogs right now. I think I should go read and get off the computer hehe.

    Paula
  • MarciaA
    MarciaA Member Posts: 178
    edited June 2006
    Paula, Glad to hear your cold is better. Let us know how the port removal goes and if they at least give you a bullet to bite on when they yank it out ..(j/k) It is raining here too but we needed it.

    Mindy, Glad to hear from you. Thanks for helping us keep everyone updated. We need to stick together until we get past this.

    Jeannette, Saw the pictures of your vacation place on the link you posted. Looks like you were really in the wilderness, prairie land. I hope you had a good rest.

    Molly you had #4 a week ago. Are you doing ok?

    Karen/Kburns- I can’t wait for the weight to go away. I hope your ultrasound turned out to be normal.

    Karen in Denver, Congrats! Just one more to go. Did they give you any rationale why 25 radiation treatments? Just curious.

    Terry Jill how are you doing?

    Jackie – Isn’t #2 tomorrow? If so take care and good luck. Perhaps this one will be easier since you have one behind you. (One third of the way! Whoo Hoo!)

    Jen – It has been 4 days since your first TAC. How are you feeling?

    Leigh- Are you planning on using any special shampoo when the hair gets going again? Have you seen the post on “Help me get through treatment” Hair growth pics a la Karin Stack? Nice to see hair growth documented.

    Everyone else on the thread check in now and then if you feel like it. We are going through the toughest chemo! Everyone have a good week.

    Hugs,
    Marcia
  • baldeagle
    baldeagle Member Posts: 199
    edited June 2006
    I'm back! Hi everyone. I breathed the fresh mountain air in between bouts of nausea and too tired to move till Saturday. The weather was glorious. The local Hutterite colony grazes part of their cattle herd on our place at this time of year. The bulls run free with the cows to "freshen" them. So the bellows of the bulls were like a nightime (and early morning) arias as they sought their way around to prospective mates. The calves are still with their moms so their is fierce competition for the cows. We have to drive through their pasture to get to our place - so it is quite a trip staring down the cows (they look so dumb and vacant as they stand in the road and wonder why they should do anything other than chew cud).
    The river is still running high and cold from the spring snow melt - which happens late Mat thu June in these parts.
    So no bathing yet. But the sounds of the water finding it's way over and around the rocks and immense boulders of granite is a welcome counterpoint to the braying of the cattle.
    Last year we saw few deer but this year have spotted many - oncliding a doe with twins no more than a few weeks old and several magnificent bucks. We have declared the property off-limits to hunters in order to protect them.
    So much for waxing enthusiatic. Much better than bemoaning the nausea and fatigue. I shall be so happy when food tastes good agai. The guys had beautiful t-bones for dinner last nite - and I couldn't even spare the thought.
    I am so glad for this TAC group - as I have said before - you all give me the push to keep going and know that the end is in sight.
    BTW, my onc recommended Semetil for nausea. Anyone done this drug? I am so reluctant to puit any more chemicals in my body. I count six to counteract the effects of the 3 TAC drugs. Don't really want to do any more.
    Oh, I wish these were fun drugs with a little pep to them!
    Jeannette
  • peejay
    peejay Member Posts: 131
    edited June 2006
    I'm to do 25 rads also. They didn't give me any idea why that number, just told me 5 weeks, 5 days a week lol.

    I'm off to do all my "pre-chem" running around. ie: grocery shopping, the bank, wal-mart.. and this time I am taking the dog to the vet for his shots, poor thing.

    Paula
  • jpsgirl96
    jpsgirl96 Member Posts: 240
    edited June 2006
    Jeannette - What a great post! Really helped me feel like I was there too.
    Paula - Sorry to hear (from your other thread) about DH's injury - how annoying is THAT at this point???? But this too shall pass...look at it this way, it didn't happen at the beginning of your chemo, right???
    Marcia - Thanks for checking on all of us. I've been reading the a la Karin Stack posts and feeling encouraged. I went for my first visit with radiation onc today and he doesn't like to start any earlier than 4 weeks after any adriamycin based tx, so looks like I've talked him into August 7 (4 weeks vs. 6 weeks after chemo ends). I go for my pre-work (scans and markings) next Monday, the 3rd, to accomodate his vacation schedule and mine. I would theoretically finish rads on September 21 - happy Equinox! I liked and trusted him.
    Had a great weekend on the boat, no sailing b/c the mid-Atlantic weather got us, but lots of nice little projects and cozy dinners so it was great. Leigh
  • mindyk
    mindyk Member Posts: 87
    edited June 2006
    Hi everyone,
    Getting ready for #5 tomorrow. Got all of my errands done today and tried to work out in the yard a little but the rain and tornado warnings put that to an end. Hubby took me out for a steak and shrimp dinner this evening for my last dinner before my taste buds go crazy on me! LOL
    Paula- Just think last one for you tomorrow! Congrats!
    Marcia- when do you start radiation and herceptin?
    Molly, Jen, TerryJill, Kburns- How area you guys feeling?
    Jackie- Good luck with #2
    Leigh-How many rads do you have to have? My onc is making my appt with my rad doctor so I am curious to see when I will start.
    Jeannette- sounds like you had a nice trip!
    Karen in Denver- Just think only 1 more to go!
    Everyone take care and I will check in sometime soon!
    Mindy
  • JackieSue
    JackieSue Member Posts: 61
    edited June 2006
    Come on you guys. I'm going in for #4. Don't make me go back to the beginning. I'm two thirds of the way. Woo hoo. There seems to be several of us going in tomorrow.

    They've been telling me that I'll have to do 35 rads. I haven't seen my rad onc yet so it could change. I guess I'm suppose to finish up around Halloween. Then hormone therapy.

    We've had hot muggy weather. Blech. At least the chemo room will be nicely air conditioned tomorrow.
    Jackie
  • peejay
    peejay Member Posts: 131
    edited June 2006
    Well, I'm going to try to get a few hours nap before I have to go in today lol it's 3 am here right now! Hope I can get some sleep. But who really cares! It's my last one, and I know I will sleep afterwards! After I hear how my hubby is doing that is. Hope his physical therapy goes all right.

    Good luck everyone going in today, think good thoughts, and have lots of hugs!

    Paula
  • mindyk
    mindyk Member Posts: 87
    edited June 2006
    Jackie, So sorry! Good luck with #4. I should of read further back in the post since I sometimes have chemo brain!! I wouldn't wish anyone to have to go back to the beginning!

    Hugs,
    Mindy
  • MarciaA
    MarciaA Member Posts: 178
    edited June 2006
    Hi TAC Ladies. Great to hear from some of you. As promised I am reporting on my visit to the radiation oncologist today. This was my second visit. I had an initial visit in February. Here is what I learned today.

    First off my stats: stage 1 grade 3 IDC micro metastasis surrounding 1cm tumor. Lumpectomy R breast, reexcision clean margins. SNB 5 nodes all negative. ER-/PR-
    Her2++. Finished TAC x 6 on 6/14/06

    Today I had a CAT scan where they marked my chest with a blue marker and put clear tape over the markings. My rad/onc will calculate the radiation dosage from these measurements. I go back July 11 for an orientation and remarking if needed and start radiation July 12, exactly 4 weeks from my last TAC. I could have started July 5th but I think I needed the time to feel a little stronger. I was told I would have a sunburned appearance toward the end of my treatments. I am to have a 24 +9 protocol. A total of 33 rads. 24 External beam radiations to the entire right breast then 9 boost rads directed to the bed where the tumor was. She told me to start taking glutamine 15 grams BID. She said radiation can swell breast tissue and cause a pitting appearance like an orange peel, and Glutamine can help prevent that. She decreased my vitamin E to 400-500units from the 1000units I had been on and doubled my vitamin B6 -100mg to twice a day. She said my treatments would take about 10 minutes each and to plan to be there about 30 minutes. I was told to wear a shirt that buttons down the front when I came. I am really excited to get this going.

    I think my port is twisted under the skin. To be honest I won’t be disappointed if it has to go even though I have about 16 more IV herceptins to go. I won’t have my mammogram until this Friday. I guess I will always get a sick feeling every time I go in for one now.

    Hope all is well with those finishing up with their treatments. Keep posting how you are doing. I am one of your biggest fans!
    Hugs
    Marcia
  • baldeagle
    baldeagle Member Posts: 199
    edited June 2006
    Hi everyone,
    Here it is a week after #4 and I am feeling pretty good (all things considered). I thought last week and the week before that I would be dragging through the last 3 cycles - was so tired. Then found out my RBC was OK, rested a bit, just vegged the first few day after treatment, and am finding myself feeling pretty good. So I guess that it goes to show you never know what will happen. In fact I felt worse after treatment #1 than now.
    I do think that attitude plays a noticable role. I was so apprehensive the first tim htat it probably increased the impact of the effects - stress and all that. Ditto for #3 whe I thought I was slipping into anemia. And I have never been a hypochodriac. Anyway, am going to go on with positiv thinking and all of the great support from the TACers.
    Hot here by the mountains ( for us 31 C is hot. But no humidity so think I will enjoy the long days of summer (sunset lasts till 11).
    J.
  • peejay
    peejay Member Posts: 131
    edited June 2006
    Yesterday I had my last TAC, good old number 6. They couldn't access my port, they thought it had turned on me, so I just did a regular IV. I had the port taken out about an hour ago, didn't feel a thing except the numbing shot. Didn't even have to knock me out.

    I don't think it has hit me yet that I'm done with chemo. I feel tired, and well.. tired. And that's about it so far. Can't excersise, swim or heavy lifting for 5 days. Like I was going to do that after chemo anyway LOL. MY plan is to lay low and recover all week, and weekend.

    Anyway I'm falling asleep at my keyboard here, so I'm going to go fall into bed!

    Paula
  • MollyK
    MollyK Member Posts: 70
    edited June 2006
    Congratulations Paula! That is definitely something to celebrate. I can't wait until I can say the same thing. Seems like it would be difficult to have the port out the day after treatment? I mean, not feeling well. The sooner the better I imagine.

    I am feeling pretty good after TAC #4...excited to get on with number 5 a week from Friday..July 7.

    Molly
  • MarciaA
    MarciaA Member Posts: 178
    edited June 2006
    Paula, Congratulations on finishing your TAC as well as getting your port out. If you aren't careful you might start feeling like a healthy person in a couple of weeks.

    Take care of yourself and thanks for the update.
    Marcia
  • peejay
    peejay Member Posts: 131
    edited June 2006
    LOL No kidding Marcia! In less than two weeks I will be down at my mom's floating in her pool and being pampered. They are treating me to a pedicure, the onc said it would be fine. That will be soooo cool to have done. But...

    When I get back it's off to my first rad onc appt. Then I start that. I joined Camp Nukemboobies July, since I should start then. Hopefully the whole thing will be done as my daughter starts 7th grade. Blah I missed most of her 6th grade.

    Other than that, today I have the decadron flush, and cheek warmth. And the rapid heartbeat too. Also for the first 2 days, my sinuses ache, as does the cheekbone there, and my upper teeth! Someone said that Cytoxan can really hit the sinuses like that, so I haven't worried about it since. And, of course, I'm TIRED.

    Coming up tomorrow: bone pain hehehe

    Paula

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