stage IIIB and mastectomy need advice pls

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zohra
zohra Member Posts: 197
edited June 2014 in Stage III Breast Cancer

Hello ,My mother done with chemo. Today , she had appointment with her surgen. The doc wants mastectomy right breat. The breast that has cancer. (But she wants mastectomy for her both breasts)

She think that  the cancer can come back in her left breast. That's why she wants mastectomy her both breasts. Please , I just need your advice what do you think about her decision . Any information will be helpfull.

Thanks

Zohra

Comments

  • Denise-G
    Denise-G Member Posts: 1,777
    edited April 2013

    It is a very personal decision.  I chose a single Mastectomy, but many choose double.  If I had it to do over, I would probably choose the same thing.  I made the right decision for me.  But your mom knows what makes her most comfortable.  She has had quite some time to think about it.  My advice would be to respect the decision that she makes and support her.

  • zohra
    zohra Member Posts: 197
    edited April 2013

    Thanks for reply . I need more feedbacks pls. The surgeon told me may be she will survive two or three years so no reason to give her hard time ... I really dont know why he said that ... My mother is stage IIIB. Many people serving when they are in stage 4.

    Thanks

  • Outfield
    Outfield Member Posts: 1,109
    edited April 2013

    Zohra, in general, the stats show that women live just as long after having one removed and then periodic scans of the other to be sure cancer hasn't developed in the remaining breast as they do having both removed.  

    That said, to me personally, a lot of scans did not sound like an acceptable plan.  Scans and biopsies caused me a lot of anxiety, and I wanted to lessen the chance of more anxiety as much as possible.  Also, just in my own head I could not feel comfortable with a plan of using scans to catch a second cancer earlier than my first one (stage III) because regular screening mammograms missed it.  My cancer was invisble on mammogram 8 months before I found a lump, at which time there was a huge abnormal area on an ultrasound and on another mammogram.   So mine grew very fast, sneaking in between regular mammos.  If I had a breast now, I would be obsessively examining it daily, or feeling guilty if I were forgetting to do that, scared it would happen again like that.  I also knew I would prefer to be symmetrical, but that wasn't the main reason.  I wanted a little more peace of mind.

    Those are my main reasons for having asked for a bilateral mastectomy.  I know myself, I knew how I would feel as a flat woman.  I did not choose reconstruction and I don't mind being flat.  

    I think what is most important is that your mom does what in her heart she wants to do.  She has to live with the decision every day.  The surgeon does not, he/she can move on to the next patient.  It was OK for me when people asked in non-judgemental way why I wanted to have both removed, but anything more than that would have felt unsupportive.  Even though I chose a different path than Denise-G, I think her advice is spot-on.

    Edited to correct misspelling.

  • JAN69
    JAN69 Member Posts: 947
    edited April 2013

    I think we can all agree that there is no one right answer; it is a very personal decision.  I had a single mastectomy, which was all that was offered to me. At the time of dx, I just wanted the tumor out.  After I healed and got my breast form and bras, I found how uncomfortable (heavy, hot, etc.) silicone is.  I got up the courage to ask for my healthy breast to be removed.  Oh how I love being a flat top.  No bras!  Just wish I had known I could have had a double from the onset.  I do have 2 new silcone forms, but only worn them once.

    This is my experience.  I'm 71, retired, and no one who knows me seems to care what I look like. 

    Best wishes to your mom.

  • hopefour
    hopefour Member Posts: 459
    edited April 2013

    Agree this is a personal decision, but I did a double and never have regretted it. 

  • ReneeinOH
    ReneeinOH Member Posts: 511
    edited April 2013

    Maybe your mom's dr. is taking her age and overall health into consideration (?).  Recovering from a double mastectomy is usually harder than a single mastectomy.

    As been said before, it is a personal choice.  I initially wanted a double, but after my breast surgeon said it was more likely that cancer would show up elsewhere in my body than the healthy breast, I changed my mind.  I also came to acceptance of the tests, monitoring I'll have to be dealing with from this point on. Initially I bristled at the scans, etc. that I face, but learned I'm going to be a breast cancer patient one way or another, and feel confident in my dr.'s plan to monitor.  And, I take comfort in having my native breast.  In the beginning of this, for me, I viewed my breasts as ticking time bombs, but that feeling dissipated.  It's a big decision.

  • Syl1969
    Syl1969 Member Posts: 11
    edited April 2013

    Zohra why the surgeon told you that? I think there are better expectations!. I decided a single mastectomy, but I think it would have been better a bilateral mastectomy. I think your mother should make their own decision. So sorry that you and your mother are going through this.

  • pp729
    pp729 Member Posts: 135
    edited April 2013

    Zohra, I was just where you are 2 years ago with my mom.  And, like everyone else said, it is a personal decision that your mom has to make.  For my mom, she opted to have only a single mastectomy and no breast reconstruction.  It was a fairly easy surgery and healing process for her and in fact, she tried to convince the doctor to let he go home the night of the surgery (of course, he kept her overnight for observation).  I stayed with her a week after the surgery just to make sure everything was okay, but it was not necessary.  Just wanted to stay there and be sure.

    Having said that and with 2 years in hindsight, my mom does say that she wished she'd have had a double mastectomy.  Part of it was that she was just so afraid of the surgery and what they might find going into it that she did not.  Now, she sees her ONC every three months and has bloodwork then, as well as occasional scans.  But, she still has the concern that the BC would return in her other breast.

    Good luck to you and your mom.  If she goes with what her heart is telling her, she can't go wrong. 

  • GottaloveNED
    GottaloveNED Member Posts: 211
    edited April 2013

    I had a double because I decided I would rather be flat totally rather than be lopsided. (My breasts were large.) I also like that I don't have to have mammograms or MRIs on the other side. Each person has to decide for themselves... Good luck to your mom!!

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2013

    Z...I chose a bilateral mastectomy...it was one of my questions after Dx and both surgeons I interviewed suggested I consider a bilateral so I never had to ask my question....7 years later, I know that I made the right decision for me.....And in the end it was medically the best decision as the noncancer side was pre-cancerous.....

    I'm don't know about the statistics your mother's doctor is giving her, but maybe a second opinion would help her make her decision. 

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited April 2013

    Zohra Jahn,

    I think there are two different things to think about. The first is how likely cancer is to appear in the other breast, as a new primary. The second is, for some people, the peace of mind that having a bilateral mx brings.

    It is my understanding that the chances are not great of developing a new primary in the other breast. That bring said, peace of mind is different for each person and a deeply personal choice. Some people can't imagine removing a healthy breast and others can't imagine leaving it there once they've had the experience of breast cancer.

    Whatever your mom decides, I know you will love and support her.

    Caryn

  • Golden01
    Golden01 Member Posts: 916
    edited April 2013

    How old is your mother? My Mom developed breast cancer a few  years before I did. She was 83 at the time and her mind was made up for a double mastectomy as soon as she got the phone call that the biopsy showed cancer. She wanted no additional discussion or further consideration. She and my brother saw the surgeon on a Thursday, I flew in from out-of-state over the weekend, and she had the BMX on the following Tuesday. Her surgery was just a week from when she got the phone call about the biopsy. Scheduling the surgery quickly and having a BMX was what was important to her. Her cancer was Stage II. She had an uncomplicated recovery and never looked back. She's 88 now and doing well. Stayed with me after my BMX and told my PS that she didn't have reconstruction "because of my age". 

  • pupfoster1
    pupfoster1 Member Posts: 1,484
    edited April 2013

    I'm similar to Karen from CO.  I decided my own comfort level and knew I would always be anxious about the other side and opted for a bilateral mx as well, and like Karen they found pre-cancerous cells there too.  That DOES NOT mean your Mom has them.  It truly is a very personal decision, and one only your Mom can make on her own and with the guidance of a good breast surgeon.  I think it's one's comfort level that's most important here.

    Take care,

    Sharon

  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited April 2013

    My reconstruction surgeon told me risk of new primary breast cancer on contralateral side averages 2% per year. I am 54 years old. If I live to 85 then chance of new primary is 15% I wanted a prophylactic mastectomy but when I had my diep reconstruction there was only one good set of blood vessels not two. I'm now not sure what I will do now. I am happy with new breast. Much prettier than flat with scars. The flat side was a constant reminder of breast cancer, risk of metastasis and suffering. I think the decision is a tough one. No clear answer

  • zohra
    zohra Member Posts: 197
    edited April 2013

    Thanks for all replies. Your help full information  help us a lot to make decision .. My mother is 58 years old. She is going to have BMX by the end of may.Thanks again for all replies.

    God bless all of you

    Zohra

  • Golden01
    Golden01 Member Posts: 916
    edited April 2013

    Zohra -  You are a wonderful daughter! Your Mom will appreciate your support. 

  • pp729
    pp729 Member Posts: 135
    edited April 2013

    Zohra, good luck to your mom as she prepares for her surgery.  She's very lucky to have your support!

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