April will be my turn, can we share hugs?

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  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    ~Peggysull, Sending you some more hugs and hope you are recovering well.

  • bella42771
    bella42771 Member Posts: 34
    edited April 2013

    Bobogirl - on my mind today as you get beyond your surgery. Hugs to you! Let us know how every thing works out.

    Bella

  • argynis
    argynis Member Posts: 123
    edited April 2013

    Thank you all for you good vibes! I am on my way home niw.

    I just got my pathology report back. I had 2/26 nodes positive which stages me at pT2 N1c.

  • Moderators
    Moderators Member Posts: 25,912
    edited April 2013

    ((((((Hugs))))))) and positive vibes to all you wonderful women!! Stay strong, and know we are thinking of you!!!
    Your Mods

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    Peggysull, thinking of you and others sisters who just had their surgery. Pls get back to us as soon as you feel well enough and let us know how you are doing. We have been thinking and praying for you, and sending you of healing thoughts.

  • robin_in_SJ
    robin_in_SJ Member Posts: 46
    edited April 2013

    Argynnis, Thinking of you as you recover.

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    I can't believe its midnight as I'm writing this, couldn't sleep so I'm up watching Mrs. Doughtfire...love that movie!

    Thinking of Peggysull, Annie2012, danawp, Ashleigh, Argynnis, and bobogirl, wishing each of you the best as you recover from your surgeries. I know we all respond differently, but I also know it is not easy for anyone. Sending big, warm, comforting hugs to each of you every day of your recovery.

    I am so thankful all of my kids are coming home this weekend to spend time as a family and support me as I head to surgery on Monday. Support from family and friends is so important to me.

    We are all family, breast cancer sisters. I am so grateful for each of you.

    To be able to share and cry and support is very empowering and fills my heart. Only you can truly understand what I feel, so thank you for being there and making me strong for my kids and my Most Amazing Husband. I know everybody refers to their husbands as DH, but I want to express how special and good mine is to me so I will refer to him as MAH. I wish I could hug each of you in person for reals and say thank you and we will get through this together, which we will but it has to be cyberspace! Which I guess isn't so bad.

    Monday is coming too fast yet not quick enough. My main wish is they will miraclously get it all (since it is occult and they still don't know where its coming from) and I will be able to watch my soon to be first grandbaby (due September) grow and bring joy to our family.

    I have had a wonderful life and if cancer takes me so be it, my mom and grandma died at 58 yrs old from BC, so all along I expected it. Well I'm 56 and no where near ready to give up. I plan on living a LONG and wonderful "senior" life! 

    Wow, you can tell its late and I need to go to sleep! Love you all and thanks for being here for all of us! Have an amazing weekend.

    Every day is a beautiful day!

    Joanne

  • danawp
    danawp Member Posts: 99
    edited April 2013

    Keepswimming, 

    Keep on swimming!!! First, thanks for organizing our April board.  And I know what you mean about things going too quickly/not quickly enough...the last few days before surgery were the worst!

    Keep working on the plan for a LONG life -- sadly your mom & grandma  didnt have the technology available to you today.  Keep thinking about that...how far things have come! 

    My mom was diagnosed at 54, the same month her first grandbaby was born (my neice)....And my mom is a 17 year survivor who has 6 grandkids now!! She loves and enjoys each one (my brother's 3 girls 17, 15 & 11 and my 2 girls and a boy 14, 12, & 11).  Picture your happy future as you get through this.

    Good luck on your surgery & really, truly soak in the power of medical advances & better technology!! cyber hugs xoxo

  • PeggySull
    PeggySull Member Posts: 686
    edited April 2013

    Thank you all for your warm thoughts about me during my surgery? So great to come back to this board! Aside from the intense pain radiating from the drain sites and how difficult it is to get up from chair, toilet,couch, you name it.



    My husband is hovering too much but I'm thankful for having someone care so much about me.



    Can't wait to get drains out even though it's been only 4 days out from surgery. Waiting on pathology report.



    Again, thank you all for caring.,



    Hugs, Peggy

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    Hang in there you beautiful, brave sisters. It is going to get better every day.  If you run into a patch of the blues, we're right here beside you and ready to listen, support, understand, laugh and otherwise cheer you on. 

    💞

  • Annie2012
    Annie2012 Member Posts: 32
    edited April 2013

    Had the bilateral mastectomy Wednesday and got home around 4 Friday afternoon. I was very nausious Wed and Thursday, it has gotten better, but not gone. Very sore, but so happy to have the surgery behind me. Next step is rads after I heal from the surgery. No pathology back yet, but my Dr said she couldn't see any sign of cancer in the tissue, so I believe the chemo did its job. I was 9 cm, so this is a miracle. May God surround all of you and give you peace as you go through your surgeries and recovery.

  • ldesim
    ldesim Member Posts: 1,333
    edited April 2013

    PeggySull and Anne2012, glad to hear from you and glad you're home and recovering, hopefully the worst has now passed and you're in my thoughts. Annie2012 that is wonderful news from your doctor!!

    Danamp, you seem to be doing wonderfully!  What a wonderful story about your mom!

    Joanne, you brough tears to my eyes, I hope you are having a wonderful weekend with your loved ones and I'll be thinking of you on Monday and you will see your grandchild AND live a long senior life :)

    I've been cleaning like a madwoman, making hubby a nice dinner now, which I will Sunday and Monday too.. then the cooking is up to him and boy am I in a world of trouble lol!  I have everything ready to go to the hospital, I probably overdid that.. but what else is new.  Tomorrow we'll set up my "recovery" area.. I got a basket and its crammed with stuff, probably half of it I'll never use. I better slow down or I'll run out of busy work and not know what to do with myself.

    Hugs to all.

  • Michele2013
    Michele2013 Member Posts: 350
    edited April 2013

    I had surgery (bi-lateral) Monday. Today I feel like I am wearing a steal bra, there is such a tightness. Anyone experiencing this?



    Gentle hugs to all :)

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    Hi Michele - when I was exactly at your post-op stage I had almost a panic attack when I realized just how uncomfortable the "band" felt. I really didn't cry until then. This feeling will persist off and on until you have your exchange surgery. After awhile there were stretches of time throughout the days when I forgot about it, and times, like right after a fill, where there is NO WAY you can forget about it. I am aboutt 10 weeks post-op, filled to my max, and I must say these rock hard mini-grapefruits bother me but not nearly as much as the TE did at the beginning. I am definately more comfortable now than I was 9 weeks ago!

    ~ Michelle

  • ChickaD
    ChickaD Member Posts: 1,025
    edited April 2013

    Hi ladies..I too am scheduled for surgery in April (18)...scared but positive! Thank you all for your comments...makes me a little less anxious. Xoxo

  • danawp
    danawp Member Posts: 99
    edited April 2013

    MICHELE2013,

    My surgery was Wednesday.  Friday and most of Saturday were pretty good, but by Saturday night, I was really hurting and I woke up in the middle of the night feeling like I was caught in a bear trap (like a steal or iron bra....)  Doing a bit better today.  Sore and tight, pain comes a goes.  For the most part better than expected, but ups and downs with some low points!  Like SHELLSHINE said, that's when I felt like crying from it all...But overall, definitely better than expected, glad surgery is behind me, and still able to get comfortable enough to sleep!  So for those of you heading into this, it's true that it wont be as bad as you fear, but dont be overwhelmed when the low points do hit you.  Allow yourself to feel bad when they do, but know that it will pass...Hope that helps!!  Good to keep busy.  It WILL be behind you soon!

    Good luck for those facing surgery & quick healing for those of us who are done with the surgery!!

  • bella42771
    bella42771 Member Posts: 34
    edited April 2013

    Danawp, thank you so much for your updates. I'm taking every word to heart as I'm heading into surgery on Thursday. I admire your bravery and your spirit, and those of all of the wonderful women here. My prayers and thoughts are with you as you forge ahead to the beautiful life ahead of you. It's one day at a time, I suppose. And i truly believe you when you say that it will get better! ((((((((Hugs))))))))......Kimberly

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    ~Idesim, Thank you for your kind and positivie words, I know all will be well. I pray that you have a successful surgery and recovery is quick. Too bad we can't be roomies since we will be in the hospital at the same time!

    ~Welcome Michelle2013, Happy you are on the other side of surgery, wish you weren't having so much pain. Thanks Shellshine and danawp for sharing and hope this helps you manage Michelle.

    ~Annie, Thinking of you and praying your nausea is gone by now. Great news from your Doctor!  Rest and take care of yourself.

    Sending Hugs to all of you recovering or preparing for surgery, and again to those who have recovered and are willing to share with us.

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    ~danawp, Wanted to send you a huge hug. Thankyou for the support you have given me. Your strength and words help keep me going. I'm sure all will be well, just had a melancholy night...can't dwell on things!

    I'm all ready for tomorrow. My 4 kids and spouses are here along with my hubby. We had a great day, cooking away in the kitchen and eating like pigs! My sister (a nurse) is coming tonight and will stay for a week to help me. I am one lucky lady!

    I hope your pain doesn't last too much longer, take time to heal and you will come out of this stronger and better.

    Joanne

  • bella42771
    bella42771 Member Posts: 34
    edited April 2013

    Keepswimming......thinking of you tonite. Wishing you a restful night and a swift and successful surgery tmrw. Prayers, love and more. Kimberly

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2013

    Sending love and support to ALL of you ladies going through the surgery.  It feels like so long ago to me (4/09). You will get there, too - you will look back and the details will be sort of fuzzy - like you know it happened to you but it was almost like watching a movie of it happening to someone else. (Sort of like childbirth -you remember it, but sort of blurry, at least I do.)

    My hysterectomy is this Friday. I was determined not to let the waiting eat up and dominate an entire month of my life, and I did very well. But now that I'm in the final week, it is definitely bothering me more. I just wish I could get it over with.
    I have a very busy week getting everything ready (work, home etc) and then I will go EARLY Fri a.m.  

    Trust me, the waiting really IS the worst part. (and now it's my turn to wait, lol).

    Love to all. One day at a time, one foot in front of the other.

    Amy

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    We're behind you 1000% keepswimming, sleep well and let us know how you are doiing as soon as you are well enough to log in.

  • Pattysmiles
    Pattysmiles Member Posts: 954
    edited April 2013

    I was a member of the March surgies and will be joining the April surgery board.



    My margins were not as clear as the surgeon would have liked.

    Also, she had gone wider than typical and picked up tumors in that!



    I am now torn. Dr. says chemo due to 6 tumors (largest 1.8). I get that.

    But, she wants to go back and re-excise to get better margins. If there is cancer in those margins it will mean a masectomy. When I am healed from surgery I will then have chemo, followed by radiation. Apparently this protocol is "equal" to a masectomy in regards to recurrence.



    I'm not sure now if I want to re-excise. I am thinking masectomy of the bad breast. If there should be recurrence after radiation from just a re-excision then reconstruction is more difficult due to the radiated skin! If I have masectomy I was told I do not need radiation in my case.



    I need to make up my mind and get in touch with my breast surgeon and plastic surgeon.

    I have no idea what a masectomy would involve.



    For those going for their lumpectomy I wish you all the best. I thought I did fairly well considering I do not have a surgical history. I did wake up very nauseous, and the feeling wouldn't pass. (I get motion sick, which they say is an indicator I would feel ill after anesthesia). When they told me the kitchen was closing at 7 I made sure to order dinner...the nurse was petrified I would puke, so I only ordered broth and apple juice. I tasted the broth and called back the kitchen and ordered a nice turkey club. I never ate so fast!lol. I think I was nauseous from not eating the night before surgery all the way to 7pm!



    Recovery for me was pretty good. Only needed the pain meds for a few days, Percocet. I don't even know that I needed them for all those days. (I have been reading people were happy to have their leftover pain meds for when they start chemo, make sure to check with Dr. before doing that!)

    Drink lots of water, clean out that radioactive dye if you get sentinel node biopsy, also good for your liver to clean out meds and good for bowels. Also take stool softeners, and Be prepared that it might not be enough. had to go to ex lax , the stool softener didn't cut if for me. 3 days in with nothing to show! (And i was eating a ton of fiber!). But ex lax got me going. I think I stopped pain meds just so I could be regular again.



    Eat lots of protein, good for healing!

    Make sure to rest and take it easy or you will only prolong your healing.



    Good luck Sisters!

    Pat

  • ashleigh
    ashleigh Member Posts: 23
    edited April 2013

    hi everyone,

    just wanted to touch base - i'm almost a week out from bilat mastectomy and reconstruction and finally the pain is gone - but i have to say, my chest still feels really weird.  i guess that's probably normal and it takes a while for things to feel "normal" again. it will probably help to get the drains out in the next few days.

    glad to hear everyone seems to be coping well - whether it be waiting for surgery or recovering from it! this board has been a wonderful support!

  • danawp
    danawp Member Posts: 99
    edited April 2013

    Updating, too...

    Surgery 4/3 - Just wanted to update and share my experience.........

    Definitely ups & downs -- more up than down -- but the down can come and dont be caught off guard by it.  I'm sticking with what I said about it not being as bad as we all anticipate.  Mostly soreness, tightness & discomfort, rather than outright pain.  Pain meds help.  Stay ahead of the pain, as others have advised.  You will be able to sleep and rest.  But, I have had a few low points, too.  Short periods of time where I hurt more than I expected to -- mostly at the end of the night, or when I was due for more pain meds.  Sadness strikes from time to time, too, even though I am so happy to be on this side of surgery!  

    Anyhow, Good Luck & Speedy Recoveries to All of Us!! I dont want to scare or worry anyone -- I just want you all to know that there are low points too -- and push through them -- don't let them upset you too much.  They defintitely pass!!!  Gentle healing hugs to all!

  • Ukkate
    Ukkate Member Posts: 292
    edited April 2013

    Just over 12 hours til surgery. Super nervous :(. Will be so happy to be on the other side of it

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    Ukkate please check in with us when you can so we know how you are doing.

  • argynis
    argynis Member Posts: 123
    edited April 2013

    I am currentlly thinking about getting the TE removed again. The pain and tightness is unbearable and it is getting worse every day - I am so unhappy with this and I deeply regret not having listened to my gut instinct that was against placing a TE from the beginning on.

    My PS agreed on removing it if I want. I am planning on getting a SIEA/DIEP flap reconstruction afterwards anyways so doing the expansion would just have given me a nicer result afterwards. I am not sure if having this kind of pain and tightness for several month is worth a nicer reconsturction result. The longer I wait to decide the more the chemo will be delayed.

    I am no really sure on what to do.

  • Ladyluck11
    Ladyluck11 Member Posts: 9
    edited April 2013

    Sending you hugs!!  I had a bilateral in January 2011.  Chose not to have reconstruction at that time. Mastectomy was a piece of cake. I went 10 months trying to convience myself that all was well but broke down one day after shopping.  Had expanders put in in October 2011 - hell, total hell!!!  Then my implants were put in February 2012.  I wasn't completely satisfied - they were a little uneven, well they were a lot uneven.  Trusted my doctor and he did another surgery after I was healed and evened them up.  I did not have nipple reconstruction but had 3D tatoos.  My boobies are absolutely beautiful!!  It's kind of like having a baby - two years later I hardly remember the tubes and pain - just am thankful for beautiful results!!!

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    THANK YOU Ladyluck - just the kind of post I needed to hear!! 

    ((((KeepSwimming)))) - thinking of you 

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