taxotere side effects

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    well the toe nails and fingernails are getting darker and more weird looking and feeling like they are loosening..have to cut a couple of them down....chemo tomorrow, and back to not sleeping, etc....whatever...

    have a wonderful day and take care of yourselves....nobody takes care of you like you!!

  • SherylB
    SherylB Member Posts: 450
    edited March 2013

    Good morning all Happy 1st day of Spring,

    I am glad to say the SEs are easing as expected they usually last about 6 days all except the taste buds I don't know if they will ever be right again. Finally had a good night sleep which always makes everything look and feel better. Hope all have a beautiful day.

    Hugs, Sheryl

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    Checking in,   Happy spring!!!

    Me, ok went to drs. he said he will talk to the radiologiist, didn't he say that last week, oh yea he did and took vacation, told him that he should have mentioned the vacation thing, had to come back early, something about elderly father..showed him nails he said we could take off a week, I said why I have off a week and whatever....chemo was uneventful....and now am up it is 311am, damn steroids....been up since 1030, slept from 5pm til then, now up...and took 2 benedryl...will try again later....

  • MsW2012
    MsW2012 Member Posts: 226
    edited March 2013

    Hey blondie! I'm up with you now. It's only 1:45 am here in Calif. Stressful times equals sleepless nights. At least either Ativan or Ambien seem to work to get me back, for a few hours anyway.

    My onc cut my steroids in half when they were causing me grief. Is that poss for you? And what is up with the radiologist?

    I hope u r asleep now and that I will be soon. Good night, sending good thoughts your way.

  • carlads
    carlads Member Posts: 241
    edited March 2013

    Hi Ladies,

    I've been awake all night it's 3:10 am here and I decided to just get up.. Can't blame steroids this time.

    Did anyone else have weight gain.. This is driving me crazy. They wanted me to gain before chemo.. I laughed my husband laughed I don't workout and watch carbs and fat intake for fun.. I'm still up 7 lbs since treatment. I talked to my NP she explained the reason makes total sence, but very frustrating. I'll be hitting the pavement again in the morning.. I'm just worried with 2 more treatments to go.. I know in the big picture this is no big deal just has me frustrated: (

  • carlads
    carlads Member Posts: 241
    edited March 2013

    Hi Ladies,

    I've been awake all night it's 3:10 am here and I decided to just get up.. Can't blame steroids this time.

    Did anyone else have weight gain.. This is driving me crazy. They wanted me to gain before chemo.. I laughed my husband laughed I don't workout and watch carbs and fat intake for fun.. I'm still up 7 lbs since treatment. I talked to my NP she explained the reason makes total sence, but very frustrating. I'll be hitting the pavement again in the morning.. I'm just worried with 2 more treatments to go.. I know in the big picture this is no big deal just has me frustrated: (

  • MsW2012
    MsW2012 Member Posts: 226
    edited March 2013

    Carlads,

    i gained during chemo too but figurred Id be more upset if I lost. That to me was scary, having trouble eating & losing wt at first. I ended up with a net gain of 10 but it is coming back off naturally. Lost five so far. I have been otherwise the same wt for maybe 15 yrs or more so it was weird, but ok.

    Hitting the pavement is great! Improves fatigue, mood and healing. That's a habit to hold onto! I used to run but haven t since having kid #2. Walking is almost as good.

    Now if I could just get the hubby to go along...

    Good luck. Try not to worry about the weight. Good to have extra fuel! And its temporary. Walk on!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2013

    For those worried about weight gain keep this in mind - it takes approximately 3500 unused calories to gain a pound.  That means you have to eat an extra 3500 calories and not burn it off - that is actually pretty hard to do, particularly during chemo when many of us are actually eating less.  Many of us gain during chemo but this is due to steroids and chemo agents causing swelling and fluid retention, not actually "real" weight gain.  This is why often once chemo is done the weight comes off by itself as the SEs from these drugs dissipate.  It usually takes a couple of months and the scale returns to pre-chemo weight.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited March 2013

    I lost weight 35 lbs and gained 18 back...there was a nutriionist at the chemo center yesterday and she told me not to go on a diet or anything when I am on chemo... eat what I want, told her I can't exercise...when it gets nicer out I will try to walk a little down the street and see if I get out of breathe and can do it but I tire easily and can't walk far....

  • carlads
    carlads Member Posts: 241
    edited March 2013

    Hi Ladies,

    The board has been quiet.. Hope everyone is doing good with few SE's. Mine weren't so bad on round 4. Round 5 next week.. My nails on my left hand are sore changing color a little but not too dark.. It seems like my left side is effected more than my right.. I wonder if it had to anything to do with the fact I had my axillary node dissection on that side..

    Off to lunch with my chemo buddy.. She was done our last cycle lucky lady!!

    Everyone have a great day..



    Carla

  • jeanieb2
    jeanieb2 Member Posts: 319
    edited April 2013

    Well this has been a very quiet site.  It must mean everyone is doing well.  I just started on Taxotere again yesterday after having 3 months off to recuperate from 6 treatments of it.  I figured I would be back on it just was hoping for another month, but then I would want another and another so this is just the way it is meant to be.  I am hoping that maybe my body will do better with it this time and not so many side effects for the 2 weeks out of the 3.  Has anyone gone back on it after a break and had fewer side effects or was it about the same as the first time?  I just remember the low down feeling around the 4 to 8 day and wanting to cry, and I am not feeling sorry for myself, it just seems that maybe that is when I am so tired and we all get down when we are tired.  When I woke up this morning it seemed like I was already getting off balance, water tasted funny like it usually does by day 4 instead of day 2, could side effects be ramping up already?  It was usually Saturday at noon that I started to fade from my treatment on Thursday but have noticed it already some today. Just rambling, but figured this was the place to do that.  I hope everyone is doing well.

  • carlads
    carlads Member Posts: 241
    edited April 2013

    Jeanieb2- Yes this board has been very quiet!  I had round 5 on Thursday and I noticed with each round my SE's hit earlier.  Water today is awful trying to get it down along with low cal Gatorade, and juice.  I sure hope your SE's aren't as bad for you during this cycle.  I will be done after round 6.  I was a little down the last few weeks because originally I was going to have 4 treatments but I got a second opinion and she said 6 so here I am..  My original Oncologist insisted on the 4 but after alot of research I just didn't feel comfortable with it..  Try to have a good weekend and drink up to get the toxin out. 

    Hope everyone else is doing well...

    Carla

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited April 2013

    Jeannieb2, I have not had taxotere after my first go-round with it, but I read A LOT about it, did a lot of research because I had such a rough time with it, and from my understanding, it would not be surprising that you would be "ramping up" SEs already. Do you usually start feeling "normal" after the first week, or do you only have about 1 week of normal beetween cycles? Sending you gentle hugs and hopes you are feeling much better soon.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    I have been enjoying my week off....I am not a drinker and forget to drink things, got some more propel today....can't smell and taste, but anything water based makes me nauseous.....either milk or choc milk has a good consistency that I need....the Taxotere side effects suck and I agree that the treatment is worse for me then the cancer, lol....

    have a wonderful weekend.....

  • MsW2012
    MsW2012 Member Posts: 226
    edited April 2013

    Hi blondiex46. Ah, Taxotere! I dont have answers but you are in my thoughts. I found carbonated water went down fine when I couldnt stand to drink regular water. And Boost, go figure.

    My lashes still seem too be thinning, after more than two months since last chemo. Fine little stubs. But the brows are starting to come in and I have about 3/4 inch hair on my head. I keep polish on my nails even tho I am no good at it. They are still freaky looking. Toenails too. Best thing is energy! Even tho I just finished #18 radiation my energy level is much better, and no more chemo brain!

    Wishing everyone reduced symptoms and healing and humor. We will be celebrating together down the road!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2013

    blondie- I feel the same way about water for about 10 days after chemo .. I try to drink it icy cold but it tastes so strange and sometimes makes me feel gaggy...iced tea almost tastes as bad - I do drink gingerale, sprite ...

    I only have one treatment to go though so I can deal with it all just to get this over with..

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited April 2013

    The one drink that got me through taxotere was lavender earl gray tea. It had such a pleasant aroma, and the taste was OK compared to everything else. Someone on the alternative meds suggested that lavender is not good for breast cancer, but I could not find any evidence in any of the complimentary medicine literature or textbooks that indicated it was bad, and my MO didn't have any problems with it, so I drank. Now I hardly ever even want lavender tea - maybe it just brings back memories??? I also put a few drops of lemon or lime juice in a glass of water, no sugar, just very lightly flavored.



    Another helpful hint for myself was to fill all my water bottles for the day and put them in the refrigerator, so I could pace myself. Keeping the water bottle by the bedside during bad fatigue days helped in not having to get up to go get a glass or cup when I just couldn't force myself to move.



    Keeping you all in my heart.

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    thanks ladies

    Linda I have to get some of that...makes me want to run out and get it, lol dont care if it is good for me or not...

    A friend of mine gave me a dorm refigerator and that is in my room....I live with 19 year old twin boys who don't take care of me, (although I have 3 older ones in the area but they don't take care of me either) i have become dehydrated twice because of lack of drinks (and I am not a drinker and forget to drink things)  and when it is bad have to force myself to eat and drink so at least.  Water is really horrible for me....Fridays tend to be the worse...loving my week off, I remember when I used to feel somewhat normal, even without the water and twitching eyes, runny nose, bloody nose...etc.....

  • MsW2012
    MsW2012 Member Posts: 226
    edited April 2013

    Yes, ginger ale! That also went down easy. I kept it in the cabinet so when I poured it over ice it would water down and I could drink more. Blondie, I indulged in whatever felt good going down. First things first! Ease the misery, then start thinking about nutrition. I ate a lot of mashed potatoes, eggs and oatmeal.

    Wishing you better days, plenty of rest and hydration. <3</p>

  • blondiex46
    blondiex46 Member Posts: 5,712
    edited April 2013

    LOVE mashed potatoes and eggs...not sandwhiches so much...

  • IamNancy
    IamNancy Member Posts: 1,158
    edited April 2013

    I eat eggs everyday - my protein... I love oatmeal but haven't eaten any since I started treatment - I am a little afraid whatever I eat now, I may never want again after treatments..

    today I have one eye that is constantly watering - driving me crazy!

  • jeanieb2
    jeanieb2 Member Posts: 319
    edited April 2013

    Linda-n3 - My first Tax treatment on Sept. 4, 2012, I had almost 2 weeks normal but then it went to only one week of feeling ok, the week I went in for treatment again.  I had 3 months off and started again on Thursday and yesterday the water started to taste different.  I can do not like tea at all even when I am feeling ok, I love coffee and will drink one cup of decaffeinated a day after treatments begin as I know caffeine can dehydrate a person and that is not what we need.  I can not seem to drink carbonated beverages during this time, I drink water and Gatorade and try to drink as much as possible but always have to go in a week after treatment because I am dehydrated, then get my Neulasta shot at the same time.  By Monday of that next week I am feeling a tad better but it is another week before I feel kind of normal.  I have found that I can not eat hot foods I gravitate to cold things like applesauce, pear cups, Peanut Butter and boiled eggs, some protein drinks in milk and Boost, if I can.  I lost 10 pounds last time from September to December, which does not hurt me one bit so I am not worried about that but I know you have to eat to keep up your strength so I do what I can.  I just wondered if side effects on the second 6 rounds gets easier or harder.  I will do 3 then scans and then 3 more before a break again, unless something changes. 

    Carlads - When I started this in September I was told I would have 3 treatments and I thought I would be done so thought this will be great, but then I went and he did scans and said we would do 3 more rounds, but that was ok, then when they were up I wanted to keep going 3 more to get this down as far as I could but the onc wanted me to take a break and he was right to have me do that, I feel great, or should I say I felt great :) but I know this is my life from here on out on chemo take a break, on chemo take a break, but I can do it.  I did CMF 21 years ago and was able to get rid of it because it had not spread.  I started Xeloda and took that for a year before it spread more then started the Tax along with that so I have lots of options for different chemos if I should need to or if I just can not tolerate this, but I figure I did it before and know what to expect this time and also know that this is a very good drug and who knows maybe some of the others I would not tolerate or they would not work so I will do this as long as I can.

    I hope I do not sound like I am complaining, I am not.  I like to hear what helps other people because I will try whatever may have worked for them if I can. 

    I have gotten my eyelashes back, they came back sooooo fast it was unbelievable, my hair is about an inch and really growing but I suppose that will stop again, or will the body adjust and the hair keep growing, not that it matters, my wig makes me look youngerLaughing, and who does not want to look a little younger.  I just thought maybe our body would adjust to some of this and the things would be a little easier.  I did notice tonight eating that my taste buds are already starting to change and that usually happens on Sunday, maybe they will come earlier and leave earlier.  Thanks everyone for the feedback, it is good to see people on here again, and that they are doing well or what they have been up to.  I like the idea of filling water bottles and then knowing exactly how much I have drank.  I have a large hospital cup that I keep filled with water and ice and just drink throughout the day but do not actually know how much I drink, probably less than I think I am doing, so I may try the other way.

    Hope everyone has a great weekend, I think Spring has finally hit Nebraska.

  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited April 2013

    Jeannieb2, I sure hope spring is going to arrive soon and STAY for you! I think it looks like you have had a long cold winter (the Weather Channel is one of my favorites!). And I also underestimate my fluid consumption, so keeping the water bottles filled up at the beginning of the day really helps, and anything OVER that amount is just icing on the cake.

  • jeanieb2
    jeanieb2 Member Posts: 319
    edited April 2013

    Linda-n3 - How much water or fluids do you try to take in in a day?  I try and drink as much as I possibly can but there are days where I have a hard time, but I do it anyway.  I know days 4 through 8 are the hardest, that seems like the time I am the most tired and lay down and sleep in the morning and afternoon so I do not get as much fluid as I think I should.  I do keep a glass by me all the time and when I get up drink what I can, also drinking that much I usually wake up every hour or two to go to the bathroom and then drink as much as I can when I do that either during the day or night but have never really measured it.

  • MsW2012
    MsW2012 Member Posts: 226
    edited April 2013

    I was just thinking I hardly drank at all during chemo & never got dehydrated. Then I remembered the sparkling water, two small (12 oz?) bottles on a good day, plus lots and lots of Lipton instant chicken noodle soup. Broth always felt good going down. Late in the game I discovered lemon ginger herbal tea also felt great.

    Chemo is behind me now and radiation more than halfway over. I never have been able to think ahead to the next phase of treatment. I wonder when I will feel like having final recon surgery, and whether I will want an implant at all. The expander has been a literal pain. But I will cross that bridge when I come to it.

    Wishing good recovery to all.

  • jeanieb2
    jeanieb2 Member Posts: 319
    edited April 2013

    I started back up on Taxotere after a 3 month break.  I had taken it for 6 rounds the first time.  I have noticed quite a bit of pain in the hips and bones, just aches and pains.  Running a low grade temp which I did the first time also.  This is day 5 if you count infustion day.  I do not remember the bone pain, does anyone else have that same problem?  My bone scan was stable and I just had that on April 2 so I am thinking it is the Tax.

  • MsW2012
    MsW2012 Member Posts: 226
    edited April 2013

    I had some joint pain but figured it was from the Neulasta, in case that helps you. It came and went, mostly during the first two months.

  • MsW2012
    MsW2012 Member Posts: 226
    edited April 2013

    Here is another encouraging article from cancernetwork.com. More conclusive evidence of cancer prevention using omega 3s in diet. 30% fewer breast cancer tumors.

    http://www.cancernetwork.com/breast-cancer/content/article/10165/2132783

  • Maddie57
    Maddie57 Member Posts: 296
    edited April 2013

    Hi Jeanieb - Taxotere is known for causing chronic bone pain, so hopefully that is all it is. Hope  you are feeling better soon. Two lots of chemo are take some doing - you are one brave woman!!!

  • carlads
    carlads Member Posts: 241
    edited April 2013

    Hi Ladies,

    Did any of you have your tumor markers done during Chemo?  I had my baseline done before and it was great 19.  I was told at that time I wouldn't have it done again until after Chemo was done, I just found out today they are doing one at my last treatment..  doesn't make much sense to me due to the fact Chemo can cause a false rise..

    MsW2012- Great article.. I take mine everyday along with my "D" which I just also found out is still low..

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