what's the best thing people have said to you?
Comments
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What a nice thread. New direction - your son is too adorable!
I enjoyed being told: that I was courageous, by my mother, and that I had such a positive attitude, but the nurse just after I had my BMX. Lots of sisters hate being told those two exact things, but amidst my worry over cancer, I was happy to take any compliments I could get.
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mrenee what a great husband you have! thanks for your words.
Lisa and Hightide that went straight to my heart. Maybe its the unexpected warmth from a stranger that reminds us that what really matters is compassion and community. I sometimes feel so alone but feeling alone is impossible when I think about all the similarities we all share as human beings.
Athena really like your "bottom line". -
Really nicely said, New Direction!
I agree as well...Great 'Bottom Line' Athena, especially as I consider NOT starting Tamoxifen...and dealing with the what if...
Happy Friday Everyone!!
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I once read on here somewhere that one of the member's Oncs told them something (as they were about to embark on treatment) to the effect of: "this will be 1 messed-up year... but you're going to be OK"...
To me, it captures the acknowledgement that this journey is hard and terrifying and unbelievably upsetting and life changing----but still manages to offer what everyone so desperately needs------HOPE.
Please keep this thread going. -
My mother gave me her well-used, 40 year old copy of The Hobbit. She told me that it got her through many difficult periods in her life. I had not read it since I was a child and was surprised to find that almost every page had something to lift my spirits.
“Go back?" he thought. "No good at all! Go sideways? Impossible! Go forward? Only thing to do! On we go!" So up he got, and trotted along with his little sword held in front of him and one hand feeling the wall, and his heart all of a patter and a pitter.”
“So comes snow after fire, and even dragons have their endings.”
I realised I was on a journey that I didn't choose and I had no idea how to handle, but I would make it through.
Definitely recommended for the chemo reading list!
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rc1, That gave me goosebumps!
I had forgotten how much I loved that book, so long ago.
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"Do you want a prescription for Xanax?"
Asked by one of my doctors (not directly involved with the biopsy) when she heard the news
I know it's not very inspirational, but it was great to have someone care enough to check in on me and offer me something that really did help in those first weeks. -
My last boss sent me a birthday cake with a card that read, "Happy birthday, one of many, many, MANY more." At stage IV, I sure needed to hear that. How unbelievably kind.
My oncologist was non committal, but my chemo nurse kept telling me I was going to survive. That weekly vote of confidence meant the word to me. Like a small child, I really was paying attention to what the medical folks around me were saying, and I needed to hear something nice. God bless that nurse. I love her and all the other lovely ladies in the chemo lounge. They were and are my biggest supporters. -
After my Breast Surgeon leveled the news - Stage 3 Triple positive, Mastectomy, 5 months of dose dense chemo, 33 rads, and anti-hormonal treatment, she looked me in the eye with the most compassionate look and said, "WE CAN CURE YOU."
I didn't believe her at the time, but she gave me hope. I had those words painted on my dining room wall 10 inches high. In the darkest days of chemo, I would sit and stare at those words. I am looking at them now. They have gotten me through so much!
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I have a friend that went though Anal Cancer, Stage 4. I was mad, sad and just whining about all of this and told her " I want my life back" , she said "well thats up to you TAKE it BACK!"
I knew at that moment it was up to me.
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Love it, rc!! Thanks for sharing!!!
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"Most women survive breast cancer. That is a fact".
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After posting on another thread how alone & angry I'm feeling today, these positive comments were great to read, thanks. So maybe recounting a few of mine will help not just me,but someone else too.
I'm a teacher, and the former principal of my school, with whom I had had some issues, called to tell me I could call her anytime, she'd been through BC with her mom, she wants to take me to dinner before chemo begins, then ended conversation with, "I love you." I don't remember how I responded! "Thank you," I think...I'm not ready to say it yet!:)
I teach 7th grade, I was honest with my kids about what's going on without going into too much detail, but one girl who always says WHATEVER'S on her mind blurted out, "so you're going to be flat chested!?" The poor little boys in the class were mortified & asked if we could PLEASE change the subject!
One boy, whom I've known for several years, cocked his head and said, "I'm trying to imagine you with RED hair.. red hair would be good."
The week before I went out for my BMX, a girl refused to come into class, said she had to sit in the hall. She sometimes has behavioral issues, so I asked her if she was having a bad day. She told me she had a cold and couldn't be near me because I could NOT get sick...her grandmom was just finishing up chemo & she knew all too well about immune systems...so sweet, I almost cried! (She sat at a desk right at my doorway for 3 days!)
The nicest things people have DONE for me are overwhelming. My sisters & BIL bought me a kindle fire (which keeps me on this site!) for all my downtime, waiting time, chemo, etc. Also, I visited my school Wed. & they were doing a casual day fundraiser for me to help pay for hospital travel expenses. I was so overwhelmed I couldn't open my envelope til later the next day. They'd given me over $400, and the staff is only like 60 people total. Angels... -
What a lovely thread. People often don't know what to say to me....some have said the wrong things, but things are all wonderful.
After explaining that I have a tumor, my 10 year old son said "well let's get that booger out so we can celebrate big!" -
grover...the girl with the cold, so touching! Goosebumps as Arion would say...:) xo
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hello, my oncologist said to me, when I sat in her office crying saying I couldn't cope with diabetes, DVT, breast cancer, menopause, etc.. "well, you don't have breast cancer any more, so knock that off your list"... so simple, and true. Forgot that it was removed, chemo does that to you!!
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I stayed overnight in hospital for my first chemo and, being Catholic, arranged for a priest to visit and give me the anointing of the sick. When my onc visited my bedside and I mentioned it to him he said 'you are already cured'.
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"Most patients who are diagnosed at stage 2 take treatment, recover, and live out their natural lifespan."
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My wife's roommate in the hospital when she had her BMX was an 82 year old grandma who arrived in the middle of the night and the next morning was talking through the curtain with my wife when I got there that day.
Knowing why my wife was there, she asked to have the curtain drawn "because you sound so beautiful, I want to see your face"... I pulled the curtain and this woman said: "Oh, I KNEW it! You ARE beautiful!"
She then went on about her grandchildren... and she paused and looked my wife in the eyes... she said: "Just wait until YOU have some of your own----and you WILL."
I turned my head and fought back tears. My wife's face was aglow. This woman was delivered to us by the angels. -
When I completed Chemo and Rads, myself and a very close friend took a victory trip to Vegas and then on to Texas to visit my sister and her family, while I was there her family planned a birthday party for me.
My great niece who was about 10 years old and high functioning autistic gave me the most amazing present. When she handed it to me her mother, my niece said, "I thought you should know that I had no idea what she planned on giving you and had nothing to do with it".
I opened the gift and found a heart shaped box that she painted black, outlined it in pink, drew a pink ribbon on the top and wrote "Fight Women". Everyone had to fight back the tears. My next gift from her was a small stuffed rabbit dressed in a medical scrub uniform with a note attached to it, "I am giving you this bunny so he can help you get better just like he helped me get better." A few years prior she had I think (chemo brain) her tonsils or appendix removed and I sent her that bunny.
No one could hold back the tears, we all were crying tears of joy and her mother was beaming.
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The best thing that I got out of having cancer (which I know sounds crazy) was being able to share my testamony about God's love and will with other people who went thru chemo with me. I know that God had a purpose for me to have cancer and I had to use this terrible thing in my life, turn it around and use it for his glory. I am 4 years out now! Giving him the praise for that too!
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Bump.
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A little voice told me last night to watch a TV program.
It was late. I was tired from a full Easter Sunday at family's.
I should have been in bed long ago. But fate had me on the couch watching TV in the dark.
There was a program on about Jim Valvano called "ESPN 30 for 30: Survive and Advance".
Valvano was a college basketball coach who led an underdog team to a championship exactly 30 years ago. It was such an improbable and magical journey. They had been winning games by they skin of their teeth over favored foes.
Valvano's motto was 'survive and advance'.
Fast forward 9 years and Valvano was diagnosed with cancer. This was all part of this program---and I was askIng myself WHY am I torturing myself watching this? I knew that Valvano fought for 10 months before succumbing to his very aggressive cancer (they never determined the origin). He passed away 20 years ago. So WHY am I watching? It wasn't even that it was a cancer like my wife's. Why am I still watching?
I stayed tuned to try to figure it out. I have this thing where I try to find meaning, now more than ever.
They showed a speech he made weeks before dying. He said things like:
"Don't give up. Don't EVER give up".
"Do 3 things every day. Laugh. Think. Cry".
I wondered if that was what I needed to stay tuned for.
He also said things about cancer affecting his physical abilities, but that it could not touch his mind, his heart or his soul... and he announced the starting of the Jimmy V Foundation, because as he put it, he may not be saved---but maybe a loved one could be.
I went to bed sad.
This morning I googled what kind of cancer he had... then it hit me. I never knew this before this morning... In August of 2005---12 years after his passing---his middle daughter Jamie Valvano Howard was diagnosed with breast cancer. She was 33 and had BMX and chemo. And today, she thrives.
THAT was why the voice told me to watch. NOT to be reminded of Jim Valvano's fate from a cancer unlike my wife's-----but the success of his DAUGHTER with a cancer that is more similar. I am not sad when I think of Jimmy V now. I think how his experience may have saved his daughter through extra vigilance. And I am encouraged for my wife.
If you are not familiar with Jim Valvano, do a search for inspirational quotes by him. You need not be a sports fan. -
I was having a hard day today. Just one of those things with my wife's diagnosis. You're kinda ok one day (or hour), then not so much the next.
There isn't any other place in the whole world that understands that better than this place.
Well, today angels sent me LizR.
Here is part of what she said to me today:
I hope my message can give you and your wife continued hope (I am a 8+ year survivor with very very similar stats to your wife)...
I am thriving...
I want to let you know that things will get so much better and will return to normal (well, maybe a new normal)...
I have been saved for another day by yet another beautiful lady here.
You have no idea how much I needed this right now. -
thank you for your stories. I need them so much these days. Coming here today has given me new hope.
I was searching for spirit lifting quotes and found these. Maybe some will make you smile or feel better as well.
http://pinterest.com/oneagleswings/quotes-that-lift-the-spirit/ -
This wasn't even said TO me.
But it may have been said FOR me as it was being said to some stranger I'll never see BY someone I do not know.
Having another tough day. I don't know why.
I am leaving my office, locking it up and there's a woman speaking in a thick accent---but I can make out what she is saying with all the conviction in the world to someone on the other end of her cell phone.
This is what I hear.. and I make out nothing else but this:
"There is nothing... NOTHING God cannot do... Your wife is STRONG... Do NOT worry for her... She will be alright."
A wonder that I was there just then to hear that.
Bless you all. -
Your posts give me chills Colt45.
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Driving home from work tonight, I went a different way than usual because of road work...
I came to a red light and heard music as I sat there.
I rolled down my window to try and identify the song. It was an instrumental with chimes coming from the church on the corner.
As I stared at the church and listened intently, I could not make it out...
But I COULD make out what the marquee on the lawn said,,,
In the biggest letters: "BELIEVE". -
Weeks ago, in bumper to bumper traffic, waiting in line to get to the on-ramp, I am stopped under an overpass...
Creeping along in my car, I have plenty of time to read something misspelled that has been scrawled on a wall there...
"The Lord is my Shepert"
It is written on top of the neutral paint the city workers used to cover up all the OTHER graffiti.
As I take that same route on subsequent mornings, I am delayed to the same crawl under the same overpass... and I notice that only after you read the graffiti-----about what I have learned is connected with Psalm 23-----can you see a church in the distance, clear as day, framed perfectly by obstructions that completely blocked it just moments before (trees, houses, the overpass columns)...
Could the desperate, illiterate soul who scribbled that KNOW that his message was placed SO perfectly for commuters to read, then immediately SEE the church only then---but not a moment before?
I tell you this: I'm NOT a religious person. I won't get into it here so as not to offend. I DO 'talk' to Him a lot---whoever He is... maybe I just talk to who I HOPE He is. I couldn't explain myself regarding this to anyone, I suppose. I don't even know where I stand. Heck, I had to look up "the Lord is my Shepherd" just to know what it said...
Then I read this:
"I will fear no evil, for You are with me;
Your rod and Your staff, they comfort me.
You prepare a table before me in the presence of my enemies.
You anoint my head with oil; my cup overflows.
Surely goodness and love will follow me all the days of my life, "
The whole series of events is peculiar.
I choose to extract some comfort from them.
Bless you all. -
Love reading everyone's stories! I have had several people tell me that I am an inspiration or very brave, and I never quite know how to respond. I do appreciate it though, because as the saying goes "you never know how strong you are until being strong is the only choice you have".
A few months ago, a friend sent me a box full of stuff that was individually wrapped like notebooks, candy, pens, little notes, kleenex, lip balm, etc. with a sweet note. It was such a sweet gesture, and I got a lot of joy from opening each item. I am currently getting individual puzzle pieces in the mail with a little note on one side and a part of the "puzzle" on the other. I think it is coming from the same person, but I'm not sure so I keep anxiously awaiting the next piece. Both of these were such cute ideas that I want to remember them to do for someone else in the future.
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