Calling all TNs

Question for you ladies?  Which one of you sent me a PM with 3 links (or 2) to the Metformin information. If that is you, will you please either send them to me again or PM me it was you, so I can find it in my PMs?  I have been looking for hours and can't find the information in my PMs.

LOL!  )

Unfortunately for us this is true!!

welcome Karietkq...I am happy that you found us but sad that you have had to join.  You will find support knowledge and friendship here.  Ask about anything.  The decision for a double should be yours and yours alone.  Please be tested for the BRCA mutation as well with the family history there..that too should be covered by insurance...mine did because I was under 60 and diagnosed with TN.  You can do this!  I had three lymph nodes affected and am now over a yr and half out.  We wish you all the best as you travel down this newly found path....dont be afraid to stop and ask for directions....there are some very smart gals here and we are here every step of the way as you tourguides

Maggie

Maggie-

I am 43 as well! I have 3 grown kids....24, 21 and 19. Both of the older onest are boys, both Marines, tithe oldest is married and I have an 18 month old grandson.... My daughter is a Dance Education Major at ECU. I have asked about BRCA testing but no one seems to know who orders the test.... I am guessing the oncologist since he is the only one I haven't seen yet... I was very pleased with the speed in which I was diagnosed.....15 days from the time I found it but the surgeon who did the biopsy and gave me the results was old as dirt.... He walked in and said.... You have invasive breast cancer, what do you want to do? Don't know.... Then go home and google it and let me know...... Then he left.... I got nothing more...... I went back to my actual dr to get a referral for a second opinion and she was out sick... For a week.... Finally while waiting for my appointment with her I heard from the surgeons office and they got me in with a different surgeon who ordered an MRI and scheduled me for surgery.... They put the old guy on a sabbatical for the rest of the month but where did I see him again???? On my way to the operating room.... He was assisting my new surgeon....ugggg! There was no evidence of anything in my left Breast on the MRI so Tricare would not cover it.

Karietqk...I'm glad you found us. I started this journey back in August. At first I googled everything...WRONG thing to do. Most of the information is not up to date or is very negative towards TN. Now, I just stay on this site as I have received so much support, advice and friendship. Once you see your oncologist, they will get you on a treatment plan and things will move forward. Best of luck to you!

I was 43 at dx also!  Katie, I think it's very hopeful for you, that your Sister has been a survivor since 2006! You can do this, just like she did!

Hi Ladies, It's been a while since I have checked in. I am rolling up on my 1 yr post treatment, and my 6 month followup mammo. How time does fly. The 16th is my mammo, so here we go again with the pre anxiety.

To all teh new girls, I am sorry you have to join our cruise ship, but know this is a great place to get answers to questions, and a shoulder to to cry on.

Karietqk, I see you have tricare like me. As for the double mx-get the BRCA testing complete, then your surgeon will have more info to fight the denial. My surgeon ordered the BRCA foe me.

Hi girls-

So...... Just came from my follow up......it was in 3 of 13 nodes.....surgeon is dictating a letter for tricare.... Will be asking oncologist to do the same....from what I understand this will most likely make me stage IIIb, right?

Karietkq...not sure about stage..depends on size of tumor as well...was it in two spots same breast? You and I have nearly same diagnosis...3 nodes too! My insurance has sometimes been a pain (making me get chemo and rads at a hospital) but when it came to the bmx I had no issues. Makes me mad that they feel that they candictate our surgery options..grrrrrrr! Go to the top if you have or maybe your surgeon can go to bat for you if this is your choice...again the brca test comes into play. Sometimes we must be our own advocates. It get easier once the treatment plan is in hand..sounds weird but it is like you have the battle plan and warrior mode kicks in...be strong my sister



Maggie

Maggie-

Yes..... One was 3 x 3 x 2 the other was 1.5 x 1.5 x 1.5 ..... So maybe it will still be stage 2??? That seems (in my head) so much better than than stage 3.....

Hi ladies,

I have lurked on these boards for months now, but this is only my second post.

I am 32 years old and was diagnosed this past Oct. at the age of 31, and while 6 months pregnant. :-(

My husband actually found my lump. It seemed to come out from nowhere, as many if you have said as well.

I had an ultrasound on a thurs. then the next day a mammogram and biopsy. By mon. My OB called to tell me it was cancer.

At the time of my biopsy they noticed that I had an enlarged lymph node which they chose not to biopsy because there was fluid in the mass in my breast when biopsied. They now say the fluid was due to the fact that I was pregnant and my breasts were getting ready to lactate.



I made an appointment with a surgeon, who did biopsy the node which came back as positive for cancer.

I had surgery on Nov. 12th while still pregnant. I had skin expanders put into place.

My pathogy report came back showing my tumor was 5 cm in size. 8 nodes were removed, none showed cancer. Apparently all the cancer cells were removed at the time of my biopsy from the one node that did show cancer.

My margins did not come back clear on all sides because my tumor was pressed up agains the muscle, but my surgeon said he was certain he got it all (fingers crossed).



I was induced and gave birth to a perfect baby girl on New Year's Eve.

Had surgery for my port on Jan. 3rd, started chemo on Jan. 7th. I had 4 rounds of DD A/C followed by 4 rounds of DD taxol. I have one more taxol treatment to go before I start 6 weeks of radiation.

Around Christmas time I did notice another swollen lymph node which scared me, however the chemo has shrank it to the point that no one can feel it anymore.

Also during a routine ultrasound on my heart last week they found a fluid filled "something" on my liver. This makes me EXTREMELY nervous, however I'm hoping the fact that its fluid filled means that it is just a cyst and not the spread of my disease. I had a CT Scan on Wed. Still waiting for the results, but trying hard to stay positive.



Jennifer

Sunnyskys...welcome. First just take a deep breath. We are here to help offer support and encouragement as well as advi e from those who have trudged this rd before you. This is certainly a big de ision that ultimately YOU must make. I cnose thebmx because I am an A type personality and knew that I had to for my own peace of mind. Careful of google and use only trusted sites like this one and tnbcfoundation.org. My hubby was a boob man. But when diagnosed he asked the surgeon flat out "what would you recommend if it were your wife?" The answer was bmx....do what feels right to you. Hugs as you begin this ride of your life



Maggie

Maggie-

Too strange about our similarities! The small one was not IDC it is carcinoma with mataplasia with mixed type.....cartilaginous/ osseous and spindle cell mataplasia

phgraham, Happy Belated Birthday or as happy as we can make it with the cards weve been dealt. I'm sorry that you are going to have to go through chemo again, what will they give you this time and for how long? I'm pretty new to this so forgive me if I ask some dumb questions. I had 1/2 my treatment yesterday (happy bday to me lol), my ALT was up to high again so I didn't get taxol but received the research drug. Thats 3 missed taxols so far. Take Care and I admire your cheerful attitude. Gave me a smile before I doze off