Sleeves and insurance

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  • Binney4
    Binney4 Member Posts: 8,609
    edited February 2013

    M1K, I sent you a Private Message.Smile

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  • purple32
    purple32 Member Posts: 3,188
    edited February 2013

    Binney

    Thanks for posting the link. I hope everyone will get involved...regardless of age.

    We're all in this together.  Besides, our hope is to become old enough to BE on Medicare someday !

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  • M1K
    M1K Member Posts: 4
    edited February 2013

    Well, Purple, I took your advice and got in touch with AARP.  Response and original message below.  for those over 50 their preference survey looks interesting.  Think if we "oldies but goodies" all took the survey and put down of interest Medicare covering compression garments it might just take off?  If we do it before Apr. 1 one of us might win $25,000.  Just think of how many compression sleeves you could buy with thatInnocent



    -----Original Message-----
    From: bulletin <bulletin@aarp.org>
    Sent: Tue, Feb 12, 2013 12:51 pm
    Subject: Re: Lymphedema Treatment Act << Reference ID: 1446210 >>



    Dear Ms. Knowles:

    Thank you for contacting AARP. We appreciate hearing your thoughts about Medicare and Lymphedema care.

    We are always appreciative of member feedback on issues affecting the over 50 population, and we have taken note of your comments. Views like yours represent a critical resource for shaping the legislative policies of AARP. The Association reviews and develops public policies each year through an ongoing process that begins with member input and includes careful policy analysis. These activities help the Association's leadership reach important policy recommendations. We certainly hope you will continue to share your thoughts and ideas with us.

    If you'd like to know more about our current policies and legislative advocacy; please visit our website at www.aarp.org/politics-society. From there you can also sign up to receive legislative alerts by email by clicking on "Legislative Action Center" along the left-hand side of the page. Additionally, you can find information about your AARP state office legislative activities online at www.aarp.org/states or call us toll-free at 1-888-OUR-AARP (1-888-687-2277).

    We look forward to continuing our relationship with you and working to positively impact the lives of our members, their families and society as a whole. Thank you again for your dedication to this issue. If there is anything we can discuss with you in the future, please don't hesitate to contact us.

    Sincerely,

    Siva
    Member Communications
    Member@aarp.org



    AARP, Real Possibilities. Visit www.aarp.org/possibilities.
    Toll-free 1-888-OUR-AARP (1-888-687-2277) TTY: Toll-free 1-877-434-7598

    Log in or register at www.aarp.org/emailupdate to keep in touch by email about AARP activities, events
    and member benefits. Follow us on AARP Facebook or AARP Twitter.

    Take our short preference survey to tell us which topics interest you and enter for your chance to win $25,000. Ends April 1, 2013. See Official Rules.

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    AARP, 601 E Street NW, Washington, DC 20049

     





    >> Original Message ...
    >> To: Bulletin@aarp.org
    >> Subject: Lymphedema Treatment Act
    >> Sent: 02/12/2013 09:46
    >>
    >> As a valuable advocate and resource, for the older population, I thought you would be interested in the following regarding Medicare and lymphedema care. This situation definitely appears to be discrimination against older women with complications from breast cancer. Before I went on Medicare, my medical insurance allowed compression garments which have helped me to keep mild lymphedema under good control. Now that I am on Medicare I am not afforded that most important, first line of defense. I fear what this situation will eventually do to my quality of life. In the end it is not just breast cancer we must survive but the after effects of treatment, as well.
    >>
    >>
    >> Many health care providers and the population, in general, are not aware that Medicare does not cover compression garments for breast cancer patients with lymphedema? As the majority of women who contract BC are older, this is a serious issue for those who endure lymph node surgery and as a result have their lymph system compromised and suffer from lymphedma. This includes 20 to 30% of women who have endured surgery for BC. If you are on Medicare this simple inexpensive method of control is not covered and must go on to more serious,, more expensive to treat, issues before treatment is covered. Currently there is a measure before congress to change this situation, not only for those with Medicare, but also those with primary lymphedema who do not have their needs covered. Your support of the Lymphedema Treatment Act would be most appreciated. More information can be obtained at the following website.
    >> www.LymphedemaTreatmentAct.org
    >> Thank you for your time and consideration in this matter.
    >>
    >>
    >> Sincerely,
    >> Mary R. Knowles

    >
    >>




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  • purple32
    purple32 Member Posts: 3,188
    edited February 2013

    Thanks, M1K!

    I'll take the survery and hope everyone else here will .( Perhaps  we could post it on some other threads as well ?)  I surely will pass it on to my area LE support group.

     Every little step is a move forward .

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  • Journey
    Journey Member Posts: 905
    edited March 2013

    The Women's Place at Northside Hospital in Atlanta just sent me to collections for my 2 sets of Juzo compression sleeves and gauntlets for Lymphedema that I ordered from them last May.  I have talked with at least 3 of their billing folks and Humana over an over for the last several months and no one can help me.  So I will pay the damn $548 to the collections agency as I now have a gun to my head.  Screw ALL of them. 

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  • Journey
    Journey Member Posts: 905
    edited March 2013

    And now it's time for new sets as my $548 ones are wearing out with use. 

    I HATE LE! AND INSURANCE!  AND FRIGGIN WOMEN'S CENTERS.  Yell

    Okay... I feel just a little better.

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  • M1K
    M1K Member Posts: 4
    edited March 2013

    Journey,

    I totally sympathize as I am in the same boat.  You may want to check out

    www.LymphedemaTreatmentAct.org

    to find out how you may be instrumental in changing the "frigging" system.  I am so sorry you have to go through this with all the stress and frustration that is involved.  It's a good thing stress doesn't play into recurrance or we would all be doomed!

    Take care

    Mary

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  • purple32
    purple32 Member Posts: 3,188
    edited April 2013

    I am now the liasion in MA .  If anyone lives in MA. please PM me and add your info to out list for the LE TX ACT.

    Thanks!

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