April will be my turn, can we share hugs?

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  • bobogirl
    bobogirl Member Posts: 2,777
    edited April 2013

    Amy, you are one of our own.  Please wait here with us!

    I will write you down in my own calendar -- the 12th.

    XXXXXXX00000000

    Hugs, Bobogirl

  • Ukkate
    Ukkate Member Posts: 292
    edited April 2013

    I'm scheduled for a mastectomy on my left breast with reconstruction on April 10. I have two tumors and DCIS so I'm not a candidate for a lumpectomy. I'm so nervous about recovery. My husband has to work so many nights this month and our kids are still so needy (13, 11 and 6). Plus I have a dj business and I'm scheduled for a gig on April 20th. I will start chemo 4 weeks after surgery. I'm anxious to get started but so scared too

    Kate

    HER2+

  • argynis
    argynis Member Posts: 123
    edited April 2013

    I will have my mastectomy (right) and lymph node biopsy (with eventual axillary direction) on the 3rd of April with TE placement. I wish you all the best!

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Welcome Amy, Ukkate and Argynnis,

    Sorry you have to be here with us, but it is comforting to know we are all here for each other.

    Kate, I too have been very nervous about recovery, I find strength in these women as we travel this road together. Remember you need to take care of you! Sounds like you are a very busy woman, you may want to have your kids help you put together a basket of items you will need handy while you recover. Have refills so the kids can replenish when necessary. They will feel needed and its amazing what young kids can do. I wish you all the best.

  • gonegirl
    gonegirl Member Posts: 1,871
    edited April 2013

    Hey, all:  found this thread and wanted to make an offer.  I have two camisoles with pouches for drains for after the surgery.  I got them from this website from another kind soul and wanted to offer to send them to the next lucky person.

    I have

    -1 in size XL

    -1 in size 3X

    Happy to mail them wherever.  Just let me know.  Always good to spread the love. 

    Good luck. My bits of advice:

    1) take the pain killers as instructed and don't try to tough it out;

    2) take it very easy and do not lift or drive until cleared;

    3) get physicaly therapy no matter what if you're getting implants or reconstructions. this is a stress on the muscles.  i had a great deal of trouble after until i found a physical therapist who did deep tissue and myofascial release. the pain is not worth it.

    susan

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Tomorrow is April 3rd, a big day for our sisters.

    Sending warm and comforting hugs {{{{{{ Annie2102, danawp, Ashleigh and Argynnis}}}}}} for successful surgeries and quick recoveries.

    We will  be waiting to hear from you when you are up to posting.

  • Ukkate
    Ukkate Member Posts: 292
    edited April 2013

    Should I invest in a cami like that? What would you wear otherwise???

  • Shellshine
    Shellshine Member Posts: 1,039
    edited April 2013

    I will need drains again for my exchange surgery next month, and have decided to go down to Goodwill and buy two button down cotton shirts and sew little pockets on the inside. The drains rubbing against my skin started to bug the crapola out of me by day 3, so I will wear a regular cammi underneath and have the drain tubing lie between the cami and the shirt. I will still safety pin them inside the puch so they don't get yanked on when I take a nap.

    I need to get outside in nature right away to feel better, so I think this get-up will work fine. I didn't want to spend the $ on cami's with pockets for only a week's use, but it ended up being 10 days and now I need to have them again!

  • danawp
    danawp Member Posts: 99
    edited April 2013

    Thanks for good wishes for all of us who are going on the 3rd.  Glad I found this board...Definitely helps!

  • Dianarose
    Dianarose Member Posts: 2,407
    edited April 2013

    looking at your posted dates for surgery reminds me of where I was last April. The hospital gave me a couple of the camisoles with pockets, but it was easier just to clip them to the inside of the shirt.

    I had therapy right after the drain tubes came out. It was the best thing I did. I couldn't even get myself dressed at first. It hurt for about an hour after therapy, but then I felt so much better. It was nice to keep getting more range of motion. I went back to work 2 weeks after surgery which I think helped as well because it kept me active and using my arms.

    I am looking forward to ridding myself of these dam expanders in about 10 weeks. They look nice in a t-shirt, but totally suck to sleep with. I was reading that the maker of the expanders suggest that they only be used for 6 months. By the time I get my exchange mine will be in there for over 14 months. Sort of scary.

    I wish all of you the best and know that this too will pass.

  • Lovegolf
    Lovegolf Member Posts: 513
    edited April 2013

    I was here 4 years ago......I will say make an appointment the next day or 2 that you are home to get your hair washed...Clean hair makes you feel better.  Hang in there ladies. There is life after this all.

  • Annie2012
    Annie2012 Member Posts: 32
    edited April 2013

    Thanks for all the hugs and prayers sent for my surgery tomorrow...will be so glad to have this next step over with. My prayer is for a complete patholigical response from the chemo I have been on since October. This is a journey I never thought I would be on, but God will not let me leave this earth one moment sooner than He wants me to!  God Bless my BC sisters with their surgeries tomorrow also!

  • bella42771
    bella42771 Member Posts: 34
    edited April 2013

    Big (((((Hugs))))) to Annie2102, danawp, Ashleigh and Argynnis heading into your surgeries tmrw! Keep us posted. God Bless and speedy recoveries...Bella

  • ashleigh
    ashleigh Member Posts: 23
    edited April 2013

    thank you all for your support and well wishes! best of luck to the other ladies scheduled for surgery tomorrow - my thoughts and prayers are with you as well! :)

  • danawp
    danawp Member Posts: 99
    edited April 2013

    Just curious what you are bringing to the hospital?  I read all the posts on how to prepare, and I am well prepared at home....But, I am wondering what I should bring with me.  My stay is only 23 hours.  packing suggestions?

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2013

    Dana - comfortable clothes to wear home, nothing you have to pull over your head. Stretchy comfy pants.  Emphasis on easy-on, easy-off. Maybe a little robe to put over you if you are cold. A book, or ipod or ipad or something to pass the time. Charger for your phone, maybe, if you are on it as much as I am on mine.  That's all I can think of.  

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Hi Dana,

    Earplugs and eyemask. It gets noisy and the lights are always on, hopefully these will help you get some sleep.

    Wishing all the best for you tomorrow.

  • Ukkate
    Ukkate Member Posts: 292
    edited April 2013

    The hospital just called to preregistration and I'm starting to freak a little. I've never had surgery before. She talked about being in the recovery room for 2 hours. When I wake up will I be in agony??? Or start vomiting? I'm so scared.... I had two kids med-free so I know pain but all of this is so scary and unknown.

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited April 2013

    Kate - I  never had surgery before my lumpectomy either and it was a HUGE unknown. I am a better, less freaked out patient now. School of hard knocks, right?
    I did not have mastectomy so cannot answer that. I dont know how many people on THIS thread can, but there are other mastectomy threads or the herceptin thread will have women who can help.

    But I WILL say this - we are lucky to live in a time when pain management is VERY HIGHLY regarded as a crucial part of healing. They take it very seriously. EVERY time I go see my onc for a checkup, the first question is "Are you having any pain today?" Luckily for me, the answer is always 'no' but it is an indication of how seriously they take it. I do not think you will wake up in agony by any means. If/when you have any discomfort, ask for pain meds and take them. I hate meds, but it is important for your body that you be pain free so you can rest and heal well.

    Re the vomiting, I am a big puker (motion sickness etc) and I did wake up very nauseous after the lumpectomy and hated it. I vomited once and felt better after a few hours but still.....  it was one of the things that I was NOT looking forward to this time. So I asked the doctor about it and she prescribed the motion sickness patch (that you wear behind the ear). She said they are using it these days with good results on patients like me. I got it and will apply it the night before, so that the meds will be in my system thoroughly by the time surgery is done and I wake up. Of course I can't tell you yet how it worked, but I will report back after I do it. So that might be something you can ask for as well.

    One thing you might want to do is ask for a phone consult ahead of time with the anesthesiologist. You can ask all your questions then and it will alleviate some of your nerves.

    The reason you are in recovery for a while is for them to watch your vital signs and also b/c you wake up slowly from the anesthesia. They want to be sure everything is ok before they send you off. You will be dozing and the time will go fast, you will not be lying there awake watching the clock. Don't worry. In fact, the WHOLE THING will go fast. The hard part in all of this is the waiting ahead of time. Once you go in, it is like stepping onto a moving sidewalk - you just do what they say, and move through the process, then they get you to sleep, and when you wake up, you are done and you can start getting better!

  • bobogirl
    bobogirl Member Posts: 2,777
    edited April 2013

    Thinking of my sisters today and sending you {{{HUGS}}}.

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Hi Kate,

    Unfortunately I have had several surgeries, but I will tell you the staff is there to do all they can to make you comfortable. When you first get in they will ask you the same questions over, and over...this is so they are all on the same page. When they finish the questions you can ask for something to relax you. They can put it in your IV. By the time they are ready to take you in you are half asleep. When you come to in recovery the first thing they ask is are you in pain and how much on a scale of 1 to 10. Be honest, don't tough it out or it will get worse. They will give you pain meds pretty quick

    Sometimes Ive had vomiting sometimes not. Sorry we are all different. Try to drink lots of water when they say you can and get up and walk, It helps to move the anestetics (sp?) through and out of your body.

    I'm going in on the 8th so good luck I'm with you!

  • argynis
    argynis Member Posts: 123
    edited April 2013

    All went welll yesterday unfortunately they had to do an axillary disection too. Pain afterwards was greater than expect but I have a pain pump mow. I think it is because my muscle is not happy about the TE.

  • bella42771
    bella42771 Member Posts: 34
    edited April 2013

    Argynnis, so good to hear from you! So so sorry for any additional pain, but glad you are managing it well. Big hugs to you, so proud of you and wishing you a beautiful recovery.

    Bella

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Argynnis, Happy to hear you are doing well. Hang in there it will only get better, I will keep you in my thoughts as you recover. Please keep us posted on your progress.

    Joanne

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    bobogirl ~ Thinking of you as you prepare for tomorrow. Take a moment to enjoy the day. Hugs for a good night sleep and successful surgery.

    Joanne

  • danawp
    danawp Member Posts: 99
    edited April 2013

    Quick check in here...surgery went well 3:30 pm April 3 at Sloan. Home at 1:00 pm April 4. Pain very tolerable. Hurts more when I first start to move. But I am definitely able to get comfortable & sleep/rest. Drains are a drag. But it feels great to be on this side of surgery!!! Ready to start healing & recovery. Anxious for my final pathology report.



    Thanks for the support here & good luck to all of you who go this month!!

  • robin_in_SJ
    robin_in_SJ Member Posts: 46
    edited April 2013

    I'll be attending the April party, my surgery has been scheduled for Apirl 19th, the same as 2nd time around.  I’m going for a bilateral MX and reconstruction at Penn.  I have mixed emotions, I want to start the process but I’m also scared.  Who isn’t?  I had a node biopsy done which came back positive so the BS will be removing the nodes as well.  Yesterday, I was going to have a bone scan but came down with a severe cold and a bout of my gastroparesis.  I worry that because of the gastroparesis (nausea, vomiting and inability of the stomach to digest food) that I’ll have a hard time recovering.   I see my GI on Monday and I’ll ask if there is anything else I can do.   I hope he has some ideas but in general I have had my GI issues under control.   I was able to reschedule the bone scan for next Thursday.    

    Today is my 28th Anniversary, DH and I are going to Cape May for the weekend, so looking forward to getting away and taking walks on the beach. 

  • ldesim
    ldesim Member Posts: 1,333
    edited April 2013

    Happy Anniversary Robin, have a great time. Talk to your dr. about your nausea concerns and I'm sure they will prescribe something to get you through it.

    I am going April 9th for mastectomy and have mixed emotions as well, but I am now leaning towards just wanting to get it over with and am hoping that the anticiation is worse than the actual recovery lol.

    Danawp, so glad you are doing so well!! You're over that hurdle and that's a great thing.  You made me feel a little better too!

    Bobogirl, hope you are doing well too.


  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Dana~ So happy to hear things went well and you are getting some rest. When will they let you know the path results? Take care of yourself and get well for the amazing adventures ahead of you! Sending you healing hugs!

    Joanne

  • keepswimming
    keepswimming Member Posts: 62
    edited April 2013

    Robin_in_SJ,

    I'm glad you found us, more hugs to share and comfort each other. I'm sorry you are having stomach troubles and hope the Dr can remedy that quickly. I to have been very anxious so kept myself busy preparing and cleaning like crazy! We will be having people stay at the house so I don't want to worry about what they may find in the back of the fridge or under the cubboard! Focusing on that has helped a little. Happy Anniversary! Have a wonderful time at the beach. I put you on the List of surgeries so all our BC sisters can remember you and send you hugs for the 19th!

    Idesim,

    Welcome and hope you find comfort here as you go through this process. I'm going in on the 8th and like you, I just want to get it behind me! Thank goodness it's almost here! I will be thinking of you on the 9th and sending hugs so all will go well. I have added you to the list also.

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