bra for lymphedema in the breast and trunk

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linali
linali Member Posts: 194
edited June 2014 in Lymphedema

Hi ,

can anyone recommend a bra with good support or compression. I do go to a LE clinic and it took a while to be diagnosed as they do not see many with truncal and breast lymphedema.

The nurse did show me a bra but it looked very nylony. I need one with a cotton lining because of a SE of rads that has left quite a bad skin reaction and I cannot wear synthetic fibres.

I live in Ireland and so it would have to be somewhere that dealt with Europe. Also price is a factor as I am not back to work and the one the nurse showed me cost over 100 euros.

Thank you

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2013

    Hi linaii!

    This section on Compression Sleeves and Garments from the main Breastcancer.org site might be helpful!

    --The Mods

  • Denise-G
    Denise-G Member Posts: 1,777
    edited March 2013

    Hello - I have been to Ennis, Ireland.  Lovely place.  But so sorry you have to have Lymphedema.  I have Truncal and Breast Lymphedema as well.  The most comfortable bra I have found is one by Marena Group called Marena Surgical Bra - it comes with either 1" or 2" bottom band.  I bought mine on amazon.com  so not sure if they ship to Ireland.  Oh, just saw you need cotton - this one is more nylon-y.   Darn!   Good luck on your search. 

    I also sleep in a camisole that has some compression, but most all of these have synthetic fabrics.

    My best to you!

  • Tomboy
    Tomboy Member Posts: 3,945
    edited October 2013

    there is a place called wizard of bras where i got organic cotton wide band bras with wide straps too. comfy to the extreme. they are in duarte california, worth a look online, or an email to them. good luck to you, fair islander.

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    I need compression on my breast, armitpit area, torso and upper arm. I looked at the recommended sites but didn't see anything that looked right.  I apparently would need to purchase a torso thing with a long sleeve.  I wanted a fancy lymphadiva sleeve but that can't happen, I guess.

  • purple32
    purple32 Member Posts: 3,188
    edited March 2013

    Carolyn

    Why can't you get a Diva sleeve ?

    I love them, and I have breast/truncal as well.  Rather than wear a  bra, I wear OTC  compression type 'cami'  garments .  They would best for me and are totally sleeves so I can still go stylin' in my Diva!

    linal

    You may want to consider a stretch 'slimming' cami istead of a bra as well.


    Happy Shopping!

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    Purple, I hadn't though about getting two separate things -- sleeve and cami.  I don't see how that would keep compression in my arm pit.  Or is that not done?  Right now, the armpit and upper arm are swollen and my breast is swollen.  The PT woman says my trunk and side are also swollen but I don't notice that a lot.

  • linali
    linali Member Posts: 194
    edited March 2013

    Hi Thanks so much for the suggestions. Busy with fund raising for my support centre over Easter but will check out everything after. I am due to go back to lymph clinic on the 24th and to see my onc radiotherapy consult next Tuesday and hopefully he will have a solution for the skin reaction.

    Denise,

    hope that you enjoyed your visit to Ireland, yes Ennis has become a great little town and there is so much to see around here. I particularly love driving through the Burren especially in Winter. I wonder did you visit other places in Clare.

    Purple

    good suggestion about the Cami. I sometimes wear a sports bra or one of those seamless soft ones. It doesn't give much support but it is more comfortable.

    Caroline,

    yes that bit at the very top of your arm and the armpit seem to be difficult to cover. A friend gave me a sleeve that goes over the other shoulder but that wasn't too great either.

    Today is a bright but cold day and I always feel that Easter is a time of beginnings and hope.

    Later this morning I am going to help with refreshments at a memorial 10k run. The proceeds are to go to our centre and there is a 1k lap for survivors. I am restricted in what I can do but I can hand out tea and bananas! and the centre has been a haven for me.

    Happy Easter.

  • purple32
    purple32 Member Posts: 3,188
    edited March 2013

    Carolyn

    If you check out the gloves and  sleeves thread and a do a  search there under my name, I believe i have posted a pic of at least one of the compression garments I wear.  In my case- yes, it goes all the way up the axilla.  It does provide the compression I need.  I will say, I actually love my garments and PREFER them to  bra!  If I dont have one on, I feel like I've left my purse someplace , if you know what I mean !

    Having said that, we are all different, but I recently bought a $9 clearance one (Called Barely There ) at Macys.  Some ppl. go with 'spanx' which is not cheap.

    My suggestion is to get hoppin on the shoppin  :>) 

    Start on the internet with  google search ( slimming shapewear camisoles)  and also visit the SUSO site as they have a page of Wear Ease garments that look great.http://www.stepup-speakout.org/Compression_camisoles_lymphedema.htm

    Then,... I would look for a good $ale, even at Walmart, TRY THINGS ON and then experiment AND show your LEist of course.  You'll find out in no time if  " cami OTC compression type garments' work for you.  Look for wide 'straps'- no slinky strappy type things, trust me on this- more like  bathing suit cami top if you will - those kind of armholes; not skinny straps.

    Have fun !

  • CarolynVM
    CarolynVM Member Posts: 137
    edited March 2013

    Thank you, Purple.  I will work at this some more.  I thought I woudn't need compression garments.  I thought the lymphedema woud just go away and everything would be fine.  I also believed in the East Bunny until I was 10 or 11.

  • Denise-G
    Denise-G Member Posts: 1,777
    edited March 2013

    CarolynVM - I thought mine would just go away too.  Darn that Easter Bunny thinking!

  • Binney4
    Binney4 Member Posts: 8,609
    edited April 2013

    Carolyn, you mean there is no Easter Bunny?!Surprised Then how did those eggs get all over the backyard yesterday morning?Laughing

    For my axilla swelling I use a Solaris Kimbe Swell Spot held in place by my cami (a WearEase Slimmer). It's shaped to surround the axilla and apply some compression while directing the fluid in the right way:
    http://solarismed.com/products/swell-spots/112-swell-spots-product-gallery

    Linali, I don't know what the fabric content of the Swell Spots is, but you could email the company and ask. I do know that Peninsula Medical (also called The Reid Sleeve People) makes a similar product called OptiFlow U that is cotton. It's here:
    http://www.lymphedema.com/optishape.htm

    The axilla is just plain hard to handle. I clear my neck nodes and upper chest several times a day (whenever I think of it and have a bit of privacy) and then move the fluid out of the axilla area toward my neck. Just that much (which only takes a couple of minutes) helps a lot to keep the area under control.

    Now, let's see...where'd that Lymphedema Bunny go?Undecided
    Be well!
    Binney

  • carol57
    carol57 Member Posts: 3,567
    edited April 2013

    Carolyn, I haven't gone back the last few pages of this thread to see if you've mentioned compression shirts as something you've tried, but if not-- a lot of us wear athletic compression shirts with short sleeves.  The most common brand is UnderArmour, and we find that the women's sizes don't work well, because the sleeve is a cap sleeve that tends to cut into the armpit instead of compress it.  But a men's UA shirt, being sure to get 'compression fit,' often helps. Some women need to wear it inside out so the seams don't irritate, and it's a real challenge to hide the shirt under most wardrobe items, but you can usually find them for $30 or less, so it's an inexpensive option if you want to try it. I have one on now, and it most definitely compresses my axilla and everywhere nearby. It's not medical grade compression, but I think all that means is that's its not gradient compression, like our sleeves that give the most compression at the wrist and then gradually less upwards to the top. But gradient compression is almost impossible to achieve on the trunk anyway.  Also, the compression shirts do a great job of holding things like swell spots in place. I stick something called a 'chocolate bar' up over my shoulder blade on one side, and I don't have a cami of any shape that would hold that thing in place.

    When do you migrate back to Michigan?  I hope you can stay in sunny Florida for a while yet. I'm a bit southwest of you, and we have snow flurries today!

    Carol

  • linali
    linali Member Posts: 194
    edited April 2013

    Hi

    Great idea about athletic compression shirts, must have a look at some websites that deliver to europe.

  • carol57
    carol57 Member Posts: 3,567
    edited April 2013

    linali, UnderArmour is a $2 billion company: they're absolutely huge and market well outside the US, and so I'll just bet you'll find their merchandise in sporting goods shops in Ireland. Other brands, too!  Let us know what you find.

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