Higher Risk of Late Relapse

hlya
hlya Member Posts: 484
edited June 2014 in ILC (Invasive Lobular Carcinoma)

If ILC has higher risk of late relapse comparing with IDC,  does it mean as time goes by our fear will be increased comparing with IDC?   Each time when I read anything like this I am so upset.

http://cancerres.aacrjournals.org/cgi/content/meeting_abstract/72/24_MeetingAbstracts/S1-1

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  • Cyborg
    Cyborg Member Posts: 848
    edited March 2013

    Pretty upsetting. I'm always so hypervigilant--- stressful.

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  • Momine
    Momine Member Posts: 7,859
    edited March 2013

    Well, yes, I have read the same. It does mean that we can't really ever say that we are "cured." My take is that it means that I really should focus on living well NOW. I will turn 50 this year. I hope to get another ten years before the cancer comes back. If I get more, I will consider it bonus :)

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  • momand2kids
    momand2kids Member Posts: 1,508
    edited March 2013

    Hi

    I don't know what you read about this, but I recall my onc saying that ILC grows slowly in most cases and it did not necessarily have a higher rate of relapse....

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2013

    Momof2kids, I like what your oncologist told you!

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  • lemon68
    lemon68 Member Posts: 684
    edited April 2013

    I asked my BS about this, he said it only seems like the reoccurance rate is higher because there are fewer ILC diagnosis than IDC. He told me the chances were about the same. He also noted what we all dont want to hear, the IDC is usually found early where the ILC is usually found in later stages. I like to think that they will be as vigilant with us as we are with ourselves. I hate to see someone with a reoccurance a year or two later, if its slow growing I often think it was there and missed. My tumor was small, under 1 cm. He told me it would have been growing 4-5 years to get to that size, if that is true and women are checked yearly, they are missing a hell of alot of ILC as I see many CM+ at DX.

    whole things scares the crap outta me.

    edited to add I know how lucky I am to have been DX at a early stage.

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  • gemini4
    gemini4 Member Posts: 532
    edited April 2013

    I wanted to add that I've only heard about extra risks of ILC on these boards. My RO said she feels that ILC responds particularly well to rads (if not better than IDC) due to its small strings of tumor cells (vs clumps -- for lack if a better term -- in IDC).



    I have heard from more than one radiologist that it's often found at a later, larger stage due to its stringy nature. But I've not heard my onc's say that it's more aggressive or likely to spread as I've read here. Neither does Susan Love's Breast Book mention this.



    I'm not saying the posts I've read here are untrue; I just haven't been put on high alert by any of my onc's (at a Harvard teaching hospital).

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  • lemon68
    lemon68 Member Posts: 684
    edited April 2013

    Gemini, thanks I like to hear that!

    Also wonder if there are stats on mets for IDC vs ILC?

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  • christina1961
    christina1961 Member Posts: 736
    edited April 2013

    http://www.ncbi.nlm.nih.gov/pubmed/20162457

    My sister is a 5 year + survivor of Stage 3C ILC so I have read some studies on ILC versus IDC.

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  • hlya
    hlya Member Posts: 484
    edited April 2013

    momand2kids:  I saw an article posted in this forum but can not find that post.  But if you google by "higher rate of late relapse, ILC"  you will see many related articles.

    The following is an example,  (or did I misunderstand anything?)

    http://cancerres.aacrjournals.org/cgi/content/meeting_abstract/72/24_MeetingAbstracts/S1-1

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