DIEP 2013

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  • Gini23
    Gini23 Member Posts: 183
    edited March 2013

    Faith - Yes, I went home with the OnQ ball still attached. A little annoying, but no big deal really, and I think it was working wonderfully because after it was removed, I had more pain (not a ton, and really sporadic, not constant - but I did see the difference.)



    Sooo funny how the docs all have very different opinions/approaches to compression and bras. Boston docs said binder only after drains came out, and wear for 3 months, more or less 24/7. When I asked about switching to a Marena, the PA said I could send them something I'm interested in to see if it would be ok, but really they just like us in the binder. The binder was too long on me up/down-wise, so the PA cut off one of the 4 panels. (I am 5'2" - barely....!) It is just like a big elastic band fastened with velcro when you have it stretched tightly around you, reaching from hips to just under chest. Nothing fancy. NO bras for at least 4 weeks... not sure what will be approved after that.



    KiwiMum - be sure to ask your doc about fat grafting on your healthy breast. During decision making for me, I inquired about lift/enlarge on my healthy side if I only went uni. My doc could lift, and that would've made it a little smaller. In regards to fat grafting, they said that "some docs would do it" but they do not because it can cause false alarms on future diagnostics (mammos) or conversely, they assume it is not a problem when it shows up and it turns out it is something to be concerned about. He could offer me a small implant on that side, but that kind of defeated the whole process of going DIEP in the first place for me. I don't mean to scare you, just want to share what I was told.



    So happy to hear of all the amazing recoveries and those getting closer to your big day! I am now 16 days out, walking around the neighborhood a little, doing light house chores (mostly just taking care of myself) and at this point out of the bed more than in it. But I still schedule myself downtime in bed to read or sleep.



    I like the idea of requesting pre/op/post reports. Thank you to whomever made that suggestion awhile back!



    =) Jeannie

  • Gini23
    Gini23 Member Posts: 183
    edited March 2013

    As I am reading your conversation about sleep aids for leading up to your surgery to calm your nerves, I wanted to "pull out" from my marathon post above, about the meditation cd. I know there are other women out there who like to keep the drugs to a minimum... I really believe it helped to keep me in a good place, and more importantly to help me to fall asleep.


    That said, I did take the Oxycodone at night to help me sleep through the night, post surgery - both after BMX and DIEP, and will switch that over to Tylenol PM probably for a little bit like I did before, as well. My naturopath suggested Melatonin when I was doing chemo to help with sleep, as well.



    =) Jeannie

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2013

    Kiwi... A woman celtic_antique here on the boards had a small flap put on natural side to supplement... Perhaps PM her. Her name is Maggie.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Sbelizabeth...hope your pre-op went well! Awesome about the tag along news crew, but sure not something I could do!!! Good thing there are braver ladies than me out there to help others. 

  • heavenschild
    heavenschild Member Posts: 212
    edited March 2013

    The new foobs don't bounce back like the originals. If I wore a bandaid over an area that was not healed yet, when I took it off there was an indentation and you could see exactly where the bandaid was which would eventually go away. The left one now feels like an original (but numb), but still feels like it is just hanging there - I wonder how it is supported? The right one b/c of the radiation is not as pretty and kinda looks like a hamburger bun. I was scared to sleep on my side at first because of the blood flow, but after getting up several times to check, the places where the foobs became indented bounced back.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Heavenschild, do you think the band-aid indentation thing might must be residual swelling?

    I have zero experience with all this, but from what I've read and heard, the shaping of womanly perfection happens with stage 2.  If you can live with the hamburger bun for a few months, it will all be good.

    I asked my PS today about a huge-ish radiation wound scar on my back that had adhered to the deeper tissues.  He said he didn't want to address it with the first surgery, but later, he could inject healthy cells (read:  FAT) under the scar and release it!  Yay!  I know the radiation damage to my chest and back have contributed to my shoulder issues.  

    The news crew was great.  I have loved them since I began working with them in October 2011.  They are going to stand filming in the OR for the entire 8-12 hours of surgery.  Amazing!  I think I'll have the easy job...take a nap and wake up to a new front-end...

  • Cherrie
    Cherrie Member Posts: 1,423
    edited March 2013

    Cuetang-thought of you as we were driving to Chesapeake today. I saw the exit for Fairfax. I am visiting my granddaughter, daughter and her hubby for 3 weeks. Driving from Michigan.



    I put this out on another post too....... What have some of you been using for SCAR TREATMENT? I have heard of Kela-cote from my doctor and others here. Has anyone tried anything else with success?

  • Moviemaniac
    Moviemaniac Member Posts: 949
    edited March 2013

    Hi ladies......I have a couple of questions......I was cleared to return (slowly) to my pre-surgical fitness routine, which includes small-motion ab work.....I have not had any issues, but someone mentioned no abs.....my doc said okay.....but........??



    Also, am craving a long soak in a bathtub.....never asked my doc about it.....I am going on 10 weeks out....that's okay at this late date, isn't it?



    I've seen comments about hardening in foobs.....I have found that when in a warm shower, I can soap them up and massage them while warm....it seems to help. I have not suffered too much with hardness-they are both "soft and bouncy". :-). I have to say that my new "adopted girls" are the bright spot in my journey....they're bigger and better looking than the originals. :P



    I am always excited to hear progress reports from recent DIEPers, and am excited for those of you who will be joining us on the "other side".



    SBElizabeth, your tv experience sounds interesting! You never know who might be touched and helped by your story. Snaps to you for being so brave!



    Thank you for all of the wonderful advice, comfort, and information that I find here. I like Nihahi's analogy to lifeboat(s) in stormy seas......so very, very true.



    (((Hugs))) to all!



    Namaste & God Bless -Jackie

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Cherrie-- you were truly right in the neck of the woods here! :D. Perfect timing on your trip as the weather is supposed to get getting warmer here and be nice in the next few days. Have fun with the family! As for scar treatment, my PS office recommended biocorneum, which was $120 for the "large" bottle. I usually like to research my options beforehand so I didn't get it today. They said if I didn't want to buy it, mederma or kelocote would work.



    Moviemaniac-- I mentioned earlier today about no ab work from my PS but I think that's because I'm less than 3 weeks out from my surgery.



    Sbelizabeth-- I'm not sure if I would be fascinated or horrified to be able to see my boob after the mastectomy. :p. I think it's totally awesome that you're getting this documented and that it definitely will help others in the future that have to go through this.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    I spent many years working with burn patients, and a huge part of my role was scar management. I can tell you this: 

    1. All scars take time to mature, which means to fade in colour and to soften and flatten. The amount of fading, softening and flattening varies with each individual, but there are a couple things that can help. Some people fade quickly and really well, some people always have discolouration and thicker scars. Be careful of sun exposure the first year....if a scar "tans" before it matures, it may not ever fade. You can even tan or burn through clothing, especially things like bathing suits when wet. 

    2. Pressure, which needs to be almost constant (aka24/7) is very effective, but is hard to do over areas that are not "supported" by bone. It is hard to "compress" scars on soft tissue like breasts and tummies. Easier to do over hip bones, ribs, etc.

    3. Mobilizing, aka massaging is helpful, but really only if done consistently, 3 to 4 times a day, for 5 to 10 minutes, minimum, EVERYDAY, for usually at least 6 months for full benefit.

    4. Moisturizing is very helpful, once the incision is healed. Again, needs to be done consistently. The only "product" that has actual clinical trial proof is something with medical grade silicone in it, because the silicone helps to "seal moisture" in the skin. Vitamin E lots of people think is helpful, but there have been no proven clinical results, and overuse of Vit E can result in breakdown of fragile skin in some people. Silicone products are usually "uber-expensive", so for large areas, massage and good, consistent moisturizer is more realistic.

    Hope this is helpful.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Nihahi, this all makes sense.  Thanks.  I wondered why my 3" long bunionectomy scar is virtually invisible.  It's because I wear shoes that put pressure on it almost 24/7.  Not practical for breast scars, but interesting!

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Nihahi that is extremely helpful, I only wish I knew those tips after my thyroidectomy since I still have my nice scar right across my neck in pain view :)

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited March 2013

    Great information, nihahi. Will you please name a moisturizing product with medical grade silicone in it?

  • Cherrie
    Cherrie Member Posts: 1,423
    edited March 2013

    Nihahi- thank you. I will look into medical grade silicone. I had not heard of the massaging. I am 4 and 1/2 weeks out of a breast lift and fat grafting. Is it okay to begin massaging or should I be waiting? I was told light arm exercises at 6 weeks and back to tennis after 8.



  • faith729
    faith729 Member Posts: 244
    edited March 2013

    Ladies so good to read your posts this morning. I woke up this morning had my breakfast and got queasy which I think was my bodies way of saying stop denying it you are indeed nervous. When I dropped my 12 year old son off at school this morning he mentioned that this will be our last drop off together for a long time.. tugged at my heart strings in a big way.Also Im not sure what sparked it but I just randomly started crying in the shower yesterday honestly while crying I was asking myself"why am I crying"

    Did anyone else get nauseous in the last few days leading up to surgery?



    Gini thank you so much for continuing to read and respond. Knowing a little more of what to expect is a huge help !



    Nihahi awesome info on the scar care thank you !



    Also here is a website for special pillows that I received as a gift. They are specifically made for comfort under the arms after mx etc.

    etsy.com/shop/PreciousSurvivors

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2013

    Cherrie - I think the Kelocote is a medical grade silicone gel.  That is why it is so costly.  

    Faith - Nerves are natural.  I tell myself that I am not nervous about Stage 2, but I think I am.  It has spiked my anxiety levels.  Stage 1 is really big surgery, but the hard work is being done by others who are experts.  You will be fine!  It will be behind you soon.

  • Gini23
    Gini23 Member Posts: 183
    edited March 2013

    Jackie - my PS said no ab/core work for 3 months. But you are nearing the 3 month mark, yes? Couple more weeks?

  • Gini23
    Gini23 Member Posts: 183
    edited March 2013

    Nihahi - thank you for that info on scar massage! My DS got me a small bottle of Bio-Oil from CVS (not that expensive) after my BMX. Not ok'd to use it yet on my still healing DIEP incisions. It does not have silicone... but does have lavender oil and rosemary oil which I have also read are good for scar massage. It also touts its breakthrough ingredient "PurCellin Oil"... BUT I don't have any research to back that up. ;)



    I did use it after the BMX, of course the scars did not go away entirely, and I was not very religious in its use, as per Nihahi's recommendations above!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Faith...I was just like you....finding the tears coming seemingly out of nowhere....the activan has helped, as has the distraction of my daughter's issues. I think it's better to acknowledge and release stress when possible, it's a normal reaction. 

    A product doesn't necessarily have to be 100% medical grade silicone, but the more the better, but then the $$$ goes up. Kelacote and Dermatrix(sp?) have some, I'm not sure what %'d. 

    I will not speak about massaging fat grafted areas, or fatty tissue, as it would be just my opinion, not knowledge. But for massaging scars, you should be ok to start around 3 weeks post surgery (on a well healed, non-complicated scar). First you need to allow enough time to let the collagen fibers form and "bind". The massage and moisturizing are used to help "re-align" the collagen fibers to lie flat and in "lines" as opposed to whorled and knotted. You need to massage the scar area specifically, which is tricky over soft "squishy" tissue. Push down on the scar firmly, then keep pressure on while rotating around and around, both directions and also back and forth lengthwise. Put moisturizing product on your scars before starting the rub down. You may find that some areas feel quite loose, others seem almost "stuck" and the normal skin around it seems to be more connected to that area than others. These are the spots you need to focus more on. Make sure some moisturizer is left on the scar when you're done too. The scar will look redder for a few minutes afterwards, as you have increased the blood flow to that area, but will settle down. 

    I wouldn't get too freaked out about the scars we will/are having. They will be neat, controlled surgical scars, not traumatic, uneven ones from non-surgical "injuries". Although highly personal to US, they are easily concealed from the public. There are no miracle, guaranteed scar free surgeries....maybe someday, but not now.

  • sbelizabeth
    sbelizabeth Member Posts: 2,889
    edited March 2013

    Good morning, ladies!  After reading about the Jacki post-op top, I contacted the company and they sent me one.  Completely free, although I'll certainly send a donation and pass my Jacki along to someone else after I've used it.  It arrived yesterday and looks like it will be extremely useful and comfortable.  With all the discrete pockets for drains on the inside, I could hide a submachine gun in there and no one would be the wiser.

    Faith, I'm nervous too, and I still have a couple of weeks to go.  It's a different nervous than before my MX, but still, I'm having some pre-op grieving for losing my OTHER breast as well.  But...WE WILL BE FINE!

  • Gini23
    Gini23 Member Posts: 183
    edited March 2013

    Faith, I am a shower cryer! No one can see me - hear me....!



    I was not nauseaus leading up to surgery, but was nervous and starting to wonder what I'd gotten myself into. And there were days post-surgery that I looked in the mirror and said WTF did I do to myself??



    But now with drains out, incisions healing, and having nice soft girls instead of the icky hard TEs on my chest, I am happily looking forward to Stage II shaping and wearing pretty girlie undergarments again in the not so far off future. :) I love my cleavage - I am certainly not big (full B maybe, small C? That's what I've been hoping for anyway... about the same as before...) but the TEs did not come together in the middle. ;)



    You will be on the other side VERY soon! And your son will barely remember the few weeks that you could not drop him off at school.

  • Janet_M
    Janet_M Member Posts: 1,068
    edited March 2013

    Gini23 - 

    Thank you! I'm so relieved that there are other woman who are thinking 'WTF did I get myself into'. I've been having those moments lately where I just want to smack myself in the head, and can't BELIEVE that I didn't opt for raditiation and no surgery. I feel like a different person made that decision and now I'm being dragged along for the ride. Yikes. I better snap out of this. 

    By the way - I completely agree about the meditation CD's. I didn't think I'd be a good candidate because I have a very chatty brain, but it really did put me in a good place, and it made me feel much less lonely as I walked into the OR for my second lumpectomy.

    sbelelizabeth - A news crew?! I love that you're so courageus. Very cool.

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    sbelizabeth.....I sent an email to the Jacki people after reading your post, and have already gotten a reply!!!!! Looks like they will go "out of their normal range" and will send me a garment too!!!! Thanks for that info.

    Janet...yup.....the "what have I done" thoughts here too, but as soon as the alien boob starts zinging, I remember why. 

    I ordered the meditation/healing after surgery tapes on the weekend. Does anyone know about how long it takes to receive them?????

    Off to take daughter to her doc appointment.....to find out what showed up in her bloodwork that made them call her in so quickly. Think good thoughts, please, for her.........she is such a good person....things just HAVE to start turning around for her!!!!!

  • Morningsun1
    Morningsun1 Member Posts: 649
    edited March 2013

    Good luck to you both, nihahi. She is lucky to have such a fighting and supportive mom.

  • faith729
    faith729 Member Posts: 244
    edited March 2013

    Hey does anyone know of a good meditation CD or track that is available on iTunes ?

  • MartyJ
    MartyJ Member Posts: 1,859
    edited March 2013

    You can download the Belleruth Naperstack from iTunes.  I downloaded the sample, but it only gave you a chance to listen to her voice, not her meditation techniques.  I think it is just under $20.

  • bdavis
    bdavis Member Posts: 6,201
    edited March 2013

    Cherrie... The NOLA docs can give you the sheets of silicone scar treatment..They did for me...I assume Dr Massey does the same.  And its very expensive. So perhaps ask them. Also, about massage, they recommend that you do not massage ANY fat grafted areas. I am 8 weeks post op and still won't even sleep on my belly, but massage is a no no. Someone recently asked this question on the Ask the Doctor forum, and that was the one thing Dr D said to avoid. Now, if your scars on abdominal, where no fat grafting was done, that is another case.

  • Judy_63
    Judy_63 Member Posts: 247
    edited March 2013

    Hi Everyone,

    Just checking in doing pretty good today. Sitting up in a chair now. I had a shower this morning which felt great. Also took some walks around the hallways. Probably do a few more laps before bed.

  • Cuetang
    Cuetang Member Posts: 575
    edited March 2013

    Yay, thanks for the update Judy!

  • nihahi
    nihahi Member Posts: 3,841
    edited March 2013

    Judy.....so good to hear from you. Sounds like things are going really well for you!!!!

    Update on daughter.....significant and seriously low iron levels, as well as significantly "pre-diabetic" status. She has been on iron supplements before, with little benefit to her levels, so that is going to be further investigated after she has been on "uber" iron supplements for a bit. As well, dietician referral.....her diet/portions, etc. actually are pretty good already, so not overwhelming excited that they can make things change much for the better diet wise. Time will tell.....Thanks for the support.

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