2013 Survivors!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2013

    shianne - i don't think my skin ever got as bad as yours, but i will say it does get better. and when it gets better - it is BETTER! Mine was the worst for the first week after rads ended and then all of sudden overnight it seemed - the redness turned to tan and it started peeling. Yesterday was my 2-week post-rads mark and my skin feels great. I've even stopped glopping on aquaphor twice a day. In the morning i just put on a light moisturizer and then at night I put a thin coating of aquaphor on. Hang in there honey!

    shari - rest up and don't worry. I imagine they'll let you have their surgery. They don't want to juggle their schedules either - especially for a stuffy nose... keep us posted.

    websister - sending good thoughts for your mom

    hugs to all!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2013

    but i have a question for you rads grads... when did the exhaustion lift? how much longer do i have to wait to not feel so darn tired all the time and just get back to my normal full-time working mom of a 2 and 5 year old tired? :)

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Hi gals...rad questions....I finished at the end of May and it took about 6 months for the exhaustion to lessen.



    Like Jo, I was given cortisone cream along with a saline solution as I ended up with a fungus under my rad breast and u der my arm...took two weeks for it to clear up.

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  • liefie
    liefie Member Posts: 2,440
    edited March 2013

    Shianne, over-the-counter hydrocortizone cream will calm the redness, soreness and itching. My rad onc told me to get it, I did, and that was what worked best together with the saline soaks. It really gave wonderful relief. Hang in there; it's almost over. Hugs to you!

    Ramols, it took me about 3 months after rads to have enough energy to start exercising seriously again. You are much younger than me, so you should bounce back way quicker, I think. Sleep when you can; it helps a lot.

    Shari, I doubt they will cancel your surgery because of a stuffy nose, but I'm willing that cold to go away so you can relax. We'll all be there tomorrow!

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  • Shari0707
    Shari0707 Member Posts: 448
    edited March 2013

    Thanks ladies will keep u posted.. Won't really know until tomorrow/--day of surgery but will check back tonight and of I can tomorrow

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Shari.....hope everything goes well and you can have your surgery.....let us know so we can be with you....❤

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  • shianne29
    shianne29 Member Posts: 452
    edited March 2013

    Jumping gently into a couple of pockets for tomorrow.

    My RO gave me hydrocortisone cream and dilaudid. Thank god!! I was in tears as soon as the rads tech asked how I was today. Nurse said to expect the one spot under my arm to get "weepy" by the weekend. I'm walking around with it over my head all the time. I'm sure I looked the complete twit driving home with my arm behind my head!! And of course it's my right, everything is so awkward doing it with my left.

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  • Believe777
    Believe777 Member Posts: 576
    edited March 2013

    Websister - adding your Mom to my prayers.

    Shianne - maybe you can pick up the silver solution at a local pharmacy. It worked miracles for me. I finished rads in July 2012. My DH drove me every afternoon. My appt was at 1:30. I worked in the mornings. I pretty much slept in the afternoons. I don't remember the fatigue after the radiation ended being that bad. I think I was relieved not to have to go anymore. The little ice bags made it all bearable. Have you tried them? If you get the right ones, you can probably pin them into your camisole. Very soothing. Our weather was in the 100's while I was going for treatment.

    Shari - tomorrow's almost here! Hope the sniffles are better. I doubt they will postpone your procedure, like Scottie said, they have their own scheduling difficulties.

    Chrisrenee - don't work to hard. I'm sure you are enjoying your DH being home.

    I've used my ankle weights on the Beast for 3 days. I can see my scale taking notice! The weights aren't uncomfortable at all, don't even know I have them on. Doctor said no more than 1 pound. The weights will strengthen the long bones in legs and hopefully make ostreposis (sp) less of a risk.

    Hugs to all. Enjoying my house full of company!

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  • Chrisrenee77
    Chrisrenee77 Member Posts: 1,032
    edited March 2013

    Shari- are you getting excited for Friday?! I'm excited for you.



    Believe- I'm enjoying him being home. We talked til 1130 last night which made me even more tired today. I actually slept over 45 min.



    Funny story I wore my NED bracelet today and I had a patent if NED was my husband. I said yep he's my new one. Ha

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  • Believe777
    Believe777 Member Posts: 576
    edited March 2013

    Chrisrenee - now that's funny!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2013

    Hello Fellow Warriors,

    It is always so nice to be able to "come home" to this site and read about everyone's days, struggles, wishes, suggestions and good thoughts.  You are all so kind, caring and loving.  I cannot imagine a day without my BCO "fix" and all of you.  Thanks to everyone for all that you bring to this thread for all of us.  It is simply amazing how much information we have to share and how much we all truly want to help each other.  I am halfway done with this stupid T/C chemo as of last week but it certainly was a hard one.  Nausea, dizziness, bone pain, itching, hair loss. etc.  I know we will all get through it and be stronger soon but boy can life be a bit** sometimes.   I am anxiously awaiting the upcoming Easter weekend and all of the goodies my Sis and I will be cooking.  I will declare right now in front of all of you and our Creator that "I totally intend to overindulge" in the wonderful food AND CHOCOLATE that will be filling the house and the kitchen soon.  Happy, Happy everyone and thanks again for being here!  Peace, Luv and Blessings.

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Chrisrenee .....love it too.....you need to rename DH NED now.....lol

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  • Scottiee1
    Scottiee1 Member Posts: 2,329
    edited March 2013

    Oh cmbernardi......I really shouldn't have read your post. 😱

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2013

    SHARI - Good luck tomorrow and let us know how we can help.  You are strong, you are brave and you are loved!

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  • Outdamnedspot
    Outdamnedspot Member Posts: 297
    edited March 2013

    I saw a licence plate today...748 NED!  What a gr8 pl8!

    Shari, will be thinking of you tomorrow and in your pocket of course, no snacks until you get out of recovery!  You will do just fine and we will be waiting to hear from you when you are able.xoxo

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  • Momof3GreatKids
    Momof3GreatKids Member Posts: 303
    edited March 2013

    Shari - you day is almost here! I will be in your pocket tomorrow and praying for an easy recovery for you.



    Tazmr - in your pocket tomorrow also. Good luck and let us know how you make out.



    Chrisrenee - I live it! Made me laugh.



    Hugs to everyone else that needs them tonight!!!!!

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  • Shari0707
    Shari0707 Member Posts: 448
    edited March 2013

    Thanks and love u all .. Can't even explain how much I appreciate all ur love and support

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  • Shari0707
    Shari0707 Member Posts: 448
    edited March 2013

    Will try and write tomorrow .. If I don't hear from me by middle of day, assume surgery is a go and be in my pockets for the surgery,,, know u r all there anyway!

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  • Believe777
    Believe777 Member Posts: 576
    edited March 2013

    Cmbernardi - I feel the same way about this group.

    Shari - you'd better ask for a large gown with big pockets! Sending you a PM.

    Hug to all.

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  • Aruba
    Aruba Member Posts: 543
    edited March 2013

    Shari. .. You got this and will come through with flying colors. Your pockets will be full! Good wishes flying your way. Tazzy. There with you too!!

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  • websister
    websister Member Posts: 1,092
    edited March 2013

    Shari - thinking of you this evening and in your pockets tomorrow!



    Tazzy - in your pockets tomorrow also



    Shianne - glad you got some painkillers and new cream, the area under my arm is broken down also and 'goopy', it's been improving this week but last week I was in tears a few times.



    Believe - I used your inside out cami with shelf bra today - it feels so much better than a bra! Thank you!



    Cmbernardi - glad you are looking forward to Easter, you got this one



    Everyone else - see you at the pocket parties tomorrow

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  • Shari0707
    Shari0707 Member Posts: 448
    edited March 2013

    Thanks Aruba, websister and everyone else.. Good night! Gonna b a long day tomorrow but I will go to sleep tomorrow night cancer free!

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  • iatigger
    iatigger Member Posts: 447
    edited March 2013

    Jumping in the pockets with everyone tomorrow! Positive thoughts going out to everyone.

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  • shianne29
    shianne29 Member Posts: 452
    edited March 2013

    Believe, I will ask at the pharmacy. I'm using those cold bag things... Yes they are wonderful!! I also have started putting my saline compresses around a small bag of peas, ohhh now THAT is soothing!! I have a nap most afternoons, and still sleep all night. 4 more, I am very ready for this to be over.



    Chrisrenee, that's too funny!!! Finally, a husband we all want!!!!!



    Carolyn, I couldn't agree more, Amen sister!



    Websister, I hope you become goop free soon



    I'm packing chocolate almonds for pocket parties!!! Who has the martinis?

    Sending love and strength!

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  • juneaubugg
    juneaubugg Member Posts: 951
    edited March 2013

    Shari: (((BIG HUGS)))

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  • LKSHER
    LKSHER Member Posts: 209
    edited March 2013

    I've been following your posts, Shari and will keep you and all the ladies in my thoughts tomorrow. Sending out lots of love and healing.



    I am finally drain free and had good appts with my team today. I even got 60 cc put in my TE. Going to try to sleep in my bed tonight next to my husband. Goodnight, all. xo

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  • schatzi14
    schatzi14 Member Posts: 1,647
    edited March 2013

    Shari...I am joining the others in your pockets!

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  • stride
    stride Member Posts: 470
    edited March 2013

    Make room in those pockets, I am jumping in!

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  • shianne29
    shianne29 Member Posts: 452
    edited March 2013

    HUGS TO SHARI!!! I pm'd you. Got get NED tiger!!!! You will breathe easy soon xo



    Rads #22 today. I think I feel better lol. My poor RO yesterday, I just remembered what he said when he walked into my room. "Awe, please don't cry, I hate making ladies cry. You're the third I've caused tears in today and its not even lunch!!" Lol, he looked like he was about to cry himself!!!



    Long weekend coming up ladies!!

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  • Joanne_53
    Joanne_53 Member Posts: 1,477
    edited March 2013

    Shari I am in the pocket party too.



    Shianne you are almost there ... Woohoo!

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